The experiences of adolescents diagnosed with functional gastrointestinal disorders: An interpretative phenomenological analysis

2021 ◽  
pp. 135910452110550
Author(s):  
Amy Woodham ◽  
Annabel L. David ◽  
Myra Cooper ◽  
Jacinta Cordwell
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Meaning Making ◽  
Functional Gastrointestinal Disorders ◽  
Phenomenological Analysis ◽  
Self Management ◽  
Future Research ◽  
Gastrointestinal Disorders ◽  
Limited Information ◽  
Structured Interviews ◽  
The Impact

The aim of this study was to provide a qualitative perspective of adolescents’ experiences of functional gastrointestinal disorders. In-depth semi structured interviews were conducted with eleven adolescents aged 11–16. The transcripts were analysed using Interpretative Phenomenological Analysis. Three superordinate themes were identified: 1) The journey to diagnosis: the good, the bad and the unknown; 2) Making sense of ‘functional’: the search for meaning; and 3) To share or conceal?: the impact of anticipated stigma on peer disclosure. The themes highlighted a complex process of meaning-making, with limited information about their diagnosis impacting on approaches to self-management and peer disclosure. Findings suggest adolescents would benefit from developmentally appropriate information and resources about the biopsychosocial aetiology of their presentation. It is considered that this may lead to greater self-efficacy in self-management of symptoms and reduce potential for perceived and self-stigma. Further implications for clinical practice and future research are discussed.

Adolescent adjustment to maternal cancer: an interpretative phenomenological analysis (IPA)

2018 ◽  
Vol 18 (4) ◽  
pp. 345-358 ◽  
Author(s):  
Leonor Rodriguez ◽  
Ann Marie Groarke ◽  
Pat Dolan ◽  
Padraig MacNeela
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Protective Factor ◽  
Phenomenological Analysis ◽  
The Body ◽  
Ecological Perspective ◽  
Adolescent Adjustment ◽  
Future Research ◽  
Structured Interviews ◽  
Content Type ◽  
The Impact

Purpose As an Interpretative Phenomenological Analysis (IPA), the purpose of this paper is to provide an in-depth understanding of adolescent experiences of maternal cancer to identify the individual and contextual factors that shape adolescent experiences and evaluates the potential applicability of the Family Ecology Model to the illness context. Design/methodology/approach This analysis is focussed on three female adolescents who completed semi-structured interviews, which were subjected to IPA. Maternal illness is a challenge for adolescents, which can be improved or undermined by their contexts. The analysis yielded three sub-themes: family structure, social supports, experiencing maternal cancer at a time of transition and the lasting impact of cancer. Findings This study found that adolescent experiences of maternal cancer depend on their contexts from an ecological perspective the type and quality of adolescent interactions determine coping and adjustment. Maternal cancer can be difficult as adolescents are already facing specific developmental challenges. Future research can benefit from adopting an ecological perspective to further understand adolescent experiences to support adolescent that may be more vulnerable and benefit from additional supports. This is not a generalisable piece of research but it provides a very deep and detailed understanding of the impact of maternal cancer on adolescents’ developmental course and determines how the complexity of their contexts can serve as a risk or a protective factor at this challenging time. Originality/value This paper contributes to the body of research by providing a comprehensive understanding of adolescents facing maternal cancer. The Ecological Model supports the findings of this research and proves to be a good model to understand the complex interplay between adolescents and their environments when facing a difficult challenge like maternal cancer is.

scholarly journals Identity in transition: an interpretative phenomenological analysis of international humanitarian workers’ experiences of returning home

2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Emilia Marie Wersig ◽  
Kevin Wilson-Smith
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Moral Values ◽  
Future Research ◽  
Aid Workers ◽  
Structured Interviews ◽  
Work Settings ◽  
Returning Home ◽  
The Uk ◽  
Humanitarian Work

AbstractThis interpretative phenomenological analysis explores aid workers’ understanding of identity and belonging through the transition from working in humanitarian aid to returning home. Semi-structured interviews were conducted with 10 participants who had returned to the UK after working in recently founded non-governmental organisations in Northern France between 2016 and 2019. Analysis of interview data identified four superordinate themes: (1) shared humanitarian identity, (2) limits and borders, (3) holding on to humanitarian identity and (4) redefining belonging and identity. Aid workers’ belonging in humanitarian work settings is rooted in shared moral values and being able to fulfil a clearly defined role. Upon returning, aid workers struggled to reintegrate, manifesting as denial of having left humanitarian work, re-creation of the social setting and moral demarcation. Participants formed a new sense of belonging through redefining their social in-group. The study sheds light on a previously unexplored area of research, specifically characterised through the closeness of the international humanitarian setting and participants’ homes. Findings suggest organisations can assist aid workers’ re-entry by supporting professional distance in the field, and through opportunities that allow to sustain moral values post-mission. Future research should focus on the role of peer support in the re-entry process and the re-entry experiences of aid workers returning from comparable settings further afield (e.g. Greece).

