scholarly journals Measures of health-related quality of life and socio-cultural aspects in young patients who after mandible primary reconstruction with free fibula flap

2013 ◽  
Vol 11 (1) ◽  
pp. 250 ◽  
Author(s):  
Juanfang Zhu ◽  
Yan Xiao ◽  
Fei Liu ◽  
Jing Wang ◽  
Wenli Yang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Patients ◽  
Health Related Quality ◽  
Primary Reconstruction ◽  
Free Fibula Flap ◽  
Cultural Aspects ◽  
Related Quality ◽  
Health Related ◽  
Free Fibula

Health-related quality of life after segmental resection of the lateral mandible: Free fibula flap versus plate reconstruction

2015 ◽  
Vol 43 (5) ◽  
pp. 658-662 ◽  
Author(s):  
Johannes van Gemert ◽  
Irene Holtslag ◽  
Andries van der Bilt ◽  
Matthias Merkx ◽  
Ron Koole ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Segmental Resection ◽  
Health Related Quality ◽  
Free Fibula Flap ◽  
Fibula Flap ◽  
Related Quality ◽  
Health Related ◽  
Free Fibula ◽  
Plate Reconstruction

Clinical phenotype, fibrinogen supplementation and health-related quality of life in patients with afibrinogenemia

Blood ◽  
2021 ◽  
Author(s):  
Alessandro Casini ◽  
Sylvia von Mackensen ◽  
Cristina Santoro ◽  
Claudia Djambas Khayat ◽  
Meriem Belhani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Thrombotic Event ◽  
Young Patients ◽  
Severe Bleeding ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Due to its low prevalence, epidemiologic data on afibrinogenemia are limited and none are available on health-related quality of life (HRQoL). We conducted a cross-sectional international study to characterize the clinical features, the fibrinogen supplementation modalities and their impact on HRQoL in patients with afibrinogenemia. A total of 204 patients (119 adults and 85 children) from 25 countries were included. The bleeding phenotype was severe: 68 (33.3%) patients having at least one bleed per month and 48 (23%) a history of cerebral bleeding. About 35% (n=72) of patients were treated with fibrinogen concentrates or cryoprecipitates as prophylaxis, 18.1% (n=37) received more than one injection per week and 16.6% (n=34) were on home treatment. A thrombotic event was reported in venous and/or arterial territories by 37 (18.1%) patients. Thrombosis occurred even in young patients and recurrence was frequent (7.4%). The total HRQoL was lower in children than in adults. Discomfort linked to treatment and limitations to sports and leisure were the main concerns. Women and children were particularly affected in family relationships. In multivariate analyses, younger age, residence in Asia or Africa and a previous thrombotic event were statistically correlated with a worse HRQoL. In conclusion, our study underlines the severe bleeding and thrombotic phenotype and their impact on HRQoL in afibrinogenemia. The optimal strategy for fibrinogen supplementation needs to be determined.

Impact of Oral Mucositis on Oral Health-Related Quality of Life of Young Patients Diagnosed With Cancer

2015 ◽  
Vol 120 (2) ◽  
pp. e104
Author(s):  
JAIR CARNEIRO LEÃO ◽  
ANDREZA BARKOKEBAS SANTOS DE FARIA ◽  
DEBORAH FONSECA ◽  
ADRIANA MACHADO ZARZAR ◽  
LUIZ ALCINO MONTEIRO GUEIROS ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Oral Mucositis ◽  
Young Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Parent and Self-Report Health-Related Quality of Life Measures in Young Patients With Tourette Syndrome

2012 ◽  
Vol 28 (10) ◽  
pp. 1305-1308 ◽  
Author(s):  
Andrea E. Cavanna ◽  
Chiara Luoni ◽  
Claudia Selvini ◽  
Rosanna Blangiardo ◽  
Clare M. Eddy ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Tourette Syndrome ◽  
Young Patients ◽  
Self Report ◽  
Health Related Quality ◽  
Quality Of Life Measures ◽  
Related Quality ◽  
Health Related

Effect of ankylosing spondylitis on health-related quality of life and different aspects of social life in young patients

2006 ◽  
Vol 25 (2) ◽  
pp. 168-174 ◽  
Author(s):  
Ahmet Ozgül ◽  
Fatma Peker ◽  
M. Ali Taskaynatan ◽  
A. Kenan Tan ◽  
Kemal Dinçer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ankylosing Spondylitis ◽  
Social Life ◽  
Young Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Health-Related Quality of Life in Gilles de la Tourette Syndrome: A Decade of Research

2013 ◽  
Vol 27 (1) ◽  
pp. 83-93 ◽  
Author(s):  
Andrea Eugenio Cavanna ◽  
Kate David ◽  
Valentina Bandera ◽  
Cristiano Termine ◽  
Umberto Balottin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Tourette Syndrome ◽  
Young Patients ◽  
Current Evidence ◽  
Future Research ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Gilles de la Tourette syndrome (GTS) is a neurodevelopmental condition characterised by multiple motor and phonic tics and associated behavioural problems, carrying a significant burden on patients' lives. Although the term health related-quality of life (HR-QOL) has only been used in recent years, several studies have long addressed the impact of GTS on physical, psychological and social aspects of wellbeing of both children and adults with GTS. We set out to answer the question "Is HR-QOL affected by GTS and, if so, in what domains?" by conducting a systematic literature review of published original studies addressing HR-QOL in both children and adult patients with GTS. This review focuses on the current evidence on the impact of GTS on patients' lives, mainly informed by studies using generic functional impairment and HR-QOL measures from the last decade, and expands on the new opportunities introduced by the recently developed GTS-specific HR-QOL scales (GTS-QOL and GTS-QOL-C&A). Analysis of the first decade of studies specifically addressing HR-QOL in GTS suggests that co-morbid conditions are key factors in determining HR-QOL in young patients, whilst the picture is more complex in adults with GTS. These findings offer some general directions for both current clinical practice and future research.

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