The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients

2002 ◽  
Vol 75 (3) ◽  
pp. 295-311 ◽  
Author(s):  
Nele Spruytte ◽  
Chantal Audenhove ◽  
Frans Lammertyn ◽  
Gerrit Storms
Keyword(s):  
Older Adults ◽  
Informal Care ◽  
Psychiatric Patients ◽  
Chronic Psychiatric Patients

scholarly journals The Development of a Quality of Life Scale for Informal Carers for Older Adults

2020 ◽  
Vol 6 ◽  
pp. 233372142092042
Author(s):  
John Maltby ◽  
Eef Hogervorst ◽  
Blossom Stephan ◽  
Xu Sun ◽  
Pinyan Tang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Informal Care ◽  
Personal Growth ◽  
Life Questionnaire ◽  
Confirmatory Factor Analyses ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Informal Carers

Background: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom ( n = 308), United States ( n = 164), and China ( n = 131). We carried out exploratory and confirmatory factor analyses of 61 items derived from the eight-factor Adult Carers Quality of Life Questionnaire with newly added items to define both traditional and nontraditional informal care roles. Results: Findings suggest a 24-item quality of life scale with a six-factor structure to caring for older adults that assesses (a) exhaustion, (b) adoption of a traditional carer role, (c) personal growth, (d) management and performance, (e) level of support, and (f) financial matters. Conclusion: We present a new scale to assess the multidimensional aspects of quality of life among those caring for older adults.

scholarly journals Animal-assisted therapy on happiness and life quality of chronic psychiatric patients living in psychiatric residential care homes: a randomized controlled study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Mohammad Sahebalzamani ◽  
Omid Rezaei ◽  
Ladan Fattah Moghadam
Keyword(s):  
Quality Of Life ◽  
Residential Care ◽  
Psychiatric Patients ◽  
Intervention Group ◽  
Life Quality ◽  
Care Homes ◽  
Control Group ◽  
Animal Therapy ◽  
Chronic Psychiatric Patients

Abstract Background Psychiatric patients who live in psychiatric residential care homes may often feel a loss of autonomy, decision making, and participation in social activities. They usually have few or no visitors and also do not have any purpose for living. Animals may increase the happiness and quality of life of psychiatric patients. This study aimed to evaluate the effects of Animal-Assisted Therapy (AAT) on happiness and quality of life of chronic psychiatric patients living in psychiatric residential care homes in Tehran, Iran. Methods This randomized controlled trial was conducted with 70 males with a chronic psychiatric disorder who were living in psychiatric residential care homes in Tehran, Iran, in 2016. The patients were randomly selected and divided into animal therapy intervention group and control group. Patients in the intervention group received animal-therapy with a bird for eight weeks. Patients in the control group received no intervention. The Oxford Happiness Inventory evaluated all patients pre and post-intervention. To evaluate life quality, the Wisconsin Quality of Life Index was used. Data were statically analyzed using SPSS Ver.19.0. ANCOVA with pretest statistical control. The significance level was set as p < 0.05. Results The mean age in both control and intervention groups were 47.12 and 45.82 years, and the mean age of illness onset for both control and intervention groups was 18.94 and 16.83 years, respectively. The result of this study showed that happiness in the intervention group had significantly increased (p < 0.001). The results also showed that the quality of life in four sub-domains increased significantly. Conclusion To bring happiness to chronic psychiatric patients living in psychiatric residential care homes is essential and may result in returning them to society and healthy life. The results of this study showed that AAT was helpful for chronic psychiatric patients living in psychiatric residential care homes and not only made them happy but also increased their quality of life. Trial registration This was registered in Iranian Registry of Clinical Trials (IRCT) (clinical trial code: IRCT20101013004922N4. Registered 2018-08-19. Retrospectively registered, https://www.irct.ir/trial/32390

Quality of life in chronically mentally ill patients in day treatment

1990 ◽  
Vol 20 (3) ◽  
pp. 703-710 ◽  
Author(s):  
Anthony J. Levitt ◽  
T. P. Hogan ◽  
Catherine M. Bucosky
Keyword(s):  
Quality Of Life ◽  
Mentally Ill ◽  
Social Life ◽  
Psychiatric Illness ◽  
Day Treatment ◽  
Psychiatric Patients ◽  
Assessment Instrument ◽  
Clinical Benefits ◽  
Chronic Psychiatric Patients

SynopsisA structured assessment instrument, the Quality of Life Interview, was used to explain the quality of life of seventy patients with chronic psychiatric illness attending a day treatment programme. The interview was found to have acceptable psychometric properties. Factors that best predicted the quality of life of these patients included the number of re-admissions in the last year, frequency of family contacts, satisfaction with social life, psychiatric health and adult education. The theoretical implications and potential clinical benefits of these findings for chronic psychiatric patients are discussed.