How do women with secondary breast cancer experience telling their adolescent children about their diagnosis?

2016 ◽  
Vol 23 (9) ◽  
pp. 1223-1233 ◽  
Author(s):  
Leonie Lalayiannis ◽  
Nicky Asbury ◽  
Graham Dyson ◽  
Amanda Walshe
Keyword(s):  
Breast Cancer ◽  
Cancer Diagnosis ◽  
Interpretative Phenomenological Analysis ◽  
Breast Cancer Diagnosis ◽  
Phenomenological Analysis ◽  
Primary Cancer ◽  
Structured Interviews ◽  
Cancer Experience ◽  
Secondary Breast Cancer ◽  
The Impact

This study investigated how women with secondary breast cancer experience telling their adolescent children. Semi-structured interviews were conducted with women who had been diagnosed with secondary breast cancer at least 1 year prior to the interview. Seven women, who had at least one child between 12 and 19 years old living at home at the time of diagnosis, were interviewed. The interviews were analysed using interpretative phenomenological analysis for an in-depth understanding of women’s experiences. Women found that it was easier to tell their children of their secondary breast cancer diagnosis compared to their primary cancer. However, they talked about the impact the diagnosis had on their family.

The journey to radiographer advanced practice: a methodological reflection on the use of interpretative phenomenological analysis to explore perceptions and experiences

2019 ◽  
Vol 19 (2) ◽  
pp. 116-121 ◽  
Author(s):  
Lynn M. Cuthbertson
Keyword(s):  
Qualitative Research ◽  
Interpretative Phenomenological Analysis ◽  
Phase 1 ◽  
Phenomenological Analysis ◽  
Advanced Practice ◽  
Structured Interviews ◽  
Two Phase ◽  
Oncology Research ◽  
The Impact ◽  
Methodological Reflection

AbstractIntroduction:This paper is a methodological reflection on the use of interpretative phenomenological analysis (IPA) utilised in the context of a qualitative research project that explored perceptions and experiences of the journey to radiographer advanced practice.Methods and materials:A two-phase qualitative research explored the perceptions and experiences. Phase 1 reviewed reflective diaries (n = 12) kept during the educational phase of the practitioner journeys. Phase 2 included one-to-one, semi-structured interviews (n = 6) which were recorded, transcribed verbatim and reviewed using the IPA six-stage thematic analysis for practitioners embedded in the advanced practice role.Findings:Key themes arising from reflective diary analysis informed the interview content; and following interview transcription, data immersion and IPA, 12 emergent sub-themes generated 3 superordinate themes.Discussion:Theoretical perspectives and application of the methodology are discussed. The phenomenological and interpretative qualities of IPA have the potential to provide unique and valuable insights into lived experiences of individuals. It is hoped that this researchers’ reflections are transferrable for those interested in employing a qualitative methodology for radiotherapy and oncology research.Conclusion:Therapeutic radiographers work within rapidly changing environments from technological, treatment and care perspectives. With continued development and change, the impact of research utilising an IPA methodology may allow exploration of perceptions and experiences from a range of key stakeholders with the potential to increase the research base.

Experiencing Responsive Technology in a Mixed Work: Interactive music as embodied and situated activity

2017 ◽  
Vol 22 (3) ◽  
pp. 418-427
Author(s):  
Anna Einarsson
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Meaning Making ◽  
Phenomenological Analysis ◽  
Cultural Dimensions ◽  
The Self ◽  
Structured Interviews ◽  
Interactive Music ◽  
Sensorimotor Interaction ◽  
The Relationship

How is performing with responsive technology in a mixed work experienced by performers, and how may the notion of embodied cognition further our understanding of this interaction? These questions are addressed here analysing accounts from singers performing the author’s mixed work Metamorphoses (2015). Combining semi-structured interviews and inspiration from Interpretative Phenomenological Analysis, questions concerning the ‘self’ when listening, singing, moving and relating to fellow musicians, as well as the relationship towards the computer, are explored. The results include a notion of the computer as neither separated nor detached but both, and highlight the importance of the situation, including not only the here and now but also social and cultural dimensions. The discussion emphasises the role of sensorimotor interaction and bodily experience in human meaning-making.

