scholarly journals Cervical Cancer-Associated Suffering: Estimating the Palliative Care Needs of a Highly Vulnerable Population

2021 ◽  
pp. 862-872
Author(s):  
Eric L. Krakauer ◽  
Xiaoxiao Kwete ◽  
Khadidjatou Kane ◽  
Gauhar Afshan ◽  
Lisa Bazzett-Matabele ◽  
...  
Keyword(s):  
Cervical Cancer ◽  
Palliative Care ◽  
Family Caregivers ◽  
Financial Distress ◽  
Care Needs ◽  
Middle Income ◽  
Modified Delphi ◽  
High Prevalence ◽  
Clinically Significant ◽  
Palliative Care Needs

PURPOSE To enable design of optimum palliative care for women with cervical cancer, we studied the most common types of suffering and their severity, prevalence, and duration. METHODS We first reviewed the literature on the major types, severity, prevalence, and duration of suffering associated with cervical cancer. We then conducted a modified Delphi process with experts in cervical cancer care to supplement the literature. For each type of suffering, we distinguished between decedents (those who die from cervical cancer in a given year) and nondecedents (those who have cervical cancer in a given year but do not die). By applying the suffering prevalence and duration estimates to the number of decedents, nondecedents, and family caregivers in 2017, we were able to estimate their palliative care needs and the intensity of palliative care needed to respond adequately to this suffering. RESULTS There is a high prevalence among decedents of moderate or severe pain (84%), vaginal discharge (66%), vaginal bleeding (61%), and loss of faith (31%). Among both decedents and nondecedents, there is a high prevalence of clinically significant anxiety (63% and 50%, respectively), depressed mood (52% and 38%, respectively), and sexual dysfunction (87% and 83%, respectively). Moderate or severe financial distress is prevalent among decedents, nondecedents, and family caregivers (84%, 74%, and 66%, respectively). More than 40% of decedents and nondecedents are abandoned by their intimate partners. Most patients experience some combination of moderate or severe physical, psychological, social, and spiritual suffering. In total, 258,649 decedents and 2,558,857 nondecedents needed palliative care in 2017, approximately 85% of whom were in low- and middle-income countries where palliative care is rarely accessible. CONCLUSION Among women with advanced cervical cancer, suffering is highly prevalent and often severe and multifaceted.

The lived experience of patients suffering from stroke and their perception of palliative care needs: a literature review

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Marwa Halabi ◽  
Inaam Khalaf ◽  
Salam Bani Hani
Keyword(s):  
Palliative Care ◽  
Literature Review ◽  
Lived Experience ◽  
Care Service ◽  
Health Care Service ◽  
Stroke Recovery ◽  
Care Needs ◽  
Middle Income ◽  
Content Type ◽  
Palliative Care Needs

Purpose This study aims to review the lived experience of patients suffering from stroke and describe their perception of palliative care needs. Design/methodology/approach A literature review search was conducted. Web of Sciences, SAGE, CINAHL, PubMed and Jordanian Database for Nursing Research databases were used to search the literature. Findings The findings of 37 articles were address palliative care approaches for patients with stroke, lived experiences of patients suffering from stroke and the experience, barriers and facilitators related to health-care service for stroke survivors. Originality/value This review indicated the importance of recognizing palliative care needs among patients suffering from stroke to improve post-stroke recovery. This study recommends further research, especially in low- and middle-income countries, to understand patients’ experiences and recognize the main palliative care needs that can be incorporated into interventions designed to improve the quality of life among them.

