scholarly journals Developing a mobile application to improve the quality of life among breast cancer survivors

2021 ◽  
Author(s):  
Marcelle Dougan ◽  
Tina Korani ◽  
Arden Castle ◽  
Kim Dang
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Mobile Applications ◽  
Mobile Application ◽  
Breast Cancer Survivors ◽  
Minority Groups ◽  
Support Systems ◽  
Convenience Sample ◽  
Credible Information ◽  
User Friendly

Abstract Background In recent years, there has been a growing recognition of the value of mobile applications for health. The current study explored key factors that drive use of mobile applications among breast cancer survivors,. Methods We conducted in-depth interviews with a convenience sample of 14 ethnically diverse cancer survivors and individuals in their support systems. Interviewees included six breast cancer survivors, one survivor of a different type of cancer, and four individuals in their support systems (caregivers, clinical professionals, or research professionals). Interview transcripts were analyzed using thematic analysis. Results Themes emerged in two overarching categories: 1) finding meaningful support and 2) ensuring utility of a mobile application. In relation to meaningful support, participants identified three important themes: increasing social support and connection, motivation for self-care, and assistance navigating healthcare. In the area of application utility, participants identified three key themes: keeping a user-friendly interface, ensuring credible information, and using the data collected for the purposes intended. Conclusion It is important to consider factors associated with both meaning and utility when developing a mobile application for breast cancer survivors. Further research is needed with breast cancer survivors of additional ethnic minority groups to confirm or extend important areas for consideration.

scholarly journals The development of a lifestyle modification mobile application, “Health for You” for overweight and obese breast cancer survivors in Korea

2021 ◽  
Vol 27 (3) ◽  
pp. 243-255
Author(s):  
Su-Jin Seo ◽  
Ju-Hee Nho ◽  
Youngsam Park
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Mobile Application ◽  
Breast Cancer Survivors ◽  
Lifestyle Modification ◽  
Healthy Lifestyle ◽  
Cancer Recurrence ◽  
Bulletin Board ◽  
Design Development

Purpose: This study aimed to develop a lifestyle modification (LSM) mobile application based on the Android operating system for overweight and obese breast cancer survivors (BCS) in Korea and evaluate its usability.Methods: The content analysis, design, development, implementation, and evaluation of the LSM intervention mobile application for overweight and obese BCS was conducted by identifying survivors’ needs, searching the literature, and reviewing existing mobile applications. The survey was conducted from June 1 to December 28, 2020 at Jeonju city, Korea.Results: The mobile application for BCS included dietary and exercise information, weight logs, as well as distress and daily achievement check. It also included information and videos on the prevention of breast cancer recurrence and used a communication bulletin board. Expert and user usability evaluation of its content and functions confirmed that it was appropriate and satisfactory for overweight and obese BCS.Conclusion: This LSM mobile application developed for overweight and obese BCS was found to be appropriate for use. It can be applied for further study of effectiveness on improving their health and maintaining a healthy lifestyle, to ultimately improve quality of life.

Implementation of a brief screening tool to identify needs of cancer survivors.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e23075-e23075 ◽  
Author(s):  
Allison L. McDonough ◽  
Yvonne Y. Lei ◽  
Dana Haggett ◽  
Rachel Jimenez ◽  
Katherine T. Johnston ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Primary Care ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Primary Care Clinic ◽  
Qualitative Assessment ◽  
Plain Language ◽  
Convenience Sample ◽  
Care Clinic

e23075 Background: Innovation in health care delivery is needed to improve care for cancer survivors. We report a pragmatic study intended to evaluate our experience with adopting screening guidelines from the National Comprehensive Cancer Network (NCCN) to the routine care of breast cancer survivors in primary care and oncology follow up. Methods: We adapted the NCCN recommended screening questions into a plain language self-administered 1 page intake questionnaire. The tool was administered to a convenience sample of female breast cancer survivors in routine follow-up at an oncology or primary care clinic from September through December 2018. Domains included symptoms, lifestyle concerns, and financial issues. Frequency of concerns was assessed as “never”, “rarely”, “sometimes”, “very frequently” and “always”. We dichotomized results and evaluated feasibility of administration, prevalence of reported symptoms and qualitative assessment of burden as well as utility of the tool among participating clinicians. Results: 165 out of 169 patients offered the questionnaire participated (98%). Office staff provided the questionnaire at routine visits without notable impact on clinic flow. Most commonly endorsed concerns (sometimes or more) were: desire to improve fitness or nutrition (80%), worry about cancer recurrence (72%), and problems with sleep (57%). A majority also reported feeling nervous or worried (55%) and aches or pains in limbs or joints (55%). Several issues known to be underreported in clinic visits were endorsed including lack of satisfaction with sexual function (30% sometimes or more, 12% very often or always) and difficulty remembering things (47% sometimes or more, 13% very often or always). Among 7 participating clinicians, the tool was deemed useful and not burdensome. Several noted that it led to discussing issues that may not otherwise have been addressed. Suggestions included systematically identifying resources and strategies to address common issues and incorporating the tool into the electronic health record to increase utility. Conclusions: Screening for individual needs among survivors is feasible and efficient and may identify prevalent issues that otherwise can be missed in routine survivorship care.