scholarly journals The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis

Autism ◽  
2021 ◽  
pp. 136236132110378
Author(s):  
Stella Mo ◽  
Nina Viljoen ◽  
Shivani Sharma
Keyword(s):  
Intellectual Disabilities ◽  
Cultural Values ◽  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Cultural Beliefs ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Dominant Culture ◽  
Norms And Values ◽  
The Impact

It is well recognised that culture plays an important role in how people experience the world. However, there is limited knowledge on the impact of socio-cultural norms and values on the lives of autistic women. This qualitative study used individual semi-structured interviews to explore how eight cis-gendered autistic women, without co-occurring intellectual disabilities, describe dominant socio-cultural beliefs, values and norms and their influence on their own sense of self. Findings elucidated three interdependent themes related to the ‘pervasive influence of cultural values’, ‘individualisation as an autistic woman’ and ‘social connectivity’. Autistic women described how they experienced their environments and made choices about their place within the dominant culture and the impact of these decisions on their identities and experience. The findings of this study have implications for the continued need to shift societal and clinical attitudes towards understanding and appreciating diversity among autistic women. Lay abstract Autistic women with average or above intellectual abilities are often overlooked clinically or identified at older ages compared to autistic males. Their experiences can provide insight into the socio-cultural factors that impact on how they develop and are seen by others. This study asked autistic women to describe the culture around them and explore how this has influenced their lived experiences. Individual semi-structured interviews were conducted with eight autistic women without a co-occurring diagnosis of intellectual disabilities. These were used for interpretative phenomenological analysis. Overall, we found three closely connected themes on the pervasive influence of cultural values on autistic women, how autistic women define themselves and the importance of connecting with society. These findings suggest that dominant cultural beliefs, values and norms effect how autistic women are recognised by others and develop their sense of self. Broadening how people think about autistic women in society and clinically may benefit how we identify and support autistic women.

scholarly journals “Stepping up the ladder in safety”: An interpretative phenomenological analysis of how LGB clients experience their therapists’ sexual orientation

2019 ◽  
Vol 7 (1) ◽  
pp. 211-223
Author(s):  
Tsabika Bafiti ◽  
Maria Viou ◽  
Prodromos Tarasis
Keyword(s):  
Sexual Orientation ◽  
Interpretative Phenomenological Analysis ◽  
Therapeutic Process ◽  
Relevant Literature ◽  
Phenomenological Analysis ◽  
Future Research ◽  
Structured Interviews ◽  
And Bisexual ◽  
The One ◽  
Systemic Family Therapy

Relevant literature has explored the issue of disclosure of Lesbian, Gay and Bisexual (LGB) therapists to heterosexual or LGB clients. But how do homosexual or bisexual clients understand and experience their therapist’s heterosexual orientation, known or assumed, in relation to the therapeutic alliance and the therapeutic process? In this qualitative study, we used the Interpretative Phenomenological Analysis to examine eight semi-structured interviews with LGB clients in a family-oriented therapy in Greece. Analysis revealed two themes of higher order, each having three subordinate themes depicting the client’s experience of the therapist’s sexual orientation: 1. Focus on the therapist’s sexual orientation: (a) as a hypothesis (b) as a factor of acceptance (c) as a factor of professional capability and 2. Focus on other therapist features: (a) gender (b) personality traits (c) practice of professional role. The therapist’s sexual orientation or the one perceived by the client was not a neutral issue in therapy and the cultivation of the therapeutic relationship but was only one part of the process. The way all these issues were processed and approached by clients was related to their personal history and phase of therapy. Suggestions for future research include conducting a research on clients from different therapeutic perspectives since it was carried out only on participants in long-term systemic family therapy.

scholarly journals Understanding the Importance of Therapeutic Relationships in the Development of Self-Management Behaviours After Cancer Rehabilitation: A Qualitative Mixed-Methods Study

2020 ◽  
Author(s):  
◽  
Wendy M. Wilkinson
Keyword(s):  
Research Literature ◽  
Cancer Rehabilitation ◽  
Therapeutic Relationships ◽  
Self Management ◽  
Rehabilitation Service ◽  
Future Research ◽  
Structured Interviews ◽  
Underlying Assumption ◽  
Modified Delphi ◽  
The Impact