An assessment of the psychoeducational needs of long-term psychiatric patients

1999 ◽  
Vol 16 (3) ◽  
pp. 104-108 ◽  
Author(s):  
Pat Gibbons ◽  
Grace Hogan ◽  
Sheila McGauran
Keyword(s):  
Psychiatric Patients ◽  
Baseline Measure ◽  
Life Issues ◽  
One Year ◽  
Amount Of Knowledge ◽  
General Aspects ◽  
Chronic Psychiatric Patients ◽  
Specific Illness

AbstractObjectives: We aimed to identify which illness related topics were of most interest to chronic psychiatric patients in our catchment area service, and to obtain a baseline measure of the amount of knowledge which patients with schizophrenia had about their illness.Method: Patients attending for a minimum of one year were recruited from the outpatient clinic and day centre. Participants completed three instruments: a brief questionnaire which asked about the details of their diagnosis and drug treatment regimen, the ‘Educational Needs Questionnaire’ (ENQ), and a modified form of the ‘Understanding Schizophrenia Scale’ (USS).Results: Forty-seven patients with a chronic psychotic illness participated in the study. Despite having attended the service for an average of 14 years, the majority of patients were unable to correctly identify their diagnosis. Most patients were able to name the drugs which they had been prescribed; but were not able to describe the dosage of these drugs. According to the ENQ results, patients expressed most interest in learning about general aspects of their illness, such as ‘how to cope with stress’, and less in how to manage specific illness related symptoms. Similarly, schizophrenia patients were found to know more about general aspects of their illness, such as rehabilitation and non-medical aspects of treatment, than about medication.Conclusion: Chronic psychiatric patients, especially those with schizophrenia, have very limited knowledge of their illness and its treatment. The focus of psychoeducation should be extended from insight and compliance to include broader ‘quality of life’ issues which appear to be of more concern to patients themselves. Patient participation in psychoeducation can thus be improved by including topics identified by such instruments as the ENQ. It is encouraging that cognitive deficits and negative symptomatology do not seem to prevent long-term psychiatric patients from benefiting from such inputs.

scholarly journals Informal caregiving and quality of life among older adults: Prospective analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

2020 ◽  
Author(s):  
Lawrence B Sacco ◽  
Stefanie König ◽  
Hugo Westerlund ◽  
Loretta G. Platts
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Informal Care ◽  
Fixed Effects ◽  
Later Life ◽  
Continuing Care ◽  
Informal Carers ◽  
The Relationship ◽  
Prospective Analyses

Providing unpaid informal care to someone who is ill or disabled is a common experience in later life. While a supportive and potentially rewarding role, informal care can become a time and emotionally demanding activity, which may hinder older adults’ quality of life. In a context of rising demand for informal carers, we investigated how caregiving states and transitions are linked to overall levels and changes in quality of life, and how the relationship varies according to care intensity and burden. We used fixed effects and change analyses to examine six-wave panel data (2008–2018) from the Swedish Longitudinal Occupational Survey of Health (SLOSH, n=5076; ages 50–74). The CASP-19 scale is used to assess both positive and negative aspects of older adults’ quality of life. Caregiving was related with lower levels of quality of life in a graded manner, with those providing more weekly hours and reporting greater burden experiencing larger declines. Two-year transitions corresponding to starting, ceasing and continuing care provision were associated with lower levels of quality of life, compared to continuously not caregiving. Starting and ceasing caregiving were associated with negative and positive changes in quality of life score, respectively, suggesting that cessation of care leads to improvements despite persistent lower overall levels of quality of life. Measures to reduce care burden or time spent providing informal care are likely to improve the quality of life of older people.

scholarly journals Psychiatric and Physical Comorbidity in Elderly Attending the Geriatric Clinic of a Psychiatric Hospital

2021 ◽  
Vol 33 (1) ◽  
pp. 40-43
Author(s):  
Humayra Jesmin ◽  
Ahsan Aziz Sarkar ◽  
Helal Uddin Ahmed ◽  
Hasinatul Zannat
Keyword(s):  
Older Adults ◽  
Depressive Disorders ◽  
Psychiatric Patients ◽  
Symptom Burden ◽  
Physical Disorder ◽  
Medical Diagnoses ◽  
Geriatric Clinic ◽  
Physical Disorders ◽  
Costs Of Treatment

