scholarly journals “Blaming, shaming, humiliation”: Stigmatising medical interactions among people with non-epileptic seizures

2017 ◽  
Vol 2 ◽  
pp. 55 ◽  
Author(s):  
Catherine Robson ◽  
Olaug S. Lian
Keyword(s):  
Health Professionals ◽  
Epileptic Seizures ◽  
Quality Of Healthcare ◽  
Social Constructionist ◽  
Free Text ◽  
Negative Experiences ◽  
Health And Illness ◽  
Survey Responses ◽  
Study Participants

Background: People with non-epileptic seizures (NES) describe challenging relationships with health professionals, and explain negative interactions as common and expected. Despite these difficulties, little is known about how people with NES experience difficult healthcare encounters. Methods: Using a thematic discourse analysis approach, we analysed the free-text survey responses of 135 people with NES and asked: what kind of challenges do people living with this condition encounter when interacting with health professionals, and how do they experience the consequences of difficult interactions? We explore their experiences by interpreting the latent meaning of participants’ texts from a social-constructionist perspective on health and illness. Results: The overarching narrative depicts a fundamental breakdown in patient-provider relationships. According to our data, the negative experiences of study participants emerge from more than practitioners’ lack of awareness of NES and access to information about the condition - to the extent that it is available. In examining the challenges people with NES encounter when interacting with health professionals, their main experiences centre on blame and humiliation. When exploring their experiences, theories of stigma serve as a useful theoretical framework. Conclusions: Normative judgements arising from psychogenic understandings of NES are stigmatising and restrict professional displays of respectful (patient-centred) care. Those with the condition depict being negatively stereotyped, illegitimated and held morally culpable by health professionals. Perceived to lack medical, moral and credible status, participants describe practitioners who treat them with disrespect, and some recount conduct that defies all ethical and professional obligations and standards. These encounters can have wide-ranging adverse consequences for patients: emotionally, physically, and for their future healthcare. The quality of healthcare interactions for people with NES requires urgent improvements. In addition to increased awareness of the condition, practitioners need to be conscious of making and acting on adverse moral appraisals when interacting with this patient group.

scholarly journals “Blaming, shaming, humiliation”: Stigmatising medical interactions among people with non-epileptic seizures

2017 ◽  
Vol 2 ◽  
pp. 55 ◽  
Author(s):  
Catherine Robson ◽  
Olaug S. Lian
Keyword(s):  
Health Professionals ◽  
Epileptic Seizures ◽  
Quality Of Healthcare ◽  
Social Constructionist ◽  
Free Text ◽  
Negative Experiences ◽  
Health And Illness ◽  
Survey Responses ◽  
Study Participants

Background: People with non-epileptic seizures (NES) describe difficult and challenging relationships with health professionals, and explain negative interactions as common and expected. Despite these difficulties, little is known about how people with NES experience healthcare encounters. Methods: Using a thematic discourse analysis approach, we analysed the free-text survey responses of 135 people with NES and asked: what kind of challenges do people living with this condition encounter when interacting with health professionals, and how do they experience the consequences of difficult interactions? We explore their experiences by interpreting the latent meaning of participants’ texts from a social-constructionist perspective on health and illness. Results: The overarching narrative depicts a fundamental breakdown in patient-provider relationships. According to our data, the negative experiences of study participants emerge from more than practitioners’ lack of awareness of NES and access to information about the condition - to the extent that it is available. In examining the challenges people with NES encounter when interacting with health professionals, their main experiences centre on blame and humiliation. When exploring their experiences, theories of stigma serve as a useful theoretical framework. Conclusions: Normative judgements arising from psychogenic understandings of NES are stigmatising and restrict professional displays of respectful (patient-centred) care.Those with the condition depict being negatively stereotyped, illegitimated and held morally culpable by health professionals. Perceived to lack medical, moral and credible status, participants describe practitioners who treat them with disrespect, and they recount conduct that defies ethical and professional obligations and standards. These encounters can have wide-ranging adverse consequences for patients: emotionally, physically, and for their future healthcare. The quality of healthcare interactions for people with NES requires urgent improvements. In addition to increased awareness of the condition, practitioners need to be conscious of making and acting on adverse moral appraisals when interacting with this patient group.

scholarly journals P106 Psychological and self-management support for people with systemic vasculitis or CTDs: a mixed methods study of health professionals’ perception of provision in Rheumatology and Nephrology departments in the UK

Rheumatology ◽  
2020 ◽  
Vol 59 (Supplement_2) ◽  
Author(s):  
Joanna C Robson ◽  
Michael Shepherd ◽  
Mwidimi Ndosi ◽  
Lorraine Harper ◽  
Caroline Flurey ◽  
...  
Keyword(s):  
Health Professional ◽  
Health Professionals ◽  
Online Survey ◽  
Psychological Support ◽  
Self Management ◽  
Free Text ◽  
Management Support ◽  
The Uk

