scholarly journals Patients’ Main Concerns About Having a Sibling Stem Cell Donor – A Grounded Theory Study

2018 ◽  
Vol 12 (1) ◽  
pp. 46-57
Author(s):  
Annika M Kisch ◽  
Anna Forsberg
Keyword(s):  
Stem Cell ◽  
Grounded Theory ◽  
Haematopoietic Stem Cell ◽  
Main Concern ◽  
Adult Sibling ◽  
Cell Donor ◽  
Sibling Donor ◽  
Grounded Theory Method ◽  
Core Category ◽  
One Year

Background: There is limited knowledge about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) about having a sibling as donor. It is essential to understand the main concerns of stem cell recipients in order to enable nurses to provide person-centred care. Objectives: The study aim was to explore patients’ main concerns about having a sibling stem cell donor and how the patients handle them, from immediately before until one year after transplantation. Methods: Twenty-eight interviews were performed prospectively during one year with ten adult sibling stem cell recipients with a mean age of 52 years (range 19-68 years). The interviews were analyzed by the Grounded Theory method. Results: The core category Recompensation summarises the process in the generated grounded theory including the three main categories; Invest, Compensate and Celebrate. Recompensation is defined as a lasting compensation given by the recipient to the sibling donor for the loss or harm suffered or effort made. The sense of having to reward, protect, appreciate, maintain peace and work on the relationship with the sibling donor at the same time as having to accept a serious illness, cope with their situation and promote their own recovery is strenuous for the recipients. Conclusion: The main concern for stem cell recipients during their first post-transplant year is to recompensate the sibling donor by investing, compensating and celebrating her/him. Although there is a positive aspect of recompensation, it can also imply pressure and guilt.

scholarly journals The Core of Sibling Stem Cell Donation – A Grounded Theory Study

2017 ◽  
Vol 11 (1) ◽  
pp. 73-83 ◽  
Author(s):  
Annika M Kisch ◽  
Anna Forsberg
Keyword(s):  
Stem Cell ◽  
Grounded Theory ◽  
Theoretical Framework ◽  
Cell Transplant ◽  
Grounded Theory Method ◽  
Healthy Sibling ◽  
Donation Process ◽  
Before And After ◽  
Stem Cell Donation ◽  
One Year

Background: There is a lack of theoretical framework supporting stem cell transplant nurses in their assessment, judgment and caring interventions of sibling stem cell donors. Objective: The purpose of this study was to explore sibling stem cell donors’ main concerns and how they deal with them before and after donation. Method: Ten healthy sibling donors, 5 men and 5 women, with a median age of 54 years were included in this study when they were due to donate stem cells to a brother or sister. Data were collected prospectively on three occasions (before the donation and three and twelve months after it) through in-depth interviews, which were recorded and transcribed verbatim for analysis by the Grounded Theory method according to Charmaz. Results: This study describes the efforts of the ten donors to fulfil their duty as a sibling by doing what they considered necessary in order to help. Their efforts were summarised in a process wherein the grounded theory generated three main categories; Prepare, Promote and Preserve. A clear path of transition leading to fulfilment is evident, starting before the donation and continuing for one year afterwards. Conclusions: Being a sibling stem cell donor means doing what you have to do to fulfil your duty and if possible, saving the life of a seriously ill brother or sister. The relationship between the siblings is strengthened by the donation process. Sibling stem cell donation appears to be about fulfilment and the theoretical framework may support clinicians in their evaluation and support of donors.

Being a haematopoietic stem cell donor for a sick sibling: Adult donors' experiences prior to donation

2015 ◽  
Vol 19 (5) ◽  
pp. 529-535 ◽  
Author(s):  
Annika Kisch ◽  
Ingrid Bolmsjö ◽  
Stig Lenhoff ◽  
Mariette Bengtsson
Keyword(s):  
Stem Cell ◽  
Haematopoietic Stem Cell ◽  
Cell Donor

The Incorporation of a Spiritual Emergency Experience Into a Client’s Worldview: A Grounded Theory

2016 ◽  
Vol 59 (6) ◽  
pp. 877-897 ◽  
Author(s):  
Hana Sedláková ◽  
Tomáš Řiháček
Keyword(s):  
Grounded Theory ◽  
Psychotic Experiences ◽  
Spiritual Emergency ◽  
Grounded Theory Method ◽  
States Of Consciousness ◽  
Theoretical Approaches ◽  
Core Category ◽  
Previous State ◽  
New Perspective ◽  
Depth Interviews

