scholarly journals The PPI Hawker: An innovative method for public involvement in health research

2019 ◽  
Author(s):  
Lidia Luna Puerta ◽  
Helen E. Smith
Keyword(s):  
Health Research ◽  
Public Involvement ◽  
Research Study ◽  
Local Population ◽  
Community Setting ◽  
Population Based ◽  
Population Based Study ◽  
Research Issues ◽  
The Public ◽  
Field Notes

Abstract Background: A universal challenge in Public Involvement (PPI) in health research is attracting a diversity of patients’ perspectives and experiences. In Singapore, including the public’s voice in research is in its infancy and different ways of involving the public have to be explored.Objective: To design a PPI initiative that enables members of the public to share their ideas and opinions about health research, and then to assess its feasibility in the Singaporean community.Study design: Building on the concept of the PPI Café we designed a PPI Hawker for Singapore. Observations and reflexive field notes were used to evaluate the PPI Hawker’s feasibility, acceptability and utility.Results: From three PPI hawkers we were able to engage 72 members of the public in discussions about a population-based research study for which the researchers wanted to better understand the public’s perspective on various aspects of research design. Three quarters of those approached agreed to participate, indicating the feasibility of this method. PPI participants came from the three major ethnic groups in Singapore and were broad in age, suggesting PPI Hawkers are easily accessible. The majority of participants were willing to discuss all of the questions posed by the researchers. Both participants and researchers recognised the utility of the PPI Hawker, reflecting on people’s willingness to talk about the research issues, engaging in informative conversations and posing relevant questions.Discussion: The PPI Hawkers succeeded in engaging the public in conversations about a local population-based study. The public brought to the researchers’ attention a variety of previously unheard perspectives about the research. Each event fostered connectivity between professionals and the public, generating among researchers a more positive perception of the power of public involvement.Conclusion: PPI Hawkers provide an opportunity for meaningful co-design and co-conduct of research studies with diverse members of the public. They create a focus within a community setting for researchers to engage with the public. The resources needed (costs and preparatory time) are relatively few. Not only do PPI Hawkers have potential in Singapore, but also for the rest of Asia.

scholarly journals The “PPI Hawker”: An innovative method for Patient and Public Involvement (PPI) in health research

2020 ◽  
Author(s):  
Lidia Luna Puerta ◽  
Helen E. Smith
Keyword(s):  
Health Research ◽  
Public Involvement ◽  
Research Study ◽  
Local Population ◽  
Community Setting ◽  
Patient And Public Involvement ◽  
Population Based ◽  
Research Issues ◽  
The Public ◽  
Field Notes

Abstract Background: Patient and Public Involvement (PPI) in health research entails doing research ‘with’ the public. Successful PPI requires a diversity of patients’ perspectives and experiences. In Singapore, including the public’s voice in research is still in its infancy and different ways of involving the public have to be explored. Our aims were to describe a PPI initiative that enables members of the public to share their ideas and opinions about health research, and to assess the feasibility, accessibility and utility of the initiative. Methods: Building on the concept of the PPI Café used in the west we designed a “PPI Hawker” for Singapore. Here Hawker Centres rather than cafes are used frequently for eating and socialising, providing a one-stop destination for a wide section of society. The PPI facilitators approached people sitting at tables and joined them to discuss questions of relevance to a local research study. Observations and reflexive field notes were used to evaluate the “PPI Hawker’s” feasibility, acceptability and utility in the Singaporean community. Results: In three “PPI Hawkers” we approached 96 people and 72 (75%) engaged in discussions about the design of a population-based research study. The majority (75%) of participants willingly discussed all of the questions posed to them by the researchers, indicating the feasibility of PPI. The PPI participants came from the three major ethnic groups in Singapore and appeared to be broad in age, suggesting “PPI Hawkers” are easily accessible. Both participants and researchers recognised the utility of the “PPI Hawker”, reflecting on people’s willingness to talk about the research issues, engaging in informative conversations and posing relevant questions. Conclusion: The “PPI Hawkers” succeeded in engaging the public in conversations about a local population-based study. The public brought to the researchers’ attention a variety of previously unheard perspectives about the research. Each event fostered connectivity between professionals and the public, generating among researchers a more positive perception of the power of public involvement. “PPI Hawkers” provide an opportunity for co-informed conduct of research studies with diverse members of the public. They create a focus within a community setting for researchers to engage with the public. The resources needed (costs and preparatory time) are relatively few. Not only do “PPI Hawkers” have potential in Singapore, but also for the rest of Asia.

scholarly journals Public involvement in research about environmental change and health: A case study

2019 ◽  
Vol 23 (2) ◽  
pp. 215-233 ◽  
Author(s):  
Kath Maguire ◽  
Ruth Garside ◽  
Jo Poland ◽  
Lora E Fleming ◽  
Ian Alcock ◽  
...  
Keyword(s):  
Environmental Change ◽  
Public Engagement ◽  
Health Research ◽  
Public Involvement ◽  
Research Projects ◽  
Short Term ◽  
Policy Makers ◽  
Research Issues ◽  
The Public