Abstract Background People with a connective tissue disease (CTD) or systemic vasculititis have diseases which can be life and organ threatening, require complicated medication regimens and impact on all aspects of health-related quality of life. People are routinely managed across multiple medical specialities and have to navigate their way through complex health care systems. The aim of this study was to investigate current psychological and self-management support available for people with CTDs and vasculitis in rheumatology and nephrology departments in the UK. Methods An online survey of health professionals in rheumatology and nephrology departments was conducted with follow-up interviews. The survey comprised 45 multiple-choice and free-text questions. Quantitative material was analysed descriptively. Follow-up interviews were recorded, transcribed and analysed thematically, together with free-text survey responses, to identify health professionals’ perceptions on unmet needs and key improvements required. Results The online survey included 120 health professional respondents (34 % specialist nurses, 51% doctors and 12 % allied health professionals and pharmacists). Respondents worked primarily in rheumatology (52.9%) and nephrology (21.5%). Access to self-management programmes or clinics for people with CTD and vasculitis was available in 23% of rheumatology and 8% of nephrology departments. In response to the question “How well is your team providing self-management support to people with CTD and vasculitis?”, 38% of respondents reported not very well, or not well at all. Direct access to psychological support (either within their department or within the hospital) was available for patients in 76.9% of nephrology and 32.8% of rheumatology departments. Where psychological referrals were direct, the assessment of the quality of the service by health professionals was higher than when the referrals were indirect (i.e when patients were either referred to primary care or asked to self-refer) (X2=13.83, p < 0.001). Over 80% of health-professional respondents reported they would like additional training in providing self-management support. Key themes from the qualitative data included the need for dedicated psychological support within departments, self-management programmes (specifically for people with CTD and vasculitis or opening up established programmes for people with other conditions), the benefits of a whole team approach (specialist teams not individual clinicians working to empower patients to take a lead in managing their own care), individual staff training needs ( training in brief psychological interventions and support for health professionals to set up self-management programmes) and signposting to additional resources for patients and their families ( disease-specific written and online information and support from patient charities). Conclusion People with CTD and vasculitis have complex needs and systemic improvements in support are required. Patients in nephrology departments are more likely to have access to psychological support than those in rheumatology. There is inadequate access to structured self-management programmes in both nephrology and rheumatology. Disclosures J.C. Robson None. M. Shepherd None. M. Ndosi None. L. Harper None. C. Flurey None. S. Logan None. K. Austin None. E. Dures None.

scholarly journals Incontinence and Nocturia in Older Adults After Hip Fracture: Analysis of a Secondary Outcome for a Parallel Group, Randomized Controlled Trial

2017 ◽  
Vol 3 ◽  
pp. 233372141770957 ◽  
Author(s):  
Enav Z. Zusman ◽  
Megan M. McAllister ◽  
Peggy Chen ◽  
Pierre Guy ◽  
Heather M. Hanson ◽  
...  
Keyword(s):  
Older Adults ◽  
Hip Fracture ◽  
Usual Care ◽  
Health Professionals ◽  
Controlled Trial ◽  
Secondary Outcome ◽  
Parallel Group ◽  
Study Participants

Objective: To test the effect of a follow-up clinic on urinary incontinence (UI) and nocturia among older adults with hip fracture. Method: Fifty-three older adults (≥65 years) 3 to 12 months following hip fracture were enrolled and randomized to receive usual care plus the intervention (B4), or usual care (UC) only. The B4 group received management by health professionals, with need-based referrals. UI, nocturia, and quality of life were measured with questionnaires at baseline, 6 months, and 12 months. Results: There were 48 participants included in this analysis, and at baseline, 44% of study participants self-reported UI. At final assessment, six out of 24 B4 participants and 12 out of 24 UC participants reported UI. Four out of five study participants reported nocturia at baseline; this did not decrease during the study. Discussion: Following hip fracture, many older adults report UI and most report nocturia. Health professionals should be aware of the high occurrence of urinary symptoms among older adults post hip fracture.

scholarly journals Usage of Students’ Potential in Biomedical and Health Care Research in Bosnia and Herzegovina

2021 ◽  
Author(s):  
Emir Begagic ◽  
Nermin Duzic ◽  
Zlatan Memic ◽  
Nemanja Arandelovic ◽  
Anida Celebic ◽  
...  
Keyword(s):  
Bosnia And Herzegovina ◽  
Scientific Research ◽  
Health Care Research ◽  
Scientific Paper ◽  
Biomedical Sciences ◽  
Scientific Papers ◽  
Survey Responses ◽  
Study Participants ◽  
Google Search

