scholarly journals Health risk behaviors in adolescents and emerging adults with congenital heart disease: psychometric properties of the Health Behavior Scale-Congenital Heart Disease

2013 ◽  
Vol 12 (6) ◽  
pp. 544-557 ◽  
Author(s):  
Eva Goossens ◽  
Koen Luyckx ◽  
Nele Mommen ◽  
Marc Gewillig ◽  
Werner Budts ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Health Behavior ◽  
Health Risk ◽  
Psychometric Properties ◽  
Emerging Adults ◽  
Risk Behaviors ◽  
Congenital Heart ◽  
Health Risk Behaviors ◽  
Behavior Scale

Pregnancy-related Health Behavior of Women with Congenital Heart Disease: Room for Behavioral Change Interventions

2009 ◽  
Vol 4 (5) ◽  
pp. 348-355 ◽  
Author(s):  
Philip Moons ◽  
Werner Budts ◽  
Els Costermans ◽  
Els Huyghe ◽  
Petronella G. Pieper ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Health Behavior ◽  
Behavioral Change ◽  
Congenital Heart

scholarly journals Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance

2019 ◽  
Vol 18 (6) ◽  
pp. 465-473 ◽  
Author(s):  
Liesbet Van Bulck ◽  
Koen Luyckx ◽  
Eva Goossens ◽  
Silke Apers ◽  
Adrienne H Kovacs ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Health Risk ◽  
Physical Health ◽  
Healthcare System ◽  
System Performance ◽  
Patient Reported Outcomes ◽  
Congenital Heart ◽  
Health Consumer ◽  
Patient Reported

Background: Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries’ healthcare system performance are of importance for patient-reported outcomes. Aims: The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease. Methods: A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences. Results: Health risk behaviours were associated with the Euro Health Consumer Index subdomains about patient rights and information, health outcomes and financing and access to pharmaceuticals. Perceived physical health was associated with the Euro Health Consumer Index subdomain about prevention of chronic diseases. Subscales of the Euro Heart Index were not associated with patient-reported outcomes. Conclusion: Several features of healthcare system performance are associated with perceived physical health and health risk behaviour in adults with congenital heart disease. Before recommendations for policy-makers and clinicians can be conducted, future research ought to investigate the impact of the healthcare system performance on outcomes further.

scholarly journals Perceived Parental Relationships and Health-Risk Behaviors in College-Attending Emerging Adults

2009 ◽  
Vol 71 (3) ◽  
pp. 727-740 ◽  
Author(s):  
Seth J. Schwartz ◽  
Byron L. Zamboanga ◽  
Russell D. Ravert ◽  
Su Yeong Kim ◽  
Robert S. Weisskirch ◽  
...  
Keyword(s):  
Health Risk ◽  
Emerging Adults ◽  
Risk Behaviors ◽  
Health Risk Behaviors ◽  
Parental Relationships

White Matter Integrity Dissociates Verbal Memory and Auditory Attention Span in Emerging Adults with Congenital Heart Disease

2015 ◽  
Vol 21 (1) ◽  
pp. 22-33 ◽  
Author(s):  
Ryan C. Brewster ◽  
Tricia Z. King ◽  
Thomas G. Burns ◽  
David M. Drossner ◽  
William T. Mahle
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
White Matter ◽  
Emerging Adults ◽  
Verbal Memory ◽  
Congenital Heart ◽  
Auditory Attention ◽  
White Matter Integrity ◽  
Attention Span ◽  
Positive Correlation

AbstractWhite matter disruptions have been identified in individuals with congenital heart disease (CHD). However, no specific theory-driven relationships between microstructural white matter disruptions and cognition have been established in CHD. We conducted a two-part study. First, we identified significant differences in fractional anisotropy (FA) of emerging adults with CHD using Tract-Based Spatial Statistics (TBSS). TBSS analyses between 22 participants with CHD and 18 demographically similar controls identified five regions of normal appearing white matter with significantly lower FA in CHD, and two higher. Next, two regions of lower FA in CHD were selected to examine theory-driven differential relationships with cognition: voxels along the left uncinate fasciculus (UF; a tract theorized to contribute to verbal memory) and voxels along the right middle cerebellar peduncle (MCP; a tract previously linked to attention). In CHD, a significant positive correlation between UF FA and memory was found, r(20)=.42, p=.049 (uncorrected). There was no correlation between UF and auditory attention span. A positive correlation between MCP FA and auditory attention span was found, r(20)=.47, p=.027 (uncorrected). There was no correlation between MCP and memory. In controls, no significant relationships were identified. These results are consistent with previous literature demonstrating lower FA in younger CHD samples, and provide novel evidence for disrupted white matter integrity in emerging adults with CHD. Furthermore, a correlational double dissociation established distinct white matter circuitry (UF and MCP) and differential cognitive correlates (memory and attention span, respectively) in young adults with CHD. (JINS, 2015, 21, 22–33)

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