scholarly journals Experiences and Disease Self-Management in Individuals Living With Chronic Kidney Disease: Qualitative Analysis of the National Kidney Foundation's Online Community

2021 ◽  
Author(s):  
Yan Du ◽  
Brittany Dennis ◽  
Valerie Ramirez ◽  
Chengdong Li ◽  
Jing Wang ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Emotional Support ◽  
Online Community ◽  
Peer Interactions ◽  
Early Stage ◽  
Self Management ◽  
Online Forum ◽  
Care Community ◽  
Health Communities

Abstract Background: Self-management of chronic kidney disease (CKD) is one of the keys in improving CKD outcomes and quality of life. There has been an increased use of online health communities to share the experiences of those living with CKD. By analyzing the CKD online forum data, this study aims to: 1) understand the experiences and challenges of individuals living with CKD, and 2) explore how online communities may help CKD patients in improving CKD self-management. Methods: Publicly available posts of peer interactions on the National Kidney Foundation's online community for people affected by CKD were extracted in April 2021 using computer programming. A total of 20,436 posts were collected, of which 400 posts were analyzed using inductive thematic analysis, and saturation was reached. Two researchers coded each post independently, and discrepancies were discussed to reach consensus. Results: The analysis identified seven themes: 1) Dynamics of CKD status, 2) CKD comorbidities, 3) Managing CKD and symptoms, 4) Life participation and outlook; 5) Navigating healthcare and clinical needs, 6) Medical tests and results; and 7) Support on the forum. The results revealed that comorbidities were common in CKD patients and early-stage CKD was not communicated in a timely manner to patients by the health care community; living with CKD challenged both CKD and caregivers; some common challenges included but were not limited to the management of a diet for CKD and co-morbidities (especially co-morbid diabetes), CKD dynamics and symptoms, and fear of/ways to prevent progression. Individuals living with CKD primarily used the online forum to share and seek information and emotional support for managing CKD (including co-morbidities). Conclusions: Challenges of living with CKD were found not only in those with advanced kidney disease and those on dialysis, but also in those with early and middle stages. Information and emotional support from the online forum serves as a platform to empower CKD patients with the knowledge, skills and confidence for CKD self-management. Proactive and innovative strategies with a combination of virtual and real settings to improve self-management for individuals with all-stage CKD needs to be explored and tailored.

Early Stage Chronic Kidney Disease Self-Management Instrument

2012 ◽  
Author(s):  
Chiu-Chu Lin ◽  
Chia-Chen Wu ◽  
Li-Min Wu ◽  
Hsing-Mei Chen ◽  
Shu-Chen Chang
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Early Stage ◽  
Self Management ◽  
Management Instrument

scholarly journals Self-management of dietary intake using mindful eating to improve dietary intake for individuals with early stage chronic kidney disease

2017 ◽  
Vol 40 (5) ◽  
pp. 702-711 ◽  
Author(s):  
Gayle M. Timmerman ◽  
Muna J. Tahir ◽  
Richard M. Lewis ◽  
Deborah Samoson ◽  
Holli Temple ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Dietary Intake ◽  
Early Stage ◽  
Self Management ◽  
Mindful Eating

The effects of knowledge and self‐management of patients with early‐stage chronic kidney disease: Self‐efficacy is a mediator

2020 ◽  
Author(s):  
Li‐Ming Chuang ◽  
Shu‐Fang Vivienne Wu ◽  
Mei‐Chen Lee ◽  
Li‐Ju Lin ◽  
Shu‐Yuan Liang ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Self Efficacy ◽  
Early Stage ◽  
Self Management

scholarly journals Features of patient-education websites for patients with chronic kidney disease: an analysis of recommended websites

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Rohanit Singh ◽  
Bernard G. Jaar ◽  
Gibran Kazi ◽  
Lawrence J. Appel
Keyword(s):  
Physical Activity ◽  
Chronic Kidney Disease ◽  
Medication Adherence ◽  
Kidney Disease ◽  
Emotional Support ◽  
Financial Information ◽  
Content Area ◽  
Self Management ◽  
The Internet ◽  
Content Areas