Objective: To provide relevant insight into the current degree of usage of the research potential of students of biomedical sciences in Bosnia and Herzegovina. Method: The chosen data collection method was online surveying via Google search engine. The target group were students of biomedical sciences in Bosnia and Herzegovina. The surveying was conducted in July 2019, and responses were subjected to descriptive statistics. Results: Although the majority of participants claimed that they were familiar with the seminar and scientific papers writing methodology and that the related course is available in their faculty’s curriculum, the quality of such courses may be questioned as the majority of study participants self-reported that they do not possess or did not posses necessary knowledge for writing and publishing a scientific paper. Also, the majority of respondents reported that they have never participated in any scientific research, which questions the involvement of students in scientific research in our country as well. More than half of respondents were actively reading scientific papers, but a third of them did not have that habit. Two-thirds of students reported that they have never attended any scientific event where they could learn more about the scientific research methods. Inadequate awareness of the importance of research, lack of students’ interest in making a research, and lack of knowledge were characterized as main obstacles in conducting scientific research according to survey responses. Conclusion: Information obtained through research indicate that the student potential in scientific research in Bosnia and Herzegovina has not been used in its maximal capacity, requiring several steps to be taken towards its improvement.

Staunching the Flow

2018 ◽  
Author(s):  
Jonathan Crush ◽  
Abel Chikanda
Keyword(s):  
Brain Drain ◽  
Health Professionals ◽  
Quality Of Healthcare ◽  
Retention Strategies ◽  
Health Institutions ◽  
The Government ◽  
Using Data ◽  
The Brain ◽  
Skilled Health

South Africa has experienced a major outflow of health professionals since the end of apartheid in 1994 and this brain drain has led to a significant decline in the quality of healthcare across the country’s health institutions. This chapter provides a critical assessment of South Africa’s health professional retention strategies and asks if these have led to any significant shifts in the emigration intentions of highly skilled health professionals (medical doctors and specialists, dentists and pharmacists). The chapter provides an overview of the scale of the brain drain from the country and the emigration intentions of those still there and in training. It then examines the various strategies that the government has adopted to staunch the flow. Finally, using data from 2007 and 2013 surveys of health professionals by the Southern African Migration Program, the chapter assesses whether these strategies have had any discernible impact.

scholarly journals Incidents reporting: barriers and strategies to promote safety culture

2018 ◽  
Vol 52 (0) ◽  
Author(s):  
Fabiana Rossi Varallo ◽  
Aline Cristina Passos ◽  
Tales Rubens de Nadai ◽  
Patricia de Carvalho Mastroianni
Keyword(s):  
Patient Safety ◽  
Educational Intervention ◽  
Safety Culture ◽  
Health Professionals ◽  
Multidisciplinary Team ◽  
Quality Of Healthcare ◽  
Hospital Staff ◽  
Reporting Method ◽  
Method Group

ABSTRACT Objective The purpose was to identify the barriers of underreporting, the factors that promote motivation of health professionals to report, and strategies to enhance incidents reporting. Method Group conversations were carried out within a hospital multidisciplinary team. A mediator stimulated reflection among the subjects about the theme. Sixty-five health professionals were enrolled. Results Complacency and ambition were barriers exceeded. Lack of responsibility about culture of reporting was the new barrier observed. There is a belief only nurses should report incidents. The strategies related to motivation reported were: feedback; educational intervention with hospital staff; and simplified tools for reporting (electronic or manual), which allow filling critical information and traceability of management risk team to improve the quality of report. Conclusion Ordinary and practical strategies should be developed to optimize incidents reporting, to make people aware about their responsibilities about the culture of reporting and to improve the risk communication and the quality of healthcare and patient safety.

Do we need a UK vascular journal? Survey of multidisciplinary UK vascular specialists

2021 ◽  
Vol 1 (1) ◽  
pp. 6-10
Author(s):  
J Long ◽  
R Lathan ◽  
M Sidapra ◽  
I Chetter ◽  
S Nandhra
Keyword(s):  
Great Britain ◽  
Health Professionals ◽  
Healthcare Professionals ◽  
Free Text ◽  
Vascular Health ◽  
Online Questionnaire ◽  
Research Committee ◽  
Collaborative Working ◽  
Background Prior

