Lifestyles and intellectual disability nursing

2018 ◽  
pp. 453-476
Author(s):  
Owen Barr ◽  
Bob Gates
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Supported Employment ◽  
Healthy Lifestyle ◽  
Significant Component ◽  
The Family ◽  
People With Intellectual Disabilities

A significant component of the role of nurses for people with intellectual disabilities is contributing to enabling people with intellectual disabilities to live the lifestyle they choose. Advice about residential alternatives, work, supported employment, and planning on retirement are all things on which the nurse should be able to advise, and signpost people to the services they need. Importantly, helping and advising the family and carers about setting up networks and circles of support and that making and keeping friends are as important and can all contribute to leading a happy and healthy lifestyle.

Exploring a non-universal understanding of waged work and its consequences: sketching out employment activation for people with an intellectual disability

2021 ◽  
Author(s):  
Kim Dearing
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Supported Employment ◽  
Social Care ◽  
Employment Policy ◽  
Employment Services ◽  
Policy Consequence ◽  
Policy Shift ◽  
People With Intellectual Disabilities ◽  
Employment Rates

Background: Supported Employment has been advocated for by successive governments and policymakers alike as the best approach to employment inclusion for people with an intellectual disability who are in receipt of social care. Yet only 5.2% of this demographic are in any form of work and these numbers have been persistently stagnant for many years.Aims: This study aimed to explore the employment landscape and grapple with the intersecting layers of policy consequence for people who have an intellectual disability, and are in receipt of social care, who wish to engage with work preparation employment support.Methods: As an active participant in the field, this study was ethnographic and conducted at a new job club that had been established in England. In addition, three further sites of complementary data were explored in Wales, through interviews and focus groups.Findings: This study demonstrates that there is a mismatch between how evidence informs policy, and how funding is allocated to support with work preparation. Those unable to secure Supported Employment services are, instead, navigating extreme employment disadvantage and scant opportunities, in the open labour market. Further, bound up in this analysis is evidence of a non-universal understanding of waged work where any form of financial remuneration is welcome.Discussion and conclusion: Overall, with a mismatch between evidence that informs policy, policy rhetoric, realistic employment prospects, and available work, without a fundamental employment policy shift, the very low employment rates within this demographic will not increase.<br />Key messages<ul><li>People with intellectual disabilities can experience extreme employment exclusion;</li><br /><li>There is a mismatch between how evidence informs policy and the allocation of funding and work preparation support;</li><br /><li>People with intellectual disabilities can be taken advantage of and work for little or no pay;</li><br /><li>Ethnographic research methods can capture complex and nuanced data to support social change.</li></ul>

scholarly journals Sustainable development in the non-governmental organisation sector

2021 ◽  
pp. 219-226
Author(s):  
Agnieszka Chomiuk
Keyword(s):  
Sustainable Development ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Local Community ◽  
Homeless People ◽  
Difficult Situation ◽  
The Social ◽  
The Family ◽  
People With Intellectual Disabilities

The described project assumes the development of a new method for solving the problem of homelessness, in particular, with regard to the field of supporting people in an exceptionally difficult situation or those suffering from mental disorders and/or addictions to achieve independence and overcome problems. The aforementioned project is the first attempt at implementing this method in Poland. The basic assumption of the method is to solve the main problem of a person in the homelessness crisis, which is the lack of housing, and only then to provide support in solving other problems. The aim of the chapter is to give rise to discussion on the innovative solutions implemented by one of the local government to remedy the problems of homeless people. The issue is based on SDGs. The second described case study is the “Safe Future of People with Intellectual Disability”—implemented by the Polish Association for People with Intellectual Disability—reflecting the tested model based on support circles, i.e. social support networks in order to empower people with intellectual disabilities. The main objective of the “Safe Future” model is to develop and implement solutions that ensure legal, financial and social security of people with intellectual disabilities in situations where they have lost the support of the family. The concept of the support circles tested in this model is based on built networks of connections rooted in the social capital generated among the local community. The last example of sustainable development in the non-governmental sector is Social Cooperative Sunny Hill—as a social enterprise it is a unique entity on the market. It conducts economic activity, the main goal of which is not profit, but social and professional re-integration of people at risk of social exclusion. Contrary to a traditional enterprises, it does not distribute the profit among shareholders, but allocates it to social purposes.

The role of staff in health promotion in community residences for people with intellectual disabilities

2011 ◽  
Vol 15 (3) ◽  
pp. 167-176 ◽  
Author(s):  
Helena Bergström ◽  
Ulla Wihlman
Keyword(s):  
Health Promotion ◽  
Intellectual Disabilities ◽  
Healthy Lifestyle ◽  
Qualitative Content Analysis ◽  
Ethical Conflict ◽  
Structured Interviews ◽  
Related Risk ◽  
People With Intellectual Disabilities ◽  
Community Residences

Managers and caregivers in community residences for people with intellectual disabilities are expected both to promote residents’ health and to support their autonomy. The aim of this article was to explore variation in views among managers and caregivers on the role of staff in health promotion. A qualitative study was conducted using semi-structured interviews with six managers and six caregivers. The analysis used a phenomenographic approach to categorize variation in views. We identified five qualitatively different main categories of roles staff play in health promotion: the parent, the manipulator, the coach, the educator and the libertarian. In addition lifestyle-related risk factors for ill-health and barriers to a healthy lifestyle were analysed and described using qualitative content analysis. The results highlight the ethical conflict that faces staff trying to support a healthy lifestyle as well as the autonomy of the residents.