This Professional Practice Doctorate research explored the importance and impact of therapeutic relationships in the development of sustainable self-management behaviours during cancer rehabilitation. This research aimed to evidence the need to preserve person-centred cancer rehabilitation. It aimed to protect local services from organisational pressures to rationalise rehabilitation through standardised, protocol driven practice. Therapeutic relationships are an important aspect of multi-disciplinary healthcare practice. However, they receive inversely proportionate attention in the research literature. Where research exists, it has often focused on elements of the relationship, rather the entire relationship. This is likely reflective of the complexity of therapeutic relationships. This research was undertaken in three phases alongside clinical practice. An integrative literature review was completed in parallel to semi-structured interviews, and a Modified Delphi Technique. The results confirmed the underlying assumption that the local cancer rehabilitation service was effective in supporting the development of self-management behaviours. Participants perceived professionals’ characteristics and behaviours to be a significant barrier or enabler to the development of therapeutic relationships. Therapeutic relationships were found to have significant roles or functions at different stages of cancer rehabilitation. On completion of cancer rehabilitation, the dissolution of therapeutic relationships was not consistently well managed by professionals, resulting in residual dependency or alienation. Poor participant experiences of previous therapeutic relationships may explain poor early engagement in rehabilitation, protracted rehabilitation duration and poor self-management outcomes. These findings provide insight for decision-making around cancer rehabilitation service design and workforce skills development. This research sets the foundation for future studies to measure the impact of therapeutic relationships on self-management outcomes. These insights could also inform the design and evaluation of learning opportunities for professionals, optimising the management of therapeutic relationships. Future research would focus on how to support professionals to meet the long-term needs of people affected by cancer and other LTCs.

scholarly journals Elite Athletes Coping With Depression: A Qualitative Study

2019 ◽  
Vol 13 (3) ◽  
pp. 351-373
Author(s):  
Florence Lebrun ◽  
Áine MacNamara ◽  
Dave Collins ◽  
Sheelagh Rodgers
Keyword(s):  
Coping Strategies ◽  
Interpretative Phenomenological Analysis ◽  
Elite Athletes ◽  
Phenomenological Analysis ◽  
Future Research ◽  
Health Issues ◽  
Structured Interviews ◽  
Professional Help ◽  
Research Perspectives ◽  
Mental Health Issues

Little is known about the coping strategies used by elite athletes suffering from mental health issues. Therefore, this study examined coping strategies implemented by elite athletes facing clinical depression. Semi-structured interviews were conducted with four elite athletes and analysed using Interpretative Phenomenological Analysis (IPA). Results present a broad picture of how elite athletes tried to cope with depression using a range of coping strategies. Among the different strategies highlighted, talking, seeking professional help and social support were particularly emphasized by the participants. Surprisingly, however, only one participant reported transferring the skills and strategies learned on her way to the top to many other aspects of her everyday life such as coping with her depression. Findings, therefore, suggest that athletes should be encouraged to transfer and make the most of the skills learned throughout their sport career to deal with their daily life. Future research perspectives and implications are discussed.

Parents’ Experiences of the Impact of Changing School During COVID-19 on their Autistic Child’s Friendships: an Interpretative Phenomenological Analysis

2021 ◽  
Author(s):  
Laura Fox ◽  
Kathryn Asbury ◽  
Umar Toseeb ◽  
Aimee Code
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Autistic Children ◽  
Structured Interviews ◽  
Children And Young People ◽  
New School ◽  
Successful Transition ◽  
The Social ◽  
The Uk ◽  
The Impact

Friendships play a key role in supporting a successful transition to a new school for autistic children and young people. However, little is known about how these relationships have been impacted by the social restrictions put in place during the COVID-19 pandemic. This study aimed to explore how parents experienced the impact of school transition on their autistic child’s friendships across differing educational settings during the pandemic. Semi-structured interviews were carried out with 14 parents of autistic children in the UK. Data were analysed using interpretative phenomenological analysis. Parents discussed a wide variety of experiences which differed between and within school settings. Several factors influenced children’s friendships during the transition including support from their new school and others’ understanding of needs. Existing friendships were found to support successful transition for some children, however, parents expressed that many had differing expectations of what friendship was, which affected their relationships. For some, COVID-19 negatively impacted on friendships by reducing their ability to be in contact with existing and new school friends. Others experienced positive or neutral experiences. This study highlights the diversity of needs for autistic children and calls for a personalised approach to transition support beyond the COVID-19 pandemic.

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