The role of staff in health promotion in community residences for people with intellectual disabilities

2011 ◽  
Vol 15 (3) ◽  
pp. 167-176 ◽  
Author(s):  
Helena Bergström ◽  
Ulla Wihlman
Keyword(s):  
Health Promotion ◽  
Intellectual Disabilities ◽  
Healthy Lifestyle ◽  
Qualitative Content Analysis ◽  
Ethical Conflict ◽  
Structured Interviews ◽  
Related Risk ◽  
People With Intellectual Disabilities ◽  
Community Residences

Managers and caregivers in community residences for people with intellectual disabilities are expected both to promote residents’ health and to support their autonomy. The aim of this article was to explore variation in views among managers and caregivers on the role of staff in health promotion. A qualitative study was conducted using semi-structured interviews with six managers and six caregivers. The analysis used a phenomenographic approach to categorize variation in views. We identified five qualitatively different main categories of roles staff play in health promotion: the parent, the manipulator, the coach, the educator and the libertarian. In addition lifestyle-related risk factors for ill-health and barriers to a healthy lifestyle were analysed and described using qualitative content analysis. The results highlight the ethical conflict that faces staff trying to support a healthy lifestyle as well as the autonomy of the residents.

Stakeholder expectations, roles and responsibilities in Dutch health promotion for people with intellectual disabilities

2018 ◽  
Vol 34 (5) ◽  
pp. e59-e70 ◽  
Author(s):  
N M J Kuijken ◽  
K Vlot-van Anrooij ◽  
H M J van Schrojenstein Lantman-de Valk ◽  
G Leusink ◽  
J Naaldenberg ◽  
...  
Keyword(s):  
Health Promotion ◽  
Intellectual Disabilities ◽  
Healthy Lifestyle ◽  
Phase 1 ◽  
Shared Vision ◽  
Structured Interviews ◽  
Two Phase ◽  
Roles And Responsibilities ◽  
Dutch Health ◽  
People With Intellectual Disabilities

Summary This two-phase, qualitative study aims to obtain an overview of stakeholders in the network of people with intellectual disabilities (ID) and their perceived facilitating and hindering factors, expectations, and perceived roles and responsibilities with regard to health promotion. In phase 1, four workshops were conducted to provide insight into involved stakeholders. In phase 2, 29 semi-structured interviews were conducted with stakeholders regarding their views on health promotion. Data were analysed using stakeholder matrices and a combination of domain and thematic analysis. Daily caregivers were identified as the most important and influential stakeholders. Interviewed stakeholders perceived barriers to a healthy lifestyle as relating mainly to the person with ID and, although they stated that people with ID need support to be able to live healthily, there was ambiguity about roles and responsibilities for providing this support. Daily caregivers are not properly facilitated to support a healthy lifestyle. Stakeholders expressed the need for a culture change towards a greater health promotion ethos in care for people with ID. A facilitating context is needed in which the social network supports autonomy and offers opportunities to adapt to physical, social and emotional challenges. Stakeholders see the importance of, and are willing to support, healthy behaviour. They are hindered by a lack of a shared vision and united system in which all stakeholders know their roles and responsibilities. Promotion of a healthy lifestyle should be part of every service provider employee’s job and propagated throughout the organization as part of its mission and vision.

Lifestyles and intellectual disability nursing

2018 ◽  
pp. 453-476
Author(s):  
Owen Barr ◽  
Bob Gates
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Supported Employment ◽  
Healthy Lifestyle ◽  
Significant Component ◽  
The Family ◽  
People With Intellectual Disabilities

A significant component of the role of nurses for people with intellectual disabilities is contributing to enabling people with intellectual disabilities to live the lifestyle they choose. Advice about residential alternatives, work, supported employment, and planning on retirement are all things on which the nurse should be able to advise, and signpost people to the services they need. Importantly, helping and advising the family and carers about setting up networks and circles of support and that making and keeping friends are as important and can all contribute to leading a happy and healthy lifestyle.

Physical activity promotion in primary health care in Slovenia

2014 ◽  
Vol 62 (2) ◽  
Keyword(s):  
Physical Activity ◽  
Cardiovascular Disease ◽  
Health Promotion ◽  
Health Professionals ◽  
Healthy Lifestyle ◽  
Graduate Nurses ◽  
Primary Health ◽  
The Family ◽  
Prevention Of Cardiovascular Disease

In Slovenia, the role of general practitioners in counselling physical activity for prevention of cardiovascular disease (CVD) is well recognized. The role of general practitioners in advising healthy lifestyle for individuals who are at risk of developing CVD is formally defined in the National Program for Primary Prevention of Cardiovascular Disease, which has been running since 2001. Part of the program is counselling on healthy lifestyle including physical activity, performed in all health centres across the country. First a screening and medical examination is performed. In case of higher risk for CVD (>20%) the physician should give advice on the particular risk factor and direct patients to health-education centres, where they can participate in healthy lifestyle workshops lead by health professionals. Physicians and other health professionals who are involved in the implementation of prevention activities within the program need knowledge and skills that are crucial for successful counselling on healthy lifestyle. The educational program “basic education in health promotion and prevention of chronic non-communicable diseases in primary health care/family medicine” consists of two parts. The first part of the training is open to all health professionals working within the program. The second part is intended for health professionals working in health-education workshops. In the last few years a new family practice model has been introduced and disseminated. Some duties of the family physician, including health promotion and counselling, are being transferred to graduate nurses who become part of the family practice team. This new division of work undoubtedly brings many advantages, both in terms of the work organization, and of high-quality patient care. Nevertheless preventive action cannot be fully passed on to graduate nurses. Careful planning and education are needed to ensure a comprehensive approach in healthy life style counselling.

