Creation of a standardized set of patient-centered outcomes for advanced prostate cancer: An international effort.

282 Background: Clinical trials and international registries assess outcomes considered relevant to men with advanced prostate cancer (CaP). However, we lack a single standardized set of outcomes, making direct comparisons between populations and quality of care assessments challenging. We sought to create a minimum standardized set of outcomes relevant to men with advanced CaP. Methods: The International Consortium for Health Outcomes Measurement assembled a multi-disciplinary working group to create a minimum set of measures to collect for men with advanced CaP. We used a modified Delphi method to establish pertinent measures and case-mix characteristics. Results: Approximately 24 experts, including clinicians and patient advocates, from North America, Europe, and Australia participated. We defined the included population as men with metastatic prostate cancer or biochemical recurrence who failed or were ineligible for salvage therapy. Outcomes important to all men with advanced CaP, such as overall survival, and measures specific to subgroups, such as time to metastasis, were identified. Measures gathered from clinical data include risk-stratification characteristics and measures of disease control. Patient-reported outcome measures, like pain control, depression, and erectile, urinary, and bowel dysfunction, were also identified. Conclusions: Standardized outcome measures are necessary to assess quality of care across different populations, and are critical to ensure value in health care. Our international, multi-disciplinary team identified clinical data and patient-reported outcomes to provide a basis for international health outcome comparisons and future assessments of quality of care for men with advanced CaP.

Download Full-text

Importance of patient reported outcome measures versus clinical outcomes for breast cancer patients evaluation on quality of care

The Breast ◽

10.1016/j.breast.2016.02.015 ◽

2016 ◽

Vol 27 ◽

pp. 62-68 ◽

Cited By ~ 13

Author(s):

Melissa Kool ◽

Joost R.M. van der Sijp ◽

Judith R. Kroep ◽

Gerrit-Jan Liefers ◽

Ilse Jannink ◽

...

Keyword(s):

Breast Cancer ◽

Quality Of Care ◽

Cancer Patients ◽

Clinical Outcomes ◽

Outcome Measures ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Breast Cancer Patients ◽

Patient Reported

Download Full-text

Improving quality of care through patient-reported outcome measures (PROMs): expert interviews using the NHS PROMs Programme and the Swedish quality registers for knee and hip arthroplasty as examples

BMC Health Services Research ◽

10.1186/s12913-018-2898-z ◽

2018 ◽

Vol 18 (1) ◽

Cited By ~ 18

Author(s):

Birgit Prodinger ◽

Paul Taylor

Keyword(s):

Quality Of Care ◽

Outcome Measures ◽

Hip Arthroplasty ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Expert Interviews ◽

Patient Reported ◽

Knee And Hip Arthroplasty

Download Full-text

Using Patient-Reported Outcome Measures (PROMs) to promote quality of care and safety in the management of patients with Advanced Chronic Kidney disease (PRO-trACK project): a mixed-methods project protocol

BMJ Open ◽

10.1136/bmjopen-2017-016687 ◽

2017 ◽

Vol 7 (6) ◽

pp. e016687 ◽

Cited By ~ 9

Author(s):

Olalekan Lee Aiyegbusi ◽

Derek Kyte ◽

Paul Cockwell ◽

Tom Marshall ◽

Mary Dutton ◽

...

Keyword(s):

Chronic Kidney Disease ◽

Quality Of Care ◽

Mixed Methods ◽

Kidney Disease ◽

Outcome Measures ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Advanced Chronic Kidney Disease ◽

Patient Reported

Download Full-text

The effectiveness of patient-reported outcome measures (PROMs) in improving the quality of care for patients undergoing hip replacement surgery

http://isrctn.org/> ◽

10.1186/isrctn69032522 ◽

2012 ◽

Author(s):

John Browne

Keyword(s):

Quality Of Care ◽

Outcome Measures ◽

Hip Replacement ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Replacement Surgery ◽

Hip Replacement Surgery ◽

Patient Reported

Download Full-text

Using patient-reported outcome measures (PROMs) to promote quality of care in the management of patients with established kidney disease requiring treatment with haemodialysis in the UK (PROM-HD): a qualitative study protocol

BMJ Open ◽

10.1136/bmjopen-2018-021532 ◽

2018 ◽

Vol 8 (10) ◽

pp. e021532 ◽

Cited By ~ 6

Author(s):

Nicola Elzabeth Anderson ◽

Melanie Calvert ◽

Paul Cockwell ◽

Mary Dutton ◽

Olalekan Lee Aiyegbusi ◽

...

