scholarly journals Not being able to live like before: the family dynamics during the experience of pediatric liver transplantation

2009 ◽  
Vol 17 (1) ◽  
pp. 74-80 ◽  
Author(s):  
Ana Márcia Chiaradia Mendes ◽  
Regina Szylit Bousso

This study aims to understand families' dynamics during the experience of pediatric liver transplantation, and to identify families' demands and resources. Symbolic interactionism was used as the theoretical framework and grounded theory as the methodological reference. Data were collected through semi-structured interviews with eight families at a public hospital in Sao Paulo, SP, Brazil. Two phenomena were identified: having life controlled by the transplantation represents the vulnerability of families experiencing uncertainty and fear during their children's disease experience; and struggling to reacquire autonomy refers to families' reaction when exposed to the first phenomenon, which consists of continuous adaptation to overcome suffering caused by the situation. The relationship of these two phenomena allowed for the identification of the central category: not being able to live like before. Based on this analysis, a theoretical model could be proposed to explain the experience.

Author(s):  
Wan Nor Aliza Wan Abdul Rahman ◽  
Abdul Karim Othman ◽  
Yuzana Mohd Yusop ◽  
Hasnah Zani ◽  
Rohimah Ismail ◽  
...  

Background family satisfaction care and decision making as important   indicator to evaluate the quality of care in intensive care unit. The family satisfaction in the ICU questionnaire (FS-ICU 33 Malay languages) is a well-established tool to assess satisfaction in such settings. ICU admission has many implications, for example, the effects on critically ill patients, the ICU setting, the role of health care staff and family members, communication, psychology of families and physical health. Thus, this study we tested the hypothesis that examined effects of gender, age, relationship, marital status, education level, race and occupation can attribute on family satisfaction care and decision making. Two hundred and eight respondents selected from the Public Hospital Terengganu completed the Family satisfaction ICU Malay languages questionnaire (FS-ICU-M). A quantitative, cross-sectional study and purposive sampling was conducted from 10 October 2018 to January 2020. In this study conclude that the ICU-Care satisfaction score was significantly associated with age, education level, occupation, and the relationship of the respondents (p<0.05), but not associated with the gender, race, and marital status of the respondents. Moreover, the ICU-DM satisfaction score was significantly associated with age, marital status, occupation, and the relationship of the respondents (p<0.05), but not associated with the gender, race, and education level of the respondents.


2009 ◽  
Vol 87 (1) ◽  
pp. 87-93 ◽  
Author(s):  
Yuk K. Sze ◽  
Anil Dhawan ◽  
Rachel M. Taylor ◽  
Sanjay Bansal ◽  
Giorgina Mieli-Vergani ◽  
...  

2020 ◽  
Vol 2 (4) ◽  
pp. 126-130
Author(s):  
N. V. SHAMANIN ◽  

The article raises the issue of the relationship of parent-child relationships and professional preferences in pedagogical dynasties. Particular attention is paid to the role of the family in the professional development of the individual. It has been suggested that there is a relationship between parent-child relationships and professional preferences.


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