Alcohol Dependence in Palliative Care

2017 ◽  
Vol 32 (3-4) ◽  
pp. 108-112 ◽  
Author(s):  
Aisling MacCormac
Keyword(s):  
Palliative Care ◽  
Alcohol Dependence ◽  
Health Care Professionals ◽  
Care Needs ◽  
Search Terms ◽  
High Prevalence ◽  
Poor Social Support ◽  
Palliative Care Needs ◽  
Increased Susceptibility ◽  
Alcohol Dependent

Purpose: Alcohol misuse affects up to 28% of palliative care inpatients. This article aims to summarize the existing literature on the care of palliative patients with alcohol dependence. Methods: The author searched CINAHL, Scopus, MEDLINE, and PubMed from inception until July 2017 using search terms including “alcohol*,” “dependence,” and “palliative.” The results were reported in a narrative manner. Results: Identification of alcohol-dependent patients can be improved through the use of validated tools such as “Cut Down, Annoyed, Guilty, Eye Opener” (CAGE) and “Alcohol Use Disorders Identification Test” (AUDIT). These patients may have specific palliative care needs such as increased susceptibility to terminal agitation, high prevalence of comorbidities, and poor social support networks. Management may involve detoxification, controlled usage of alcohol, or treatment of alcohol withdrawal. Conclusions: Patients may derive clinical benefit when alcohol dependence is identified by health-care professionals. Routine screening should be considered. Further research is needed to directly compare treatments for alcohol dependence in palliative care.

scholarly journals The palliative care needs of patients with idiopathic pulmonary fibrosis: A qualitative study of patients and family caregivers

Heart & Lung ◽  
2017 ◽  
Vol 46 (1) ◽  
pp. 24-29 ◽  
Author(s):  
Kathleen Oare Lindell ◽  
Dio Kavalieratos ◽  
Kevin F. Gibson ◽  
Laura Tycon ◽  
Margaret Rosenzweig
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Family Caregivers ◽  
Care Needs ◽  
Palliative Care Needs

Patients with acquired immunodeficiency syndrome

2015 ◽  
pp. 628-649
Author(s):  
Carl A. Kirton ◽  
Deborah Witt Sherman
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Family Caregivers ◽  
Health Care Professionals ◽  
Care Needs ◽  
Acquired Immunodeficiency ◽  
Aggressive Care ◽  
Immunodeficiency Syndrome ◽  
Palliative Care Needs

This chapter provides an overview and update of the comprehensive care related to HIV/AIDS and addresses the palliative care needs of individuals and families living with and dying from this illness. With this information, nurses and other health-care professionals will gain the knowledge to provide effective and compassionate care, recognizing the need for both curative and aggressive care as well as supportive and palliative therapies to maximize the quality of life of patients and their family caregivers.

scholarly journals Supporting the patients with advanced cancer and their family caregivers: what are their palliative care needs?

BMC Cancer ◽  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Gek Phin Chua ◽  
Grace Su Yin Pang ◽  
Alethlea Chung Pheng Yee ◽  
Patricia Soek Hui Neo ◽  
Siqin Zhou ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals EXPRESS: Palliative care after stroke: a review

2021 ◽  
pp. 174749302110166
Author(s):  
Eileen Cowey ◽  
Markus Schichtel ◽  
Joshua Cheyne ◽  
Lorna Tweedie ◽  
Richard Lehman ◽  
...  
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Racial Disparities ◽  
Shared Decision Making ◽  
Shared Decision ◽  
Care Needs ◽  
Middle Income ◽  
Middle Income Countries ◽  
Palliative Care Needs ◽  
Low And Middle Income

Background: Palliative care is an integral aspect of stroke unit care. In 2016, the American Stroke Association published a policy statement on palliative care and stroke. Since then there has been an expansion in the literature on palliative care and stroke. Aim: our aim was to narratively review research on palliative care and stroke, published since 2015. Results: The literature fell into three broad categories: a) scope and scale of palliative care needs, b) organisation of palliative care for stroke and c) shared decision making. Most literature was observational. There was a lack of evidence about interventions that address specific palliative symptoms or improve shared decision making. Racial disparities exist in access to palliative care after stroke. There was a dearth of literature from low and middle income countries. Conclusion. We recommend further research, especially in low and middle income countries, including research to explore why racial disparities in access to palliative care exist. Randomised trials are needed to address specific palliative care needs after stroke and to understand how best to facilitate shared decision making

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