scholarly journals Web-Based Peer Support Interventions for Adults Living With Chronic Conditions: Scoping Review

10.2196/14321 ◽  
2021 ◽  
Vol 8 (2) ◽  
pp. e14321
Author(s):  
Saima N Hossain ◽  
Susan B Jaglal ◽  
John Shepherd ◽  
Laure Perrier ◽  
Jennifer R Tomasone ◽  
...  
Keyword(s):  
Peer Support ◽  
Social Participation ◽  
Scoping Review ◽  
Chronic Conditions ◽  
Chronic Condition ◽  
Support Programs ◽  
Web Based ◽  
Randomized Controlled ◽  
Appraisal Support ◽  
Key Characteristics

Background Globally, 1 in 3 adults live with multiple chronic conditions. Thus, effective interventions are needed to prevent and manage these chronic conditions and to reduce the associated health care costs. Teaching effective self-management practices to people with chronic diseases is one strategy to address the burden of chronic conditions. With the increasing availability of and access to the internet, the implementation of web-based peer support programs has become increasingly common. Objective The purpose of this scoping review is to synthesize existing literature and key characteristics of web-based peer support programs for persons with chronic conditions. Methods This scoping review follows the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) extension for scoping reviews guidelines. Studies were identified by searching MEDLINE, CINAHL, Embase, PsycINFO, and the Physiotherapy Evidence Database. Chronic diseases identified by the Public Health Agency of Canada were included. Our review was limited to peer support interventions delivered on the web. Peers providing support had to have the chronic condition that they were providing support for. The information abstracted included the year of publication, country of study, purpose of the study, participant population, key characteristics of the intervention, outcome measures, and results. Results After duplicates were removed, 12,641 articles were screened. Data abstraction was completed for 41 articles. There was a lack of participant diversity in the included studies, specifically with respect to the conditions studied. There was a lack of studies with older participants aged ≥70 years. There was inconsistency in how the interventions were described in terms of the duration and frequency of the interventions. Informational, emotional, and appraisal support were implemented in the studied interventions. Few studies used a randomized controlled trial design. A total of 4 of the 6 randomized controlled trials reported positive and significant results, including decreased emotional distress and increased health service navigation, self-efficacy, social participation, and constructive attitudes and approaches. Among the qualitative studies included in this review, there were several positive experiences related to participating in a web-based peer support intervention, including increased compassion and improved attitudes toward the individual’s chronic condition, access to information, and empowerment. Conclusions There is limited recent, high-level evidence on web-based peer support interventions. Where evidence exists, significant improvements in social participation, self-efficacy, and health-directed activity were demonstrated. Some studies incorporated a theoretical framework, and all forms of peer support—emotional, informational, and appraisal support—were identified in the studies included in this review. We recommend further research on web-based peer support in more diverse patient groups (eg, for older adults and chronic conditions outside of cancer, cardiovascular disease, and HIV or AIDS). Key gaps in the area of web-based peer support will serve to inform the development and implementation of future programs.

scholarly journals Web-Based Peer Support Interventions for Adults Living With Chronic Conditions: Scoping Review (Preprint)

2019 ◽  
Author(s):  
Saima N Hossain ◽  
Susan B Jaglal ◽  
John Shepherd ◽  
Laure Perrier ◽  
Jennifer R Tomasone ◽  
...  
Keyword(s):  
Peer Support ◽  
Social Participation ◽  
Scoping Review ◽  
Chronic Conditions ◽  
Chronic Condition ◽  
Support Programs ◽  
Web Based ◽  
Randomized Controlled ◽  
Appraisal Support ◽  
Key Characteristics

