scholarly journals Investigating dementia literacy among community-dwelling adults and older adults in Macau: A mixed methods study

2019 ◽  
Author(s):  
Angela YM Leung ◽  
Cindy S. U Leong ◽  
Pak Leng Cheong ◽  
Alice S. M. Tsang ◽  
Bernice O. C. Lam Nogueira ◽  
...  

Abstract Background: As population ageing and dementia incidence continue to increase worldwide, health systems are urged to empower the public to address factors related to dementia. This study aims to assess Macau citizens’ knowledge of dementia, attitudes towards persons with dementia, and help-seeking behaviours and intention toward dementia.Methods: This is a mixed-methods study with both quantitative (cross-sectional survey) and qualitative components (focus group interviews). The Alzheimer’s Disease Knowledge Scale (ADKS) and Dementia Attitude Scale (DAS) were utilized in the quantitative data collection, whereas focus group interviews were employed to gather context-specific understanding of dementia in the local setting. Descriptive statistics and Chi-square tests were used to analyze quantitative data, while content analysis was used for qualitative data.Results: The overall level of knowledge on dementia was low (ADKS mean total score = 17.38, SD = 3.31), with the least amount of knowledge in the caregiving domain. Meanwhile, attitudes toward persons with dementia was generally positive (mean [SD] = 89.07 [11.99]). Many of the focus group participants were also uncertain regarding the availability of dementia services in the region. The general public was interested to obtain dementia information through social media.Conclusions: Efforts should be made to build up dementia literacy in Macau, especially in terms of caregiving. Information about dementia could be disseminated in social media and by healthcare professionals.

Author(s):  
Stephen Flynn ◽  
Eric Laflamme ◽  
Danica Hays

This article outlines an exploratory sequential mixed-methods study on the environmental supports and barriers for students attending a rural college. Data collected through six focus group interviews (N = 19) indicated 20 themes associated with student success; faculty practices with students; administrative issues; or president, cabinet, and board of trustee vision. An 86-item survey, grounded in qualitative themes, yielded evidence of convergence and divergence for an initial sample of 256 students.


JMIR Aging ◽  
10.2196/29788 ◽  
2021 ◽  
Vol 4 (4) ◽  
pp. e29788
Author(s):  
Ben Kim ◽  
Peyman Ghasemi ◽  
Paul Stolee ◽  
Joon Lee

Background Many people are motivated to self-track their health and optimize their well-being through mobile health apps and wearable devices. The diversity and complexity of these systems have evolved over time, resulting in a large amount of data referred to as patient-generated health data (PGHD), which has recently emerged as a useful set of data elements in health care systems around the world. Despite the increased interest in PGHD, clinicians and older adults’ perceptions of PGHD are poorly understood. In particular, although some clinician barriers to using PGHD have been identified, such as concerns about data quality, ease of use, reliability, privacy, and regulatory issues, little is known from the perspectives of older adults. Objective This study aims to explore the similarities and differences in the perceptions of older adults and clinicians with regard to how various types of PGHD can be used to care for older adults. Methods A mixed methods study was conducted to explore clinicians and older adults’ perceptions of PGHD. Focus groups were conducted with older adults and health care providers from the Greater Toronto area and the Kitchener-Waterloo region. The participants were asked to discuss their perceptions of PGHD, including facilitators and barriers. A questionnaire aimed at exploring the perceived usefulness of a range of different PGHD was also embedded in the study design. Focus group interviews were transcribed for thematic analysis, whereas the questionnaire results were analyzed using descriptive statistics. Results Of the 9 participants, 4 (44%) were clinicians (average age 38.3 years, SD 7 years), and 5 (56%) were older adults (average age 81.0 years, SD 9.1 years). Four main themes were identified from the focus group interviews: influence of PGHD on patient-provider trust, reliability of PGHD, meaningful use of PGHD and PGHD-based decision support systems, and perceived clinical benefits and intrusiveness of PGHD. The questionnaire results were significantly correlated with the frequency of PGHD mentioned in the focus group interviews (r=0.42; P=.03) and demonstrated that older adults and clinicians perceived blood glucose, step count, physical activity, sleep, blood pressure, and stress level as the most useful data for managing health and delivering high-quality care. Conclusions This embedded mixed methods study generated several important findings about older adults and clinicians’ perceptions and perceived usefulness of a range of PGHD. Owing to the exploratory nature of this study, further research is needed to understand the concerns about data privacy, potential negative impact on the trust between older adults and clinicians, data quality and quantity, and usability of PGHD-related technologies for older adults.