Background: Physical comorbidity is quite common in older adults. When psychiatric and medical conditions co-occur, the combination is associated with elevated symptom burden, functional impairment, decreased length and quality of life, and increased costs of treatment. To estimate the proportion and patterns of physical comorbidity in elderly psychiatric patients. Methods: A retrospective observational study was carried out in the Geriatric Clinic of National Institute of Mental Health and Hospital (NIMHH). Patient registry of the clinic was used to collect required information and 113 consecutive older adults with psychiatric disorders who attended the clinic in a three-month period, were enrolled for the study. Psychiatric diagnoses were made by psychiatrists, according to DSM-5 criteria. Medical diagnoses were made by specialist physicians by reviewing physicians’ prescriptions. Data analysis was done by using SPSS 23.0. Results: Most of the patients (58.4%) belonged to the 7th decade. Among 113 patients 90 (79.7%) had only psychiatric illness & 23 had (20.4%) comorbid physical disorders. Depressive disorders (30%) and dementia (22.1%) were the most common psychiatric reasons for consultation. Among the associated physical comorbidities hypertension (43.5%) and diabetes (34.8%) were the most commons. Conclusion: Co-occurrence of psychiatric and physical disorder conditions is very common in a clinical setting. Physical comorbidity may influence follow up consultation pattern. Bangladesh J Medicine July 2022; 33(1) : 40-43

scholarly journals The Interaction Effect of Gender and Residential Environment, Individual Resources, and Needs Satisfaction on Quality of Life Among Older Adults in the United Kingdom

2019 ◽  
Vol 5 ◽  
pp. 233372141987857
Author(s):  
Ben Chi-pun Liu ◽  
Dion Sik-yee Leung ◽  
Julia Warrener
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
United Kingdom ◽  
Informal Care ◽  
Multinomial Logistic Regression ◽  
Care Service ◽  
Social Care Service ◽  
Multinomial Logistic Regression Analysis ◽  
The United Kingdom

Objectives: To examine the difference in gender and its impact on selected quality-of-life (QoL) domains of Social Production Function theory among older adults in England. Method: Based on an annual national adult social care service user survey conducted in the United Kingdom in 2016. QoL was assessed by a single-item construct, and independent variables were home design, access to information and local area, self-rated health, perceived pain/discomfort, perceived anxiety/depression, activities of daily living, use and satisfaction of formal and informal care, and demographic variables. Results: A total of 28,955 respondents aged 65+ years were interviewed. Multinomial logistic regression analysis found four interaction effects for predicting a very good/good QoL: (a) Female receiving non-co-residing informal care (odds ratio [OR] = 1.501, p < .01), (b) female feeling safe (OR = 1.499, p < .01), (c) female feeling satisfied with social contact with people (OR = 1.465, p < .05), and (d) female being helped in the use of time (OR = 1.370, p < .05). Conclusion: Findings suggest gender differences in QoL as men and women are heterogeneous with different health and disease patterns, health-/help-seeking behaviors, roles and responsibilities, and levels of resilience, needs, risks, and access and control resources. Practitioners should adopt a gender-specific assessment and personalized interventions to promote gender equality, empowerment, and long-term sustainable development for an aging society.

scholarly journals Informal Caregiving and Quality of Life Among Older Adults: Prospective Analyses from the Swedish Longitudinal Occupational Survey of Health (SLOSH)

2020 ◽  
Author(s):  
Lawrence B. Sacco ◽  
Stefanie König ◽  
Hugo Westerlund ◽  
Loretta G. Platts
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Informal Care ◽  
Fixed Effects ◽  
Later Life ◽  
Continuing Care ◽  
Informal Carers ◽  
The Relationship ◽  
Prospective Analyses

Abstract Providing unpaid informal care to someone who is ill or disabled is a common experience in later life. While a supportive and potentially rewarding role, informal care can become a time and emotionally demanding activity, which may hinder older adults’ quality of life. In a context of rising demand for informal carers, we investigated how caregiving states and transitions are linked to overall levels and changes in quality of life, and how the relationship varies according to care intensity and burden. We used fixed effects and change analyses to examine six-wave panel data (2008–2018) from the Swedish Longitudinal Occupational Survey of Health (SLOSH, n = 5076; ages 50–74). The CASP-19 scale is used to assess both positive and negative aspects of older adults’ quality of life. Caregiving was related with lower levels of quality of life in a graded manner, with those providing more weekly hours and reporting greater burden experiencing larger declines. Two-year transitions corresponding to starting, ceasing and continuing care provision were associated with lower levels of quality of life, compared to continuously not caregiving. Starting and ceasing caregiving were associated with negative and positive changes in quality of life score, respectively, suggesting that cessation of care leads to improvements despite persistent lower overall levels of quality of life. Measures to reduce care burden or time spent providing informal care are likely to improve the quality of life of older people.

Changes in quality of life in chronic psychiatric patients: A comparison between EuroQol (EQ-5D) and WHOQoL

2005 ◽  
Vol 14 (2) ◽  
pp. 441-451 ◽  
Author(s):  
Gerard van de Willige ◽  
Durk Wiersma ◽  
Fokko J. Nienhuis ◽  
Jack A. Jenner
Keyword(s):  
Quality Of Life ◽  
Psychiatric Patients ◽  
Chronic Psychiatric Patients
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