The Sense of Well-Being Inventory as a Quality of Life Measure for People With Spinal Cord Injury

2010 ◽  
Vol 16 (2) ◽  
pp. 57-72 ◽  
Author(s):  
Denise Catalano ◽  
Jeong-Han Kim ◽  
Nicole M. Ditchman ◽  
Hyun-Uk Shin ◽  
Jungeun Lee ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Well Being ◽  
Self Esteem ◽  
Factor Analyses ◽  
Confirmatory Factor Analyses ◽  
Life Measure ◽  
Cord Injury ◽  
Confirmatory Factor

AbstractThe purpose of this study was to validate theSense of Well-Being Inventory(SWBI), a quality of life measure, for people with spinal cord injury. Four hundred and five participants were recruited from the Canadian Paraplegia Association for this study. The participants were asked to complete a research packet containing a demographic questionnaire, the SWBI, theRosenberg Self-Esteem Scale, and theAcceptance of Disability Scale. Exploratory and confirmatory factor analyses of the SWBI and correlational analyses of the SWBI factors with other psychosocial variables were conducted. Exploratory and confirmatory factor analyses validated a four-factor structure (financial, family and social, psychological, and physical wellbeing) for the SWBI. SWBI factors are positively related to self-esteem and disability acceptance. With continuing research to document reliability and validity, the SWBI appears to have great potential as a vocational rehabilitation outcome measurement for people with spinal cord injury.

scholarly journals Development of Emotional Well-Being indicators to advance the quality of spinal cord injury rehabilitation: SCI-High Project

2019 ◽  
Vol 42 (sup1) ◽  
pp. 85-98 ◽  
Author(s):  
Sander L. Hitzig ◽  
Rebecca Titman ◽  
Steven Orenczuk ◽  
Teren Clarke ◽  
Heather Flett ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Well Being ◽  
Injury Rehabilitation ◽  
Cord Injury

scholarly journals Associations between health behaviour, secondary health conditions and quality of life in people with spinal cord injury

2019 ◽  
Vol 8 ◽  
Author(s):  
Mokgadi K. Mashola ◽  
Diphale J. Mothabeng
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Behaviour ◽  
Well Being ◽  
Health Conditions ◽  
Cross Sectional ◽  
Cord Injury

Background: The development of secondary health conditions (SHCs) after spinal cord injury (SCI) is common and can affect an individual’s emotional well-being, and his or her health-related quality of life (QOL). Little is known about relationships between performing health-benefiting behaviours and the presence (or absence) of SHCs and QOL, particularly in South Africa.Objectives: This research study was conducted in order to determine the associations between health behaviour, SHCs and QOL in people with SCI (PWSCI).Method: This cross-sectional study included 36 PWSCI discharged from a private rehabilitation facility in Pretoria, South Africa. The PWSCI completed questionnaires pertaining to lifestyle, independence, presence of SHCs, social support and QOL. Data were analysed using descriptive and inferential statistics such as correlation tests and chi-square test of independence (x2) using the SPSS v25. Moderate, moderately high and high correlations are reported (Pearson r ≥ 0.4). Results were significant if p  0.05.Results: Participation in health-benefiting behaviour was associated with increased QOL (r = 0.457, p  0.01) and increased social support from family and friends (r = 0.425, p  0.01), which was associated with increased QOL (r = 0.671, p  0.001). Not participating in specific neuromusculoskeletal health behaviours was found to be associated with the overall presence of SHCs (r = -0.426, p  0.01).Conclusions: Participating in health-benefiting behaviour can reduce the development of SHCs and subsequently increase QOL in PWSCI. Health professionals must focus on minimising the development of SHCs by providing specific education on good health-benefiting behaviour.

scholarly journals Qualidade de vida em portadores de lesão medular: estudo de revisão de literatura

2009 ◽  
Vol 3 (4) ◽  
pp. 1050
Author(s):  
Gelson Aguiar da Silva ◽  
Juliana Neves da Costa ◽  
Thelma Leite de Araújo ◽  
Zuila Maria De Figueiredo Carvalho ◽  
Angela Maria Alves e Souza ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Nursing Care ◽  
Physical Disabilities ◽  
Well Being ◽  
Study Results ◽  
Cord Injury ◽  
People With Physical Disabilities

Objective: to identify and systematize — in the literature available in computer databases (LILACS and MEDLINE) — studies on the quality of life of people with physical disabilities from spinal cord injury in the period from 1994 to 2004. Methods: this is a descriptive and exploratory study, in which a bibliographic review was performed. The following descriptors were used: people with physical disabilities, handicapped people, spinal cord injuries, quality of life, nursing and nursing care, and 27 articles were found, which comprised the sample for the study. Results: the topics of the articles encountered were the following: well-being of individuals with spinal cord injury; the rehabilitation process; life satisfaction; performance of physical activities and life expectancy. The study indicated an overall lack of publications in the field of nursing, as well as in methodological aspects. It was found that, although improving the life quality of patients with spinal cord injury is extremely important, there is a scarcity of studies on this subject, and it should be further investigated and discussed. Conclusion: therefore, it is important to include an understanding of the subjectivity of individuals with spinal cord injury and their perception on quality of life, aimed at improving nursing care. Descriptors: quality of life; people with disabilities; spinal cord; health of disabled or incapacitated people

scholarly journals Spiritual well-being and quality of life in patients with spinal cord injury: A study from Iran