BACKGROUND Globally, 1 in 3 adults live with multiple chronic conditions. Thus, effective interventions are needed to prevent and manage these chronic conditions and to reduce the associated health care costs. Teaching effective self-management practices to people with chronic diseases is one strategy to address the burden of chronic conditions. With the increasing availability of and access to the internet, the implementation of web-based peer support programs has become increasingly common. OBJECTIVE The purpose of this scoping review is to synthesize existing literature and key characteristics of web-based peer support programs for persons with chronic conditions. METHODS This scoping review follows the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) extension for scoping reviews guidelines. Studies were identified by searching MEDLINE, CINAHL, Embase, PsycINFO, and the Physiotherapy Evidence Database. Chronic diseases identified by the Public Health Agency of Canada were included. Our review was limited to peer support interventions delivered on the web. Peers providing support had to have the chronic condition that they were providing support for. The information abstracted included the year of publication, country of study, purpose of the study, participant population, key characteristics of the intervention, outcome measures, and results. RESULTS After duplicates were removed, 12,641 articles were screened. Data abstraction was completed for 41 articles. There was a lack of participant diversity in the included studies, specifically with respect to the conditions studied. There was a lack of studies with older participants aged ≥70 years. There was inconsistency in how the interventions were described in terms of the duration and frequency of the interventions. Informational, emotional, and appraisal support were implemented in the studied interventions. Few studies used a randomized controlled trial design. A total of 4 of the 6 randomized controlled trials reported positive and significant results, including decreased emotional distress and increased health service navigation, self-efficacy, social participation, and constructive attitudes and approaches. Among the qualitative studies included in this review, there were several positive experiences related to participating in a web-based peer support intervention, including increased compassion and improved attitudes toward the individual’s chronic condition, access to information, and empowerment. CONCLUSIONS There is limited recent, high-level evidence on web-based peer support interventions. Where evidence exists, significant improvements in social participation, self-efficacy, and health-directed activity were demonstrated. Some studies incorporated a theoretical framework, and all forms of peer support—emotional, informational, and appraisal support—were identified in the studies included in this review. We recommend further research on web-based peer support in more diverse patient groups (eg, for older adults and chronic conditions outside of cancer, cardiovascular disease, and HIV or AIDS). Key gaps in the area of web-based peer support will serve to inform the development and implementation of future programs. CLINICALTRIAL

scholarly journals Online peer support interventions for chronic conditions: a scoping review protocol

BMJ Open ◽  
2017 ◽  
Vol 7 (9) ◽  
pp. e017999 ◽  
Author(s):  
Sarah Elizabeth Patricia Munce ◽  
John Shepherd ◽  
Laure Perrier ◽  
Sonya Allin ◽  
Shane N Sweet ◽  
...  
Keyword(s):  
Peer Support ◽  
Scoping Review ◽  
Chronic Conditions ◽  
English Language ◽  
Research Question ◽  
Health Agency ◽  
Cost Effective ◽  
Language Studies ◽  
Key Characteristics ◽  
Study Characteristics

IntroductionPeer support is receiving increasing attention as both an effective and cost-effective intervention method to support the self-management of chronic health conditions. Given that an increasing proportion of Canadians have internet access and the increasing implementation of web-based interventions, online peer support interventions are a promising option to address the burden of chronic diseases. Thus, the specific research question of this scoping review is the following:What is known from the existing literature about the key characteristics of online peer support interventions for adults with chronic conditions?Methods and analysisWe will use the methodological frameworks used by Arksey and O’Malley as well as Levac and colleagues for the current scoping review. To be eligible for inclusion, studies must report on adults (≥18 years of age) with one of the Public Health Agency of Canada chronic conditions or HIV/AIDS. We will limit our review to peer support interventions delivered through online formats. All study designs will be included. Only studies published from 2012 onwards will be included to ensure relevance to the current healthcare context and feasibility. Furthermore, only English language studies will be included. Studies will be identified by searching a variety of databases. Two reviewers will independently screen the titles and abstracts identified by the literature search for inclusion (ie, level 1 screening), the full text articles (ie, level 2 screening) and then perform data abstraction. Abstracted data will include study characteristics, participant population, key characteristics of the intervention and outcomes collected.DisseminationThis review will identify the key features of online peer support interventions and could assist in the future development of other online peer support programmes so that effective and sustainable programmes can be developed.

scholarly journals The Use of Web-Based Support Groups Versus Usual Quit-Smoking Care for Men and Women Aged 21-59 Years: Protocol for a Randomized Controlled Trial (Preprint)

2019 ◽  
Author(s):  
Cornelia Ann Pechmann ◽  
Douglas Calder ◽  
Connor Phillips ◽  
Kevin Delucchi ◽  
Judith J Prochaska
Keyword(s):  
Randomized Controlled Trial ◽  
Peer Support ◽  
Support Groups ◽  
Support Group ◽  
Controlled Trial ◽  
Web Based ◽  
Randomized Controlled ◽  
Quit Smoking ◽  
Quitting Smoking