Abstract Background Chronic kidney disease (CKD) requires lifelong self-management. With the rise in access to the Internet, many CKD patients and their caregivers increasingly use the internet for information on CKD self-management. A recent environmental scan by Smekal et al. identified 11 CKD-related websites that covered the greatest number of content areas. This paper aims to evaluate these 11 selected websites in order to identify those that most effectively address content areas relevant to patients with CKD. Methods Each website was assessed for information to 6 content areas: diet, physical activity, financial information, emotional support, general CKD information, and medication adherence. A three-tiered scoring metric was used in which a 0 was given if a content area was completely unaddressed, a (+) was given for a category that was generally addressed, and a (++) was given for a category that was addressed with actionable guidance. Results While CKD information and diet were very comprehensively covered with scores of 11 (++) and 8 (++), respectively; physical activity, emotional support and medication adherence received the fewest (++) scores (3 for physical activity and five for both emotional support and medication adherence). For each content area, recommendations are made for websites that are particularly useful. Common themes for these highlighted websites include specific instructions, multiple modalities of information, downloadable and printable resources, and contact references for personal inquiries. Conclusion The recommended websites can help CKD patients and caregivers utilize the most applicable information for their specific self-management needs. Website improvements related to physical activity, emotional support, and financial information for persons with CKD are warranted.

Effects of a self-management program on patients with early-stage chronic kidney disease: A pilot study

2013 ◽  
Vol 26 (3) ◽  
pp. 151-156 ◽  
Author(s):  
Chiu-Chu Lin ◽  
Fu-Mian Tsai ◽  
Huey-Shyan Lin ◽  
Shang-Jyh Hwang ◽  
Hung-Chun Chen
Keyword(s):  
Chronic Kidney Disease ◽  
Pilot Study ◽  
Kidney Disease ◽  
Early Stage ◽  
Management Program ◽  
Self Management

scholarly journals Factors Influencing Self-Efficacy and Self-Management among Patients with Pre-End-Stage Renal Disease (Pre-ESRD)

Healthcare ◽  
2021 ◽  
Vol 9 (3) ◽  
pp. 266
Author(s):  
Pao-Chin Lai ◽  
Shu-Fang Vivienne Wu ◽  
Javad Alizargar ◽  
Satriya Pranata ◽  
Juin-Ming Tsai ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Self Efficacy ◽  
Early Stage ◽  
Depression Scale ◽  
Self Management ◽  
Public Health Issue ◽  
Factors Influencing ◽  
End Stage ◽  
Esrd Patients

Aim: Chronic kidney disease (CKD) is an emerging major public health issue that leads to end-stage kidney disease (ESRD). Factors influencing the self-management and self-efficacy of ESRD patients are still under investigation. The objective of this study is to evaluate the association of depression and anxiety with self-management and self-efficacy in patients with pre-ESRD. Methods: Patients in the department of nephrology of a regional hospital in Taiwan were invited to participate and were included in our study if they had a confirmed diagnosis of early-stage CKD, were more than 20 years old, and could converse in Mandarin Chinese or Taiwanese. Patients diagnosed with depression, who could not execute self-care, or who had cognitive deficits were excluded. In total, this cross-sectional study included 112 pre-ESRD patients. We used the Chinese versions of the hospital anxiety and depression scale (HADS), the chronic kidney disease self-efficacy instrument (CKD-SE), and the chronic kidney disease self-management instrument (CKD-SM) as the questionnaire. Spearman’s rank correlation and logistic regressions were used to analyze the data. Results: The top quartile of self-management and self-efficacy scores (28 patients) was defined as high self-management and -efficacy, respectively, and the lower three quartiles as low self-management and -efficacy. The logistic regression analysis showed that having depression decreased the odds of having high self-management by 75.4% and high self-efficacy by 75.1%. Having an education level of senior high school or above increased the odds ratios for having high self-management and high self-efficacy to 4.47 and 3.56 (all p-values < 0.05). Conclusion: Controlling depression as well as increasing the level of education can potentially increase self-management and self-efficacy in pre-ESRD patients.

scholarly journals POS-346 DEVELOPMENT AND TESTING OF THE EARLY-STAGE CHRONIC KIDNEY DISEASE SELF-MANAGEMENT (esCKD-SM) QUESTIONNAIRE

2021 ◽  
Vol 6 (4) ◽  
pp. S150-S151
Author(s):  
M. SMEKAL ◽  
M. Donald ◽  
H. Beanlands ◽  
S. Straus ◽  
G. Herrington ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Early Stage ◽  
Self Management
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