Background: Prior to the development of the Journal of Vascular Societies Great Britain & Ireland (JVSGBI), there were limited opportunities for UK based vascular health professionals to publish research relevant for UK vascular practice. A survey was developed to evaluate the appetite and potential infrastructure for a UK vascular journal amongst vascular healthcare professionals. Methods: In May 2020, an online questionnaire was administered by The Vascular Society of Great Britain and Ireland (VSGBI) Research Committee, surveying vascular health professionals regarding the development of a UK-specific vascular journal. The survey was disseminated via email to multi-disciplinary members of the vascular community with links promoted on social media. Results: Responses were received from 359 individuals identifying predominantly as surgeons (38%), nurses (8%), technologists (10%), radiologists (20%), trainees (10%), physiotherapists (7%) and other (7%). The majority of participants (67%) indicated they would be in favour of a UK-specific vascular journal and that it should be available as an online quarterly publication. Almost three quarters (74%) of respondents thought a subscription fee should be included in societies’ membership fees. Free text comments highlighted a few concerns, suggesting the focus should instead be to improve the quality of existing vascular journals. However, most respondents welcomed the idea of a journal relevant to UK practice, with inclusivity of all UK vascular professions to encourage more collaborative working. Conclusions: Overall, feedback collected from the survey was positive and suggested a demand for a UK-specific vascular journal, providing an indication that the development of such a journal should be further explored. The results of this survey helped to inform the development of the JVSGBI.

scholarly journals Top 10 global educational topics in stroke: A survey by the World Stroke Organization

2019 ◽  
Vol 14 (8) ◽  
pp. 843-849
Author(s):  
Monica Saini ◽  
Sarah Belson ◽  
Carmen Lahiff-Jenkins ◽  
Peter Sandercock
Keyword(s):  
Health Professionals ◽  
Online Survey ◽  
Stroke Care ◽  
Educational Needs ◽  
Free Text ◽  
Allied Health Professionals ◽  
Middle Income ◽  
Support Organizations ◽  
The World ◽  
Survey Responses

AimAs part of a program of work to develop an educational strategy and implementation plan for the World Stroke Organization, we conducted a survey of World Stroke Organization members (health professionals, laypersons (Stroke Support Organizations)) to identify their potential educational needs.MethodsWe developed a questionnaire to identify priority educational needs in consultation with the World Stroke Organization Education Committee. The World Stroke Organization invited all individual members and associated Stroke Support Organizations to complete the questionnaire via a web-based survey. Survey responses were supplemented by questionnaires emailed directly to key persons in Stroke Support Organizations and information from semi-structured telephone interviews, where necessary. The questionnaire asked respondents to prioritize topics in diagnosis, management of acute stroke, stroke care services, stroke rehabilitation, and stroke prevention. Free-text responses were assessed with word cloud.ResultsThe online survey was completed by 264 respondents from 60 countries; 19.1% were from low- and middle-income countries, 59% were stroke specialist physicians, 28% allied health professionals or nurses, 9% Stroke Support Organizations, 4% general physicians. Fifteen Stroke Support Organizations from 11 countries responded to the emailed survey. Seven Stroke Support Organizations' members were interviewed by telephone; one was interviewed in-person. We highlight the two highest priority topics in each of the five questionnaire domains.ConclusionThe 10 priority topics were all applicable in a low- or middle-income setting: setting up and delivering stroke diagnosis, treatment, rehabilitation and prevention services, and emphasized the most basic elements of care. The survey participants have identified a number of key topics that merit inclusion in stroke teaching materials and courses, especially those aimed at practitioners working in resource-limited settings.

scholarly journals Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals’ perspectives

2020 ◽  
Vol 4 (2) ◽  
Author(s):  
Joanna C Robson ◽  
Michael Shepherd ◽  
Lorraine Harper ◽  
Mwidimi Ndosi ◽  
Keziah Austin ◽  
...  
Keyword(s):  
Health Professionals ◽  
Online Survey ◽  
Connective Tissue Diseases ◽  
Psychological Support ◽  
Care Staff ◽  
Self Management ◽  
Free Text ◽  
Team Approach ◽  
Management Support ◽  
Survey Responses

Abstract Objectives CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management support for patients in secondary care. Methods An online survey of health professionals in the UK, including 45 multiple-choice and free-text questions, was analysed descriptively. Free-text survey responses were analysed thematically to identify health professionals’ perceptions of best practice and unmet needs. Results The online survey included 120 health professionals (34% specialist nurses, 51% doctors and 12% allied health professionals), predominantly working in rheumatology (52.9%) and nephrology (21.5%) departments. Access to self-management programmes or clinics for people with CTD or vasculitis was available in 23% of rheumatology and 8% of nephrology departments. In response to ‘How well is your team providing self-management support to people with CTD or vasculitis?’, 38% of respondents reported ‘not very well’ or ‘not well at all’. Direct access to psychological support was available in 76.9% of nephrology and 32.8% of rheumatology departments. More than 80% of respondents would like additional training. Key themes from the qualitative data (free-text survey responses) included the importance of: dedicated psychological support and self-management programmes for people with CTD and vasculitis, a whole-team approach (specialist teams empowering people to manage their own care), staff training (e.g. brief psychological interventions) and signposting to resources, including patient charities. Conclusion People with CTD and vasculitis have complex needs, and improvements in self-management and psychological support are required in UK rheumatology and nephrology departments.

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