scholarly journals The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis

Autism ◽  
2021 ◽  
pp. 136236132110378
Author(s):  
Stella Mo ◽  
Nina Viljoen ◽  
Shivani Sharma
Keyword(s):  
Intellectual Disabilities ◽  
Cultural Values ◽  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Cultural Beliefs ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Dominant Culture ◽  
Norms And Values ◽  
The Impact

It is well recognised that culture plays an important role in how people experience the world. However, there is limited knowledge on the impact of socio-cultural norms and values on the lives of autistic women. This qualitative study used individual semi-structured interviews to explore how eight cis-gendered autistic women, without co-occurring intellectual disabilities, describe dominant socio-cultural beliefs, values and norms and their influence on their own sense of self. Findings elucidated three interdependent themes related to the ‘pervasive influence of cultural values’, ‘individualisation as an autistic woman’ and ‘social connectivity’. Autistic women described how they experienced their environments and made choices about their place within the dominant culture and the impact of these decisions on their identities and experience. The findings of this study have implications for the continued need to shift societal and clinical attitudes towards understanding and appreciating diversity among autistic women. Lay abstract Autistic women with average or above intellectual abilities are often overlooked clinically or identified at older ages compared to autistic males. Their experiences can provide insight into the socio-cultural factors that impact on how they develop and are seen by others. This study asked autistic women to describe the culture around them and explore how this has influenced their lived experiences. Individual semi-structured interviews were conducted with eight autistic women without a co-occurring diagnosis of intellectual disabilities. These were used for interpretative phenomenological analysis. Overall, we found three closely connected themes on the pervasive influence of cultural values on autistic women, how autistic women define themselves and the importance of connecting with society. These findings suggest that dominant cultural beliefs, values and norms effect how autistic women are recognised by others and develop their sense of self. Broadening how people think about autistic women in society and clinically may benefit how we identify and support autistic women.

‘It gives you more to life, it's something new every day’: an Interpretative Phenomenological Analysis of wellbeing in older care home residents who keep a personal pet

2020 ◽  
pp. 1-23
Author(s):  
Shoshanna Freedman ◽  
Petia Paramova ◽  
Victoria Senior
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Care Home ◽  
Phenomenological Analysis ◽  
Care Homes ◽  
Structured Interviews ◽  
Self And Identity ◽  
More Care ◽  
The Impact ◽  
Positive Effect

Abstract There is a substantial amount of literature that suggests that animals, and specifically animals kept as pets, can have a positive effect on wellbeing. Research exploring the impact of animals on wellbeing in care homes mainly concerns visiting animals as well as shared communal pets. In light of the lack of research regarding personal pets in care homes, the aim of this study was to explore what the experience of keeping a personal pet in a care home means for residents’ sense of wellbeing. Semi-structured interviews were conducted with seven care home residents who were currently living with their pet in a care home. Interviews were analysed using Interpretative Phenomenological Analysis (IPA). Analysis revealed four master themes deemed to be relevant to participants’ wellbeing. these were: ‘sense of self and identity’, ‘responsibility and ownership’, ‘motivation and desire to live’ and ‘feeling content in the care home’. The analysis indicated that living with a personal pet in a care home has the potential to enhance residents’ wellbeing. At the same time, it also found that the benefits of keeping a personal pet may be dependent on specific circumstances, such as the attitudes of staff and fellow residents at the care home. This study indicates that it may be advisable for more care homes to accept personal pets.

How do women with secondary breast cancer experience telling their adolescent children about their diagnosis?

2016 ◽  
Vol 23 (9) ◽  
pp. 1223-1233 ◽  
Author(s):  
Leonie Lalayiannis ◽  
Nicky Asbury ◽  
Graham Dyson ◽  
Amanda Walshe
Keyword(s):  
Breast Cancer ◽  
Cancer Diagnosis ◽  
Interpretative Phenomenological Analysis ◽  
Breast Cancer Diagnosis ◽  
Phenomenological Analysis ◽  
Primary Cancer ◽  
Structured Interviews ◽  
Cancer Experience ◽  
Secondary Breast Cancer ◽  
The Impact

This study investigated how women with secondary breast cancer experience telling their adolescent children. Semi-structured interviews were conducted with women who had been diagnosed with secondary breast cancer at least 1 year prior to the interview. Seven women, who had at least one child between 12 and 19 years old living at home at the time of diagnosis, were interviewed. The interviews were analysed using interpretative phenomenological analysis for an in-depth understanding of women’s experiences. Women found that it was easier to tell their children of their secondary breast cancer diagnosis compared to their primary cancer. However, they talked about the impact the diagnosis had on their family.

