scholarly journals PARE0017 THE DREAMCATCHER – AN INNOVATIVE TOOL FOCUSING ON POSSIBILITIES INSTEAD OF LIMITATIONS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1294.1-1294
Author(s):  
C. Helin Hollstrand ◽  
K. Nilke Nordlund
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Rheumatic Disease ◽  
Health Care Professionals ◽  
Behavioral Science ◽  
Resource Planning ◽  
Pain Scale ◽  
Digital Tool ◽  
Starting Point ◽  
National Quality

Background:With the launch of The Swedish Young Rheumatics Report in April of 2018, we also presented new way of thinking and a tool called the Dreamscale, our complement to the traditional VAS scale used to assess pain. In October of 2018, we organized a workshop together with communication consults where we invited some of our members in different ages and health care professionals working with children, youths and young adults with rheumatic diseases, to try and reach a joint definition of what the Dreamscale is and could be, as we saw its huge potential. This is where the idea of the Dreamcatcher was born.Objectives:The objective is to create an innovative digital tool for young people with rheumatic disease. It takes its starting point in what is healthy and what is possible, rather than focusing on sickness and limitations. Using behavioral science, nudging and social functions, the Dreamcatcher has the potential to lower the barriers to living an active lifestyle, while also serving as a tool for dialogue with health care professionals, resulting in more efficient meetings, better resource planning and the gathering of valuable data to the national quality registers. It is also a digital tool with a big potential for development thanks to its open source code and its focus on enabling activity and participation, there is an obvious potential to develop its functions to also serve other actors and patient groups.Methods:We teamed up with communication bureau Gullers Grupp, pharmaceutical company Pfizer, and two health care clinics in Stockholm, one for children and youths with rheumatic disease and one for adults, and received funding for one year of development from Vinnova, the Swedish innovation authority, in April of 2019. We started the project by conducting a study to try and narrow down what focuses the Dreamcatcher should have. The pilot study contains both workshops with patients, both children, youths and young adults, and with teams of health care professionals, as well as more in-depth interviews with both patients and health care professionals. Based on the study, we will develop a prototype of what the Dreamcatcher could look like, and it will most likely be an application used for smartphones.Results:The study narrows down the Dreamcatcher into three things: the Dreamscale, Dream data, and the Dream collective.The Dreamscaleis as previously explained a complement to the traditional pain-scale and a tool for patients to set goals towards their dreams, and for patients and health care professionals to co-plan care and medical treatment based on what’s most important to the patient.Dream datais where patients can self-track their disease, data which is also available for the health care to view and therefore to be better prepared before meeting with the patient. It is also a goal to have the Dream data transferred to the national quality registers.The Dream collectiveis a social function where patients using the app can connect and get inspired by each other. It is a place to share your dreams and build a community to show that rheumatic disease isn’t something that should ever stop you from going after your dreams!Conclusion:The prototype of the Dreamcatcher will be presented in May of 2020 and we think this it has great potential to help shift focus withing health care, to not just focusing on sickness and limitations but rather on dreams, joy of life and possibilities!References:[1]https://ungareumatiker.se/nytt-digitalt-patientverktyg-unga-reumatiker-tar-fram-dromfangaren/[2]https://www.youtube.com/watch?v=zD6PwSKeb8IDisclosure of Interests:None declared

scholarly journals N08 IBD Home at GHP Stockholm Gastro Center in Sweden

2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S661-S661
Author(s):  
S Jäghult
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Biological Treatment ◽  
Clinical Work ◽  
Point Of View ◽  
Close Monitoring ◽  
Digital Tool ◽  
Quality Registry ◽  
Home Test ◽  
National Quality