Involving and engaging the public are crucial for effective prioritisation, dissemination and implementation of research about the complex interactions between environments and health. Involvement is also important to funders and policy makers who often see it as vital for building trust and justifying the investment of public money. In public health research, ‘the public’ can seem an amorphous target for researchers to engage with, and the short-term nature of research projects can be a challenge. Technocratic and pedagogical approaches have frequently met with resistance, so public involvement needs to be seen in the context of a history which includes contested truths, power inequalities and political activism. It is therefore vital for researchers and policy makers, as well as public contributors, to share best practice and to explore the challenges encountered in public involvement and engagement. This article presents a theoretically informed case study of the contributions made by the Health and Environment Public Engagement Group to the work of the National Institute for Health Research (NIHR) Health Protection Research Unit in Environmental Change and Health (HPRU-ECH). We describe how Health and Environment Public Engagement Group has provided researchers in the HPRU-ECH with a vehicle to support access to public views on multiple aspects of the research work across three workshops, discussion of ongoing research issues at meetings and supporting dissemination to local government partners, as well as public representation on the HPRU-ECH Advisory Board. We conclude that institutional support for standing public involvement groups can provide conduits for connecting public with policy makers and academic institutions. This can enable public involvement and engagement, which would be difficult, if not impossible, to achieve in individual short-term and unconnected research projects.

scholarly journals Examining the public refusal to consent to DNA biobanking: empirical data from a Swedish population-based study

2010 ◽  
Vol 36 (2) ◽  
pp. 93-98 ◽  
Author(s):  
P. A. Melas ◽  
L. K. Sjoholm ◽  
T. Forsner ◽  
M. Edhborg ◽  
N. Juth ◽  
...  
Keyword(s):  
Empirical Data ◽  
Population Based ◽  
Swedish Population ◽  
Population Based Study ◽  
The Public

scholarly journals Population-Based Study of anti-SARS-CoV-2, Social Distancing and Government Responses in Joinville, Brazil

2021 ◽  
Author(s):  
Henrique Diegoli ◽  
Vivianne Samara Conzatti ◽  
Suleimy Cristina Mazin ◽  
Juliana Safanelli ◽  
Louise Domenguini Chiaradia Dellatorre ◽  
...  
Keyword(s):  
Local Population ◽  
Population Based ◽  
Medical Consultation ◽  
Leaving Home ◽  
Population Based Study ◽  
Social Distancing ◽  
Margin Of Error ◽  
The City ◽  
Positive Results ◽  
Selection Of

AbstractBackgroundThe city of Joinville had been mildly affected by the COVID-19 pandemic until June 2020. This study aimed to longitudinally assess the prevalence of exposure to the virus and social distancing practices in the local population.MethodsA randomized selection of households stratified by region was created. From June 15 to August 7, 2020, a dweller was randomized in each household, answered a questionnaire, and performed a test for the detection of SARS-CoV-2 antibodies. The prevalence of positive tests was calculated for each week and adjusted for the test’s sensitivity and specificity.ResultsThe adjusted proportion of positive results increased from 1.4% in the first week (margin of error [ME] 0% to 2.87%) to 13.38% in the eighth week (ME 10.22% to 16.54%). Among the 213 participants that tested positive, 55 (25.82%) were asymptomatic. Only 37 (17.37%) sought medical consultation for any symptom. Among the 77 (36.15%) that were leaving home to work or study, only 18 (23.38%) stopped due to any symptom. The proportion that referred going to bars, restaurants, or making non-essential shopping decreased from 20.56% in the first week to 8.61% during the peak of diagnoses.ConclusionThe low proportion of participants that sought medical consultation or stopped leaving home indicates strategies directed to isolate only those symptomatic reach a low proportion of infected patients.

scholarly journals Sick leave among people in paid work after age 65: A Swedish population-based study covering 1995, 2000, 2005 and 2010

2017 ◽  
Vol 46 (3) ◽  
pp. 297-305 ◽  
Author(s):  
K. Farrants ◽  
S. Marklund ◽  
L. Kjeldgård ◽  
J. Head ◽  
K. Alexanderson
Keyword(s):  
Sick Leave ◽  
Age Groups ◽  
Population Based ◽  
Paid Work ◽  
Swedish Population ◽  
Population Based Study ◽  
The Public ◽  
Labour Market Participation ◽  
Working People ◽  
High Work

Aims: Extending working life into older age groups is discussed in many countries. However, there is no knowledge about how this affects rates of sick leave. The aim of this work was to investigate rates of sick leave among people in paid work after retirement age and if such rates have changed over time. Methods: Swedish nationwide register data on people aged >65 years and living in Sweden in 1995, 2000, 2005 and 2010 were analysed. All people with a sufficiently high work income to be eligible for public sick leave benefits were included. The proportions in paid work and compensated rates of sick leave for people aged 66–70 and ≥71 were analysed by sex, educational level, country of birth, living area, and employment type and sector. Results: The percentage of people in paid work at ages 66–70 years increased from <10% in 1995 to 24% in 2010 and among those aged ≥71 years from 2.7% in 1995 to 3.5% in 2010. The rates of sick leave among working people aged 66–70 years were 3.3% in 1995 and 2.4% in 2010 and for people aged ≥71 years the rates of sick leave were 2.2% in 1995 and 0.2% in 2010. Women had higher rates of sick leave than men in 2005 and 2010, but lower in 1995 and 2000. In 2010, the rates of sick leave were similar between employees and the self-employed, and higher among employees in the public sector than among employees in the private sector. Conclusions: Rates of sick leave among workers aged >65 years were lower in 2010 than in 1995, despite much higher rates of labour market participation in 2010.

