Older Adult Caregivers of Developmentally Disabled Household Members

1987 ◽  
Vol 10 (1-2) ◽  
pp. 35-50 ◽  
Author(s):  
Michael S. Caserta ◽  
J. Richard Connelly ◽  
Dale A Lund ◽  
James L. Poulton
2021 ◽  
Vol 12 (8) ◽  
pp. S33
Author(s):  
V. Donison ◽  
N. Toledano ◽  
K. McGilton ◽  
S.M.H. Alibhai ◽  
M. Puts

2020 ◽  
Vol 25 ◽  
pp. 2515690X2096065
Author(s):  
Janella Hudson ◽  
Rachel Ungar ◽  
Laurie Albright ◽  
Rifky Tkatch ◽  
James Schaeffer ◽  
...  

Background. While today’s older adults experience longevity, they often manage several chronic conditions and increasingly serve as informal caregivers for aging parents, children with life-long disabilities, and spouses. Older adult caregivers managing personal chronic illness often experience significant psychosocial hardships. Objective. The primary purpose of this study was to explore the experiences of older adult caregivers in an online, interactive mindfulness intervention. Methods. Self-reported older caregivers who participated in an online-based mindfulness program (n = 20) were recruited for semi-structured interviews. Participants were asked to provide feedback about any previous experience with mindfulness and/or meditation, hopes or goals held prior to the start of the program, desired expectations, motivation for joining, impressions of sessions, most beneficial topics, potential application of content, and any perceived effects. Participants’ responses were analyzed using qualitative content analysis. Results. Five themes emerged from the analysis: Managing the Comprehensive Effects of Caregiving, Openness to Meditation and Mindfulness, Course Engagement and Incremental Growth, Building Rapport through Shared Experiences, and Ongoing Application and Opportunities for Refinement. Participants reported both short-term post-exercise benefits such as increased calm, relaxation, and stress relief, as well as long-term positive outcomes. Notably, participants found the program’s unique interactive feature to be particularly beneficial as a form of perceived social support. Conclusions. Caregivers for older adults may derive benefit and potentially experience reduced subjective caregiver burden as a result of participating in a Mindfulness-Based Stress Reduction (MBSR) program, particularly when the program is augmented with a self-compassion approach and perceived social support.


2017 ◽  
Author(s):  
Callum Cruickshank ◽  
Donald J MacIntyre

BACKGROUND It has been suggested that improving access to mental health services, supporting self-management, and increasing clinical productivity can be achieved through the delivery of technology-enabled care by personal mobile-based and internet-based services. There is little evidence available about whether working-age and older adults with mental health problems or their caregivers have access to these technologies or their confidence with these technologies. OBJECTIVE This study aimed to ascertain the prevalence and range of devices used to access the internet in patients and caregivers attending general and older adult psychiatry outpatient services and their confidence in using these technologies. METHODS We conducted an anonymous survey of 77 patients and caregivers from a general psychiatry and old age psychiatry clinic to determine rates of internet access and device ownership, and attitudes to technology-enabled care. RESULTS We found high levels of internet access and confidence in using the internet in working-age adults, their caregivers, and older adult caregivers but not in older adult patients. The smartphone usage predominated in working-age adults and their caregivers. Older adult caregivers were more likely to use desktop or laptop computers. In our sample, tablets were the least popular form factor. CONCLUSIONS Access rates and uptake of internet-based services have the potential to be high in working-age adults and their caregivers but are likely to be markedly lower among older adult patients attending psychiatry clinics. Applications designed for tablets are likely to have low uptake. All groups identified appointment reminders as likely to be beneficial.


Pain Medicine ◽  
2011 ◽  
Vol 12 (1) ◽  
pp. 51-58 ◽  
Author(s):  
Shannon L. Jones ◽  
Heather D. Hadjistavropoulos ◽  
Jennifer A. Janzen ◽  
Thomas Hadjistavropoulos

2018 ◽  
Vol 39 (1) ◽  
pp. 48-55
Author(s):  
Jennifer L. Womack ◽  
Margareta Lilja ◽  
Virginia Dickie ◽  
Gunilla Isaksson

Although numerous studies have examined provider–caregiver interactions and their influence on care outcomes, few represent the perspective of the provider or specifically consider occupational therapy practitioners. The aim of this article is to explore the perspectives of occupational therapists regarding interactions with older adult caregivers in geriatric practice settings. The study was conducted using a constructivist grounded theory approach based on data obtained from repeated focus group sessions and subsequent individual reflections. Occupational therapy practitioners interact with older adult caregivers in ways that reflect negotiations about who holds expertise and whose priorities are most relevant in care situations. These interactions are influenced by health care contexts that foreground the needs of the care recipient. A deeper understanding of caregiving as an occupation via a transactional perspective may serve to illuminate complex care situations and optimize therapist–caregiver interactions.


Author(s):  
Isabel Cabrera ◽  
María Márquez-González ◽  
Naoko Kishita ◽  
Carlos Vara-García ◽  
Andrés Losada

AbstractCaregivers of people with dementia who endorse dysfunctional beliefs about caregiving are at high risk of experiencing higher levels of distress. These dysfunctional beliefs are presented in the form of rules, verbal statements that specify what responsibilities one should expect in order to be a “good caregiver,” and are characterized as rigid, unrealistic, or highly demanding. Previous studies relied exclusively on self-report measures when assessing such dysfunctional beliefs about caregiving. The objectives of this study were: 1) to develop and validate an Implicit Relational Assessment Procedure (IRAP) to measure implicit dysfunctional beliefs about caregiving (CARE-IRAP), and 2) considering the relatively high age of the sample, to analyze the adaptation of the IRAP for older adults, comparing the IRAP performance between older adult caregivers and middle-aged caregivers. Participants were 123 dementia family caregivers with a mean age of 62.24 ± 12.89. Adaptations were made to the IRAP by adjusting the accuracy and response time criteria. The sample was split into middle-aged caregivers (below 60 years) and older adult caregivers (60 or older). The CARE-IRAP scores presented significant positive correlations with explicit measures of dysfunctional beliefs about caregiving and experiential avoidance in caregiving. A similar pattern of results was observed across the two age groups. The results revealed that caregivers endorse implicit dysfunctional beliefs about caregiving and offer preliminary support for the use of the IRAP as a valid measure of implicit caregiving beliefs. This exploratory study is the first to adapt the IRAP criteria to older adults, and future studies should further explore criteria suitable for this population.


2020 ◽  
Vol 41 (4) ◽  
pp. 429-435 ◽  
Author(s):  
Jacqueline B. LaManna ◽  
Lynn Unruh ◽  
Latarsha Chisholm ◽  
Paslene Pericles ◽  
Hoda Fotovvat

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