scholarly journals The Informal Social Support for Autonomy and Dependence in Pain Inventory Spanish version

Author(s):  
Rosa Esteve ◽  
Sonia F. Bernardes ◽  
Alicia E. López‐Martínez ◽  
Carmen Estela Martín‐Delgado ◽  
Carmen Ramírez‐Maestre

2018 ◽  
Author(s):  
Anne E. Kazak ◽  
Wei-Ting Hwang ◽  
Fang Fang Chen ◽  
Martha A. Askins ◽  
Olivia Carlson ◽  
...  


2017 ◽  
Vol 29 (2) ◽  
pp. 109-143 ◽  
Author(s):  
Charlotte F. A. Ingham ◽  
Fiona J. R. Eccles ◽  
Jocelyn R. Armitage


Author(s):  
Haoyi Guo ◽  
Steven Sek-yum Ngai

Urban China is witnessing a growth of migrant grandparents apart from the prevalent local grandparent caregiving. However, the health consequences and influencing factors of grandparent caregiving remain largely unknown among migrant and local grandparent caregivers. This study examined informal and formal social support’s mediation roles between domestic generative acts and life satisfaction, as well as investigating Hukou’s (household registration system) moderation effect. Our sample compromised 1013 grandparent caregivers (Migrant = 508, Local = 505) from 12 kindergartens with a multistage clustered random sampling from Eastern China. Migrant grandparent caregivers had significant lower informal social support (M = 4.000, L = 4.355, p < 0.001), formal social support (M = 1.787, L = 2.111, p < 0.001), and life satisfaction (M = 3.323, L = 3.574, p < 0.001) than local ones. Structural equation modeling results indicated that domestic generative acts positively associated with life satisfaction (b = 0.085, p < 0.05), informal (b = 0.223, p < 0.001) and formal social support (b = 0.080, p < 0.05); informal (b = 0.379, p < 0.001) and formal social support (b = 0.138, p < 0.001) positively associated with life satisfaction. In addition, both informal (β = 0.084, CI [0.039, 0.101], p < 0.001) and formal social support (β = 0.011, CI [0.001, 0.018], p < 0.05) mediated the relationship between domestic generative acts and life satisfaction. Furthermore, Hukou status moderated the indirect path from domestic generative acts to life satisfaction via informal social support (p < 0.01), but not formal social support (p > 0.05). Migrant grandparent caregivers, with limited formal social support resources, were found to be more dependent on informal social support than locals. The findings revealed social support and wellbeing disparities among migrant and local grandparent caregivers in urban China. Theoretical contributions and practical implications are also discussed.





Author(s):  
Christina N. Marsack-Topolewski

This study sought to explore the mediating effect of informal social support on the relationship between caregiver burden and quality of life among compound and noncompound caregivers. Parents ( N = 320) completed a web-based survey aimed to examine effects of caring for an adult child with autism spectrum disorder. Results of the mediation analysis suggested that informal social support partially mediated the relationship between caregiver burden and quality of life for both groups. Informal social support appears to be more impactful for noncompound caregivers compared with compound caregivers based on a greater reduction in explained variance. These results highlight the importance of informal social support as caregivers juggle ongoing challenges to provide care to one or more care recipients.



2018 ◽  
Vol 59 (6) ◽  
pp. 1112-1121 ◽  
Author(s):  
Christina N Marsack ◽  
Faith P Hopp

Abstract Background and Objectives Many adults with autism spectrum disorders require lifelong reliance on caregiver support. As these caregivers age and experience health challenges, social support can be critical. This study seeks to understand if caregiver health moderates the relationship between informal social support and caregiver burden. Research Design and Methods A total of 320 parents (age 50+ years) of adult children diagnosed with ASD were recruited from autism organizations and support groups and completed a web-based survey. Separate moderation analyses were used to determine if caregiver health was moderating the relationship between informal social support and composite caregiver burden, as well as the separate domains of developmental, time dependence, emotional burden, and impact of caregiving on finances. For each analysis, perceptions of available informal social support were the independent variable, composite and domains of caregiver burden were dependent variables, and parents’ self-reported general health was the moderating variable. Results Caregiver health had a statistically significant moderating effect when predicting the relationships between informal social support and composite caregiver burden, as well as time dependence burden and impact of caregiving on finances. Discussion and Implications Increased attention should be focused on supporting the current and future needs of both aging caregivers and their adult children with ASD. Future research on the dynamics of social support, health, and burden is also urgently needed to address the growing number of aging caregivers of adults diagnosed with ASD.



2018 ◽  
Vol 21 (6) ◽  
pp. 647-656 ◽  
Author(s):  
Marcello Barbosa Otoni Gonçalves Guedes ◽  
Kenio Costa Lima ◽  
André Luiz Lima ◽  
Thais Sousa Rodrigues Guedes

Abstract Objectives: to construct and carry out content (CV) and response process (RPV) validation for a questionnaire to assess informal social support for the elderly. Method: a descriptive, observational, quantitative study was performed between January and December 2016 in the city of Natal (Rio Grande do Norte) and other locations in Brazil. The inclusion criteria were: proven experience in the area of social support (for experts) or 60 years of age or older and with preserved cognitive status (for the elderly). The CV stage evaluated the relevance of the items according to the general Content Validity Index (CVI) and per item as well as the assembly of the panel based on the observations of the experts. In the RPV stage, the understanding of the items by the target audience was evaluated. Results: the CV stage included a total of 40 interviewees. The overall CVI was 0.88 and only one item had a CVI considered poor. In the RPV stage 41 people were interviewed. Conclusion: the questionnaire exhibited good relevance for the proposed items and the observations of the interviewees allowed an approximation of the language used in the instrument to the language of the elderly.





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