Use of traditional therapies in palliative care for Australian First Nations peoples: An integrative review

Author(s):  
Erin Joanne Rooney ◽  
Amanda Johnson ◽  
Sarah Yeun‐Sim Jeong ◽  
Rhonda L. Wilson
2020 ◽  
Author(s):  
Cecilia Widberg ◽  
Birgitta Wiklund ◽  
Anna Klarare

Abstract Background: With a growing world population, a longer life expectancy, and more deaths due to chronic diseases, the need for palliative care is increasing. E-Health involves the use of information and communication technology to provide care, and also to transmit health information through the Internet and related technologies. E-Health can be an effective way of supporting communication between patient and healthcare providers, but it is unclear to how patients regard information and communication technology (ICT) within palliative careMethods: The aim of this study was to describe patients’ experiences of eHealth in palliative care. An integrative review with a systematic literature search of six databases: Cinahl Complete; MEDLINE with Full Text; PubMed; Psychology and Behavioral Sciences Collection; Nursing and Allied Health; and PsycINFO generated 12 scientific articles. The articles were evaluated, data extracted, analyzed and synthesized, according to the aim.Results: The results are presented in the main theme: E-health applications – promoting communication on patients’ and families’ terms, and three sub- themes: usability and feasibility of eHealth applications; symptom control and individualized care promoted through eHealth applications; and use of eHealth applications increased sense of security and patient safety. Patients described ease of use, usability and feasibility of eHealth applications. Equal and individualized care, security, better symptom management, participation through increased accessibility and increased patient safety were described.Conclusions: E-Health applications promoted equal, individualized care, and may be a tool to promote accessibility and patient participation in palliative care settings. Furthermore, care transparency increased with eHealth communication when patients and families received more information, and experiences were that patient safety and feelings of security also were promoted. At organizational and societal levels, eHealth may contribute to sustainable development and more efficient use of resources in palliative care.


2018 ◽  
Vol 5 (1) ◽  
pp. 3
Author(s):  
Owen Doody ◽  
Maria E Bailey ◽  
Sue Moran ◽  
Kate Stewart

2020 ◽  
Vol 6 (8) ◽  
pp. 63874-63890
Author(s):  
Ana Paula Ribeiro de Oliveira ◽  
Lívia Pereira Ferreira ◽  
Alexander de Quadros ◽  
Morgana Thais Carollo Fernandes ◽  
Amanda Pereira Ferreira Dellanhese

2020 ◽  
Vol 35 (8) ◽  
pp. 1110-1129
Author(s):  
Atsede Aregay ◽  
Margaret O’Connor ◽  
Jill Stow ◽  
Nicola Ayers ◽  
Susan Lee

Abstract Globally, 40 million people need palliative care; about 69% are people over 60 years of age. The highest proportion (78%) of adults are from low- and middle-income countries (LMICs), where palliative care still developing and is primarily limited to urban areas. This integrative review describes strategies used by LMICs to establish palliative care in rural areas. A rigorous integrative review methodology was utilized using four electronic databases (Ovid MEDLINE, Ovid Emcare, Embase classic+Embase and CINAHL). The search terms were: ‘palliative care’, ‘hospice care’, ‘end of life care’, ‘home-based care’, ‘volunteer’, ‘rural’, ‘regional’, ‘remote’ and ‘developing countries’ identified by the United Nations (UN) as ‘Africa’, ‘Sub-Saharan Africa’, ‘low-income’ and ‘middle- income countries’. Thirty papers published in English from 1990 to 2019 were included. Papers were appraised for quality and extracted data subjected to analysis using a public health model (policy, drug availability, education and implementation) as a framework to describe strategies for establishing palliative care in rural areas. The methodological quality of the reviewed papers was low, with 7 of the 30 being simple programme descriptions. Despite the inclusion of palliative care in national health policy in some countries, implementation in the community was often reliant on advocacy and financial support from non-government organizations. Networking to coordinate care and medication availability near-patient homes were essential features of implementation. Training, role play, education and mentorship were strategies used to support health providers and volunteers. Home- and community-based palliative care services for rural LMICs communities may best be delivered using a networked service among health professionals, community volunteers, religious leaders and technology.