Change in patient-reported outomes over time from breast cancer diagnosis.

2011 ◽  
Vol 29 (27_suppl) ◽  
pp. 210-210
Author(s):  
C. E. Hill-Kayser ◽  
C. Vachani ◽  
M. K. Hampshire ◽  
G. A. Di Lullo ◽  
J. M. Metz
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Late Effects ◽  
Breast Cancer Survivors ◽  
Breast Cancer Diagnosis ◽  
Survivorship Care ◽  
Convenience Sample ◽  
Patient Reported ◽  
Over Time

210 Background: Breast cancer survivors may be at risk for significant late effects after treatment. Understanding the patterns of change over time of patient reported outcomes (PRO) is often very challenging. Methods: Patient-reported data was gathered via a convenience sample frame from breast cancer survivors utilizing a publically available, free, Internet-based tool for creation of survivorship care plans. Available at www.livestrongcareplan.com and through the OncoLink website, the tool allows survivors to enter data regarding diagnosis, demographics, treatments received, and late effects experienced, and provides them with customized guidelines for future care. All data has been maintained anonymously with IRB approval. Results: 1,145 breast cancer survivors were queried with regard to PRO. Median age at diagnosis (dx) was 49 yrs, and median current age 52 yrs. Of users, 98% reported having had surgery; of these 56% underwent mastectomy and 49% lumpectomy (5% both). Similarly, 59% underwent sentinel LN biopsy, and 47% axilary dissection. Of the same cohort, 88% received chemotherapy and/or hormonal treatment, and 70% radiation therapy. The median time from dx until use of the care plan tool was 2 years (range 0-33 years). Late effects reported by survivors ≤ 2 and > 2 years from diagnosis are shown (see table). Overall, survivors ≤ 2 years from dx were more likely to note changes in skin color or texture; those > 2 years from diagnosis were more likely to note osteopenia, lymphedema, and sexual changes. Patient reported cognitive changes, arm pain/numbness/tingling, and loss of shoulder flexibility did not differ between the two groups. Conclusions: This anonymous tool uses a convenience sample frame to gather PRO after breast cancer diagnosis/ treatment. PRO varied significantly with time since dx, with more late effects reported > 2 years from dx. This information may be of use during patient counseling and survivorship care delivery. [Table: see text]

Underserved community-based walking program for breast cancer survivors.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. e288-e288
Author(s):  
Judy Angela Tjoe ◽  
Linda B. Piacentine ◽  
Karen M. Robinson ◽  
Alexander V. Ng ◽  
Leslie J. Waltke ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Focus Groups ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Well Being ◽  
Community Based ◽  
Convenience Sample ◽  
Walking Program

e288 Background: Advancements in early detection and new treatment options have improved outcomes for breast cancer survivors (BCS). With increased survivorship, improving quality of life (QOL) may be a challenge for some women. Exercise improves QOL for BCS and decreases recurrence, but, despite this many women do not routinely exercise. Underserved areas are at particular risk. Few studies have examined factors influencing exercise initiation and maintenance in underserved areas among minority overweight women. The purpose of this mixed methods study was to examine physiological outcomes and motivational factors in a community-based goal oriented walking program for BCS. Methods: A convenience sample of female BCS was recruited from an inner-city community center 12-week walking program. Women participated in physiological testing and focus groups before and after the program. Data was collected regarding strength, fitness, quality of life, and motivation of the women. Quantitative data was analyzed with paired t-tests. Two researchers independently analyzed focus groups’ transcriptions and like statements and phrases were coded. Themes emerged after discussions between the researchers. Results: The 13 participants [overweight BMI (n = 2), and obese BMI (n = 11)] had a mean survivorship of 5.4 years (range .25-14.5) years. Only 7 participants completed both pre and post physiological testing. Functional endurance significantly improved as indicated by the 6 Minute Walk Test (pre = 503(56), post = 570 (63) meters, mean(sd)), p = 0.02). While overall QOL did not improve, functional well-being showed significant improvement. Two focus group sessions were held at the beginning (n = 13) and end (n = 11) of the program. Themes emerged identifying 1) Treatment Weight Gain, 2) Familial Support, 3) Not Wanting to Go it Alone, 4) The Team Made the Difference Conclusions: Female BCS spoke of interpersonal and environmental factors involved in the decision to engage and maintain exercise with the walking program. Further research is needed to examine exercise motivation in underserved, overweight and obese breast cancer survivors.

scholarly journals Young Breast Cancer Survivors: Employment Experience and Financial Well-Being

2020 ◽  
Author(s):  
Florence K. L. Tangka ◽  
Sujha Subramanian ◽  
Madeleine Jones ◽  
Patrick Edwards ◽  
Sonja Hoover ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Well Being ◽  
The United States ◽  
Stage Ii ◽  
Odds Ratios ◽  
Convenience Sample ◽  
Financial Decline ◽  
First Diagnosis

