scholarly journals Caregiver Input to Optimize the Design of a Pediatric Care Planning Guide for Rehabilitation: Descriptive Study (Preprint)

2017 ◽  
Author(s):  
Mary A Khetani ◽  
Heather K Lim ◽  
Marya E Corden
Keyword(s):  
Descriptive Study ◽  
Care Plan ◽  
Pediatric Care ◽  
Care Planning ◽  
Completion Rates ◽  
Web Based ◽  
Initial Care ◽  
Children’S Participation ◽  
Planning Guide ◽  
Children's Participation

BACKGROUND Participation and Environment Measure Plus (PEM+) is a guide that is compatible with the YC-PEM and may expedite care plan development and strengthen a patient’s engagement in discussions and decisions about their values, needs, and desires that shape meaningful care (ie, patient-centered care). OBJECTIVE The objective of this study was to examine the feasibility of a stepwise process for building on a baseline assessment of young children's participation in activities to develop a care plan relevant to pediatric rehabilitation. METHODS A cross-sectional descriptive study design was employed using qualitative methods. Data were collected via Web-based technology and by telephone. Twenty-five caregivers of young children (9 with developmental delays, 16 without delays) and between 1 and 7 years were recruited from a subsample of parents who had previously enrolled in a Web-based validation of a PRO on children’s participation and provided consent for future contact. Each caregiver completed a demographic questionnaire and Young Children’s Participation and Environment Measure (YC-PEM) online, followed by a 20- to 60-min semistructured and audiotaped phone interview to review and build upon PRO results as summarized in an electronic report. Interview data were content coded to the interview guide and reviewed by multiple research staff to estimate feasibility according to stepwise completion rates, perceptions of difficulty in step completion, and perceptions of overall utility. RESULTS Half of the participants in the final study sample (N=25) fully completed a stepwise process of building on their baseline PRO assessment to develop an initial care plan for their child. In most cases, similar stepwise completion rates and trends in the approaches taken for step completion were found regardless of the child’s disability status. However, more parents of children with disabilities reported difficulties in rank ordering their priorities for change and identified child-focused strategies for goal attainment. Nearly 77% (19/25) of users were willing to use the process to develop and communicate intervention priorities and strategies with professionals, family, and friends. CONCLUSIONS Results informed revisions to the care planning guide before usability and feasibility testing of an initial Web-based prototype that is now underway.

scholarly journals Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care

10.2196/14271 ◽  
2019 ◽  
Vol 21 (11) ◽  
pp. e14271 ◽  
Author(s):  
Petra Svedberg ◽  
Susann Arvidsson ◽  
Ingrid Larsson ◽  
Ing-Marie Carlsson ◽  
Jens M Nygren
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Pediatric Care ◽  
Successful Implementation ◽  
Communication Tool ◽  
Pediatric Health Care ◽  
Children’S Participation ◽  
Ehealth Services ◽  
Children's Participation ◽  
Insight Into

Background Children’s participation in health care is one of the most important components in the management of their disease. Electronic health (eHealth) services that are adapted to the needs of children have the potential for restructuring how children and professionals work together. Therefore, a digital interactive assessment and communication tool, Sisom, was developed to give children aged between 6 and 12 years a voice in their own health care. However, the implementation of eHealth services such as Sisom in daily practice in pediatric health care is rarely investigated. Objective The aim of this study was to explore the process of implementing Sisom for children in pediatric care in Sweden. More specifically, the study aimed to (1) evaluate whether the implementation strategy was conducted as planned, (2) understand the barriers and facilitators of the implementation strategy in pediatric care settings, (3) gain insight into how professionals work with the specific intervention, and (4) gain insight into the usefulness and effects of the intervention from the professionals’ perspectives. Methods A process evaluation design was used to study the implementation of Sisom at 4 pediatric care centers in Sweden. An extensive amount of qualitative and quantitative data was collected before, during, and after the intervention through self-report checklists, memos, and interviews with professionals. In total, 46 children, aged between 6 and 13 years, participated. The children used Sisom on two occasions during 6 months. When they used Sisom, a printed report formed the basis for a forthcoming dialogue between professionals, children, and their parents. Results To our knowledge, this is the first implementation study of an eHealth communication tool aimed at strengthening children’s participation in pediatric health care. Key factors for successful implementation were alignment of the solution with the values and goals of the organization, health care professionals’ beliefs in the usefulness and usability of the solution, and health care professionals’ willingness to change their professional roles guided by the solution. Conclusions The results from the study show that it is possible to restructure health care delivery toward a child-centered approach, if there is a willingness and preparedness in the organization to implement an eHealth solution with the aim of restructuring the way of working with children’s participation.

scholarly journals Adjusting and doing the same: school nurses’ descriptions of promoting participation in health visits with children of foreign origin

