scholarly journals Engaging children and families in pediatric Health Research: a scoping review

2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Rachel Flynn ◽  
Sarah Walton ◽  
Shannon D. Scott
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Scoping Review ◽  
Patient Engagement ◽  
Health Research ◽  
Public Involvement ◽  
Research Process ◽  
Consumer Participation ◽  
Services Research ◽  
Pediatric Health

Abstract Aim Patient engagement (PE) in pediatric health services research is challenging due to contextual factors such as busyness of parenting, work schedules, and diverse family structures. This scoping review seeks to comprehensively map current PE strategies with parents and families across existing published pediatric health research literature. Methods We followed Arksey and O’Malley (2005) and Levac et al., (2010) six-stage scoping review process. We conducted the search strategy in Medline, Embase, CINAHL, and Psychinfo databases. Data were extracted from included articles; evidence tables were developed and narrative synthesis was completed. Results Of 3925 retrieved records, seventeen articles were included in the review. Patient engagement primarily occurred through strategies such as advisory groups, meetings, focus groups and interviews. Strategies were used to engage patients at various levels, for different purposes (e.g., to inform, participate, consult, involve collaborate and/or lead). These strategies were also used at various stages of the research process. Navigating power differences, time and money were commonly reported challenges. Inconsistent terminology plagued (e.g., stakeholder engagement, consumer participation, patient and public involvement, participatory research) this body of literature and clarity is urgently needed. Conclusions This review offers insights into current PE strategies used in pediatric health services research and offers insight for researchers considering employing PE in the future.

scholarly journals Models and frameworks of patient engagement in health services research: a scoping review protocol

2018 ◽  
Vol 4 (1) ◽  
Author(s):  
Anna Maria Chudyk ◽  
Celeste Waldman ◽  
Tara Horrill ◽  
Lisa Demczuk ◽  
Carolyn Shimmin ◽  
...  
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Scoping Review ◽  
Patient Engagement ◽  
Services Research ◽  
Review Protocol

scholarly journals Patient and Public Involvement in doctoral research: Reflections and experiences of the PPI contributors and researcher

2019 ◽  
Author(s):  
Shoba Dawson ◽  
Angela Ruddock ◽  
Veena Parmar ◽  
Rebecca Morris ◽  
Sudeh Cheraghi-sohi ◽  
...  
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Public Involvement ◽  
Research Process ◽  
Patient And Public Involvement ◽  
Services Research ◽  
Research Project ◽  
Doctoral Research ◽  
The Uk ◽  
The Impact

Abstract Background Patient and Public Involvement (PPI) has received considerable attention in the last two decades and working in partnership and co-design have now become a prerequisite in health services research in the UK. However, there is a lack of evidence and consistency in recording PPI and related activities. Researchers and PPI contributors are encouraged to record and reflect on the impact of PPI on research. There is significant variation in the way PPI contributors are involved, and it is often limited to some stages of the research cycle than others, without any reflections on the decision-making process for such involvement or any transferable learning. This paper aims to highlight how PPI was embedded in a doctoral research project, the PPI contributors and researcher’s reflections and key recommendations for involving people in doctoral research specifically, but also health services research generally.Methods A reflective approach was taken using data from PPI contributor and researcher notes, e-mail correspondence, meeting notes. Data is presented narratively to reflect on the experiences of involvement throughout the research cycle.Results Undertaking PPI enhanced the quality and relevance of the doctoral research, contributed to the recruitment of study participants, data analysis and dissemination. Building trust and relationships with PPI contributors was key to continued involvement throughout the life of the project and beyond. There is a need to adopt flexible approaches rather than a one-size-fits-all model when working with PPI contributors. Reflections by PPI contributors and the researcher emphasises that involvement was a rewarding experience.Conclusions This paper contributes to the wider literature by providing an exemplar of how PPI can be embedded in doctoral research and demonstrates the value of PPI to the research process and the individuals involved. We also present recommendations on how PPI can be incorporated by doctoral and postdoctoral researchers when planning PPI in their research project.

Interactive visualization applications in population health and health services research: a systematic scoping review (Preprint)

2021 ◽  
Author(s):  
Jawad Chishtie ◽  
Iwona Anna Bielska ◽  
Aldo Barrera ◽  
Jean-Sebastien Marchand ◽  
Muhammad Imran ◽  
...  
Keyword(s):  
Health Care ◽  
Decision Support ◽  
Health Services Research ◽  
Health Services ◽  
Population Health ◽  
Scoping Review ◽  
Interactive Visualization ◽  
Resource Planning ◽  
Services Research ◽  
Epidemiologic Surveillance

