Falling Through the Cracks: Caregivers’ Experiences With Choice of Providers

2016 ◽  
Vol 30 (4) ◽  
pp. 338-352
Author(s):  
Susan Neely-Barnes ◽  
Stephen Zanskas ◽  
Daniel Lustig ◽  
Rachel Duerr ◽  
Minna Zhao
Keyword(s):  
Developmental Disabilities ◽  
Focus Groups ◽  
Independent Living ◽  
Direct Care ◽  
Care Staff ◽  
Intellectual And Developmental Disabilities ◽  
Direct Care Staff ◽  
Lack Of Information ◽  
Caregiver Needs ◽  
Interpretive Method

Purpose:We sought to understand the experiences of family members and direct care staff of adults with intellectual and developmental disabilities in a private pay day program focused on socialization and recreational skills.Method:Two focus groups were held with parents/caregivers and one with staff. Using an interpretive method, two investigators independently coded the transcripts and arrived at themes.Results:Themes identified included transition, lack of information, lack of resources, caregiver needs, independence, employment, and education.Conclusion:Families and staff experienced frustration with service fragmentation/access to alternative programming. Families and staff wanted opportunities for employment and independent living programming but lacked resources. Implications for practice and policy are discussed.

Normalization of mealtimes for persons with developmental disabilities: Implementation by professional and direct-care staff

1992 ◽  
Vol 7 (5) ◽  
pp. 355-371
Author(s):  
Craig C. Jensen ◽  
Lars S. Watson ◽  
Michael J. Dewulf ◽  
Steven P. Johnson ◽  
Norm S. Davis ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Direct Care ◽  
Care Staff ◽  
Direct Care Staff

The impact of mindfulness skills on interactions between direct care staff and adults with developmental disabilities

2019 ◽  
Vol 12 ◽  
pp. 160-169 ◽  
Author(s):  
Christina Chancey ◽  
Cynthia Weihl ◽  
William B. Root ◽  
Ruth Anne Rehfeldt ◽  
Donnell McCauley ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Direct Care ◽  
Care Staff ◽  
Direct Care Staff ◽  
Mindfulness Skills ◽  
The Impact ◽  
Adults With Developmental Disabilities

Evaluation of the Educational Effectiveness of an Instructional Package on Developmental Disabilities

1980 ◽  
Vol 4 (1) ◽  
pp. 24-29
Author(s):  
Lothar Mader ◽  
Patricia Resick ◽  
Donald Witzke ◽  
Joseph Ferrara ◽  
Eric Rudrud
Keyword(s):  
Developmental Disabilities ◽  
Staff Training ◽  
Direct Care ◽  
Care Staff ◽  
Educational Effectiveness ◽  
Direct Care Staff ◽  
Visual Component ◽  
Presentation Modes ◽  
Instructional Package

A newly developed audio-visual staff training package on the legal and historical aspects of developmental disabilities was assessed for its educational effectiveness. Separate evaluations were made of the component parts of the package. From a residential institution serving the developmentally disabled, 100 direct care staff were selected randomly and assigned to five groups. These groups were presented with either the audio-visual component, the workbook, or the combined audiovisual and workbook components of the package. Two groups were pretested and all five groups received a posttest and a three week follow-up test The results indicated significant learning effects which were maintained through the follow-up period. There were no differences between the three presentation modes in educational effectiveness but the slide-tape only presentation was more efficient and was preferred by the participants. Based on the results of the study, further development of audio-visual staff training packages is encouraged.

Training direct care staff to increase positive interactions with individuals with developmental disabilities

2014 ◽  
Vol 35 (9) ◽  
pp. 2180-2189 ◽  
Author(s):  
Kimberly A. Zoder-Martell ◽  
Brad A. Dufrene ◽  
Daniel H. Tingstrom ◽  
D. Joe Olmi ◽  
Sara S. Jordan ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Direct Care ◽  
Care Staff ◽  
Positive Interactions ◽  
Direct Care Staff

Individual and Family Correlates of Community Living Options Among Adults With Intellectual and Developmental Disabilities

Inclusion ◽  
2017 ◽  
Vol 5 (4) ◽  
pp. 279-292 ◽  
Author(s):  
Meghan M. Burke ◽  
Chung eun Lee ◽  
Moon Y. Chung ◽  
Kristina Rios ◽  
Catherine K. Arnold ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Independent Living ◽  
Group Homes ◽  
Community Living ◽  
Intellectual And Developmental Disabilities ◽  
Functional Abilities ◽  
Future Planning ◽  
Adults With Disabilities ◽  
The Family ◽  
Family Home

Abstract With recent policy changes and case-law decisions, there are more opportunities for adults with intellectual and developmental disabilities (IDD) to live independently in inclusive settings. It is necessary to identify malleable correlates of community living options to develop interventions to increase inclusive, independent living. To this end, 546 parents and siblings of adults with IDD responded to a national survey. According to parent and sibling report, adults with IDD were more likely to live outside of the family home when the family engaged in future planning, the individual had more informal supports and more functional abilities and had parents with fewer caregiving abilities. Among the 187 adults with IDD who lived outside of the family home, individuals with more problem behaviors and fewer functional abilities were more likely to live in larger group homes (versus independently with or without supports). Further, when the family engaged in more future planning activities, adults with disabilities were more likely to live in a group home (versus independently). When parents had fewer caregiving abilities, adults with disabilities were more likely to live in bigger group homes (versus independently). Implications for policymakers, practitioners, and research are discussed.

scholarly journals Mealtime Care for People With Dementia: What Do Nursing Home Staff Think?

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 182-183
Author(s):  
James Faraday ◽  
Clare Abley ◽  
Catherine Exley ◽  
Joanne Patterson
Keyword(s):  
Nursing Homes ◽  
Ethnographic Study ◽  
Direct Care ◽  
Care Staff ◽  
Direct Care Staff ◽  
Structured Interviews ◽  
Staff Members ◽  
People With Dementia ◽  
Comparison Approach ◽  
The Right

Abstract More and more people with dementia are living in nursing homes (NH). Often, they depend on NH staff for help with eating and drinking. It is important that staff have the skills and support they need to provide good care at mealtimes. This qualitative study explores mealtime care for people with dementia, from the perspective of NH staff. Semi-structured interviews with NH staff (n=16) were carried out in two nursing homes. The homes were chosen to have diverse characteristics: one home had a large number of beds and was part of a small local organization; the other had a small number of beds and was part of a large national organization. Various staff members were interviewed, including direct care staff, senior carers, nurses, managers, and kitchen staff. Interviews were audio-recorded and transcribed verbatim. A constant comparison approach was taken, so that data from early interviews were explored in more depth subsequently. From the analysis, five themes emerged as important in mealtime care for people with dementia living in nursing homes: Setting the right tone; Working well as a team; Knowing the residents; Promoting autonomy and independence; Gently persevering. This work forms part of a larger ethnographic study on the topic, which includes data from residents with dementia, and family carers. Results will inform the development of a staff training intervention to optimize mealtime care for this population.

Sign in / Sign up

Export Citation Format

Share Document