scholarly journals Mobile App Delivery of the EORTC QLQ-C30 Questionnaire to Assess Health-Related Quality of Life in Oncological Patients: Usability Study (Preprint)

2017 ◽  
Author(s):  
Kerstin A Kessel ◽  
Marco M E Vogel ◽  
Anna Alles ◽  
Sophie Dobiasch ◽  
Hanna Fischer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mobile Apps ◽  
Usability Study ◽  
Health Related Quality ◽  
Hrqol Questionnaire ◽  
Oncological Patients ◽  
Related Quality ◽  
Health Related ◽  
Hrqol Assessment

BACKGROUND Mobile apps are evolving in the medical field. However, ongoing discussions have questioned whether such apps are really valuable and whether patients will accept their use in day-to-day clinical life. Therefore, we initiated a usability study in our department. OBJECTIVE We present our results of the first app prototype and patient testing of health-related quality of life (HRQoL) assessment in oncological patients. METHODS We developed an app prototype for the iOS operating system within eight months in three phases: conception, initial development, and pilot testing. For the HRQoL assessment, we chose to implement only the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire-Core 30 (QLQ-C30; German version 3). Usability testing was conducted for three months. Participation was voluntary and pseudonymized. After completion of the QLQ-C30 questionnaire using iPads provided by our department, we performed a short survey with 10 questions. This survey inquired about patients’ opinions regarding general aspects, including technical advances in medicine, mobile and app assistance during cancer treatment, and the app-specific functions (eg, interface and navigation). RESULTS After logging into the app, the user can choose between starting a questionnaire, reviewing answers (administrators only), and logging out. The questionnaire is displayed with the same information, questions, and answers as on the original QLQ-C30 sheet. No alterations in wording were made. Usability was tested with 81 patients; median age was 55 years. The median time for completing the HRQoL questionnaire on the iPad was 4.0 minutes. Of all participants, 84% (68/81) owned a mobile device. Similarly, 84% (68/81) of participants would prefer a mobile version of the HRQoL questionnaire instead of a paper-based version. Using the app in daily life during and after cancer treatment would be supported by 83% (67/81) of participants. In the prototype version of the app, data were stored on the device; in the future, 79% (64/81) of the patients would agree to transfer data via the Internet. CONCLUSIONS Our usability test showed good results regarding attractiveness, operability, and understandability. Moreover, our results demonstrate a high overall acceptance of mobile apps and telemedicine in oncology. The HRQoL assessment via the app was accepted thoroughly by patients, and individuals are keen to use it in clinical routines, while data privacy and security must be ensured.

scholarly journals Mobile App Delivery of the EORTC QLQ-C30 Questionnaire to Assess Health-Related Quality of Life in Oncological Patients: Usability Study

2018 ◽  
Vol 6 (2) ◽  
pp. e45 ◽  
Author(s):  
Kerstin A Kessel ◽  
Marco ME Vogel ◽  
Anna Alles ◽  
Sophie Dobiasch ◽  
Hanna Fischer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mobile App ◽  
Usability Study ◽  
Health Related Quality ◽  
Oncological Patients ◽  
Related Quality ◽  
Eortc Qlq C30 ◽  
Health Related ◽  
Eortc Qlq

scholarly journals Mobile App Delivery of the EORTC QLQ-C30 Questionnaire to Assess Health-Related Quality of Life in Oncological Patients: Usability Study

2017 ◽  
Author(s):  
Kerstin A Kessel ◽  
Marco M E Vogel ◽  
Anna Alles ◽  
Sophie Dobiasch ◽  
Hanna Fischer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mobile App ◽  
Usability Study ◽  
Health Related Quality ◽  
Oncological Patients ◽  
Related Quality ◽  
Eortc Qlq C30 ◽  
Health Related ◽  
Eortc Qlq

IHAE-Qol: Specific Health-Related Quality Of Life (HRQoL) Questionnaire In Hereditary Angioedema Due To C1 Inhibitor Deficiency (HAE-C1INH)