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Emmie Wahlström ◽  
Marie Golsäter ◽  
Mats Granlund ◽  
Inger K. Holmström ◽  
Peter Larm ◽  
...  
Keyword(s):  
School Health ◽  
School Nurses ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Web Based ◽  
Foreign Origin ◽  
Child Centered ◽  
Centered Care ◽  
Children’S Participation ◽  
Children's Participation

Abstract Background School nurses in the school health services are assigned to promote health and participation among children when conducting health visits. Still, for children of foreign origin this promotion of participation might be hampered by challenges related to cultural diversity and language barriers. Therefore, knowledge needs to be developed regarding how these children’s participation can be promoted, to support them in sharing and describing matters important for their health. The aim was to investigate school nurses’ descriptions of promoting participation for children of foreign origin in health visits. Methods A content analysis of 673 Swedish school nurses’ answers to eight open-ended questions regarding promotion of participation for children of foreign origin was conducted. The open-ended questions were part of a larger web-based cross-sectional survey distributed to school nurses in Sweden. Results The results show that school nurses use three main approaches during the health visit: adjusting according to the child’s proficiency in Swedish and/or cultural or national background, adjusting according to the child’s individual needs, and doing the same for all children regardless of their origin. Yet, adjustments according to the child’s proficiency in Swedish and/or cultural or national background were the most common. Conclusions By combining the approaches of adjusting, a child-centered care that contributes to children’s participation in health visits and equity in health could be provided.

Scaffolding Children's Participation in Schools' Environmental Health

2020 ◽  
pp. 265-283
Author(s):  
Maria João Silva ◽  
Eduarda Ferreira ◽  
Alexandra Souza ◽  
Ana Rita Alves ◽  
Susana Batista
Keyword(s):  
Air Pollution ◽  
Environmental Health ◽  
Health Problems ◽  
Environmental Data ◽  
Web Based ◽  
Epistemic Practices ◽  
Audio Recordings ◽  
Children’S Participation ◽  
Environmental Health Problem ◽  
Children's Participation

The goal of the research reported in this chapter is to explore if children can participate in schools' environmental health, while being supported by teacher mediation and eco-sensors. Eco-sensors should be used as epistemic mediators to support children in acquiring and interpreting environmental data to suggest solutions to schools' environmental health problems. Teacher mediation can scaffold children's epistemic practices to promote children's participation in scientific inquiries, centered on environmental health problem solving. A web-based platform is used as a database and to share, in multiple representations, the data acquired and organized by children. This research includes two case studies on two environmental health problems: sound pollution and air pollution. The identification of children's epistemic practices and of teacher mediation is made using audio recordings, and pre- and post-tests are used to assess other learning results. The results showed that digital sensors and teacher mediation scaffolded children's participation in environmental health.

scholarly journals Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care (Preprint)

2019 ◽  
Author(s):  
Petra Svedberg ◽  
Susann Arvidsson ◽  
Ingrid Larsson ◽  
Ing-Marie Carlsson ◽  
Jens M Nygren
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Pediatric Care ◽  
Successful Implementation ◽  
Communication Tool ◽  
Pediatric Health Care ◽  
Children’S Participation ◽  
Ehealth Services ◽  
Children's Participation ◽  
Insight Into

BACKGROUND Children’s participation in health care is one of the most important components in the management of their disease. Electronic health (eHealth) services that are adapted to the needs of children have the potential for restructuring how children and professionals work together. Therefore, a digital interactive assessment and communication tool, Sisom, was developed to give children aged between 6 and 12 years a voice in their own health care. However, the implementation of eHealth services such as Sisom in daily practice in pediatric health care is rarely investigated. OBJECTIVE The aim of this study was to explore the process of implementing Sisom for children in pediatric care in Sweden. More specifically, the study aimed to (1) evaluate whether the implementation strategy was conducted as planned, (2) understand the barriers and facilitators of the implementation strategy in pediatric care settings, (3) gain insight into how professionals work with the specific intervention, and (4) gain insight into the usefulness and effects of the intervention from the professionals’ perspectives. METHODS A process evaluation design was used to study the implementation of Sisom at 4 pediatric care centers in Sweden. An extensive amount of qualitative and quantitative data was collected before, during, and after the intervention through self-report checklists, memos, and interviews with professionals. In total, 46 children, aged between 6 and 13 years, participated. The children used Sisom on two occasions during 6 months. When they used Sisom, a printed report formed the basis for a forthcoming dialogue between professionals, children, and their parents. RESULTS To our knowledge, this is the first implementation study of an eHealth communication tool aimed at strengthening children’s participation in pediatric health care. Key factors for successful implementation were alignment of the solution with the values and goals of the organization, health care professionals’ beliefs in the usefulness and usability of the solution, and health care professionals’ willingness to change their professional roles guided by the solution. CONCLUSIONS The results from the study show that it is possible to restructure health care delivery toward a child-centered approach, if there is a willingness and preparedness in the organization to implement an eHealth solution with the aim of restructuring the way of working with children’s participation.

Sign in / Sign up

Export Citation Format

Share Document