2019 ◽  
Vol 82 ◽  
pp. 58-66 ◽  
Author(s):  
Kateřina Ratislavová ◽  
Radka Bužgová ◽  
Jana Vejvodová

2021 ◽  
Author(s):  
Silva Dakessian Sailian ◽  
Yakubu Salifu ◽  
Rima Saad ◽  
Nancy Preston

Abstract Background: Patients with palliative needs experience high psychological and symptom distress that may lead to hopelessness and impaired sense of dignity. Maintaining patient dignity or the quality of being valued is a core aim in palliative care. The notion of dignity is often explained by functionality, symptom relief and autonomy in decision making. However, this understanding and its implications in Middle Eastern countries is not clear.The aim of this review is to 1) explore the understanding of dignity and how dignity is preserved in adult patients with palliative care needs in the Middle East 2) critically assess the findings against the Dignity Model dominant in western literature.Method: Using an integrative review we searched four databases EMBASE, Psych-Info, CINAHL, and PubMed. These databases retrieve a broad literature on palliative care and are often chosen in other palliative care reviews. To enhance the search strategy, three online journals were hand searched, reference lists of review papers scanned, and forward citations sought. No time limits were applied. The retrieved papers were assessed independently by two authors including quality assessment using the Hawker’s appraisal tool.Results: Out of the 5113 studies retrieved, 294 full texts were assessed. Sixteen studies were included for synthesis of which fourteen were published in Iran. Seven themes were developed after data analysis: Maintaining Privacy and Secrecy; Gentle communication with a dialogue that preserves hope instead of blunt truth-telling; Abundance characterised by accessibility to medical supplies and financial stability; Family Support where relatives deliver major assistance in care; Physical Fitness; Reliable health care, and Social justice that endorses equal care to all.Conclusion: The results are compatible with the existing evidence from the Dignity Model ascertaining that dignity is socially mediated and influenced by interactions and physical fitness. Nevertheless, the findings highlight that patient dignity is also shaped by the socio-political, cultural, and economic conditions of the country, where family support, gentle communication and accessible health care are essential elements.


2019 ◽  
Vol 18 (3) ◽  
Author(s):  
Alexandre Ernesto Silva ◽  
Patrícia Pinto Braga ◽  
Roseni Rosângela de Sena ◽  
Elysângela Dittz Duarte ◽  
Lorena Rodrigues de Sena

Objetivo:Analisar produções científicas nacionais e internacionais que apresentam vivências do cotidiano de cuidados prestados pelos cuidadores e profissionais de saúde nos cuidados paliativos domiciliares. Método:Trata-se de uma revisão integrativa nas bases de dados Lilacs, CINAHL, PubMed, IBECS, BDENF e Coleciona SUS de artigos publicados entre janeiro de 2005 a março de 2019. A amostra final de artigos analisados foi composta de42 artigos. Resultados:Os estudos evidenciaram sentimentos dos cuidadores de familiares como o medo, angústia, sobrecarga e gratidão no cotidiano de cuidados ao ente adoecido;as principais dificuldades vivenciadas referem-se ao acesso a serviços de apoio,à aquisição de medicamentos pelos prestadores de assistência bem como ao uso de estratégias para a eficácia dos cuidados paliativos domiciliares.Conclusão:A análise evidenciou que há necessidade de construção de cuidado integral a pacientes e cuidadores, produção de evidências sobre as práticas profissionais dispensadas a este público, melhor organização da rede de apoio e acesso a medicamentos.


2021 ◽  
pp. 026921632110471
Author(s):  
Paula Sapeta ◽  
Carlos Centeno ◽  
Alazne Belar ◽  
María Arantzamendi

Background: Coping is essential to manage palliative care professionals’ challenges. The focus has been on the effects of coping mechanism; however, little is known about coping itself in palliative care. Aim: To synthesise evidence of coping strategies in palliative care professionals, and how different strategies play roles over time. Design: Systematically conducted integrative review. Data sources: PubMed; CINAHL; Medline; PsycINFO and B-ON were searched (1996–2021) combining ‘coping’ AND ‘palliative care’. A predefined data extraction sheet was developed to report data. Two researchers performed constant comparative analysis using Nvivo®. Results: Thirty-one studies were included. Four main strategies with recurrent reference to time were found: (a) proactive coping, involving activities to achieve self-confidence and control situations and emotions; (b) self-care based coping, including self-protection and self-awareness activities, with behavioural disconnection; (c) self-transformation coping, involving activities to accept limits; and (d) encountering deep professional meaning, is a coping mechanism based on meaning, frequently considering the deepest meaning of work. The dynamic and influencing factors were training, team interaction, professional motivation and family. They were usually protective factors, though sometimes they represented risk factors. The emotional burden associated with healthcare and systemic stressors were always risk factors. An explanatory model describes a complex and dynamic process, in which everyday strategies and more introspective strategies are combined. Conclusions: The model showed a process of adaptation and learning to persevere in palliative care. It changes over time under factors and strategies, and evolves in a personal and professional transformation, parallel to the working life. It would be worth assessing coping in healthcare professionals who chose to leave palliative care and to investigate the reasons they did so and their coping mechanisms.


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