scholarly journals Characteristics of activity-based therapy interventions for people living with spinal cord injury or disease across the continuum of care: a scoping review protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (7) ◽  
pp. e040014
Author(s):  
Anita Kaiser ◽  
Katherine Chan ◽  
Maureen Pakosh ◽  
Kristin E Musselman

IntroductionIndividuals living with spinal cord injury and disease (SCI/D) experience sensory and motor impairments below their neurological level of injury. Activity-based therapies (ABT) are interventions that provide activation of the neuromuscular system below the level of lesion with the goal of retraining the nervous system to recover a specific motor task. ABT can lead to increased function and improved quality of life; however, research and clinical settings currently lack tools to track participation in ABT. As a first step towards developing such a tool, a scoping review will be conducted with the objective of identifying the characteristics of ABT that individuals with SCI/D participate in across the continuum of care.Methods and analysisThe review will follow the Joanna Briggs Institute scoping review framework. Studies that involve at least two sessions of ABT for individuals with SCI/D aged ≥16 years will be included. Seven databases were searched from their inception to 4 March 2020: Medline, Embase, Emcare, Cumulative Index to Nursing and Allied Health Literature, APA PsycINFO, Physiotherapy Evidence Database, Cochrane Database of Systematic Reviews and the Cochrane Central Register of Controlled Trials. The search will be rerun in November 2020 prior to manuscript submission. Screening of titles and abstracts will be followed by a review of full texts to identify articles meeting inclusion criteria. Stakeholders will be consulted for the creation of the data extraction table. The Downs and Black Checklist or the Mixed Methods Appraisal Tool will be used to assess article quality. Results will be reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews checklist.Ethics and disseminationEthical approval is not required for this scoping review. Study findings will be shared with key stakeholder groups through academic, clinical and public venues.

2017 ◽  
Vol 42 (1) ◽  
pp. 51-56 ◽  
Author(s):  
Seema Sikka ◽  
Angela Vrooman ◽  
Librada Callender ◽  
David Salisbury ◽  
Monica Bennett ◽  
...  

1999 ◽  
Vol 5 (3) ◽  
pp. 11-20 ◽  
Author(s):  
Roxanne Hauber ◽  
Michael Jones ◽  
Ann Temkin ◽  
Susan Vesmarovich ◽  
Victoria Phillips

2019 ◽  
Author(s):  
SONTI PILUSA ◽  
Myezwa Hellen ◽  
Potterton Joanne

Abstract Background Long-term rehabilitation that includes preventive care for people with spinal cord injury is key to promoting health. There is evidence that secondary health conditions (SHCs) are prevalent complications across the continuum of care for people with spinal cord injury, leading to recurrent hospitalization and poor quality of life. In order to develop a context-based prevention model of care and strategies in South Africa, there is a need to understand the lived experiences of people with spinal cord injury (SCI).Aim To describe people with spinal cord injury’s experiences of secondary health conditions and the impact these have on their wellbeing.Methods A qualitative descriptive design using semi-structured interviews was adopted. Purposive sampling was used to collect data from 17 participants with SCI who attend outpatient medical care at a tertiary rehabilitation hospital in Gauteng, South Africa. Primary data were collected from August 2018-July 2019. All interviews were transcribed verbatim and analysed using a thematic analysis approach.Results People with spinal cord injury experience a range of secondary health conditions, of which pain, bowel and bladder issues were the most common. The presence of SHCs had an impact on the psychological, physical and social wellbeing of the participants.Conclusion There is a need for prevention interventions (health education and screening) for SHCs throughout the continuum of care and at all levels of prevention. Further research on factors influencing the prevention and management of SHCs is needed.


Injury ◽  
2018 ◽  
Vol 49 (8) ◽  
pp. 1552-1557 ◽  
Author(s):  
Sarah Kleemann ◽  
Ian Mosley ◽  
Mark Fitzgerald

2016 ◽  
Vol 97 (10) ◽  
pp. e111
Author(s):  
Seema Sikka ◽  
Librada Callender ◽  
Angela Vrooman ◽  
David Salisbury ◽  
Simon Driver ◽  
...  