Stress as Experienced by People with Dementia: An Interpretative Phenomenological Analysis

Dementia ◽  
2017 ◽  
Vol 18 (4) ◽  
pp. 1427-1445 ◽  
Author(s):  
Barbara K Sharp
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Phenomenological Analysis ◽  
People With Dementia ◽  
Health And Social Care ◽  
Self Worth ◽  
And Coping ◽  
Study Participants ◽  
Person With Dementia ◽  
The Impact

Health and social care research on stress in dementia has predominantly considered the stress experienced by family and professional carers. Focus on the person with dementia has frequently laid emphasis on the impact of stress-related behaviour on others and how such behaviour might be ‘managed’. This paper describes a qualitative study which gives voice to people with dementia on the subject of stress and responds to the need for a better understanding of stress as it is experienced by people with dementia themselves. An interpretative phenomenological analysis was conducted on data collected from a purposive sample of people diagnosed with varying types of dementia from across Scotland. Discussions across five focus groups consisting of 21 participants with dementia in total generated data which was audio and video recorded, and analysed thematically. Five key themes emerged, described in the participants’ own words, which were: (1) ‘Something’s torn, your life’s torn’; (2) ‘Families can bring stress’; (3) ‘It’s the stress of living with dementia’; (4) ‘A whole new set of rules’; and (5) ‘It’s our lives and we’ll get it under control ourselves’. These themes reflect experiences of loss, challenges to one’s sense of self, relationship dynamics, living with the symptoms of dementia, learning to do things differently and establishing coping mechanisms that provide control. Study participants illustrated individual potential for adapting and coping with some of the most stressful aspects of living with dementia, challenging assumptions of inevitable fixed decline and progressive vulnerability to stress. Participants describe a process of recovery in their perceptions of self-worth, purpose and value in life following diagnosis.

The journey to radiographer advanced practice: a methodological reflection on the use of interpretative phenomenological analysis to explore perceptions and experiences

2019 ◽  
Vol 19 (2) ◽  
pp. 116-121 ◽  
Author(s):  
Lynn M. Cuthbertson
Keyword(s):  
Qualitative Research ◽  
Interpretative Phenomenological Analysis ◽  
Phase 1 ◽  
Phenomenological Analysis ◽  
Advanced Practice ◽  
Structured Interviews ◽  
Two Phase ◽  
Oncology Research ◽  
The Impact ◽  
Methodological Reflection

AbstractIntroduction:This paper is a methodological reflection on the use of interpretative phenomenological analysis (IPA) utilised in the context of a qualitative research project that explored perceptions and experiences of the journey to radiographer advanced practice.Methods and materials:A two-phase qualitative research explored the perceptions and experiences. Phase 1 reviewed reflective diaries (n = 12) kept during the educational phase of the practitioner journeys. Phase 2 included one-to-one, semi-structured interviews (n = 6) which were recorded, transcribed verbatim and reviewed using the IPA six-stage thematic analysis for practitioners embedded in the advanced practice role.Findings:Key themes arising from reflective diary analysis informed the interview content; and following interview transcription, data immersion and IPA, 12 emergent sub-themes generated 3 superordinate themes.Discussion:Theoretical perspectives and application of the methodology are discussed. The phenomenological and interpretative qualities of IPA have the potential to provide unique and valuable insights into lived experiences of individuals. It is hoped that this researchers’ reflections are transferrable for those interested in employing a qualitative methodology for radiotherapy and oncology research.Conclusion:Therapeutic radiographers work within rapidly changing environments from technological, treatment and care perspectives. With continued development and change, the impact of research utilising an IPA methodology may allow exploration of perceptions and experiences from a range of key stakeholders with the potential to increase the research base.

scholarly journals Lack of meaningful activity on acute physical hospital wards: Older people’s experiences

2017 ◽  
Vol 81 (1) ◽  
pp. 15-23 ◽  
Author(s):  
Channine Clarke ◽  
Caroline Stack ◽  
Marion Martin
Keyword(s):  
Occupational Therapy ◽  
Older People ◽  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Phenomenological Analysis ◽  
Physical And Mental Health ◽  
Meaningful Activity ◽  
Increased Risk ◽  
Hospital Wards ◽  
The Impact