Abstract Background Patients with IBD and with biological treatment often need close monitoring. In this study, a digital tool was used to meet the patients′ need and increase their participation. IBD Home is a cell phone application that is connected to the national quality registry, SWIBREG. It offers the patients to register their symptoms and to perform a home-test of faecal kalprotectin, the result transmitted directly to the registry. At the Stockholm Gastro Center we decided to offer inclusion in IBD Home to all patients on biological treatment. The aim of this study was to investigate the functionality of IBD Home from the patients and the health care professionals point of view, and to investigate if the patients experienced an increased participation by monitoring with IBD Home. Methods In March 2018, a letter with information about IBD Home and an offer to use the tool was sent to all patients with biological treatment. A letter of reminder was sent after two months. Those who accepted were included and got information about how to download the application. In December, both patients and health care professionals got a questionnaire concerning IBD Home. Results A total of 166 patients on biological treatment were offered monitoring by IBD Home and 89 (53%) accepted. When answering the evaluation, 79 patients were active in using IBD Home. Causes for inactivity were stated as: too old phone model (n = 1), technical differences (n = 2), worries concerning the security of the system (n = 1), and others e.g. ‘forgotten about it’ and ‘did not find the time to do it’. Only 27 patients (34%) left home-test faecal kalprotectin on a regular basis. The questionnaire was answered by 27 patients (34%). The majority (n = 24) stated that it was easy to install IBD Home. A total of nine patients noted that their participation in their own health care had increased, while the majority (n = 16) stated that there was no difference. A total of five nurses and three gastroenterologists answered the questionnaire. Those using the manual for including patients in IBD Home and the manual to interpret values expressed them to be very clear or fairly clear (n = 4). Four health care professionals had never used the manuals. The majority (n = 6), had used IBD Home in the clinical work and regarded it as useful. Conclusion Patients using IBD Home experiences the tool to be very easy to use but most of them did not experience any improvements concerning participation in their own care. The response rate was however low. It may be some difficulties to get started with the home-test faecal kalprotectin since only 34% are using it on a regular basis. The health care professionals using IBD Home in their clinical work found it useful.

scholarly journals An e-Prehabilitation System of Care for Teenagers and Young Adults Diagnosed With Cancer: Protocol for a Qualitative Co-Design Study (Preprint)

2018 ◽  
Author(s):  
Lisa McCann ◽  
Kathryn A McMillan ◽  
Christopher Hewitt
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Data Collection ◽  
Health Care Professionals ◽  
Information Provision ◽  
System Of Care ◽  
Design Study ◽  
Care Experience ◽  
Accessible Information ◽  
Teenagers And Young Adults

BACKGROUND A diagnosis of cancer in young adulthood can pose many different and unique challenges for individuals. The provision of adequate and appropriate information as well as care and support for teenagers and young adults at the time of diagnosis is central to their health care experience going forward. Moreover, appropriate and accessible information provision is critical to ensure that young individuals with cancer feel equipped and empowered to make decisions about, and be involved in, their treatment and recovery throughout their experience; this is a concept known as prehabilitation. As digital interventions and resources that support teenagers and young adults with cancer are an increasingly desirable part of health care provision, this study will focus on the development of an age- and population-appropriate electronic prehabilitation (e-Prehabilitation) system of care. OBJECTIVE We will conduct an exploratory, co-design research project that will inform the development of an e-Prehabilitation system of care to support teenagers and young adults diagnosed with cancer. A collaborative approach to data collection and prototype design will ensure that a patient-centered approach is embedded throughout. METHODS A qualitative, co-design study utilizing surveys, interviews, and focus group discussions is being conducted with teenagers and young adults, health care professionals, and technologists. RESULTS This research study is in progress; recruitment and data collection activities have commenced and findings are expected in early 2019. CONCLUSIONS The findings of this study will have important implications for informing the future development and evaluation of an e-Prehabilitation system of care to support teenagers and young adults diagnosed with cancer. REGISTERED REPORT IDENTIFIER RR1-10.2196/10287

Prospective sensemaking of a national quality register in health care and elderly care

2018 ◽  
Vol 31 (4) ◽  
pp. 398-408 ◽  
Author(s):  
Annika Maria Margareta Nordin ◽  
Boel Andersson Gäre ◽  
Ann-Christine Andersson
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Elderly Care ◽  
Content Type ◽  
Sensemaking Theory ◽  
Quality Register ◽  
Novel Approach ◽  
Quality Aspects ◽  
National Quality ◽  
National Quality Register

