Quality of life in children and adolescents with obsessive-compulsive disorder: The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)

2019 ◽  
Vol 83 (4) ◽  
pp. 377-397 ◽  
Author(s):  
Brian A. Zaboski ◽  
Alexandra Gilbert ◽  
Rebecca Hamblin ◽  
Jessica Andrews ◽  
Amaya Ramos ◽  
...  

The current study examined quality of life (QOL) and its clinical correlates among 225 intensive treatment-seeking children and adolescents with obsessive-compulsive disorder (OCD) using the Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q). Youth completed the PQ-LES-Q along with self-report measures assessing functional impairment, anxiety sensitivity, OCD symptoms, nonspecific anxiety, depression, and social anxiety. Parents completed measures on their child's anxiety, the presence of inattention/hyperactivity, depression, functional impairment, and frequency of family accommodation of symptoms. Contrary to expectation, child-reported OCD symptoms did not significantly predict QOL; however, lower overall QOL was strongly associated with the presence of comorbid major depressive disorder (g=3D −0.76) and slightly related to comorbid social phobia (g=3D −0.36). These results suggest that assessing and addressing comorbid conditions in the treatment of youth with OCD is an important component of intensive treatment.

2021 ◽  
Vol 12 ◽  
Author(s):  
Johanna A. M. du Mortier ◽  
Karin C. P. Remmerswaal ◽  
Neeltje M. Batelaan ◽  
Henny A. D. Visser ◽  
Jos W. R. Twisk ◽  
...  

Background: Few studies have investigated which patients with obsessive-compulsive disorder (OCD) do not recover through regular cognitive behavior therapy or pharmacotherapy and subsequently end up in intensive treatment like day treatment or inpatient treatment. Knowing the predictors of intensive treatment in these patients is significant because it could prevent intensive treatment. This study has identified predictors of intensive treatment in patients with OCD.Methods: Using 6-year longitudinal data of the Netherlands Obsessive Compulsive Disorder Association (NOCDA), potential predictors of intensive treatment were assessed in patients with OCD (n = 419). Intensive treatment was assessed using the Treatment Inventory Costs in Patients with Psychiatric Disorders (TIC-P). Examined potential predictors were: sociodemographics, and clinical and psychosocial characteristics. Logistic Generalized Estimating Equations was used to estimate to what extent the various characteristics (at baseline, 2- and 4-year assessment) predicted intensive treatment in the following 2 years, averaged over the three assessment periods.Results: Being single, more severe comorbid depression, use of psychotropic medication, and a low quality of life predicted intensive treatment in the following 2 years.Conclusions: Therapists should be aware that patients with OCD who are single, who have more severe comorbid depression, who use psychotropic medication, and who have a low quality of life or a drop in quality of life are at risk for intensive treatment. Intensive treatment might be prevented by focusing regular treatment not only on OCD symptoms but also on comorbid depression and on quality of life. Intensive treatment might be improved by providing extra support in treatment or by adjusting treatment to impairments due to comorbid depressive symptoms or a low quality of life.


2014 ◽  
Vol 55 (5) ◽  
pp. 1195-1202 ◽  
Author(s):  
Ryan J. Jacoby ◽  
Rachel C. Leonard ◽  
Bradley C. Riemann ◽  
Jonathan S. Abramowitz

2018 ◽  
Vol 80 ◽  
pp. 46-56 ◽  
Author(s):  
Monica S. Wu ◽  
Rebecca Hamblin ◽  
Joshua Nadeau ◽  
Jessica Simmons ◽  
Ashley Smith ◽  
...  

Author(s):  
Christine Purdon

Obsessive compulsive disorder (OCD) is a complex and debilitating disorder that has a high degree of comorbidity and functional impairment, and significant impact on the family. The purpose of this chapter is to provide a brief overview of comorbidity, family, insight, and quality of life issues, and to review assessment and treatment implications of those issues. Measures for assessing relevant constructs are described.


2010 ◽  
Vol 38 (4) ◽  
pp. 417-436 ◽  
Author(s):  
Marit Hauschildt ◽  
Lena Jelinek ◽  
Sarah Randjbar ◽  
Birgit Hottenrott ◽  
Steffen Moritz

Background: Obsessive compulsive disorder (OCD) is a chronic and disabling disorder. It profoundly compromises various aspects of patients’ everyday life, thus affecting their quality of life (QoL). Using generic instruments, several studies have confirmed severely impaired health-related QoL in patients diagnosed with OCD. However, there has been a dearth of research on illness-specific QoL. Aims: The present study aimed to further investigate subjective QoL in individuals with OCD with a focus on illness-specific aspects. Method: To assess subjective QoL in a broad OCD sample, an internet survey was conducted with 123 participants with obsessive-compulsive symptoms. The survey comprised both a generic (WHOQOL-BREF) and a novel self-developed OCD-specific QoL measure (QoLOC). Psychopathology was determined with diagnostic standard instruments (self-report forms of: Y-BOCS, OCI-R, BDI-SF). Results: Regression analyses confirmed depression as the best predictor for decreased QoL. In addition, participants reported high despair resulting from OCD-related problems that differed across symptom subtypes. An exploratory factor analysis suggested four domains of OCD-specific problems tapped by the QoLOC: (1) depressiveness in association with OCD; (2) constraints in activities due to OCD symptoms or avoidance; (3) problems with partner and/or family due to OCD symptoms or avoidance; (4) self-concept/coping of own illness. Conclusions: Results produced a comprehensive picture of QoL impairments and their relation to psychopathology in a representative OCD sample. Illness-specific concerns should be further addressed in QoL research in OCD because such problems are not sufficiently mirrored in generic QoL measures.


2015 ◽  
Vol 29 (4) ◽  
pp. 315-330 ◽  
Author(s):  
Steffen Moritz ◽  
Chantal Dietl ◽  
Jan Felix Kersten ◽  
Frederick Aardema ◽  
Kieron O’Connor

Introduction: Inference-based therapy (IBT) is a novel therapeutic approach aimed at reducing obsessive-compulsive symptoms. For this study, the original therapist-guided protocol was adapted for self-help administration. Method: Fifty patients with obsessive-compulsive disorder who had been recruited via specialized online fora were randomly allocated to either IBT or a wait-list control condition. At baseline and 4 weeks later, questionnaires tapping into psychopathology, quality of life, and faulty reasoning were administered. Results: The completion rate was acceptable (74%) and not significantly different across groups. Relative to controls, patients in the IBT group showed modest but significant symptom decline on obsessions (Yale-Brown Obsessive-Compulsive Scale [Y-BOCS] self-report and Obsessive–Compulsive Inventory—Revised [OCI-R]) and washing compulsions (OCI-R) across time. No significant differences emerged for depression, quality of life, and inferential confusion. Ratings at the post-assessment suggest that the training was well accepted among patients. Test–retest reliability was high indicating good quality of the data. Discussion: This study confirms prior research suggesting that IBT is effective as a stand-alone technique. Follow-up studies are needed to elucidate the long-term effects of the training and whether positive effects are maintained if IBT is introduced as an add-on to standard treatment (i.e., cognitive behavioral therapy/medication).


2010 ◽  
Vol 51 (4) ◽  
pp. 373-379 ◽  
Author(s):  
Lorrin M. Koran ◽  
Daniel Bromberg ◽  
Carl S. Hornfeldt ◽  
John C. Shepski ◽  
Shirley Wang ◽  
...  

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