scholarly journals Enhancing Survivorship Care Planning for Patients With Localized Prostate Cancer Using a Couple-Focused mHealth Symptom Self-Management Program: Protocol for a Feasibility Study

2017 ◽  
Author(s):  
Lixin Song ◽  
Kaitlyn L Dunlap ◽  
Xianming Tan ◽  
Ronald C Chen ◽  
Matthew E Nielsen ◽  
...  
2017 ◽  
Author(s):  
Lixin Song ◽  
Kaitlyn L Dunlap ◽  
Xianming Tan ◽  
Ronald C Chen ◽  
Matthew E Nielsen ◽  
...  

BACKGROUND This project explores a new model of care that enhances survivorship care planning and promotes health for men with localized prostate cancer transitioning to posttreatment self-management. Survivorship care planning is important for patients with prostate cancer because of its high incidence rate in the United States, the frequent occurrence of treatment-related side effects, and reduced quality of life (QOL) for both men and their partners. A key component of comprehensive survivorship care planning is survivorship care plans (SCPs), documents that summarize cancer diagnosis, treatment, and plans for follow-up care. However, research concerning the effectiveness of SCPs on patient outcomes or health service use has thus far been inconclusive. SCPs that are tailored to individual patients’ needs for information and care may improve effectiveness. OBJECTIVE This study aims to examine the feasibility of an enhanced survivorship care plan (ESCP) that integrates a symptom self-management mHealth program called Prostate Cancer Education and Resources for Couples (PERC) into the existing standardized SCP. The specific aims are to (1) examine the feasibility of delivering ESCPs and (2) to estimate the magnitude of benefit of ESCPs. METHODS We will use a two-group randomized controlled pretest-posttest design and collect data at baseline (T1) and 4 months later (T2) among 50 patients completing initial treatment for localized prostate cancer and their partners. First, we will assess the feasibility of ESCP by recruitment, enrollment, and retention rates; program satisfaction with the ESCP; and perceived ease of use of the ESCP. To achieve the secondary aim, we will compare the ESCP users with the standardized SCP users and assess their primary outcomes of QOL (overall, physical, emotional, and social QOL); secondary outcomes (reduction in negative appraisals and improvement in self-efficacy, social support, and health behaviors to manage symptoms); and number of visits to posttreatment care services between T1 and T2. We will assess the primary and secondary outcomes using measurements with sound psychometrical properties. We will use a qualitative and quantitative mixed methods approach to achieve the research aims. RESULTS This project is ongoing and will be completed by the end of 2018. CONCLUSIONS The results from this study will help design a definitive randomized trial to test the efficacy of the ESCPs, a potentially scalable program, to enhance supportive care for prostate cancer patients and their families.


2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 8-8
Author(s):  
Elizabeth Ann Kvale ◽  
Chao-Hui Huang ◽  
Sejong Bae ◽  
Wendy Demark-Wahnefried ◽  
Karen Meneses ◽  
...  

8 Background: Appropriate targeting of survivorship care planning interventions to patient need is essential, but little evidence exists to support systematic triaging according to survivor needs. We demonstrated the positive impact of a self-management focused survivorship care planning (SCP) intervention on patient outcomes including wellbeing and depressive symptomology; herein we report how patient characteristics predict response to that intervention. Methods: Newly-diagnosed breast cancer survivors (Stage 0-IIIB) were randomized to receive the patient owned survivorship care planning intervention (n = 40) or usual care (n = 39). The intervention arm demonstrated improvements from baseline to 3-month follow-up in self-reported health and depressive symptom burden as measured with SF-36 Health Survey and Personal Health Questionnaire Depression Scale. We examined patient characteristics associated with response to the intervention. Results: Baseline characteristics including younger age, lower perceived finance adequacy, higher medical comorbidity, burden of depression, as well as anxious/preoccupation coping were significantly associated with greater self-reported health change (p < 0.05). Additionally, higher levels of cancer symptom severity, fatigue, lower social functioning and mental health status at baseline were significantly correlated with greater reductions in depressive symptoms (p < 0.05). Race, education, health literacy level, and cancer stage were not associated with improved outcomes. Conclusions: While SCP is an important step to improving care for cancer survivors, it is likely that some cancer survivors may need a robust intervention to support self-management of survivorship issues. Our preliminary findings suggest that younger patients with higher perceived financial, emotional, and cancer symptom burden may benefit from a focused SCP intervention to a greater extent than patients without these characteristics. A larger scale pragmatic study is needed to further confirm the associations, investigate the mechanism of effective interventions, and develop pragmatic strategies that target survivors who need robust SCP support.


2021 ◽  
Vol 10 (4) ◽  
pp. 872
Author(s):  
Megan M. Hosey ◽  
Stephen T. Wegener ◽  
Caroline Hinkle ◽  
Dale M. Needham

Background: The number of people surviving critical illness is rising rapidly around the globe. Survivorship comes at a cost, with approximately half of patients with acute respiratory failure (ARF) experiencing clinically significant symptoms of anxiety, and 32–40% of survivors having substantial anxiety symptoms in the months or years after hospitalization. Methods: This feasibility study reports on 11 consecutive ARF patients receiving up to six sessions of a psychological intervention for self-management of anxiety. Results: All 11 patients accepted and received the psychological intervention. Four patients did not fully complete all 6 sessions due to death (n = 1, 2 sessions completed), and early hospital discharge (n = 3, patients completed 2, 3 and 5 sessions). The median (IQR) score (range: 0–100; minimal clinically important difference: 13) for the Visual Analog Scale-Anxiety (VAS-A) pre-intervention was 70 (57, 75) points. During the intervention, all 11 patients had a decrease in VAS-A, with a median (IQR) decrease of 44 (19, 48) points. Conclusions: This self-management intervention appears acceptable and feasible to implement among ARF patients during and after an ICU stay.


2021 ◽  
Vol 42 (5) ◽  
pp. 1198-1203
Author(s):  
Zenong Yin ◽  
Shiyu Li ◽  
Catherine Ortega ◽  
Raudel Bobadilla ◽  
Paula L. Winkler ◽  
...  

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