scholarly journals Εμπειρίες και βιώματα μητέρας παιδιού με σύνδρομο Down: μια μελέτη περίπτωσης

2021 ◽  
Vol 26 (1) ◽  
pp. 264
Author(s):  
Μαρία Μαρκοδημητράκη ◽  
Μαρία Κυπριωτάκη
Keyword(s):  
Down Syndrome ◽  
Intensive Care ◽  
Qualitative Study ◽  
Female Child ◽  
Daily Basis ◽  
Intervention School ◽  
Structured Interviews ◽  
Family Network ◽  
Children With Down Syndrome

Parents of children with Down syndrome face many challenges and have various needs related to their children’s difficulties. The purpose of this qualitative study is to detect the experiences of a mother of a female child with Down syndrome. More specifically, through semi-structured interviews, the study aims to explore the feelings of the mother, her involvement in the child’s life, as well as her relationships with the familial and social context. The results showed that the mother is significantly involved in her child’s life and faces various difficulties (e.g. acceptance of the child and her intensive care) on a daily basis, which she copes with supported by the intra-family network. By understanding the experiences of the specific mother, as the latter are examined in the present qualitative study, important issues emerge, related to diagnosis and early intervention, school integration of a child with Down syndrome, the role of family members in her education and therapy, as well as concerns regarding her future.

scholarly journals Time-limited trials: A qualitative study exploring the role of time in decision-making on the Intensive Care Unit

2019 ◽  
Vol 15 (1) ◽  
pp. 11-16 ◽  
Author(s):  
Bradley Lonergan ◽  
Alexandra Wright ◽  
Rachel Markham ◽  
Laura Machin
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
Qualitative Study ◽  
Intensive Care Units ◽  
Treatment Withdrawal ◽  
Structured Interviews ◽  
Open Communication ◽  
North West

Background Withholding and withdrawing treatment are deemed ethically equivalent by most Bioethicists, but intensivists often find withdrawing more difficult in practice. This can lead to futile treatment being prolonged. Time-limited trials have been proposed as a way of promoting timely treatment withdrawal whilst giving the patient the greatest chance of recovery. Despite being in UK guidelines, time-limited trials have been infrequently implemented on Intensive Care Units. We will explore the role of time in Intensive Care Unit decision-making and provide a UK perspective on debates surrounding time-limited trials. Methods This qualitative study recruited 18 participants (nine doctors, nine nurses) from two Intensive Care Units in North West England for in-depth, one-to-one semi-structured interviews. A thematic analysis was performed of the data. Results Our findings show time is utilised by Intensive Care Unit staff in a variety of ways including managing uncertainty when making decisions about a patient’s prognosis or the reversibility of a disease, constructing relationships with patients’ relatives, communicating difficult messages to patients’ relatives, justifying resource allocation decisions to colleagues, and demonstrating compassion towards patients and their families. Conclusions Time shifts the balance towards greater certainty in Intensive Care Unit decision-making, by demonstrating futility, and can ease the difficult transition for staff and families from active treatment to palliation. However, this requires clear and open communication, both within the Intensive Care Unit team and with the family, being prioritised when time is used in decision-making.

scholarly journals G272 Intensive care admissions in children with down syndrome: trends in incidence and outcome

2020 ◽  
Author(s):  
B Rapaport ◽  
E Marder ◽  
AR Smyth ◽  
RC Parslow ◽  
H Vyas ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Intensive Care ◽  
Children With Down Syndrome

scholarly journals The Role of Sensorial Integration in Motor Development in Children with Down Syndrome

GYMNASIUM ◽  
2019 ◽  
Vol XIX (1) ◽  
pp. 42
Author(s):  
Mihaela Anghel
Keyword(s):  
Down Syndrome ◽  
Motor Development ◽  
Sensory Stimulation ◽  
Sensory Stimuli ◽  
Children With Down Syndrome ◽  
Combination Strategies ◽  
Sensory Motor ◽  
Syndrome Child

One of the reasons behind the choice of the topic is that this problem of sensory-motor development in children with physical and mental deficiencies, especially in children with Down syndrome, is not sufficiently known and studied, sensory-motor development representing an important factor in their physical and social development. The reason I chose this theme and the theoretical basis from which I started was to improve the psychomotor behaviors through sensory stimulation. The assumptions we went into the research were: 1. If we use different sensory combination strategies, the Down Syndrome will be able to compensate for the psycho-motor disorders; 2. If we apply sensory stimuli to the Down Syndrome child, then there will be ameliorations of the underlying motor conduction. The research presents a case study of a 6 year and six mouth old child diagnosed with Down syndrome. The location of the study was carried out at the "Delfinul" day center of the Betania Association.

scholarly journals The role of social workers for children with down syndrome and their families.

2018 ◽  
Author(s):  
Renawati Renawati ◽  
Maulana Irfan Maulana ◽  
Meilanny Budiarty Meilanny ◽  
Budhi Wibhawa Budhi ◽  
Nurlina Apsari Nurlina
Keyword(s):  
Down Syndrome ◽  
Social Workers ◽  
Children With Down Syndrome

Mental State Language Use in Children with Down Syndrome and the Role of Caregivers

2021 ◽  
Vol 42 (04) ◽  
pp. 318-329
Author(s):  
Marie Moore Channell ◽  
Rebekah Bosley
Keyword(s):  
Down Syndrome ◽  
Language Development ◽  
Mental State ◽  
Social Communication ◽  
School Age Children ◽  
School Age ◽  
Children With Down Syndrome ◽  
Mental State Language ◽  
State Language