Purpose The purpose of this paper is to examine how external change agents (ECAs) engaged to disseminate a national quality register (NQR) called Senior alert nationwide in the Swedish health care and elderly care sectors interpret their work. To study this, sensemaking theories are used. Design/methodology/approach This is a qualitative inductive interview study including eight ECAs. To analyze the data, a thematic analysis is carried out. Findings Well-disseminated NQRs support health care organizations’ possibility to work with quality improvement and to improve care for patient groups. NQRs function as artifacts that can influence how health care professionals make sense of their work. In this paper, a typology depicting how the ECAs make sense of their dissemination work has been developed. The ECAs are engaged in prospective sensemaking. They describe their work as being about creating future good results, both for patients and affiliated organizations, and they can balance different quality aspects. Originality/value The number of NQRs increased markedly in Sweden and elsewhere, but there are few reports on how health care professionals working with the registers interpret their work. The use of ECAs to disseminate NQRs is a novel approach. This paper describes how the ECAs are engaged in prospective sensemaking – an under-researched perspective of the sensemaking theory.

Differences in Medical Care Usage between Two Mass-Gathering Sporting Events

2012 ◽  
Vol 27 (5) ◽  
pp. 458-462 ◽  
Author(s):  
James O. Burton ◽  
Stephen J. Corry ◽  
Gareth Lewis ◽  
William S. Priestman
Keyword(s):  
Health Care ◽  
Medical Care ◽  
Health Care Professionals ◽  
Resource Planning ◽  
Level Of Care ◽  
Sporting Events ◽  
Mass Gathering ◽  
Publication Type ◽  
Sports Events ◽  
Usage Rates

AbstractBackgroundEvent planning for mass gatherings involves the utilization of methods that prospectively can predict medical resource use. However, there is growing recognition that historical data for a specific event can help to accurately forecast medical requirements. This study was designed to investigate the differences in medical usage rates between two popular mass-gathering sports events in the UK: rugby matches and horse races.MethodsA retrospective study of all attendee consultations with the on-site medical teams at the Leicester Tigers Rugby Football Club and the Leicester Racecourse from September 2008 through August 2009 was undertaken. Patient demographics, medical usage rates, level of care, as well as professional input and the effects of alcohol use were recorded.ResultsMedical usage rates were higher at the Leicester Racecourse (P < .01), although the demographics of the patients were similar and included 24% children and 16% staff. There was no difference in level of care required between the two venues with the majority of cases being minor, although a higher proportion of casualties at the Leicester Tigers event were seen by a health care professional compared with the Leicester Racecourse (P < .001). Alcohol was a contributing factor in only 5% of consultations.ConclusionsThese two major sporting venues had similar attendance requirements for medical treatment that are comparable to other mass-gathering sports events. High levels of staff and pediatric presentations may have an impact on human resource planning for events on a larger scale, and the separation of treatment areas may help to minimize the number of unnecessary or opportunistic reviews by the on-site health care professionals.BurtonJO, CorrySJ, LewisG, PriestmanWS. Differences in medical care usage between two mass-gathering sporting events. Prehosp Disaster Med.2012;27(4):1-5.

Improving care coordination using organisational routines

2016 ◽  
Vol 30 (1) ◽  
pp. 85-108 ◽  
Author(s):  
Thim Prætorius
Keyword(s):  
Health Care ◽  
Care Coordination ◽  
Health Care Professionals ◽  
Explanatory Power ◽  
Care Pathways ◽  
Content Type ◽  
Starting Point ◽  
Organisational Routines ◽  
Coordination Change ◽  
The Way