Keyword(s):

Quality Of Care ◽

Kidney Disease ◽

Outcome Measures ◽

Clinical Care ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Routine Clinical Care ◽

Patient Reported ◽

The Uk

IntroductionPatients undergoing haemodialysis (HD) for end-stage kidney disease often report a poor quality of life (QoL) and identify that improving QoL has a higher priority for them than improvements in long-term survival. Research suggests that regular collection and usage of patient-reported outcome measures (PROMs) in patients with chronic conditions may reduce hospitalisation, improve QoL and overall survival. In the UK, despite increased use within research settings, PROMs have not been introduced into the routine clinical care for patients undergoing HD.We report the protocol for ‘Using patient reported outcome measures (PROMs) to promote quality of care in the management of patients with established kidney disease requiring treatment with haemodialysis in the UK—PROM-HD’. The study aim is to investigate the methodological basis for the use of routine PROMs assessment, particularly using electronic formats (ePROMs) within clinical and research settings, to maximise the potential of PROM use in the management of the care of this patient group.Methods and analysisThe project will use qualitative methodology to explore, by thematic analysis, the views, perceptions and experiences of patients receiving HD and members of the HD multidisciplinary team regarding the collection and use of PROMs in routine clinical care, particularly ePROMs. This will involve interviews with up to 30 patients or until saturation is achieved and three focus group sessions with approximately 18 members of the clinical team delivering care to this patient group, which will be interpreted broadly to include both professional and non-professional staff.

Download Full-text

Measurement of generic patient reported outcome measures (PROMs) in an acute admission unit: A feasibility study

Acute Medicine Journal ◽

10.52964/amja.0595 ◽

2016 ◽

Vol 15 (1) ◽

pp. 13-19

Author(s):

LS van Galen ◽

◽

W van der Schors ◽

NL Damen ◽

Mark H H Kramer ◽

...

Keyword(s):

Quality Of Care ◽

The Netherlands ◽

Outcome Measures ◽

Social Role ◽

Patient Reported Outcome Measures ◽

Tertiary Hospital ◽

Patient Reported Outcome ◽

Acute Admission ◽

Patient Reported

Objective: Measuring patient-reported outcome measures (PROMs) is a challenge in Acute Admission Units (AAUs), where patients present with a variety of pathologies. Generic PROMs may be used to measure the quality of care in this population. The main objective of this study was to assess the feasibility of measuring generic PROMs in a Dutch AAU. Design: Longitudinal cohort study Setting: An AAU of a tertiary hospital in Amsterdam, the Netherlands Participants: 123 patients admitted to the AAU during 5 weeks in May and June 2015 Methods: Patients admitted to the AAU were asked to fill out a questionnaire relating to three time points: 7 days before, during, and within 2 weeks after admission. Additionally, patients were asked to report on their experienced level of safety on the AAU and the contribution of the AAU to their recovery. Results: There were significant trends in generic PROMs for all three domains. Physical functioning decreased during hospital admission and almost fully returned to the previous level after discharge. Satisfaction with social role and anxiety significantly decreased over time. Conclusions: Measuring generic PROMs in the AAU is feasible. The analysis of the PROMs took little effort and results could be reported back to the healthcare workers on the AAU quickly. Patients appreciated being asked about their own perceived health and the quality of care. Given that this is the first study focusing on PROMs in AAU patients in the Netherlands, future studies with larger sample sizes, and from other nations are needed to further investigate PROMs in this patient group to establish International reference values.

Download Full-text