2019 ◽  
Vol 22 (2) ◽  
pp. 69-80 ◽  
Author(s):  
Sofie Hermans ◽  
Aline Sevenants ◽  
Anja Declercq ◽  
Nady V Broeck ◽  
Luc Deliens ◽  
...  

Introduction Multiple care organisations, such as home care services, nursing homes and hospitals, are responsible for providing an appropriate response to the palliative care needs of older people admitted into long-term care facilities. Integrated palliative care aims to provide seamless and continuous care. A possible organisational strategy to help realise integrated palliative care for this population is to create a network in which these organisations collaborate. The aim is to analyse the collaboration processes of the various organisations involved in providing palliative care to nursing home residents. Method A sequential mixed-methods study, including a survey sent to 502 participants to evaluate the collaboration between home and residential care, and between hospital and residential care, and additionally three focus group interviews involving a purposive selection among the survey participants. Participants are key persons from the nursing homes, hospitals and home care organisations that are part of the 15 Flemish palliative care networks dispersed throughout the region of Flanders, Belgium. Results Survey data were gathered from 308 key persons (response rate: 61%), and 16 people participated in three focus group interviews. Interpersonal dimensions of collaboration are rated higher than structural dimensions. This effect is statistically significant. Qualitative analyses identified guidelines, education, and information-transfer as structural challenges. Additionally, for further development, members should become acquainted and the network should prioritise the establishment of a communication infrastructure, shared leadership support and formalisation. Discussion The insights of key persons suggest the need for further structuration and can serve as a guideline for interventions directed at improving inter-organisational collaboration in palliative care trajectories for nursing home residents.


2021 ◽  
Author(s):  
◽  
Michael Luke Santamaria

<p>With the ongoing debate on young children’s Information Communication Technology (ICT) use in early childhood education (ECE), empirical studies have reported that the increase in young children’s access to and use of touchscreen tablets, hereafter referred to as tablets, could positively and negatively impact their learning and development. According to the New Zealand ECE curriculum, Te Whāriki (Ministry of Education, 2017), children growing up in the context of a changing society could benefit from using technology. This research, which explored tablet use in New Zealand’s four major early childhood service types: education and care centres, home-based services, kindergartens, and playcentres, provides useful information on the reasons why services used and did not use tablets as well as how teachers/educators used tablets to support children’s learning.  The two phases to this sequential explanatory mixed methods study were underpinned by two research paradigms, the postpositivist paradigm for the quantitative phase and the constructivist paradigm for the qualitative phase. First, a national survey that was sent to all early childhood providers from the four major service types and then a collective case study was conducted in two sub-phases. Phase 2A consisted of focus group interviews with a tablet non-user service from each of the four service types and a tablet user service from each of the four service types. Phase 2B consisted of stimulated recall (SR) focus group interviews with the same tablet users who participated in Phase 2A.  The survey responses revealed considerable variation in the use of tablets and the purposes for which tablets were used. More education and care services and kindergartens used tablets than home-based services and playcentres. Both quantitative and qualitative phases revealed complexities involving tablet use such as the types of scaffolding used and issues surrounding screen time and policies on tablet use including the use of personally-owned tablets and cybsersafety concerns. Particularly, the findings from Phase 2 confirmed that the socialized nature involving tablet use aligned with Te Whāriki. Thus, tablet use is not necessarily limited to a dichotomy of use and non-use but is spread across a spectrum ranging from limited, to specialised, and to comprehensive use.</p>


