The Patient in Patient Safety: Contemporary Issues, From COVID-19 to Citizen Science

2021 ◽  
Vol 10 (1) ◽  
pp. 301-303
Author(s):  
Elizabeth Lerner Papautsky ◽  
Richard J. Holden ◽  
Rupa S. Valdez ◽  
Jordan Hill ◽  
Janetta Brown
Keyword(s):  
Social Media ◽  
Patient Safety ◽  
Citizen Science ◽  
Human Subjects ◽  
Lessons Learned ◽  
Human Subjects Research ◽  
Research Strategies ◽  
Face To Face

In the 4th panel on the topic of The Patient in Patient Safety, we highlighted topics of current relevance and facilitated a reflection session. The objective was to highlight the ways in which the COVID-19 pandemic has impacted patient ergonomics research and work, with particular focus on safety. After a topic overview, panelists presented their work on overcoming challenges to human subjects research created by the suspension of face-to-face activities during the COVID-19 pandemic. A facilitated reflection and brainstorming session using Miro followed. We used questions to elicit examples of patient and caregiver roles in safety during the pandemic and research strategies and challenges. These questions were also distributed on social media prior to the event. The panel served as an opportunity to share lessons learned.

The Ebola 100 Project: A Flexible Approach to Collaborative Research

2019 ◽  
Vol 41 (1) ◽  
pp. 12-14
Author(s):  
Kristin Post
Keyword(s):  
United States ◽  
Human Subjects ◽  
Lessons Learned ◽  
Human Subjects Research ◽  
Social Scientists ◽  
Organizational Responses ◽  
Government Organizations ◽  
Anthropological Research ◽  
Group A ◽  
The Military

Abstract In order to collaborate on human subjects research, social scientists require flexible approaches that allow them to adhere to legal and ethical protections specific to their community or profession. Such flexibility is illustrated in the Ebola 100 Project (2018), a “voluntary, collaborative, multi-institutional, and international” anthropological research project that captured lessons learned about organizational responses to the West Africa Ebola outbreak of 2014–2015. The inclusive project comprised almost a dozen investigators from government and non-government organizations from several different countries. A few of the project's United States contributors worked as part of the Translational Research Group, a research facility housed under the Marine Corps culture center. These researchers had access to potential participants in the military and experience conducting qualitative research in compliance with Department of Defense human subjects protection regulations. One outcome of the inclusive and flexible design of the Ebola 100 Project is that it allows for participation from relatively under-represented populations in traditional anthropological research, such as United States military personnel. Upon completion of the Ebola 100 Project, researchers interested in analyzing the experiences and stories of individuals who responded to a global health emergency can access more than 100 interviews.

The Apomediated World: Regulating Research When Social Media Has Changed Research

2013 ◽  
Vol 41 (2) ◽  
pp. 470-483 ◽  
Author(s):  
Dan O’Connor
Keyword(s):  
Social Networks ◽  
Social Media ◽  
Human Subjects ◽  
Smart Phone ◽  
Digital Technologies ◽  
Human Subjects Research ◽  
Broadband Internet ◽  
Internet Connection ◽  
The Way

Social media, meaning digital technologies and platforms such as blogs, wikis, forums, content aggregators, sharing sites, and social networks like Facebook and Twitter, have profoundly changed the way that information can be shared online. Now, almost anyone with a broadband internet connection or a smart phone can share ideas, data, and opinions with just about anyone else on the planet. This change has serious implications for the way in which human subjects research can be conducted and, concomitantly, for the ways in which such research may be regulated. This article explores some of these issues.

ECLIPSEMOB: LESSONS LEARNED FROM A NATIONAL SCALE CITIZEN SCIENCE EXPERIMENT DURING THE 2017 SOLAR ECLIPSE

2017 ◽  
Author(s):  
Laura A. Lukes ◽  
◽  
J. Nelson ◽  
K.C. Kerby-Patel ◽  
W.C. Liles ◽  
...  
Keyword(s):  
Citizen Science ◽  
Solar Eclipse ◽  
Lessons Learned ◽  
National Scale

scholarly journals The Food, Feelings, and Family Study: comparison of the efficacy of traditional methods, social media, and broadcast email to recruit pregnant women to an observational, longitudinal nutrition study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Rebecca Smith ◽  
Crystal Alvarez ◽  
Sylvia Crixell ◽  
Michelle A. Lane
Keyword(s):  
Social Media ◽  
Pregnant Women ◽  
Family Study ◽  
Human Subjects ◽  
Recruitment Method ◽  
Traditional Methods ◽  
Chi Square ◽  
Recruitment Methods ◽  
Health Care Intervention ◽  
Time Investment