2018 ◽  
Vol 41 (6) ◽  
pp. 653-658
Author(s):  
Marzieh Hajiaghababaei ◽  
Hooshang Saberi ◽  
Parvin Rahnama ◽  
Ali Montazeri
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Well Being ◽  
Cord Injury ◽  
Spiritual Well Being

Assessment of the relationship of spiritual well-being to depression and quality of life for persons with spinal cord injury

2016 ◽  
Vol 39 (5) ◽  
pp. 491-496 ◽  
Author(s):  
Catherine S. Wilson ◽  
Martin Forchheimer ◽  
Allen W. Heinemann ◽  
Anne Marie Warren ◽  
Cheryl McCullumsmith
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Well Being ◽  
Cord Injury ◽  
Spiritual Well Being ◽  
Relationship Of ◽  
The Relationship

Exploring psychometric properties of the SF-6D, a preference-based health-related quality of life measure, in the context of spinal cord injury

2014 ◽  
Vol 23 (8) ◽  
pp. 2383-2393 ◽  
Author(s):  
Lidia Engel ◽  
Stirling Bryan ◽  
Silvia M. A. A. Evers ◽  
Carmen D. Dirksen ◽  
Vanessa K. Noonan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Psychometric Properties ◽  
Health Related Quality ◽  
Life Measure ◽  
Cord Injury ◽  
Related Quality ◽  
Health Related

scholarly journals The benefits of hydrotherapy to patients with spinal cord injuries

2018 ◽  
Vol 7 ◽  
Author(s):  
Terry J. Ellapen ◽  
Henriëtte V. Hammill ◽  
Mariëtte Swanepoel ◽  
Gert L. Strydom
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Full Text ◽  
Spinal Cord Injuries ◽  
Cardiovascular Responses ◽  
Well Being ◽  
Gait Kinematics ◽  
Cord Injury ◽  
The Impact

Background: Many patients with spinal cord injury (PWSCI) lead sedentary lifestyles, experiencing poor quality of life and medical challenges. PWSCI don’t like to participate in land-based-exercises because it’s tedious to perform the same exercises, decreasing their rehabilitative compliance and negatively impacting their well-being. An alternative exercise environment and exercises may alleviate boredom, enhancing compliance.Objectives: Discuss the benefits of hydrotherapy to PWSCI concerning underwater gait-kinematics, thermoregulatory and cardiovascular responses and spasticity.Methodology: A literature surveillance was conducted between 1998 and 2017, through the Crossref meta-database and Google Scholar, according to the PRISMA procedures. Key search words were water-therapy, aquatic-therapy, hydrotherapy, spinal cord injury, rehabilitation, human, kinematics, underwater gait, cardiorespiratory, thermoregulation and spasticity. The quality of each paper was evaluated using a modified Downs and Black Appraisal Scale. The participants were records pertaining to PWSCI and hydrotherapy. The outcomes of interest were: hydrotherapy interventions, the impact of hydrotherapy on gait-kinematics, thermoregulation during water submersion and cardiorespiratory function of PWSCI. Omitted records included: non-English publications from before 1998 or unrelated to hydrotherapy and PWSCI. The record screening admissibility was performed as follows: the title screen, the abstract screen and the full text screen.Results: Literature search identified 1080 records. Upon application of the exclusion criteria, 92 titles, 29 abstracts and 17 full text records were eligible. Only 15 records were selected to be included in this clinical commentary. Evidence shows a paucity of randomised control trials (RCT) conducted in this field.Conclusion: Hydrotherapy improves PWSCI underwater gait-kinematics, cardiorespiratory and thermoregulatory responses and reduces spasticity.

scholarly journals Ageing, Disability, and Spinal Cord Injury: Some Issues of Analysis

2018 ◽  
Vol 2018 ◽  
pp. 1-7 ◽  
Author(s):  
Roberto Pili ◽  
Luca Gaviano ◽  
Lorenzo Pili ◽  
Donatella Rita Petretto
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Life Expectancy ◽  
Well Being ◽  
Narrative Review ◽  
Health Conditions ◽  
Cord Injury ◽  
Share Data

Spinal cord injury is a disabling disorder, worldwide spread, with important consequences on functioning and health conditions and impacts on physical, psychological, and social well-being. The consequences are related to the lesion itself and to other complications related to the lesion. In the last decades, there have been an increasing of the mean ages of onset and also an increase in life expectancy after the lesion. So, differently from the past, people with spinal cord injury can age after the lesion. Taking into account the need to share data and information about specific disabling conditions and their relationship with ageing, this paper aims to discuss some issues from recent literature on the relationship between aging and disability in the spinal cord injury, according to a narrative review approach. A narrative review of the literature on ageing and spinal cord injury was undertaken. Search was based on the following electronic databases: PubMed/Medline and Ovid/PsychINFO. A combination of the following keywords was used: (1) “ageing” or “aging” and (2) “spinal cord injury” or “spinal cord lesion” and (3) disability. Data on consequences of the lesion in the life of aging people, secondary health conditions, life expectancy, participation, and quality of life are discussed. Then, a brief discussion of clinical issues and the role of interventions aimed to promote wellbeing, health, quality of life, and participation of people with spinal cord injury is proposed.

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