scholarly journals Resilience and health-related quality of life in patients with pulmonary diseases receiving ambulatory oxygen therapy

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Siiri Isokääntä ◽  
Kirsi Honkalampi ◽  
Hannu Kokki ◽  
Harri Sintonen ◽  
Merja Kokki
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Assistive Technology ◽  
Oxygen Therapy ◽  
Pulmonary Diseases ◽  
Anxiety And Depression ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Background Pulmonary diseases affect health-related quality of life (HRQoL), but there are few data on patients’ adaptation to a serious illness. This study assessed resilience and its associations with HRQoL, life satisfaction, anxiety and depression in patients with pulmonary diseases receiving ambulatory oxygen therapy. Methods In this prospective cohort study, we enrolled 42 patients with pulmonary diseases receiving ambulatory oxygen therapy. The patients completed the following questionnaires at baseline and after one and three months; the Resilience Scale-25, the Life Satisfaction Scale-4, the 15D instrument of HRQoL, the Hospital Anxiety and Depression Scale (HADS) and the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2.0). To compare HRQoL, we recruited age- and gender-matched controls from the general population (n = 3574). The primary outcome was the proportion of patients with low resilience. Results Half (42–48%) of the patients had low resilience, which was correlated with low HRQoL, low levels of life satisfaction and higher levels of anxiety and depression. Patients had very low HRQoL compared to controls. Dissatisfaction with life increased during the 3-months follow-up, but only a few patients had anxiety or depression. Patient satisfaction with assistive technology was high; the median QUEST 2.0 score (scale 1–5) was 4.00 at baseline, 3.92 at one month and 3.88 at three months. Conclusions Resilience was low in half of the patients with pulmonary diseases receiving ambulatory oxygen therapy. Higher resilience was positively correlated with HRQoL and life satisfaction and negatively correlated with anxiety and depression. Trial registration: ClinicalTrials.gov Protocol Record 507A023. Registered 17 September 2020—Retrospectively registered, https://clinicaltrials.gov/ct2/results?cond=&term=NCT04554225&cntry=&state=&city=&dist=.

scholarly journals Resilience and Health-Related Quality of Life in Patients with Pulmonary Diseases Receiving Ambulatory Oxygen Therapy

2020 ◽  
Author(s):  
Siiri Isokääntä ◽  
Kirsi Honkalampi ◽  
Hannu Kokki ◽  
Harri Sintonen ◽  
Merja Kokki
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Assistive Technology ◽  
Oxygen Therapy ◽  
Pulmonary Diseases ◽  
Anxiety And Depression ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract PURPOSE: Pulmonary diseases affect health-related quality of life (HRQoL), but there are few data on patients’ adaptation to a serious illness. This study assessed resilience and its associations with HRQoL, life satisfaction, anxiety and depression in patients with pulmonary diseases receiving ambulatory oxygen therapy.METHODS: In this prospective cohort study, we enrolled 43 patients with pulmonary diseases receiving ambulatory oxygen therapy. The patients completed the following questionnaires at baseline and after one and three months; the Resilience Scale-25, the Life Satisfaction Scale-4, the 15D instrument of HRQoL, the Hospital Anxiety and Depression Scale (HADS) and the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2.0). To compare HRQoL, we recruited age- and gender-matched controls from the general population (n=3574). The primary outcome was the proportion of patients with low resilience.RESULTS: Almost half (41-49%) of the patients had low resilience, which was correlated with low HRQoL, low levels of life satisfaction and higher levels of anxiety and depression. Patients had very low HRQoL compared to controls (p<0.001). Dissatisfaction with life increased during the follow-up (p=0.004), but only a few patients had anxiety. Patient satisfaction with assistive technology was high; the mean QUEST 2.0 score (scale 1-5) was 4.00 at baseline, 3.92 at one month and 3.83 at three months (p=0.797).CONCLUSIONS: Resilience was low in half of the patients and was inversely correlated with HRQoL and life satisfaction and positively correlated with anxiety and depression.TRIAL REGISTRATION: ClinicalTrials.gov Protocol Record 507A023. Registered 17 September 2020 - Retrospectively registered, https://clinicaltrials.gov/ct2/results?cond=&term=NCT04554225&cntry=&state=&city=&dist=