BACKGROUND Existing smoking cessation treatments are challenged by low engagement and high relapse rates, suggesting the need for more innovative, accessible, and interactive treatment strategies. Twitter is a Web-based platform that allows people to communicate with each other throughout the day using their phone. OBJECTIVE This study aims to leverage the social media platform of Twitter for fostering peer-to-peer support to decrease relapse with quitting smoking. Furthermore, the study will compare the effects of coed versus women-only groups on women’s success with quitting smoking. METHODS The study design is a Web-based, three-arm randomized controlled trial with two treatment arms (a coed or women-only Twitter support group) and a control arm. Participants are recruited online and are randomized to one of the conditions. All participants will receive 8 weeks of combination nicotine replacement therapy (patches plus their choice of gum or lozenges), serial emails with links to Smokefree.gov quit guides, and instructions to record their quit date online (and to quit smoking on that date) on a date falling within a week of initiation of the study. Participants randomized to a treatment arm are placed in a fully automated Twitter support group (coed or women-only), paired with a buddy (matched on age, gender, location, and education), and encouraged to communicate with the group and buddy via daily tweeted discussion topics and daily automated feedback texts (a positive tweet if they tweet and an encouraging tweet if they miss tweeting). Recruited online from across the continental United States, the sample consists of 215 male and 745 female current cigarette smokers wanting to quit, aged between 21 and 59 years. Self-assessed follow-up surveys are completed online at 1, 3, and 6 months after the date they selected to quit smoking, with salivary cotinine validation at 3 and 6 months. The primary outcome is sustained biochemically confirmed abstinence at the 6-month follow-up. RESULTS From November 2016 to September 2018, 960 participants in 36 groups were recruited for the randomized controlled trial, in addition to 20 participants in an initial pilot group. Data analysis will commence soon for the randomized controlled trial based on data from 896 of the 960 participants (93.3%), with 56 participants lost to follow-up and 8 dropouts. CONCLUSIONS This study combines the mobile platform of Twitter with a support group for quitting smoking. Findings will inform the efficacy of virtual peer-to-peer support groups for quitting smoking and potentially elucidate gender differences in quit rates found in prior research. CLINICALTRIAL ClinicalTrials.gov NCT02823028; https://clinicaltrials.gov/ct2/show/NCT02823028

scholarly journals Use of a Mobile Peer Support App Among Young People With Nonsuicidal Self-injury: Small-scale Randomized Controlled Trial

10.2196/26526 ◽  
2022 ◽  
Vol 6 (1) ◽  
pp. e26526
Author(s):  
Kaylee Payne Kruzan ◽  
Janis Whitlock ◽  
Natalya N Bazarova ◽  
Aparajita Bhandari ◽  
Julia Chapman
Keyword(s):  
Peer Support ◽  
Help Seeking ◽  
Readiness To Change ◽  
Controlled Trial ◽  
Informal Support ◽  
Small Scale ◽  
Professional Help ◽  
Web Based ◽  
Randomized Controlled ◽  
Self Injury

Background Nonsuicidal self-injury (NSSI) is a widespread behavior among adolescents and young adults. Although many individuals who self-injure do not seek treatment, there is evidence for web-based help-seeking through web-based communities and mobile peer support networks. However, few studies have rigorously tested the efficacy of such platforms on outcomes relevant for NSSI recovery. Objective The aim of this small-scale preregistered randomized controlled trial is to provide preliminary insight into the shorter- and longer-term efficacy of the use of a peer support app, TalkLife, in reducing NSSI frequency and urges and increasing readiness to change. In addition, we explore contact with informal support, interest in therapy, and attitudes toward professional help–seeking. Methods Individuals aged 16-25 years with current (within 3 months) and chronic (>6 episodes in the past year) NSSI history were eligible to participate in this study. After baseline assessments, the intervention group was instructed to use the app actively (eg, post or comment at least three times per week) and the control group received weekly psychoeducational materials through email, for 8 weeks. Follow-up was assessed at 1 month and 2 months. Linear mixed modeling was used to evaluate condition and time point effects for the primary outcomes of NSSI frequency and urges, readiness to change, contact with informal support, interest in therapy, and attitudes toward professional help–seeking. Results A total of 131 participants were included in the analysis. We evidenced a significant effect of condition on NSSI frequency such that the participants using the peer support app self-injured less over the course of the study (mean 1.30, SE 0.18) than those in the control condition (mean 1.62, SE 0.18; P=.02; η2=0.02). We also evidenced a significant condition effect of readiness to change such that the treatment participants reported greater confidence in their ability to change their NSSI behavior (mean 6.28, SE 0.41) than the control participants (mean 5.67, SE 0.41; P=.04; η2=0.02). No significant differences were observed for contact with informal support, interest in therapy, or attitudes toward professional help–seeking. Conclusions Use of the peer support app was related to reduced NSSI frequency and greater confidence in one’s ability to change NSSI behavior over the course of the study period, but no effects on NSSI urges, contact with informal support, interest in therapy, or attitudes toward professional help–seeking were observed. The findings provide preliminary support for considering the use of mobile peer support apps as a supplement to NSSI intervention and point to the need for larger-scale trials. Trial Registration Open Science Foundation; https://osf.io/3uay9