2021 ◽  
Author(s):  
◽  
Michael Luke Santamaria

<p>With the ongoing debate on young children’s Information Communication Technology (ICT) use in early childhood education (ECE), empirical studies have reported that the increase in young children’s access to and use of touchscreen tablets, hereafter referred to as tablets, could positively and negatively impact their learning and development. According to the New Zealand ECE curriculum, Te Whāriki (Ministry of Education, 2017), children growing up in the context of a changing society could benefit from using technology. This research, which explored tablet use in New Zealand’s four major early childhood service types: education and care centres, home-based services, kindergartens, and playcentres, provides useful information on the reasons why services used and did not use tablets as well as how teachers/educators used tablets to support children’s learning.  The two phases to this sequential explanatory mixed methods study were underpinned by two research paradigms, the postpositivist paradigm for the quantitative phase and the constructivist paradigm for the qualitative phase. First, a national survey that was sent to all early childhood providers from the four major service types and then a collective case study was conducted in two sub-phases. Phase 2A consisted of focus group interviews with a tablet non-user service from each of the four service types and a tablet user service from each of the four service types. Phase 2B consisted of stimulated recall (SR) focus group interviews with the same tablet users who participated in Phase 2A.  The survey responses revealed considerable variation in the use of tablets and the purposes for which tablets were used. More education and care services and kindergartens used tablets than home-based services and playcentres. Both quantitative and qualitative phases revealed complexities involving tablet use such as the types of scaffolding used and issues surrounding screen time and policies on tablet use including the use of personally-owned tablets and cybsersafety concerns. Particularly, the findings from Phase 2 confirmed that the socialized nature involving tablet use aligned with Te Whāriki. Thus, tablet use is not necessarily limited to a dichotomy of use and non-use but is spread across a spectrum ranging from limited, to specialised, and to comprehensive use.</p>


Pharmacy ◽  
2019 ◽  
Vol 7 (4) ◽  
pp. 165
Author(s):  
Austin Arnold ◽  
Erin Holmes ◽  
Meagen Rosenthal

Achieving and maintaining weight loss for large segments of the population remains elusive, despite evidence demonstrating the value of many weight management programs. This study aimed to gather patients’ perceptions on weight management education needs, and ideas for the structure of a weight management program to be delivered in community pharmacies. This was an exploratory mixed methods study combining qualitative focus group interviews with a cross-sectional survey. Three focus group interviews were conducted, along with a brief survey based on focus groups findings and sent to all eligible participants. The survey allowed for individual responses on the program components and narrowing down of focus group findings. Nearly half of the respondents (45.9%) wanted further education on limiting carbohydrate and sugar intake. Participants were most interested in identifying different exercises appropriate for those with physical limitations (48.6%). Most participants preferred 1 h meetings (70.3%) that contain a mix of one-on-one and group meeting formats (67.6%). The results of the study suggest a three-month weight management program, with a combination of group and individual in-person meetings occurring twice per month, would be of most interest to patients.


2021 ◽  
Author(s):  
Ben Kim ◽  
Peyman Ghasemi ◽  
Paul Stolee ◽  
Joon Lee

BACKGROUND Many people are motivated to self-track their health and optimize their well-being through mobile health apps and wearable devices. The diversity and complexity of these systems have evolved over time, resulting in a large amount of data referred to as patient-generated health data (PGHD), which has recently emerged as a useful set of data elements in health care systems around the world. Despite the increased interest in PGHD, clinicians and older adults’ perceptions of PGHD are poorly understood. In particular, although some clinician barriers to using PGHD have been identified, such as concerns about data quality, ease of use, reliability, privacy, and regulatory issues, little is known from the perspectives of older adults. OBJECTIVE This study aims to explore the similarities and differences in the perceptions of older adults and clinicians with regard to how various types of PGHD can be used to care for older adults. METHODS A mixed methods study was conducted to explore clinicians and older adults’ perceptions of PGHD. Focus groups were conducted with older adults and health care providers from the Greater Toronto area and the Kitchener-Waterloo region. The participants were asked to discuss their perceptions of PGHD, including facilitators and barriers. A questionnaire aimed at exploring the perceived usefulness of a range of different PGHD was also embedded in the study design. Focus group interviews were transcribed for thematic analysis, whereas the questionnaire results were analyzed using descriptive statistics. RESULTS Of the 9 participants, 4 (44%) were clinicians (average age 38.3 years, SD 7 years), and 5 (56%) were older adults (average age 81.0 years, SD 9.1 years). Four main themes were identified from the focus group interviews: influence of PGHD on patient-provider trust, reliability of PGHD, meaningful use of PGHD and PGHD-based decision support systems, and perceived clinical benefits and intrusiveness of PGHD. The questionnaire results were significantly correlated with the frequency of PGHD mentioned in the focus group interviews (<i>r</i>=0.42; <i>P</i>=.03) and demonstrated that older adults and clinicians perceived blood glucose, step count, physical activity, sleep, blood pressure, and stress level as the most useful data for managing health and delivering high-quality care. CONCLUSIONS This embedded mixed methods study generated several important findings about older adults and clinicians’ perceptions and perceived usefulness of a range of PGHD. Owing to the exploratory nature of this study, further research is needed to understand the concerns about data privacy, potential negative impact on the trust between older adults and clinicians, data quality and quantity, and usability of PGHD-related technologies for older adults.


