scholarly journals Last Year of Life Study-Cologne (LYOL-C) (Part II): study protocol of a prospective interventional mixed-methods study in acute hospitals to analyse the implementation of a trigger question and patient question prompt sheets to optimise patient-centred care

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e048681
Author(s):  
Julia Strupp ◽  
Alina Kasdorf ◽  
Gloria Dust ◽  
Kira Isabel Hower ◽  
Melissa Seibert ◽  
...  

IntroductionThe Last Year of Life Study-Cologne Part I (LYOL-C I) has identified general hospital units as the most important checkpoints for transitions in the last year of life of patients. Yet, satisfaction with hospitals, as reported by bereaved relatives, is the lowest of all health service providers. Thus, the LYOL-C Part II (LYOL-C II) focuses on optimising patient-centred care in acute hospitals for patients identified to be in their last year of life. LYOL-C II aims to test an intervention for hospitals by using a two-sided (healthcare professionals (HCPs) and patients) trigger question-based intervention to ‘shake’ the system in a minimally invasive manner.Methods and analysisProspective interventional mixed-methods study following a two-phase approach: phase I, individual interviews with HCPs and patient representatives to design the intervention to maximise ease of implementation and phase II, exploratory study with two arms and a prepost design with patients in their last year of life. The intervention will consist of the Surprise Question and the German version of the Supportive and Palliative Care Indicators Tool (SPICT-DE) for HCPs to identify patients and provide patient-centred care, plus question prompt sheets for patients, encouraging them to initiate discussions with their HCPs. Data on transitions, changes in therapy, quality of care, palliative care integration and death of patients will be analysed. Furthermore, a staff survey (pre/post) and guided interviews with staff, patients and relatives (post) will be conducted. Finally, a formative socioeconomic impact assessment to provide evidence regarding the sustainability of the intervention will be performed.Ethics and disseminationThe study was approved by the Ethics Committee of the Faculty of Medicine of the University of Cologne (#20-1431). Results will be published in peer-reviewed journals and presented at national and international conferences.Trial registration numberDRKS00022378.

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e041711
Author(s):  
Kana Sato ◽  
Yoshimi Kodama

ObjectivesTo explore the type of education needed for nurses when dealing with aggression from patients and their families.DesignA two-phase sequential mixed-methods study.SettingThis study was conducted in Japan, with phase I from March to November 2016 and phase II in November 2018.Main outcome measuresThe challenges faced by nurses when dealing with incidents of aggression from the neutral perspective of neither nurse nor patient/family and perceptions of the educational contents developed in this study. Descriptive analyses were used to examine the data retrieved from both phases.ParticipantsPhase I entailed semistructured interviews among 11 neutral-party participants who observed aggressive incidents between nurses and patients/families. Phase II consisted of a web survey conducted among 102 nursing students and 308 nursing professionals.ResultsPhase I resulted in the identification of the following five main educational components: understanding the mechanisms of anger and aggression, maintaining self-awareness, observant listening, managing the self-impression, and communicating based on specific disease characteristics. Each component was related to improved communication through self-awareness. The results of phase II indicated that participants positively perceived these educational contents as likely to be effective for dealing with aggression from patients/families.ConclusionsThis study clarified the type of education needed for nurses when dealing with aggression based on multiple viewpoints. Specifically, neutral-party interviews revealed that communication should be improved through self-awareness. A subsequent survey among nurses and nursing students showed that the identified educational contents were positively received.


2021 ◽  
Vol 77 (12) ◽  
pp. 4887-4899
Author(s):  
Annette Keuning‐Plantinga ◽  
Petrie Roodbol ◽  
Barbara C. Munster ◽  
Evelyn J. Finnema

2020 ◽  
Vol 29 (2) ◽  
pp. 669-678 ◽  
Author(s):  
Ellis C. Dillon ◽  
Amy Meehan ◽  
Jinnan Li ◽  
Su-Ying Liang ◽  
Steve Lai ◽  
...  

2018 ◽  
Vol 8 (3) ◽  
pp. 366.1-366
Author(s):  
Anne M Finucane ◽  
Deborah Davydaitis ◽  
Emma Carduff ◽  
Zoe Horseman ◽  
Paul Baughan ◽  
...  

IntroductionThe percentage of people with a key information summary (KIS) or an anticipatory care plan (ACP) at the time of death can act as an indicator of access to palliative care. Key information summaries (KIS) introduced throughout Scotland in 2013, are shared electronic patient records which contain essential information relevant to a patient’s care including palliative care. There is now a need to examine current levels of KIS generation and ACP documentation in the last months of life to assess progress and review barriers and facilitators to sharing patient information across settings and to inform out-of-hours care.AimsTo estimate the extent and timing of KIS and ACP generation for people who die with an advanced progressive condition and to compare with our previous study (Tapsfield et al. 2016).To explore GP experiences of commencing and updating a KIS; and their perspectives on what works well and what can be improved in supporting this process.MethodsA mixed methods study consisting of a retrospective review of the electronic records of all patients who died in 16 Scottish general practices in 2017 and semi-structured interviews with 16 GPs.ResultsQuantitative and qualitative data collection is in progress.ConclusionFindings will describe current levels of KIS and ACP documentation for people who die in Scotland. We will synthesize GP experiences of KIS use and describe the essential components of an ACP that need to be documented to enable good palliative care across settings including emergency and out-of-hours care.Reference. Tapsfield J, Hall C, Lunan C, McCutheon H, McLoughlin P, Rhee J, Rus A, Spiller J, Finucane AM, Murray SA. Many people in Scotland now benefit from anticipatory care before they die: An after death analysis and interviews with general practitioners. BMJ Supportive and Palliative Care2016. doi:10.1136/bmjspcare-2015-001014


2015 ◽  
Vol 16 (1) ◽  
Author(s):  
Bruce Mason ◽  
Susan Buckingham ◽  
Anne Finucane ◽  
Peter Hutchison ◽  
Marilyn Kendall ◽  
...  

SAGE Open ◽  
2021 ◽  
Vol 11 (4) ◽  
pp. 215824402110532
Author(s):  
Kerstin Roger ◽  
Christine A. Walsh ◽  
Donna Goodridge ◽  
Stacey Miller ◽  
Marina Cewick ◽  
...  

This tri-provincial mixed methods study explores the reasons for under reporting abuse of older adults in the Prairie Provinces of Canada. Abuse of community-residing older adults, and specifically the reasons for not reporting such abuse, is poorly understood. This paper discusses the findings of the qualitative arm of the study that collected data through interviews with older adults having histories of abuse, their family members and service providers from related sectors. Content analysis was employed to identify three key themes: (1) recognizing and naming abuse; (2) barriers to disclosure; and (3) facilitators of reporting. Recommendations are made to improve awareness, education, and service provision in prevention and treatment of the abuse of community-residing older adults.


2020 ◽  
Vol 45 (11) ◽  
pp. 1087.e1-1087.e10
Author(s):  
Ellen S. Satteson ◽  
Allison K. Roe ◽  
Sara L. Eppler ◽  
Jeffrey Yao ◽  
Lauren M. Shapiro ◽  
...  

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