Knowledge and attitude towards total knee arthroplasty among the public in Saudi Arabia: a nationwide population-based study

2017 ◽  
Vol 42 (4) ◽  
pp. 819-827 ◽  
Author(s):  
Omar A. Al-Mohrej ◽  
Faris O. Alshammari ◽  
Abdulrahman M. Aljuraisi ◽  
Lujain A. Bin Amer ◽  
Emad M. Masuadi ◽  
...  
Keyword(s):  
Total Knee Arthroplasty ◽  
Saudi Arabia ◽  
Knee Arthroplasty ◽  
Population Based ◽  
Population Based Study ◽  
The Public ◽  
Total Knee ◽  
Knowledge And Attitude

scholarly journals Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

2019 ◽  
Vol 4 (1) ◽  
Author(s):  
Mhairi Aitken ◽  
Mary P Tully ◽  
Carol Porteous ◽  
Simon Denegri ◽  
Sarah Cunningham-Burley ◽  
...  
Keyword(s):  
Health Research ◽  
Best Practice ◽  
Public Involvement ◽  
Consensus Statement ◽  
Research Community ◽  
Socially Responsible ◽  
The Public ◽  
Data Intensive ◽  
International Group ◽  
Societal Benefits

This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field. Our key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.

Involving Patients and the Public in E-Health Research

2009 ◽  
pp. 115-126
Author(s):  
John Powell ◽  
Natalie Armstrong
Keyword(s):  
Health Research ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
Consumer Involvement ◽  
Self Management ◽  
The Public ◽  
Health Consumer ◽  
Consumer Perspective ◽  
Internet Based Intervention

This chapter deals with the principles and practice of patient and public involvement in e-health research, and discusses some of the issues raised. In the first part of this chapter, we discuss the problems of defining an “e-health consumer,” and discuss why, how and when to involve consumers in e-health research. We also set out principles to guide effective consumer involvement, and the benefits that this can bring in the e-health arena. In the second part of this chapter, we describe how consumers were successfully involved, through a variety of methods, in the development and evaluation of an Internet-based intervention to aid diabetes self-management. Patient and public involvement in research is not the same as undertaking research on patients or the public. It is about understanding, incorporating and benefiting from the relevant consumer perspective, at various levels, throughout the stages of a project.

scholarly journals Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Julia Jones ◽  
Marion Cowe ◽  
Sue Marks ◽  
Tony McAllister ◽  
Alex Mendoza ◽  
...  
Keyword(s):  
Health Research ◽  
Public Involvement ◽  
Short Form ◽  
Collaborative Study ◽  
Research Process ◽  
Patient And Public Involvement ◽  
Missed Opportunities ◽  
The Public ◽  
Research Publications ◽  
Health And Social Care

Abstract Background Patient and public involvement (PPI) in health and social care research is considered important internationally, with increasing evidence that PPI improves the quality, relevance and outcomes of research. There has been a growth in research publications that describe PPI in the research process, but the frequency and detail of PPI reporting varies considerably. This paper reports on a collaborative study that aimed to describe the extent of PPI in publications from research funded by the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) in the East of England (EoE), part of the National Institute of Health Research (NIHR) in England (2014–2019). Methods A descriptive study of all research publications (1st January 2014 to 31st October 2017) funded by the NIHR CLAHRC EoE. Members of the Public Involvement in Research group (PIRg), at the University of Hertfordshire, were actively involved, with four PIRg co-researchers. We used an internationally recognised reporting checklist for PPI called the GRIPP2 (Guidance for Reporting Involvement of Patients and the Public, Version 2) to guide the reviewing process. Results Out of 148 research papers identified, 16 (14%) reported some aspect of PPI activity and were included for review. Ten of the publications (63%) acknowledged the contributions of PPI individuals and/or groups and five had PPI co-authors. There was considerable variation in the PPI reported in the publications, with some ‘missed opportunities’ to provide detail of PPI undertaken. The perspectives of the co-researchers shaped the reporting of the results from this study. The co-researchers found the GRIPP2-SF (short form) to be useful, but the GRIPP2-LF (long form) was considered over complicated and not user-friendly. Conclusions This is one of the first studies to involve lay co-researchers in the review of PPI reporting using the GRIPP2 reporting checklists (GRIPP2-SF and GRIPP2-LF). We make recommendations for a revised version of the GRIPP2-SF, with clearer instructions and three additional sections to record whether PPI is reported in the abstract or key words, in the acknowledgements section, and whether there are PPI co-authors. We also recommend the provision of training and support for patient and public peer reviewers.

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