Abstract Background It is well known that recruitment is a challenging aspect of any study involving human subjects. This challenge is exacerbated when the population sought is reticent to participate in research as is the case with pregnant women and individuals with depression. This paper compares recruitment methods used for the Food, Feelings, and Family Study, an observational, longitudinal pilot study concerning how diet and bisphenol A exposure affect maternal mood and cognitive function during and after pregnancy. Methods Pregnant women were recruited to this study over a period of 15 months using traditional methods, social media including paid and unpaid posts, and emails broadcast to the university community. Contingency analysis using the Pearson’s Chi-square test was used to determine if recruitment method was associated with likelihood of participation. T-tests were used to analyze Facebook advertisement success. ANOVAs and Fisher exact tests were used to determine if recruitment method was related to continuous and categorical demographics, respectively. Results Social media resulted in the largest number of recruits, followed by traditional methods and broadcast email. Women recruited through social media were less likely to participate. In contrast, use of broadcast email resulted in a smaller pool of recruits but these recruits were more likely to be eligible for and complete the study. Most women recruited via social media were the result of unpaid posts to the study’s Facebook page. Paid posts lasting at least 4 days were the most successful. Recruitment method was not associated with participant demographics. Conclusions Social media has the potential to recruit a large pool of potential subjects; however, when studies require a large time investment such as the case here, women recruited through social media are less likely to participate and complete the study than women recruited through other means. Trial registration N/A. This study does not describe a health care intervention.

scholarly journals High mortality in coronavirus disease 2019 (COVID-19)–suspect unit: Lessons learned for patient safety

2021 ◽  
pp. 1-2
Author(s):  
Anucha Apisarnthanarak ◽  
Surachai Chaononghin ◽  
Panipak Katawethiwong ◽  
David K. Warren
Keyword(s):  
Patient Safety ◽  
High Mortality ◽  
Lessons Learned

scholarly journals Conceptualization and Realization of a National Trail in a Small Island-Nation: The Commonwealth of Dominica’s Experience

2021 ◽  
Vol 2 (1) ◽  
pp. 79-94
Author(s):  
Colmore S. Christian
Keyword(s):  
Rural Communities ◽  
Socioeconomic Development ◽  
Research Question ◽  
Strong Support ◽  
Lessons Learned ◽  
Small Island ◽  
Implementation Challenges ◽  
Face To Face ◽  
Research Themes ◽  
Socioeconomic Benefits

The island-nation of Dominica, 790 km2 in area, is located approximately 1126.5 km Southeast of Florida, USA. In the mid-1990s, Dominica embarked on developing the 183.5 km Waitukubuli National Trail (WNT), the first and only national trail model in the Eastern Caribbean. The 14-segment WNT, officially opened in May 2013, passes through some of the island’s most diverse landscapes. WNT was designed to link as many rural communities as possible and promote ecotourism and community socioeconomic development. Rehabilitation work continues on the WNT and the rest of Dominica, following the devastation caused by Hurricane Maria of 2017. This article, based primarily on a limited questionnaire survey, selected interviews, and literature review, explored the research question ‘What were the challenges faced by a small-island nation in the development of a National Trail? Five specific research objectives focused on the conceptualization, implementation challenges, partnerships fostered, national and sub-regional significance, and future outlook of the Trail were considered. Questionnaire respondents identified the island’s topography and negotiations with private landowners as significant trail construction challenges. A 100% of survey respondents anticipate that reliable funding to support timely maintenance would likely be a critical future issue. Some respondents identified marketing, public engagement, and visitor safety as potential issues. Face-to-face interviews found strong support for the WNT. The interviewees were confident that Dominica would realize sustainable socioeconomic benefits from the Trail. The article concludes with lessons learned and proposes strategies and research themes to ensure the Trail’s sustainability.

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