AbstractChildren with Down syndrome (DS) have both strengths and difficulties in speech, language, and social communication. Mental state language—the ability to discuss others' perspectives such as their thoughts, feelings, and intentions—represents a foundational social communicative skill that is delayed in many children with DS, even into the school-age years. The purpose of this article is to review the evidence base on mental state language development in school-age children with DS, focusing in particular on assessment and intervention. We discuss assessment procedures that are both age appropriate and developmentally appropriate for this population. We also present preliminary data highlighting the role of caregivers in supporting mental state language development in school-age children with DS through shared storytelling. We propose that interventions aimed at supporting mental state language development in DS should include a focus on caregiver–child shared storybook reading, even in the school-age years. Therefore, we discuss key considerations for clinicians when teaching caregivers strategies for supporting mental state language and social communication in children with DS.

scholarly journals The challenges of using physical restraint in intensive care units in Iran: A qualitative study

2020 ◽  
pp. 175114371989278
Author(s):  
Zahra Salehi ◽  
Soodabeh Joolaee ◽  
Fatemeh Hajibabaee ◽  
Tahereh Najafi Ghezeljeh
Keyword(s):  
Critical Care ◽  
Intensive Care ◽  
Qualitative Study ◽  
Intensive Care Units ◽  
Physical Restraint ◽  
Critical Care Nurses ◽  
Structured Interviews ◽  
Standard Equipment ◽  
Restraint Use ◽  
Ensure Patient Safety

Background Physical restraint is widely used in intensive care units to ensure patient safety, manage agitated patients, and prevent the removal of medical equipment connected to them. However, physical restraint use is a major healthcare challenge worldwide. Aim This study aimed to explore nurses' experiences of the challenges of physical restraint use in intensive care units. Methods This qualitative study was conducted in 2018–2019. Twenty critical care nurses were purposively recruited from the intensive care units of four hospitals in Tehran, Iran. Data were collected via in-depth semi-structured interviews, concurrently analyzed via Graneheim and Lundman's conventional content analysis approach, and managed via MAXQDA software (v. 10.0). Findings Three main themes were identified (i) organizational barriers to effective physical restraint use (lack of quality educations for nurses about physical restraint use, lack of standard guidelines for physical restraint use, lack of standard physical restraint equipment), (ii) ignoring patients' wholeness (their health and rights), and (iii) distress over physical restraint use (emotional and mental distress, moral conflict, and inability to find an appropriate alternative for physical restraint). Conclusion Critical care nurses face different organizational, ethical, and emotional challenges in using physical restraint. Healthcare managers and authorities can reduce these challenges by developing standard evidence-based guidelines, equipping hospital wards with standard equipment, implementing in-service educational programs, supervising nurses' practice, and empowering them for finding and using alternatives to physical restraint. Nurses can also reduce these challenges through careful patient assessment, using appropriate alternatives to physical restraint, and consulting with their expert colleagues.

scholarly journals Prescribing for personality disorder: qualitative study of interviews with general and forensic consultant psychiatrists

2014 ◽  
Vol 38 (3) ◽  
pp. 116-121 ◽  
Author(s):  
Lawrence Martean ◽  
Chris Evans
Keyword(s):  
Personality Disorder ◽  
Qualitative Study ◽  
Clinical Implications ◽  
Structured Interviews ◽  
Relational Processes ◽  
Technological Interventions ◽  
Patient Relationships ◽  
And Training ◽  
Pharmaceutical Interventions

Aims and methodTo explore experiences of psychiatrists considering medication for patients with personality disorder by analysis of transcribed, semi-structured interviews with consultants.ResultsThemes show important relational processes in which not prescribing is expected to be experienced as uncaring rejection, and psychiatrists felt helpless and inadequate as doctors when unable to relieve symptoms by prescribing. Discontinuity in doctor–patient relationships compounds these problems.Clinical implicationsProblems arise from: (a) the psychopathology creating powerful relational effects in consultation; (b) the lack of effective treatments, both actual and secondary to under-resourcing and neglect of non-pharmaceutical interventions; and (c) the professionally constructed role of psychiatrists prioritising healing and cure through provision of technological interventions for specific diagnoses. There is a need for more treatments and services for patients with personality disorder; more support and training for psychiatrists in the relational complexities of prescribing; and a rethink of the trend for psychiatrists to be seen primarily as prescribers.

scholarly journals Exploring Student Motivation in Quranic Memorization in Selected Islamic Secondary Schools (a Case Study)

2021 ◽  
Vol 5 (1) ◽  
pp. 100
Author(s):  
Nik Md Saiful Azizi Nik Abdullah ◽  
Fathiyah Solehah Mohd Sabbri ◽  
Rabi'atul Athirah Muhammad Isa
Keyword(s):  
Qualitative Study ◽  
Secondary Schools ◽  
Student Motivation ◽  
The Other ◽  
Influential Factor ◽  
Structured Interviews ◽  
Parental Guidance

This article sought to explore the student motivation in memorizing the Quran. A qualitative study through semi-structured interviews with six participants was done to gain data for this study. The findings showed that parents, teachers and the participants themselves influenced student motivation in memorising the Quran. The role of parental guidance and advice was the most influential factor leading to cause among students in learning the Quran. Implications of this study, the students themselves and teachers also were the source of motivation to memorize. At the same time, teachers should always assist and help students in their memorization of the Quran. That way, students will feel more confident to continue their memorization. Therefore, this study can be helpful as a reference in lowering the gap in motivation in Quranic memorization. Hence, the researchers believe that this study will help the other researchers continue and elaborate more on Quranic memorization about the cause.

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