The Effect of Hospice and Palliative Care to Anxiety and Depression of Family with Cancer Patient

This chapter explores the history of volunteers in the founding and development of United Kingdom (UK) hospice services. It considers the changing role and influences of volunteering on services at different stages of development. Evidence suggests that voluntary sector hospice and palliative care services are dependent on volunteers for the range and quality of services delivered. Within such services, volunteer trustees carry significant responsibility for the strategic direction of the organiszation. Others are engaged in diverse roles ranging from the direct support of patient and families to public education and fundraising. The scope of these different roles is explored before considering the range of management models and approaches to training. This chapter also considers the direct and indirect impact on volunteering of changing palliative care, societal, political, and legislative contexts. It concludes by exploring how and why the sector is changing in the UK and considering the growing autonomy of volunteers within the sector.

Download Full-text

Development of Entrustable Professional Activities for Training of Hospice and Palliative Care Pharmacists (SCI961)

Journal of Pain and Symptom Management ◽

10.1016/j.jpainsymman.2021.01.121 ◽

2021 ◽

Vol 61 (3) ◽

pp. 702-703

Author(s):

Kashelle Lockman ◽

Maria Lowry ◽

Sandra Discala ◽

Tanya Uritsky ◽

Amanda Lovell ◽

...

Keyword(s):

Palliative Care ◽

Entrustable Professional Activities ◽

Professional Activities ◽

Hospice And Palliative Care

Download Full-text

Palliative Care in the Elderly Breast Cancer Patient

Clinical Oncology ◽

10.1016/j.clon.2008.11.009 ◽

2009 ◽

Vol 21 (2) ◽

pp. 131-139 ◽

Cited By ~ 5

Author(s):

B.J.A. Laird ◽

M.T. Fallon

Keyword(s):

Breast Cancer ◽

Palliative Care ◽

Cancer Patient ◽

Breast Cancer Patient ◽

The Elderly

Download Full-text

Palliative care of the cancer patient

The American Journal of Surgery ◽

10.1016/0002-9610(68)90118-9 ◽

1968 ◽

Vol 115 (5) ◽

pp. 743

Author(s):

R.Robinson Baker

Keyword(s):

Palliative Care ◽

Cancer Patient

Download Full-text

Quality of life of caregivers of cancer patients in home palliative care: a non-interventional study

European Journal of Public Health ◽

10.1093/eurpub/ckaa166.1343 ◽

2020 ◽

Vol 30 (Supplement_5) ◽

Author(s):

E Faggian ◽

S Favero ◽

D Gregori ◽

M Martinato

Keyword(s):

Quality Of Life ◽

Palliative Care ◽

Cancer Patient ◽

Home Care ◽

Continuity Of Care ◽

Physical Stress ◽

Private Life ◽

Phone Call ◽

Average Score

Abstract Background caregivers of home-cared cancer patient during palliative phase are often under psychological and physical pressure. This can lead to a low level quality of life (QoL). This study assesses the QoL of this type of caregiver, more specifically it aims to outline which factors (age, type of palliative care, amount of time spent daily with the patient) affect positively or negatively the QoL score. Methods The AC-QoL questionnaire has been completed by 25 caregivers of oncological patients in home care in north-eastern Italy. The questionnaire is made of 40 items divided into 8 subjects: support in care, choice of care, stress, economic issues, personal growth, sense of value, care skills and personal satisfaction. It has been administered during a home visit or during a follow-up phone call. Results The average score obtained is 71/120, which means a medium level of QoL. The factors which worsen the QoL are the psychological and physical stress (average score 5/15) and restrictions on caregivers' private life (average score 6/15). No significant differences in the QoL of the caregivers are related to social and personal variables (such as age, working condition, relationship with the patient, type of palliative care, amount of time spent daily with the patient). Conclusions These caregivers play a fundamental role in the management of an appropriate continuity of care and their health and QoL are important. Stress and restrictions on private life are the factors which worsen QoL, that's why nurses should evaluate the caregivers' wellbeing during home-visits. Caregivers usually feel able to offer adequate assistance if they have been adequately trained to by healthcare professionals: nurses should provide every useful tool to aloud the caregiver to feel able of and comfortable providing assistance to his/her relative trough an “empowerment process”. Key messages Caregiver of cancer patient in charge of home palliative care is fundamental for an appropriate continuity of care and his health and quality of life (QoL) are important to provide good assistance. Psycho-physical stress and restrictions on private life worsen QoL. Caregiver’s wellbeing should be assessed and useful tools should be provided by home care nurses to ease caregivers’ job.

Download Full-text

523. COVID-19 Preparedness in Hospice and Palliative Care

Open Forum Infectious Diseases ◽

10.1093/ofid/ofaa439.717 ◽

2020 ◽

Vol 7 (Supplement_1) ◽

pp. S328-S328

Author(s):

Monika Pogorzelska-Maziarz ◽

Jeannette Kates ◽

Jingjing Shang ◽

Angela M Gerolamo

Keyword(s):

Palliative Care ◽

Hospice Care ◽

Group Discussion ◽

Discussion Board ◽

Community Group ◽

Care Community ◽

Care Services ◽

Do It Yourself ◽

Hospice And Palliative Care ◽

The Impact

Abstract Background Due to the emergence of COVID-19 and resulting pandemic, there is an increased demand for palliative care and hospice care services. However, the impact of COVID-19 on the hospice and palliative agencies is unknown. Methods An electronic survey was disseminated via the Hospice & Palliative Nurses Association newsletter, posted to the Sigma Theta Tau Hospice and Palliative Care Community Group discussion board and advertised through social media from May 7–28, 2020. Summary statistics were computed. Results We collected 36 surveys representing all U.S. regions. Most respondents (78%) reported that their agency has cared for confirmed COVID-19 patients. Only half of agencies had access to laboratory facilities for surveillance and detection of the presence of outbreaks in both patients and staff (58%) and the ability to test patients and providers for COVID-19 (55%). Due to COVID-19, participants stated that the agency added new protocols regarding aerosol-generating procedures policies (58%), use of surface barriers (61%) and PPE usage (e.g. donning and doffing) in patient homes (56%). The majority (76%) reported that their agency required field clinicians to call ahead to ascertain COVID-19 exposure/symptoms before a home visit. More than half (58%) reported that their agency lacked supplies, including N95 respirators (45%), cleaning/disinfectant product (23%), alcohol based sanitizer (18%), eye protection (18%), gowns (18%), and surgical masks (14%). Overall, participants shared that field clinicians had to reuse (76%), extend (73%) or ration (30%) PPE supplies. Respondents reported that their agency accessed supplemental PPE through state/local resources (67%), private/community donations (67%), and do-it-yourself efforts (55%). One third (31%) reported that their agency was experiencing staffing shortages due to COVID-19; of these, 60% reported that shortages were due to staff infected with/quarantined due to COVID-19. Conclusion Our findings suggest that COVID-19 has presented significant challenges for palliative care and hospice agencies as they provide care to patients and families at an unprecedented rate. Disclosures All Authors: No reported disclosures

Download Full-text