Purpose – The purpose of this paper is to systematically apply theory of organisational routines to standardised care pathways. The explanatory power of routines is used to address open questions in the care pathway literature about their coordinating and organising role, the way they change and can be replicated, the way they are influenced by the organisation and the way they influence health care professionals. Design/methodology/approach – Theory of routines is systematically applied to care pathways in order to develop theoretically derived propositions. Findings – Care pathways mirror routines by being recurrent, collective and embedded and specific to an organisation. In particular, care pathways resemble standard operating procedures that can give rise to recurrent collective action patterns. In all, 11 propositions related to five categories are proposed by building on these insights: care pathways and coordination, change, replication, the organisation and health care professionals. Research limitations/implications – The paper is conceptual and uses care pathways as illustrative instances of hospital routines. The propositions provide a starting point for empirical research. Practical implications – The analysis highlights implications that health care professionals and managers have to consider in relation to coordination, change, replication, the way the organisation influences care pathways and the way care pathways influence health care professionals. Originality/value – Theory on organisational routines offers fundamental, yet unexplored, insights into hospital processes, including in particular care coordination.

scholarly journals Substance Addicted Mothers Need Multidisciplinary Treatment Modalities

2017 ◽  
Vol 1 (1) ◽  
Keyword(s):  
United States ◽  
Health Care ◽  
Substance Use ◽  
Young Adults ◽  
Pregnant Women ◽  
Health Care Professionals ◽  
Multidisciplinary Treatment ◽  
Marijuana Use ◽  
Treatment Modalities

Substance use during pregnancy is not so rare as health care professionals could easily expect. Actually, 6 % of pregnant women have some misuse during pregnancy. Marijuana use has been in the news lately and when attitudes toward it have become more tolerant especially among young adults and use is becoming more popular, it is no surprise use also during pregnancy is coming more prevalent. In United States, 0.88 % of women use it during pregnancy [1].

scholarly journals Health Care Professionals’ Experience of a Digital Tool for Patient Exchange, Anamnesis, and Triage in Primary Care: Qualitative Study (Preprint)

2020 ◽  
Author(s):  
Ann Catrine Eldh ◽  
Annette Sverker ◽  
Preben Bendtsen ◽  
Evalill Nilsson
Keyword(s):  
Primary Care ◽  
Health Care ◽  
Qualitative Study ◽  
Health Care Professionals ◽  
Communication System ◽  
Digital Literacy ◽  
Digital Communication ◽  
Digital Tool ◽  
Use Of Resources ◽  
Digital Communication System

BACKGROUND Despite a growing body of knowledge about eHealth innovations, there is still limited understanding of the implementation of such tools in everyday primary care. OBJECTIVE The objective of our study was to describe health care staff’s experience with a digital communication system intended for patient-staff encounters via a digital route in primary care. METHODS In this qualitative study we conducted 21 individual interviews with staff at 5 primary care centers in Sweden that had used a digital communication system for 6 months. The interviews were guided by narrative queries, transcribed verbatim, and subjected to content analysis. RESULTS While the digital communication system was easy to grasp, it was nevertheless complex to use, affecting both staffing and routines for communicating with patients, and documenting contacts. Templates strengthened equivalent procedures for patients but dictated a certain level of health and digital literacy for accuracy. Although patients expected a chat to be synchronous, asynchronous communication was extended over time. The system for digital communication benefited assessments and enabled more efficient use of resources, such as staff. On the other hand, telephone contact was faster and better for certain purposes, especially when the patient’s voice itself provided data. However, many primary care patients, particularly younger ones, expected digital routes for contact. To match preferences for communicating to a place and time that suited patients was significant; staff were willing to accept some nuisance from a suboptimal service—at least for a while—if it procured patient satisfaction. A team effort, including engaged managers, scaffolded the implementation process, whereas being subjected to a trial without likely success erected barriers. CONCLUSIONS A digital communication system introduced in regular primary care involved complexity beyond merely learning how to manage the tool. Rather, it affected routines and required that both the team and the context were addressed. Further knowledge is needed about what factors facilitate implementation, and how. This study suggested including ethical perspectives on eHealth tools, providing an important but novel aspect of implementation.

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