From Consultant to Co-investigator: One Diabetes Research Team’s Journey of Patient Engagement

2021 ◽  
pp. 019394592199201
Author(s):  
Eileen R. Faulds ◽  
Claudia Lewis ◽  
Kathleen M. Dungan ◽  
Mary Beth Happ

Patients with diabetes are experts in the lived experience of self-management, making patient engagement beyond the role of research “subject” imperative for the creation of health care solutions that meaningfully address the problems they identify. We discuss our research team’s relationship with our university’s College Diabetes Network (CDN), an advocacy and support group for emerging adults with diabetes. Our collaborative research relationship has spanned three years, and multiple research studies with members serving as co-designers, consultants, and co-investigators. We discuss the CDN’s role in two particular studies in which CDN members made substantive contributions to study design, instrument adaptation, and interpretation of findings. Key CDN members played a larger role in research activities and facilitated sustained engagement with the larger university CDN chapter. Barriers encountered included navigating research regulatory requirements while engaging CDN members in research and facilitating sustained engagement as CDN membership changes.

2019 ◽  
Vol 82 (5) ◽  
pp. 296-305
Author(s):  
Bel Youngson

Introduction Over 400 million people worldwide are living with diabetes. Research suggests that people struggle to manage their diabetes and an in-depth understanding of the lived experience of diabetes is required to inform and promote occupational therapy practice. This article reports on one part of a PhD study into the role of occupational therapy in diabetes self-management. Method Semi-structured interviews using an intuitive inquiry methodology were conducted with 22 people with diabetes in three separate studies. Analysis of the lived experience of all participants was drawn together to explore the understanding of diabetes self-management from an occupational perspective using the Model of Human Occupation. Findings The occupation of diabetes self-management was conceptualised with seven inter-related occupational forms. Challenges were related to occupational identity, volition, habituation, performance capacity and the context in which these took place. Conclusion This study, embedded in the experiences of those with diabetes, suggests that occupational therapy has a distinct role in diabetes self-management, through seeing this self-management as an occupation. The use of the Model of Human Occupation enables a focus on the characteristics of the occupational forms and how these might be adapted for successful occupational engagement.


2019 ◽  
Vol 12 (1) ◽  
pp. 7-20
Author(s):  
Péter Telek ◽  
Béla Illés ◽  
Christian Landschützer ◽  
Fabian Schenk ◽  
Flavien Massi

Nowadays, the Industry 4.0 concept affects every area of the industrial, economic, social and personal sectors. The most significant changings are the automation and the digitalization. This is also true for the material handling processes, where the handling systems use more and more automated machines; planning, operation and optimization of different logistic processes are based on many digital data collected from the material flow process. However, new methods and devices require new solutions which define new research directions. In this paper we describe the state of the art of the material handling researches and draw the role of the UMi-TWINN partner institutes in these fields. As a result of this H2020 EU project, scientific excellence of the University of Miskolc can be increased and new research activities will be started.


Leczenie Ran ◽  
2015 ◽  
Vol 11 (4) ◽  
pp. 171-178
Author(s):  
Beata Mrozikiewicz-Rakowska ◽  
Joanna Kania ◽  
Ewelina Bucior ◽  
Adriana Nowak ◽  
Tomasz Grzela ◽  
...  

2018 ◽  
Vol 79 (7) ◽  
pp. 3-6
Author(s):  
R. L. Smulakovskaya ◽  
E. M. Ivanova

The article discusses and summarizes the experience of project and research activities of students in the Russian language, presents the content and structure of each stage of the research project, determines the role of the project manager in getting significant and reflected results of the project research activities.


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