scholarly journals Patient and Family Centered Care: Practices in Pediatrics

2009 ◽  
Vol 27 (03) ◽  
pp. 193-200 ◽  
Author(s):  
Karen Hendricks-Muñoz ◽  
Moi Louie ◽  
Yihong Li ◽  
Nok Chhun ◽  
Carol Prendergast ◽  
...  

PLoS ONE ◽  
2019 ◽  
Vol 14 (1) ◽  
pp. e0211024 ◽  
Author(s):  
Chantal Backman ◽  
Sharon Johnston ◽  
Nelly D. Oelke ◽  
Katharina Kovacs Burns ◽  
Linda Hughes ◽  
...  

2020 ◽  
Vol 73 (suppl 4) ◽  
Author(s):  
Fernanda Yeza Ferreira ◽  
Mariane Caldeira Xavier ◽  
Paula Rossi Baldini ◽  
Larissa Tassim Luciano Ferreira ◽  
Regina Aparecida Garcia Lima ◽  
...  

ABSTRACT Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs. Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman’s Correlation and univariate and multivariate linear regression analysis. Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023). Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.


2014 ◽  
Vol 33 (3) ◽  
pp. 125-132 ◽  
Author(s):  
Laurie A. Lee ◽  
Melondie Carter ◽  
Sharon B. Stevenson ◽  
H. Allen Harrison

Family presence and participation in care in the NICU is fundamental to the recovery and well-being of the sick neonate and family. However, some NICU visitation policies are not supportive of families. A new visitor-management program was initiated at a local hospital. The program included open visitation for parents and others chosen by parents to be a support during their hospital stay. This quality-improvement project evaluated if there was any improvement in parents’ perceptions and experiences of family-centered care after the implementation of the new visitor-management program. The NICU parent survey data revealed a modest positive difference in parent responses after the implementation of the program.


2015 ◽  
Vol 19 (4) ◽  
Author(s):  
Allana Reis Corrêa ◽  
Ana Cláudia de Andrade ◽  
Bruna Figueiredo Manzo ◽  
Débora Lara Couto ◽  
Elysângela Dittz Duarte

2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.


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