A web‐based therapeutic patient education intervention for pain and sleep for women with fibromyalgia: A sequential exploratory mixed‐methods research protocol

2020 ◽  
Vol 76 (6) ◽  
pp. 1425-1435
Author(s):  
Carolina Climent‐Sanz ◽  
Montserrat Gea‐Sánchez ◽  
María T. Moreno‐Casbas ◽  
Joan Blanco‐Blanco ◽  
Ester García‐Martínez ◽  
...  
BMJ Open ◽  
2018 ◽  
Vol 8 (10) ◽  
pp. e022273 ◽  
Author(s):  
Ai Wen Chan ◽  
Petra Skeffington ◽  
Corinne Reid ◽  
Rhonda Marriott

IntroductionAdopting a process-oriented framework for test validation can help to establish whether this tool has the potential to be an acceptable, valid and reliable indicator of depression for mothers and mothers-to-be. This mixed-methods research protocol seeks to explore the views and experiences of Aboriginal mothers and healthcare professionals in relation to the Edinburgh Postnatal Depression Scale (EPDS), and is intended to highlight potential barriers in perinatal mental health conceptualisation, engagement and response style.Methods and analysisThematic analysis will be applied to interview transcripts of Aboriginal Australian mothers (n=6+) and healthcare professionals (n=6+) to identify key themes. The process-focused validation model will use narratives about experiences of using the EPDS as the priority point of analysis. Item-level data and process-level (experience) data are key phenomenological data. The interview-based narratives will be then compared with EPDS scores to check for points of congruence and divergence. This will be done at two time points, antenatally and postnatally, to assess changes in assessment processes and perceptions. Bridging evidence-based research with clinical practice in an Aboriginal Australian context will be facilitated by an investigation of the perceived cultural relevance and likely clinical effectiveness of EPDS. Such evidence is critical to understanding whether the EPDS fulfils its intended purpose. The guiding principles in designing this research protocol is to benefit the well-being of young Aboriginal families and communities through partnership with Aboriginal women.Ethics and disseminationEthics approval was obtained from Human Research Ethics Committee of Murdoch University and from Western Australian Aboriginal Health Ethics Committee (WAAHEC). Participating healthcare sites and services have provided letters of support. Results of this study will be submitted for publication in a peer-reviewed journal.


2021 ◽  
Author(s):  
Suzanne Fredericks ◽  
Géraldine Martorella ◽  
Erone Newman ◽  
B. Swart

The effectiveness of written education materials have been examined across the cardiovascular surgical setting. Inconsistent findings have indicated minimal changes to patient outcomes. The absence of significant findings may be due to the lack of control patients have over the frequency in which they can access information, the amount and type of content they are able to peruse, and the actual time the materials can be reviewed. A complement to in-hospital patient educational interventions is web-based patient education, accessed during the home discharge period. This discursive paper presents a summary of a planned web-based patient education intervention that has been designed for use by a predominantly elderly population. In particular, modifications to account for reduced visibility, decreased hearing, and onset of physical impairment are discussed.


Trials ◽  
2018 ◽  
Vol 19 (1) ◽  
Author(s):  
Monica Taljaard ◽  
Charles Weijer ◽  
Jeremy M. Grimshaw ◽  
Adnan Ali ◽  
Jamie C. Brehaut ◽  
...  

2021 ◽  
Author(s):  
Suzanne Fredericks ◽  
Géraldine Martorella ◽  
Erone Newman ◽  
B. Swart

The effectiveness of written education materials have been examined across the cardiovascular surgical setting. Inconsistent findings have indicated minimal changes to patient outcomes. The absence of significant findings may be due to the lack of control patients have over the frequency in which they can access information, the amount and type of content they are able to peruse, and the actual time the materials can be reviewed. A complement to in-hospital patient educational interventions is web-based patient education, accessed during the home discharge period. This discursive paper presents a summary of a planned web-based patient education intervention that has been designed for use by a predominantly elderly population. In particular, modifications to account for reduced visibility, decreased hearing, and onset of physical impairment are discussed.


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