Physical activity promotion in primary health care in Slovenia

2014 ◽  
Vol 62 (2) ◽  
Keyword(s):  
Physical Activity ◽  
Cardiovascular Disease ◽  
Health Promotion ◽  
Health Professionals ◽  
Healthy Lifestyle ◽  
Graduate Nurses ◽  
Primary Health ◽  
The Family ◽  
Prevention Of Cardiovascular Disease

In Slovenia, the role of general practitioners in counselling physical activity for prevention of cardiovascular disease (CVD) is well recognized. The role of general practitioners in advising healthy lifestyle for individuals who are at risk of developing CVD is formally defined in the National Program for Primary Prevention of Cardiovascular Disease, which has been running since 2001. Part of the program is counselling on healthy lifestyle including physical activity, performed in all health centres across the country. First a screening and medical examination is performed. In case of higher risk for CVD (>20%) the physician should give advice on the particular risk factor and direct patients to health-education centres, where they can participate in healthy lifestyle workshops lead by health professionals. Physicians and other health professionals who are involved in the implementation of prevention activities within the program need knowledge and skills that are crucial for successful counselling on healthy lifestyle. The educational program “basic education in health promotion and prevention of chronic non-communicable diseases in primary health care/family medicine” consists of two parts. The first part of the training is open to all health professionals working within the program. The second part is intended for health professionals working in health-education workshops. In the last few years a new family practice model has been introduced and disseminated. Some duties of the family physician, including health promotion and counselling, are being transferred to graduate nurses who become part of the family practice team. This new division of work undoubtedly brings many advantages, both in terms of the work organization, and of high-quality patient care. Nevertheless preventive action cannot be fully passed on to graduate nurses. Careful planning and education are needed to ensure a comprehensive approach in healthy life style counselling.

Coping With Criticism and Praise

2015 ◽  
Vol 120 (3) ◽  
pp. 258-268 ◽  
Author(s):  
Lynn Esdale ◽  
Andrew Jahoda ◽  
Carol Pert
Keyword(s):  
Intellectual Disability ◽  
Positive Affect ◽  
Intellectual Disabilities ◽  
The Self ◽  
Self Perceptions ◽  
Stigma And Discrimination ◽  
People With Intellectual Disabilities ◽  
Study Participants

AbstractThrough experiencing stigma and discrimination, people with intellectual disability may become more sensitive to criticism from others and be less likely to believe praise. This study compared how people with and without intellectual disability viewed praise and criticism, using a vignette task developed for the study. Participants were asked to imagine someone saying something praiseworthy or critical and were then asked about their emotions, beliefs, and thoughts. People with intellectual disability were more likely to believe and be distressed by criticism. Contrary to predictions, this group were also more likely to believe praise and experience positive affect. The results suggest that the self-perceptions of people with intellectual disabilities is more dynamic and reliant on the views of others.

Views of family carers to the future accommodation and support needs of their relatives with intellectual disabilities

2006 ◽  
Vol 23 (4) ◽  
pp. 140-144 ◽  
Author(s):  
Roy McConkey ◽  
Jayne McConaghie ◽  
Owen Barr ◽  
Paul Roberts
Keyword(s):  
Intellectual Disabilities ◽  
Living Arrangements ◽  
Service Planning ◽  
Support Needs ◽  
Family Carers ◽  
Individual Interviews ◽  
Supported Accommodation ◽  
The Family ◽  
People With Intellectual Disabilities

AbstractObjectives: The demand for places in supported accommodation is likely to rise due to the increasing longevity of people with intellectual disabilities and as their parents become unavailable or unable to care for them. However few attempts have been made to ascertain carer's views on alternative accommodation.Method: Four studies were undertaken in Northern Ireland to ascertain carer's views using three different methods. In all, 387 carers participated with the response being greatest for individual interviews conducted in the family home and least for self-completed questionnaires and attendance at group meetings.Results: The majority of carers envisaged the person continuing to be cared for within the family. The most commonly chosen out-of-home provision was in residential or nursing homes, living with support in a house of their own and in homes for small groups of people. Few carers chose living with another family. However only small numbers of carers envisaged alternative provision being needed in the next two years and few had made any plans for alternative living arrangements.Conclusions: The implications for service planning are noted, primarily the need for individual reviews of future needs through person-centred planning; improved information to carers about various residential options and their differential benefits, along with more services aimed at improving the quality of life of people living with family carers. These need to be underpinned by a commitment of statutory agencies to partnership working with family carers. The implications for mental health services are noted.

Intellectual Disability, Identity, and the Internet

2013 ◽  
pp. 198-223
Author(s):  
Darren D. Chadwick ◽  
Chris Fullwood ◽  
Caroline J. Wesson
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Internet Use ◽  
Computer Mediated Communication ◽  
The Internet ◽  
Mediated Communication ◽  
Disability Identity ◽  
Computer Mediated ◽  
Online Behaviour ◽  
People With Intellectual Disabilities

This chapter provides insight into the nature of online engagement by people with intellectual disabilities, the extent and quality of this engagement in terms of the access that people have, and how people with intellectual disabilities present themselves in the online world. The authors of this chapter provide an overview of the extant literature on intellectual disability, identity, and the Internet. The chapter begins by outlining issues around Internet use and access by people with intellectual disabilities, including potential barriers. It then moves on to address online behaviour and the potential benefits of Internet use for people with intellectual disabilities. The chief focus of the chapter follows, describing the manner in which computer mediated communication affects how people with intellectual disabilities present themselves in the online world as well as considering the role that family members and supporters play in the development and management of people’s online identities. Finally, the chapter introduces future directions for research into intellectual disability, identity, and the Internet.

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