The economic burden of breast cancer for women under 50 in the United States remains largely unexplored, in part because young women make up a small proportion of breast cancer cases overall. To address this knowledge gap, we conducted a web-based survey to compare data from breast cancer survivors 18–39 years of age at first diagnosis and 40–49 years of age at first diagnosis. We administered a survey to a national convenience sample of 416 women who were 18–49 years of age at the time of their breast cancer diagnosis. We analyzed factors associated with financial decline using multivariate regression. Survivors 18–39 years of age at first diagnosis were more likely to report Stage II–IV breast cancer (P<0.01). They also quit their jobs more often (14.6%) than older survivors (4.4%; P<0.01) and faced more job performance issues (55.7% and 42.8%, respectively; P=0.02). For respondents in both groups, financial decline was more likely if the survivor had at least one comorbid condition (odds ratios: 2.36–3.21) or was diagnosed at Stage II–IV breast cancer (odds ratios: 2.04–3.51).

Feasibility of a lifestyle intervention for overweight/obese endometrial and breast cancer survivors using an interactive mobile application

2015 ◽  
Vol 137 (3) ◽  
pp. 508-515 ◽  
Author(s):  
Michele L. McCarroll ◽  
Shannon Armbruster ◽  
Rachael J. Pohle-Krauza ◽  
Amy M. Lyzen ◽  
Sarah Min ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Lifestyle Intervention ◽  
Mobile Application ◽  
Breast Cancer Survivors

scholarly journals Every Cloud Has a Silver Lining Lived Experience and Coping Strategies of Breast Cancer Survivors in Sarajevo

2021 ◽  
Vol 15 (1) ◽  
Author(s):  
Nina Bosankic ◽  
Selvira Draganovic ◽  
Jasmina Ramic ◽  
Amber Haque
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Coping Strategies ◽  
Lived Experience ◽  
Breast Cancer Survivors ◽  
Radical Mastectomy ◽  
Convenience Sample ◽  
Personal Experiences ◽  
And Coping ◽  
Depth Interviews

This study explored how women breast cancer survivors who underwent radical mastectomy experienced stress and adversity and managed their diagnosis and treatment. This study is based on semi-structured and in-depth interviews with a convenience sample of 22 participants. Qualitative analysis and discussion groups were conducted in the participant’s homes over 18 months. Thematic analysis resulted in four overarching categories that illustrated how being a woman was challenged and restructured from the participants’ personal experiences. The participants’ coping strategies were primarily reflected in their spirituality, optimism, the embrace of healthy lifestyles, and pink ribbon activism.

HSR19-104: Patterns of Providers’ Mammogram Referrals for Asymptomatic Breast Cancer Survivors

2019 ◽  
Vol 17 (3.5) ◽  
pp. HSR19-104
Author(s):  
Guadalupe R. Palos ◽  
Katherine Gilmore ◽  
Patricia Chapman ◽  
Weiqi Bi ◽  
Paula Lewis-Patterson ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Statistical Significance ◽  
Recurrence Rates ◽  
Eligibility Criteria ◽  
Chi Square ◽  
Convenience Sample ◽  
Nccn Guidelines ◽  
Chi Square Analysis

Background: NCCN Guidelines recommend annual mammography for surveillance in asymptomatic women diagnosed with breast cancer. There is limited evidence to support which type of mammogram—screening or diagnostic—should be ordered for asymptomatic breast cancer survivors. Our objective was to assess the referral patterns for mammograms in 2 breast clinics: survivorship (SC) and oncology (OC). Methods: A retrospective analysis of institutional databases was conducted to identify a convenience sample of women with limited invasive breast cancer who were (1) alive 5 years post-treatment and (2) seen at a SC or OC visit scheduled from January 1 to December 31, 2015. The primary outcome was women who received a diagnostic or screening mammogram during the 2015 calendar year. Demographic, clinical, and mammogram characteristics were also analyzed. Simple descriptive statistics were used to aggregate and compare data. Chi-square analysis tested for statistical significance. Results: A convenience sample of 354 cases was identified. Of those, 247 met the eligibility criteria for this analysis, SC=147 and OC=100. In this cohort, the mean age of diagnosis was 50.42 (±11.12), the majority were white (74.1%), and most received a diagnostic mammogram (64.4%). A greater proportion of diagnostic mammograms were ordered for women seen in OC (40.1%) vs SC (24. 3%). This finding was statistically significant (P=.00). Overall, 91.9 % of the mammogram results were negative and with a low proportion of “positive” (2.0%) or “need for additional imaging testing” (6.1%) reported. Recurrence rates in this cohort were also found to be low (1.6%). Conclusions: In this cohort, we found a difference in the type of mammogram ordered by providers in dedicated survivorship or medical oncology clinics. Our findings suggest that despite the greater use of diagnostic mammograms among this cohort of long-term breast cancer survivors, the overall proportion of positive findings, further imaging tests, or recurrence rates was low. It is concerning that many asymptomatic breast cancer survivors continue to receive a diagnostic mammogram as part of their surveillance visit. Further studies are needed to identify the emotional, financial, and physical toxicities associated with diagnostic mammograms.

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