Introduction Research suggests that older people on acute physical hospital wards are at increased risk of physical and mental health decline due to inactivity during their stay. Whilst studies have highlighted potential causes of such inactivity, there exists a paucity of occupational therapy research that explores engagement in meaningful occupation from patients’ perspectives in hospital settings. Method Interpretative phenomenological analysis was used to gain a deeper understanding of how 18 older people spent their time on hospital wards and the impact this had on their feelings of wellbeing. Interviews were carried out and analysed using interpretive phenomenological analysis guidelines. Findings Patients experienced a lack of meaningful activity on the wards which resulted in feelings of passivity, boredom and a sense of alienation from their normal roles, routines and sense of self. Despite a willingness to engage in activity, barriers were suggested as limited resources, hospital routines and personal limitations. Suggestions of potential meaningful activities were made. Conclusion Occupational therapy services need to review service provision and provide an occupation-focused service, ensuring that patients’ engagement in meaningful activities is seen as an integral part of their role in order to maintain patients’ mental and physical wellbeing. Recommendations for further research are highlighted.

scholarly journals The experiences of people with severe mental health conditions participating in the Occupation Matters Programme: An interpretative phenomenological analysis

2020 ◽  
Vol 83 (10) ◽  
pp. 620-630
Author(s):  
Alison Newport ◽  
Channine Clarke
Keyword(s):  
Mental Health ◽  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Occupational Therapists ◽  
Phenomenological Analysis ◽  
Health Conditions ◽  
Structured Interviews ◽  
Mental Health Conditions ◽  
Increasing Demand ◽  
Occupational Therapy Intervention

Introduction The Occupation Matters Programme is an occupational therapy intervention promoting recovery in people with severe mental health conditions, adapted from the Lifestyle Redesign© approach. With the increasing demand for mental health services and the United Kingdom’s current financial position, there is reason to research the Occupation Matters Programme. Method Interpretative phenomenological analysis provided a rich account of the experience of the Occupation Matters Programme, eliciting the service user voice. Four participants participated in semi-structured interviews following session 10 and at the completion of the 20-week programme. Data analysis followed the step-by-step interpretative phenomenological analysis guidelines, enabling themes to be identified that reflected participants’ experiences. Findings Three major themes were revealed: connecting with others; experiencing an opened-up world through a temporary project and finding a place in the world through a changing sense of self. Three participants described a temporary improvement in their mental health at the halfway point, which became more permanent by the completion of the programme. Conclusions This study suggests that the Occupation Matters Programme was influential in the participants’ recovery journeys and provides evidence for Wilcock’s Doing, Being, Belonging and Becoming framework. It encourages occupational therapists to concentrate on occupation-centred practice, occupational integrity and implementing all four aspects of Wilcock’s framework.

Parents’ Experiences of the Impact of Changing School During COVID-19 on their Autistic Child’s Friendships: an Interpretative Phenomenological Analysis

2021 ◽  
Author(s):  
Laura Fox ◽  
Kathryn Asbury ◽  
Umar Toseeb ◽  
Aimee Code
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Autistic Children ◽  
Structured Interviews ◽  
Children And Young People ◽  
New School ◽  
Successful Transition ◽  
The Social ◽  
The Uk ◽  
The Impact

Friendships play a key role in supporting a successful transition to a new school for autistic children and young people. However, little is known about how these relationships have been impacted by the social restrictions put in place during the COVID-19 pandemic. This study aimed to explore how parents experienced the impact of school transition on their autistic child’s friendships across differing educational settings during the pandemic. Semi-structured interviews were carried out with 14 parents of autistic children in the UK. Data were analysed using interpretative phenomenological analysis. Parents discussed a wide variety of experiences which differed between and within school settings. Several factors influenced children’s friendships during the transition including support from their new school and others’ understanding of needs. Existing friendships were found to support successful transition for some children, however, parents expressed that many had differing expectations of what friendship was, which affected their relationships. For some, COVID-19 negatively impacted on friendships by reducing their ability to be in contact with existing and new school friends. Others experienced positive or neutral experiences. This study highlights the diversity of needs for autistic children and calls for a personalised approach to transition support beyond the COVID-19 pandemic.

scholarly journals An Identity Process Theory Account of the Impact of Boarding School on Sense of Self and Mental Health: an Interpretative Phenomenological Analysis

2021 ◽  
Author(s):  
Frances Simpson ◽  
Melanie Haughton ◽  
William Van Gordon
Keyword(s):  
Coping Strategies ◽  
Interpretative Phenomenological Analysis ◽  
Sense Of Self ◽  
Educational Institution ◽  
Phenomenological Analysis ◽  
Self Concept ◽  
Process Theory ◽  
Identity Process Theory ◽  
The Impact

AbstractBoarding schools exist to provide education for children, but this involves the child leaving the family home and residing in an educational institution. Identity Process Theory suggests that such a change in circumstances can threaten the child’s identity, which triggers coping strategies and impacts on the individual’s self-concept during both childhood and adulthood. This study undertook an Interpretative Phenomenological Analysis of semi-structured interviews conducted with five adults who boarded as children. The focus was on exploring participants’ beliefs in terms of how the boarding experience affected their sense of self. Emerging themes relate to the (i) coping strategies used by participants during childhood, such as amnesia, compartmentalising, compliance and acceptance, and (ii) long-term effects of boarding on identity, self-concept and intimate relationships. Findings also highlight the interplay of factors such as privilege and social class, which were reported as motives for participants’ parents choosing boarding for their children. The study raises important questions about the long-term health impacts of sending children away to board.