2018 ◽  
Vol 68 (suppl 1) ◽  
pp. bjgp18X697349
Author(s):  
Anna Lalonde ◽  
Emma Teasdale ◽  
Ingrid Muller ◽  
Joanne Chalmers ◽  
Peter Smart ◽  
...  

BackgroundCellulitis is a common painful infection of the skin and underlying tissues that recurs in approximately a third of cases. Patients’ ability to recover from cellulitis or prevent recurrence is likely to be influenced by their understanding of the condition.AimTo explore patients’ perceptions of cellulitis and their information needs.MethodMixed methods study comprising semi-structured, face-to-face interviews and cross-sectional survey, recruiting through primary care, secondary care and advertising. Adults aged 18 or over with a history of cellulitis (first or recurrent) were invited to complete a survey, take part in an interview or both. Qualitative data was analysed thematically.ResultsThirty interviews were conducted between August 2016 and July 2017. Qualitative data revealed low prior awareness of cellulitis, uncertainty around diagnosis, concern/surprise at the severity of cellulitis, and perceived insufficient information provision. People were surprised they had never heard of the condition and that they had not received advice or leaflets giving self-care information. Some sought information from the internet and found this bewildering. Two hundred and forty surveys were completed (response rate 17%). These showed that, while most people received information on the treatment of cellulitis (60.0%, n = 144), they reported receiving no information about causes (60.8%, n = 146) or prevention of recurrence (73.3%, n = 176).ConclusionThere is a need for provision of basic information for people with cellulitis, particularly being informed of the name of their condition, how to manage acute episodes, and how to reduce risk of recurrence.


Author(s):  
Tamarinde L. Haven ◽  
Joeri K. Tijdink ◽  
H. Roeline Pasman ◽  
Guy Widdershoven ◽  
Gerben ter Riet ◽  
...  

Abstract Background There is increasing evidence that research misbehaviour is common, especially the minor forms. Previous studies on research misbehaviour primarily focused on biomedical and social sciences, and evidence from natural sciences and humanities is scarce. We investigated what academic researchers in Amsterdam perceived to be detrimental research misbehaviours in their respective disciplinary fields. Methods We used an explanatory sequential mixed methods design. First, survey participants from four disciplinary fields rated perceived frequency and impact of research misbehaviours from a list of 60. We then combined these into a top five ranking of most detrimental research misbehaviours at the aggregate level, stratified by disciplinary field. Second, in focus group interviews, participants from each academic rank and disciplinary field were asked to reflect on the most relevant research misbehaviours for their disciplinary field. We used participative ranking methodology inducing participants to obtain consensus on which research misbehaviours are most detrimental. Results In total, 1080 researchers completed the survey (response rate: 15%) and 61 participated in the focus groups (3 three to 8 eight researchers per group). Insufficient supervision consistently ranked highest in the survey regardless of disciplinary field and the focus groups confirmed this. Important themes in the focus groups were insufficient supervision, sloppy science, and sloppy peer review. Biomedical researchers and social science researchers were primarily concerned with sloppy science and insufficient supervision. Natural sciences and humanities researchers discussed sloppy reviewing and theft of ideas by reviewers, a form of plagiarism. Focus group participants further provided examples of particular research misbehaviours they were confronted with and how these impacted their work as a researcher. Conclusion We found insufficient supervision and various forms of sloppy science to score highly on aggregate detrimental impact throughout all disciplinary fields. Researchers from the natural sciences and humanities also perceived nepotism to be of major impact on the aggregate level. The natural sciences regarded fabrication of data of major impact as well. The focus group interviews helped to understand how researchers interpreted ‘insufficient supervision’. Besides, the focus group participants added insight into sloppy science in practice. Researchers from the natural sciences and humanities added new research misbehaviours concerning their disciplinary fields to the list, such as the stealing of ideas before publication. This improves our understanding of research misbehaviour beyond the social and biomedical fields.


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