This study is focused on the process of constructing the meaning of a spiritual emergency experience. In the context of this study, spiritual emergency is understood as an experience of psychotic nature, defined by criteria such as good preepisode functioning, nonordinary states of consciousness, awareness of the intrapsychic nature of the process, or preserved ability to cooperate. In-depth interviews with 13 participants who experienced an episode of spiritual emergency were analyzed using the grounded theory method. The analysis yielded a core category titled “The incorporation of a spiritual emergency experience into a client’s worldview.” The process of incorporation was conceptualized by two complementary paths: (a) a Suppressive path characterized by an effort to mitigate or eliminate symptoms, considering them as a personally meaningless pathology, and return to a previous state of functioning and (b) a Facilitative path characterized by an acceptance of symptoms, a search for their meaning, and eventually, the adoption of a new perspective. The results are discussed in relation to different theoretical approaches to psychotic experiences.

scholarly journals Haematopoietic stem cell donor registries: World Marrow Donor Association recommendations for evaluation of donor health

2008 ◽  
Vol 42 (1) ◽  
pp. 9-14 ◽  
Author(s):  
N Sacchi ◽  
◽  
P Costeas ◽  
L Hartwell ◽  
C K Hurley ◽  
...  
Keyword(s):  
Stem Cell ◽  
Haematopoietic Stem Cell ◽  
Cell Donor

Sequence of a novel HLA-A2 allele in a haematopoietic stem cell donor of the international registry

2009 ◽  
Vol 74 (3) ◽  
pp. 248-249 ◽  
Author(s):  
B. Kervaire ◽  
A. H. Schmidt ◽  
J. Villard ◽  
J.-M. Tiercy
Keyword(s):  
Stem Cell ◽  
Haematopoietic Stem Cell ◽  
Cell Donor ◽  
International Registry

Equity in nursing care: A grounded theory study

2017 ◽  
Vol 26 (2) ◽  
pp. 598-610 ◽  
Author(s):  
Zahra Rooddehghan ◽  
Zohreh ParsaYekta ◽  
Alireza N Nasrabadi
Keyword(s):  
Grounded Theory ◽  
Health System ◽  
Nursing Care ◽  
Sample Selection ◽  
Main Concern ◽  
Mutual Relationship ◽  
Individual Interviews ◽  
The Core ◽  
Core Category ◽  
Nurses Perceptions

Background: Equity in providing care is also a major value in the nursing profession. Equitable care aims to provide the entire population with safe, efficient, reliable, and quality nursing services at all levels of health. Objectives: This study was conducted to explain the process of the realization of equity in nursing care. Research design: This qualitative study uses Glaser’s approach to grounded theory. Participants and research context: Sample selection began with convenience sampling and continued with purposive sampling. A total of 27 people were ultimately selected as the study subjects. Data were mainly collected through unstructured in-depth individual interviews plus observation and field notes. The data were then analyzed using the “Six C’s” coding family of Glaser. Ethical considerations: The study protocol was approved by the Tehran University of Medical Sciences (91D1302870). Written informed consent was also obtained from all subjects. Findings: According to the findings, participants’ main concern in providing equitable care is the rationing of nursing care. The identification of participants’ main concern led to the emergence of the core category of the study, that is, “nurses’ domination.” The other categories revolving around the core category were conceptualized according to the six C’s coding family: “nurses being dominated,” “nurses’ ineffective power in the health system,” “low attention to equitable care in health system,” “lack of clarity in measuring equitable care,” “the health structure’s inconsistency with equity,” and “the inefficiency of the care system.” Conclusion: There is a mutual relationship between providing fair care and nurses’ perceptions of equity. Nurses who have themselves experienced equity can provide their patients the experience of equity. This mutual relationship is actualized in a context in which fair care is clearly defined and demanded.

Adenovirus infection in adult haematopoietic stem cell transplants: a one-year experience

2007 ◽  
Vol 55 (3) ◽  
pp. e39
Author(s):  
V. Sivaprakasam ◽  
B. Cornall ◽  
V. Lynch ◽  
W.F. Carman ◽  
A. Parker
Keyword(s):  
Stem Cell ◽  
Haematopoietic Stem Cell ◽  
Adenovirus Infection ◽  
Cell Transplants ◽  
Stem Cell Transplants ◽  
One Year
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