BACKGROUND Simple visualizations in health research data, such as scatter plots, heat maps and bar charts typically present relationships between two variables. Interactive visualization methods allow for multiple related facets, such as multiple risk factors, to be studied simultaneously, leading to data insights through exploring trends and patterns from complex big healthcare data. The technique presents a powerful tool that can be used in combination with statistical analysis for knowledge discovery, hypothesis generation and testing, and decision support. OBJECTIVE The primary objective of this scoping review is to describe and summarize the evidence of interactive visualization applications, methods and tools being employed in population health and HSR, and their sub-domains in the last 15 years, from 1 January 2005 to 30 March 2019. Our secondary objective is to describe the use cases, metrics, frameworks used, settings, target audience, goals and co-design of applications. METHODS We adapted standard scoping review guidelines, with a peer reviewed search strategy, two independent researchers at each stage of screening and abstraction, with a third independent researcher to arbitrate conflicts and validate findings. A comprehensive abstraction platform was built to capture the data from diverse bodies of literature, primarily from the computer science and health care sector. After screening 11,310 articles, we present findings from 56 applications from interrelated areas of population health and health services research, and their sub-domains such as epidemiologic surveillance, health resource planning, access, utilization and costs, among diverse clinical and demographic populations. RESULTS As a companion review to our earlier systematic synthesis of literature on visual analytic applications, we present findings in six major themes of interactive visualization applications developed for eight major problem categories. We found a wide application of interactive visualization methods, the major being epidemiologic surveillance for infectious disease, resource planning, health service monitoring and quality and studying medication use patterns. Data sources included mostly secondary administrative and electronic medical record data. Additionally, at least two-third applications involved participatory co-design approaches, while introducing a distinct category ‘embedded research’ within co-design initiatives. These applications were in response to an identified need for data-driven insights towards knowledge generation and decision support. We further discuss the opportunities from the use of interactive visualization methods towards studying global health, inequities including social determinants of health, and other related areas. We also allude to the challenges in the uptake of these methods. CONCLUSIONS Visualization in health has strong historical roots, with an upward trend in the use of these methods in population health and health services research. Such applications are being fast utilized by academic and health care agencies for knowledge discovery, hypotheses generation and decision support. CLINICALTRIAL Protocol registration: RR1-10.2196/14019 Related first review: RR2-10.2196/14019 INTERNATIONAL REGISTERED REPORT RR2-10.2196/14019

scholarly journals Interaction and innovation: practical strategies for inclusive consumer-driven research in health services

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e031555 ◽  
Author(s):  
Maria R Dahm ◽  
Anthony Brown ◽  
Dean Martin ◽  
Maureen Williams ◽  
Brian Osborne ◽  
...  
Keyword(s):  
Data Analysis ◽  
Health Services Research ◽  
Health Services ◽  
Research Design ◽  
Research Process ◽  
Consumer Involvement ◽  
Consumer Engagement ◽  
Services Research ◽  
Active Involvement ◽  
The Impact

IntroductionDespite advances in the co-creation of clinical research involving consumers in the last few decades, consumer engagement in health services research generally remains inconsistent and is too often treated as a perfunctory exercise.ObjectiveDrawing on a health services study on diagnostic test result management, communication and follow-up, we: (1) outline practical strategies used to enhance the contribution of health consumer representatives across all stages of health services research, including active involvement in prioritising objectives for data analysis and participating in data analysis and the dissemination of findings; and (2) describe the impact of continued engagement of consumers on the programme of research, the interpretation of findings and their translational potential.Key innovationsKey enabling innovations for engagement included: (1) planned opportunities for long-term consumer involvement across all stages of the research process from conception to dissemination; (2) enhanced consumer engagement capacity; (3) purposeful recruitment of appropriately trained consumers; (4) provision of support structures for active consumer involvement in research design, analysis and write-up; and (5) financial support for consumer involvement.Impact/ConclusionEnhancing consumer contribution and establishing inclusive research design requires a negotiated, interactive, meaningful and transparent process. As a collaborative approach, consumer-driven research involvement offers opportunities for new, often unexpected or unexplored perspectives to feature across the whole research process. In a move away from tokenistic consumer involvement, consumers and researchers who participated in this novel and immersive research project identified inclusive research as a powerful tool to enhance health services research and its translation into effective policy.

Involving Stakeholders in Health Services Research: Developing Alberta's Resident Classification System for Long-Term Care Facilities

1994 ◽  
Vol 24 (4) ◽  
pp. 749-761 ◽  
Author(s):  
Cathy Charles ◽  
Corinne Schalm ◽  
Joyce Semradek
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Classification System ◽  
Long Term Care ◽  
Research Process ◽  
Research Information ◽  
Services Research ◽  
Term Care ◽  
Administrative Policy

Little attention has been directed in Canada to identifying stakeholders at the administrative policy level to whom relevant health services research information can be targeted. This article describes a case study in which key stakeholders (long-term care facility owners, operators, and care providers) were explicitly defined not only as targets of original research information to inform administrative public policy but also as collaborators in the research process and dissemination of results. The research involved development of a classification system to measure resident care requirements in the province's nursing homes and auxiliary hospitals. The classification system formed the basis of a new government administrative policy for allocating public funds to these facilities based on levels of care. The authors describe the rationale for involving stakeholders in the research process, the role of stakeholders as collaborators, and lessons learned from the Alberta experience. Examples are presented of how stakeholders can contribute to the health services research process and outcome: by providing experiential knowledge related to the research outcome, anticipating and overcoming potential problems with policy implementation, facilitating policy-oriented learning across stakeholder groups, assisting in the transfer of research information to wider stakeholder audiences, and promoting acceptance for policy change.

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