Safe and effective person- and family-centered care practices during transitions from hospital to home—A web-based Delphi technique

Background As the population ages, the need for appropriate geriatric rehabilitation services will also increase. Pressures faced by hospitals to reduce length of stay and reduce costs have driven the need for more complex care being delivered in the home or community setting. As a result, a multifaceted approach that can provide geriatric rehabilitation patients with safe and effective person- and family-centered care during transitions from hospital to home is required. We hypothesize that a technology-supported person- and family-centered care transition could empower geriatric rehabilitation patients, engage them in shared decision making, and ultimately help them to safely manage their personalized needs during care transitions from hospital to home. Objective The purpose of this study is to design and test the feasibility of a novel Path to Home mobile app to manage the personalized needs of geriatric rehabilitation patients during their transitions from hospital to home. Methods This study will consist of (1) codesigning a patient- and provider-tailored mobile app, and (2) feasibility pilot testing of the mobile app to manage the needs of geriatric rehabilitation patients when leaving the hospital. In phase 1, we will follow a user-centered design process integrated with a modern agile software development methodology to iteratively codesign the personalized care transition Path to Home mobile app. In phase 2, we will conduct a single-arm feasibility pilot test with geriatric rehabilitation patients using the personalized care transition Path to Home mobile app to manage their needs during the transition from hospital to home. Results The project was funded in May 2018, and enrollment and data analysis are underway. First results are expected to be submitted for publication in 2019. Conclusions Our findings will help validate the use of this technology for geriatric rehabilitation patients discharged from the hospital to home. Future research will more rigorously evaluate the health and economic benefits to inform wide-scale adoption of the technology. Registered Report Identifier RR1-10.2196/11031

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Influence of health care practices on the burden of caregiver mothers

Revista Brasileira de Enfermagem ◽

10.1590/0034-7167-2019-0154 ◽

2020 ◽

Vol 73 (suppl 4) ◽

Author(s):

Fernanda Yeza Ferreira ◽

Mariane Caldeira Xavier ◽

Paula Rossi Baldini ◽

Larissa Tassim Luciano Ferreira ◽

Regina Aparecida Garcia Lima ◽

...

Keyword(s):

Health Care ◽

Linear Regression ◽

Multivariate Linear Regression ◽

Multivariate Linear Regression Analysis ◽

Family Centered Care ◽

Evaluation Instrument ◽

Health Care Practices ◽

Centered Care ◽

Care Practices ◽

Family Centered

ABSTRACT Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs. Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman’s Correlation and univariate and multivariate linear regression analysis. Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023). Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.

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Family-centered care practices in a multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States

Research in Autism Spectrum Disorders ◽

10.1016/j.rasd.2015.08.004 ◽

2015 ◽

Vol 20 ◽

pp. 47-57 ◽

Cited By ~ 6

Author(s):

Lillian M. Christon ◽

Barbara J. Myers

Keyword(s):

United States ◽

Autism Spectrum Disorder ◽

The United States ◽

Autism Spectrum ◽

Spectrum Disorder ◽

Family Centered Care ◽

Centered Care ◽

Care Practices ◽

Family Centered

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Improving Family-Centered Care Practices in the NICU

Neonatal Network The Journal of Neonatal Nursing ◽

10.1891/0730-0832.33.3.125 ◽

2014 ◽

Vol 33 (3) ◽

pp. 125-132 ◽

Cited By ~ 14

Author(s):

Laurie A. Lee ◽

Melondie Carter ◽

Sharon B. Stevenson ◽

H. Allen Harrison

Keyword(s):

Well Being ◽

Management Program ◽

Family Centered Care ◽

Family Presence ◽

Improvement Project ◽

Parent Survey ◽

Visitor Management ◽

Centered Care ◽

Care Practices ◽

Family Centered

Family presence and participation in care in the NICU is fundamental to the recovery and well-being of the sick neonate and family. However, some NICU visitation policies are not supportive of families. A new visitor-management program was initiated at a local hospital. The program included open visitation for parents and others chosen by parents to be a support during their hospital stay. This quality-improvement project evaluated if there was any improvement in parents’ perceptions and experiences of family-centered care after the implementation of the new visitor-management program. The NICU parent survey data revealed a modest positive difference in parent responses after the implementation of the program.

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