2021 ◽  
Vol 17 (3) ◽  
pp. 105-112
Author(s):  
Marianne Pearl Gregorio ◽  
Kiran Pohar Manhas ◽  
Katelyn Brehon ◽  
Marcus Vaska ◽  
Glenda Moore ◽  
...  

Background: Spinal cord injury (SCI) impacts quality of life. Clinical practice guidelines (CPG) for comprehensive SCI care are not completely agreed upon, leading to considerable variability in care and patient outcomes. Aims: We aim to summarise and critically evaluate existing CPGs for the care of patients with SCI at the acute and post-acute phase of their care, and to identify gaps in guidance for nursing and multidisciplinary care. Methods: The scoping review protocol was directed by the Joanna Briggs Institute (JBI) guidelines and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) reporting guideline. Some 13 databases will be searched for eligible CPGs. Two independent reviewers will screen and extract data using pre-specified eligibility criteria. The quality of CPGs will be appraised using the AGREE II tool.


2021 ◽  
pp. 219256822098198
Author(s):  
Sepehr Khosravi ◽  
Amirmahdi Khayyamfar ◽  
Milad Shemshadi ◽  
Masoud Pourghahramani Koltapeh ◽  
Mohsen Sadeghi-Naini ◽  
...  

Study Design: Scoping review. Objectives: To identify a practical and reproducible approach to organize Quality of Care Indicators (QoCI) in individuals with traumatic spinal cord injury (TSCI). Methods: A comprehensive literature review was conducted in the Cochrane Central Register of Controlled Trials (CENTRAL) (Date: May 2018), MEDLINE (1946 to May 2018), and EMBASE (1974 to May 2018). Two independent reviewers screened 6092 records and included 262 full texts, among which 60 studies were included for qualitative analysis. We included studies, with no language restriction, containing at least 1 quality of care indicator for individuals with traumatic spinal cord injury. Each potential indicator was evaluated in an online, focused group discussion to define its categorization (healthcare system structure, medical process, and individuals with Traumatic Spinal Cord Injury related outcomes), definition, survey options, and scale. Results: A total of 87 indicators were identified from 60 studies screened using our eligibility criteria. We defined each indicator. Out of 87 indicators, 37 appraised the healthcare system structure, 30 evaluated medical processes, and 20 included individuals with TSCI related outcomes. The healthcare system structure included the impact of the cost of hospitalization and rehabilitation, as well as staff and patient perception of treatment. The medical processes included targeting physical activities for improvement of health-related outcomes and complications. Changes in motor score, functional independence, and readmission rates were reported as individuals with TSCI-related outcomes indicators. Conclusion: Indicators of quality of care in the management of individuals with TSCI are important for health policy strategists to standardize healthcare assessment, for clinicians to improve care, and for data collection efforts including registries.


2021 ◽  
Vol 26 (5) ◽  
pp. 344-369
Author(s):  
Hope Jervis Rademeyer ◽  
Cindy Gauthier ◽  
Kei Masani ◽  
Maureen Pakosh ◽  
Kristin E. Musselman

2016 ◽  
Vol 2016 ◽  
pp. 1-13 ◽  
Author(s):  
Delena Amsters ◽  
Sarita Schuurs ◽  
Kiley Pershouse ◽  
Bettina Power ◽  
Yvonne Harestad ◽  
...  

Interpersonal interactions and relationships can influence an individual’s perceptions of health and quality of life in the presence of disability. In the case of people with spinal cord injury (SCI), positive interpersonal interactions and relationships have been shown to contribute to resilience and adaptability. Understanding factors which facilitate or impede the development and maintenance of relationships after SCI may form the basis for proactive relationship support for people with SCI. To gain a broad insight into these factors, a scoping review was undertaken. Databases were searched for English language studies published between 2000 and 2015 that informed the review question. Sixty-two (62) studies were identified. Thematic analysis was conducted on data extracted from the studies and 51 factors which may facilitate relationships and 38 factors which may impede relationships after SCI were noted. The majority of factors could be categorized as environmental or personal according to the domains of the International Classification of Functioning, Disability, and Health (ICF). The facilitating factors included partner and social support, reciprocity in relationships, and presenting oneself positively. Impeding factors included physical environmental barriers, real and perceived social biases, and poor self-image. Factors identified may inform the provision of supportive, holistic rehabilitation for people with SCI.


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