Time of paradoxes: what the twentieth century was like for people with intellectual disabilities living in Czechoslovakia/Czech Republic

2019 ◽  
pp. 53-66
Author(s):  
Monika Mužáková ◽  
Iva Strnadová
Keyword(s):  
Czech Republic ◽  
Intellectual Disabilities ◽  
Students With Disabilities ◽  
Institutional Care ◽  
Compulsory Education ◽  
Special Schools ◽  
People With Intellectual Disabilities ◽  
Education Act ◽  
Czech Lands

This chapter explores life in Czechoslovakia (later Czech Republic) in the 20th Century for people with intellectual disabilities. It opens at the time that the Czech lands were part of the Austrian-Hungarian Empire. This was a period marked by efforts to increase the quality of institutional care for people with intellectual disabilities. The authors then describe the period of communism. They discuss the controversial nature of an Education Act (1948), which contained a well-established network of special schools for students with disabilities as a regular part of the school system, and yet it introduced the concept of “being uneducable” for students with severe and profound intellectual disabilities. The authors also debate the role of a parental movement in advocacy for the rights of people with intellectual disabilities. The chapter concludes with the period after the fall of communism, when compulsory education was introduced for all children with no exception.

scholarly journals Explicit and implicit attitudes towards people with intellectual disabilities: The role of contact and participant demographics

2017 ◽  
Vol 31 (5) ◽  
pp. 778-784 ◽  
Author(s):  
Aidan J. Murch ◽  
Tanveen Choudhury ◽  
Michelle Wilson ◽  
Eleanor Collerton ◽  
Maya Patel ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Implicit Attitudes ◽  
People With Intellectual Disabilities

scholarly journals Aspirations held by young adults with intellectual disabilities and their mothers

2020 ◽  
Vol 29 (2) ◽  
pp. 107-116
Author(s):  
Mary McMahon ◽  
Karen Moni ◽  
Monica Cuskelly ◽  
Jan Lloyd ◽  
Anne Jobling
Keyword(s):  
Young Adults ◽  
Intellectual Disability ◽  
Young People ◽  
Intellectual Disabilities ◽  
Small Scale ◽  
Structured Interviews ◽  
Future Aspirations ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Nuanced Understanding

This study reports on Australian small-scale exploratory descriptive research into how young people with intellectual disability and their families construct their futures. The aims of this research were to (a) better understand the future aspirations held by young adults with intellectual disability and their parents, (b) identify enablers and barriers to the achievement of these aspirations, and (c) provide insights for career practitioners who support young people with intellectual disability and their parents to achieve their personal and career goals. Participants were four young people with intellectual disabilities aged between 18 and 30 years and their mothers. Data were collected through semi-structured interviews and analysed thematically. Results provide a nuanced understanding of the issues facing young people with intellectual disabilities and their families in constructing their futures. Suggestions are offered that can inform career development practice and policy.

scholarly journals Trainer and support staff’s experiences of engaging with the Who’s Challenging Who? challenging behaviour training course

2019 ◽  
Vol 24 (3) ◽  
pp. 367-380 ◽  
Author(s):  
Samantha Flynn ◽  
Richard P Hastings ◽  
David Gillespie ◽  
Rachel McNamara ◽  
Elizabeth Randell
Keyword(s):  
Intellectual Disabilities ◽  
Thematic Analysis ◽  
Perspective Taking ◽  
Current Practice ◽  
Support Staff ◽  
Challenging Behaviour ◽  
Structured Interviews ◽  
Training Course ◽  
People With Intellectual Disabilities

Background: The Who’s Challenging Who? (WCW) training is coproduced and delivered by people with intellectual disabilities (IDs), and it aims to improve staff empathy for people with challenging behaviour (CB). This study qualitatively describes trainees’ and trainers’ experiences of the WCW. Methods: Semi-structured interviews were undertaken with managers ( n = 7), support staff ( n = 6) and the WCW trainers ( n = 4; three had IDs). Interviews were transcribed verbatim and analysed using thematic analysis. Results: Two cross-cutting themes were drawn from the data: (1) valued roles of the trainers, whereby trainers and trainees benefited from the training being coproduced and delivered by people with IDs, and (2) beyond the training, within which trainees reported that they were engaging in increased reflection about their past and current practice. Conclusions: Being trained by people with IDs and CB appears to be a useful method, which can lead to perspective taking and reflection about supporting people with IDs and CB.

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