P202 Are Chinese immigrants with CVD ready to use web-based health information: a comparative study in Australia

2020 ◽  
Vol 41 (Supplement_1) ◽  
Author(s):  
L Zhang ◽  
D Ding ◽  
R Gallagher
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Chronic Conditions ◽  
Chronic Condition ◽  
English Proficiency ◽  
Lifestyle Modification ◽  
Health Resources ◽  
Chinese Immigrants ◽  
Web Based ◽  
Healthy Group

Abstract Background Immigrant populations often have poor access to cardiovascular disease (CVD) secondary prevention due to linguistic and cultural barriers. Web-based interventions are effective in risk reduction and lifestyle modification and may reach those hard-to-reach populations such as Chinese immigrants. However, less is known about the current use of web-based health information and confidence in use. Purposes We compared the use of web-based health information and confidence in use between Chinese immigrants with CVD to those with and without another chronic condition; and explored the factors associated with the confidence in utilization. Methods Chinese immigrants with CVD, musculoskeletal conditions, or no chronic condition were recruited from Chinese communities across New South Wales, Australia. E-health literacy scale was used to explore the perceptions of web-based health information and confidence in use. Demographic, clinical data and use of web-based health information were collected and health literacy was measured using a validated single screening question. Results Participants (n = 90 CVD, n = 87 musculoskeletal, n = 154 no chronic conditions) were aged mean 59 ± 16 years, mostly female (69%), 75% reported fair to poor English proficiency, and 51% had completed university. The most accessed web-based health information concerned lifestyle (60%), health resources (45%), diseases (35%), and medications (30%). More than half (54%) were confident in using web-based health information. Participants with CVD were the oldest (71 vs 65 vs 49 years, p<.001) and participants with any chronic condition had less education (p<.001) and English proficiency (p<.001) than the healthy group. Approximately half of the participants with CVD perceived web-based health information as useful (48%) and important (46%), and the most accessed information concerned lifestyle and medication (56% and 32%). Participants with CVD accessed medication information more often than musculoskeletal group (32% vs 23%), but there was no difference in accessing other information. Both chronic groups showed no difference in accessing web-based medication and lifestyle information compared with the healthy group. Confidence in using web-based health information was similar for CVD and musculoskeletal groups and lower than the healthy group (p<.001). Participants with the least confidence to use web-based health information were older (p=.016), female (p=.014), had less than university level education (p<.001), and lower health literacy (p=.001) after adjusting for age, gender, education, English proficiency, employment status, social support, health literacy, and number of chronic conditions. Conclusions There is a strong potential to provide web-based medication and lifestyle information for Chinese immigrants with CVD if support is provided to improve confidence in this technology for older, women, and those with less education and/or health literacy.

The Key Characteristics and Role of Peer Support in the Aftermath of Victimization: A Scoping Review

2021 ◽  
pp. 152483802110438
Author(s):  
Pien van de Ven ◽  
Sonja Leferink ◽  
Antony Pemberton
Keyword(s):  
Peer Support ◽  
Scoping Review ◽  
Traffic Accidents ◽  
Empirical Studies ◽  
Well Being ◽  
Future Research ◽  
Search Terms ◽  
Key Characteristics ◽  
Victimization Experience

Topic: Currently, research into the key elements and role of peer support in the aftermath of victimization is limited. This study reviews the types of evidence available, clarifying key concepts in the literature, examining how research is conducted and identifying key characteristics or factors related to peer support in the aftermath of a victimization experience. Method: A scoping review was performed for peer-reviewed papers using predefined search terms. Studies addressing peer support among victims and survivors of crime, traffic accidents, calamities, suicide, and veterans were included. Selection was based on title and abstract and resulted in 16 papers eligible for review. An inductive thematic analysis was used to synthesize data and findings. Findings: Empirical studies into the key elements and role of peer support in the aftermath of victimization are limited in availability and scattered in terms of approach to research (e.g., methodology, type of respondents, type of peer support) and focus (such as focus on effects on mental health and well-being, on key elements or an evaluation of a support program). Studies mainly have an explorative and interpretative character. Key elements, operationalizations, positive outcomes and negative outcomes of peer support are discussed. Conclusion and discussion: The currently available knowledge on peer support in the aftermath of victimization lacks four points: cross-cultural studies, lived experiences as empirical findings, a variety of victimization events and longitudinal studies. Moreover, it is argued that future research should be improved by adopting a contextual and narrative approach.

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