scholarly journals ‘I put my “police head” on’: Coping strategies for working with sexual offending material

2018 ◽  
Vol 92 (3) ◽  
pp. 237-263 ◽  
Author(s):  
Ruth Parkes ◽  
Nicola Graham-Kevan ◽  
Jo Bryce
Keyword(s):  
Coping Strategies ◽  
Interpretative Phenomenological Analysis ◽  
Sexual Offending ◽  
Phenomenological Analysis ◽  
Sexual Offence ◽  
Structured Interviews ◽  
Potential Sources ◽  
Sources Of Support ◽  
Organisational Factors ◽  
The Impact

This paper explores the coping strategies of UK police staff who are exposed to sexual offence material (SOM). Eleven police staff completed a questionnaire then took part in semi-structured interviews. Themes were identified using Interpretative Phenomenological Analysis (IPA). This paper explores the theme ‘Coping strategies for working directly with material’, focusing on the most common strategies employed: ‘Detachment’, ‘Avoidance’ and ‘Process-driven’ approaches. Links between coping and different features of SOM are examined, including victim characteristics and audio content. The impact of organisational factors which make coping strategies more or less effective are also explored, along with potential sources of support.

scholarly journals Songs of A Caged Bird: A Glimpse into the Being of Youth Inside the Prison System

2021 ◽  
Vol 24 (3) ◽  
pp. 173-180
Author(s):  
John Emmanuel Mendoza ◽  
Edward Daniel Mortalla ◽  
Laurence Lascuna Garcia
Keyword(s):  
Young Adults ◽  
Social Exclusion ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Prison System ◽  
Structured Interviews ◽  
Phenomenological Inquiry ◽  
One Year ◽  
The Impact

Understanding young inmates’ experiences are essential since their lives have been shaped by the impact of social exclusion. This study aimed to explore the meaning of the lived experiences of young adults inside the prison system. The phenomenological inquiry was utilized, which is grounded in Martin Heidegger’s philosophy. Semi-structured interviews were conducted with 18 to 29-year-old inmates incarcerated for at least one year. Through interpretative phenomenological analysis, four themes emerged: An Unfamiliar Melody (with two subthemes: Humming with Frustrations and Tunes of Solitude); The Eyes Outside the Cage; Turning Over a New Feather; and If My Wings Unclipped. The “songs” of the caged bird tell about the “meanings” of restricted freedom--from being able to dip its wings in the orange sun rays down to being tied in chains. Being held inside a prison limits a person from experiencing life as they should. Opportunities to soar high were taken away. The consequences caused them the fragility of emotions: frustration, loneliness, and humiliation; yet, they still have a speck of hope. AbstrakNyanyian Burung dalam Sangkar: Sebuah Pandangan terhadap Kehidupan Remaja dalam Sistem Penjara. Memahami pengalaman narapidana berusia muda sangat penting karena kehidupan mereka yang terdampak oleh pengucilan sosial. Tujuan penelitian ini untuk mengeksplorasi makna dari pengalaman hidup orang berusia dewasa muda di dalam sistem penjara. Penelitian menggunakan pendekatan fenomenologis yang didasarkan pada filosofi Martin Heidegger. Pengumpulan data menggunakan metode wawancara semi-berstruktur dengan narapidana berusia 18 hingga 29 tahun yang sudah dipenjara setidaknya selama satu tahun. Berdasarkan analisis fenomenologi interpretatif, muncul empat tema, yaitu: An Unfamiliar Melody (dengan dua subtema: Humming with Frustrations dan Tunes of Solitude); The Eyes Outside the Cage; Turning Over a New Feather; dan If My Wings Unclipped. “Nyanyian” burung dalam sangkar yang menceritakan tentang “makna” kebebasan yang terbatas—mulai dari mencelupkan sayapnya di bawah sinar matahari jingga hingga diikat dengan rantai. Kondisi dipenjara membatasi seseorang untuk menjalankan kehidupan sebagaimana mestinya. Peluang mereka untuk terbang melambung tinggi dirampas. Hal ini menyebabkan emosi mereka rapuh: frustrasi, kesepian, dan penghinaan; tetapi, mereka masih memiliki setitik harapan. Kata Kunci: fenomenologi, frustasi, narapidana dewasa muda, sistem penjara

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