Health Outcomes Used to Determine Facets of Health-related Quality of Life for Post-9/11 Veterans Using Assistive Technology for A Combat-related Mobility Impairment: A Literature Review

2021 ◽  
Author(s):  
Mark Greenhalgh ◽  
Hailee Kulich ◽  
Eline Blaauw ◽  
Rose Turner ◽  
Sara Peterson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Outcomes ◽  
Assistive Technology ◽  
Health Related Quality ◽  
Mobility Impairment ◽  
Health States ◽  
Mobility Impairments ◽  
Related Quality ◽  
Health Related

ABSTRACT Introduction Novel rehabilitation methods, including distribution and adoption of assistive technology for lower extremity impairments, are becoming crucial to ensure positive quality of life in all individuals. The quality of life of post-9/11 combat veterans is not well understood, in comparison to research on other populations. The following essay describes a review on health outcomes used to determine health-related quality of life (HR-QoL) among combat-injured service members who require mobility-related assistive technology. Materials and Methods Reviews pooled data from research on PubMed, EMBASE, CINAHL, and PsycINFO published after September 11, 2001, and included service members who sustained a mobility impairment because of involvement in a post-9/11 combat operation. Basic descriptors were extracted in addition to health outcomes used, which were then categorized and summarized by six domains for HR-QoL as defined by the World Health Organization. Results This review found health outcomes that fit in the pain and discomfort, negative emotions, mobility, social relations, access to and quality of healthcare services, and religious/spiritual/personal beliefs subdomains. The categorized results detailed their application to track and model HR-QoL health states in those with mobility impairments using mobility-based assistive technology. Conclusions The research on combat-induced mobility impairments indicates assistive technology improves otherwise poor health states. The results model these domains and subdomains to determine overall HR-QoL and the quality of a healthcare intervention, though additional research is needed as only one study was identified to be experimental in design.

scholarly journals Evaluation of health-related quality of life in pulmonary diseases

2018 ◽  
Vol 25 (8) ◽  
pp. 380-381
Author(s):  
Massimiliano Polastri ◽  
Enrico Clini ◽  
Stefano Nava ◽  
Michele Vitacca ◽  
Nicolino Ambrosino
Keyword(s):  
Quality Of Life ◽  
Pulmonary Diseases ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Bio-social determinants of health-related quality of life of middle aged (45–59 years) population in India

2020 ◽  
Vol 26 (1) ◽  
pp. 19-25
Author(s):  
Aarti Nagarkar ◽  
Snehal Kulkarni ◽  
Rashmi Gadkari
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Short Form ◽  
Common Factor ◽  
Health Related Quality ◽  
Middle Aged ◽  
Related Quality ◽  
Health Related ◽  
Component Scores

Purpose Inadequate research on midlife health-related quality of life particularly in low-and-middle-income countries has often led to poor recognition of the issues in health programmes and policy. To address these concerns, this study was aimed at examining health-related quality of life and its determinants in middle-aged (45–59 years) men and women in low-resource settings in India. Methods Data on health-related quality of life and other relevant parameters were collected from 1112 individuals between 45 and 59 years of age from an urban agglomeration of Pune, India. Independent t-test was used to determine the association between means of Short Form-12 and other variables. Multilinear regression analyses were conducted to study the direction of these associations. Results The mean physical and mental component scores were 45.33 (±8.88) and 51.48 (±9.87), respectively. After adjusting for other variables, functional impairment emerged as a common factor that was negatively associated with physical and mental component scores of men (PCS: −5.557, 95%CI = −6.793 to −4.322; MCS:−1.816, 95% CI = −3.443 to −0.189) and women (PCS: −7.985, 95%CI = −9.782 to −6.188; MCS;  = −2.289, 95% CI = −4.160–0.419). Good life satisfaction was positively associated with physical scores in men (2.300, 95%CI =  1.180 to 3.421) and mental scores in women (3.066, 95%CI  =  1.333 to 4.798). Unemployment, sitting hours (>3) and no physical activity affected men, while lower education, marital status, body mass index and chronic illness affected health-related quality of life of women at midlife. Conclusions Functional decline, level of life satisfaction and stress affected health-related quality of life of middle-aged individuals in India.

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