2014 ◽  
Vol 133 (2) ◽  
pp. AB33 ◽  
Author(s):  
Nieves Prior ◽  
Eduardo Remor ◽  
Elia Pérez-Fernández ◽  
Carmen Gómez-Traseira ◽  
Magdalena Julia Caminoa ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hereditary Angioedema ◽  
Health Related Quality ◽  
C1 Inhibitor ◽  
C1 Inhibitor Deficiency ◽  
Hrqol Questionnaire ◽  
Related Quality ◽  
Health Related ◽  
Specific Health

scholarly journals Development of a Short Instrument for Measuring Health-Related Quality of Life in Oncological Patients for Clinical Use: Protocol for an Observational Study

10.2196/17854 ◽  
2020 ◽  
Vol 9 (7) ◽  
pp. e17854
Author(s):  
Theresa Schrage ◽  
Mirja Görlach ◽  
Christian Stephan Betz ◽  
Carsten Bokemeyer ◽  
Nicolaus Kröger ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Routine Care ◽  
Study Phase ◽  
Health Related Quality ◽  
Oncological Patients ◽  
Related Quality ◽  
Health Related ◽  
Routine Procedures

Background Cancer patients often suffer from the physical and psychological burden of their disease and its treatment. This is frequently insufficiently identified and addressed in clinical practice. In the context of improving patient-centered care in oncological patients, patient-reported outcomes (PROs) represent an important addition to current routine care. So far, available PRO questionnaires for cancer patients are unsuitable for routine procedures due to their length and complexity. Objective This study aimed to develop and psychometrically test a short questionnaire to measure health-related quality of life (HrQoL) in cancer patients for use in routine care. Methods This observational study consists of two parts: (1) a qualitative study to develop a short questionnaire measuring HrQoL and (2) a quantitative study to psychometrically test this questionnaire in five oncological departments of a comprehensive cancer center. In part 1 of the study, semistructured interviews with 28 cancer patients, as well as five focus groups with 22 clinicians and nurses, were conducted to identify clinically relevant dimensions of HrQoL. The identified dimensions were complemented with related dimensions from empirical studies and reviewed via expert discussion. Based on this, a short instrument was developed. In part 2 of the study, the developed questionnaire was tested in cancer in- and outpatients at five participating oncological clinics using additional standardized questionnaires assessing HrQoL and other important PROs. The questionnaire was presented to more than 770 patients twice during treatment. Results The project started in May 2017 with recruitment for study phase I beginning in December 2017. Recruitment for study phases I and II ended in April 2018 and February 2019, respectively. After study phase II and psychometrical analyses, the newly developed questionnaire measuring the HrQoL of all cancer entities in routine care was finalized. Conclusions With five to six dimensions and one item per dimension, the developed questionnaire is short enough to not disrupt routine procedures during treatment and is profound enough to inform clinicians about the patient’s HrQoL impairments and status. Trial Registration Open Science Framework Registries 10.17605/OSF.IO/Y7XCE; https://osf.io/y7xce/ International Registered Report Identifier (IRRID) RR1-10.2196/17854

scholarly journals Comparison of Instruments for Measuring Health-Related Quality of Life and Their Applicability to Ehealth Applications

2021 ◽  
Author(s):  
Marlene Schmidt ◽  
Martin Staemmler
Keyword(s):  
Quality Of Life ◽  
Treatment Options ◽  
Health Issues ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Hrqol Assessment ◽  
Adherence Monitoring ◽  
The Impact

Health-related Quality of Life (HRQoL) assessment has proven as a good means for assessing treatment options or impact of applications supporting the patient in adherence, monitoring and better understanding of health issues. While most of the HRQoL instruments were designed several years ago, their capability to assess the impact of ehealth application is in question. The objective of this paper is to assess HRQoL instruments including a focus on the ehealth domain. Methods: Generic and specific instruments are selected based on their widespread use. Published criteria for assessing HRQoL instruments are used for a baseline, which are amended by criteria covering both the ehealth domain and the conditions of use of instruments and structured in groups. Results: Seven instruments have been selected and assessed using the established criteria. The instruments scored differently regarding the ehealth domain, however overall rather low. Applying weighting per group allows highlighting specific aspects. Based on the assessment, further research should consider the development of a ehealth domain module as part of the specific instruments.

scholarly journals The Effect of Health Education via Mobile Apps in Promoting Asthma Health Related Quality of Life Among Asthmatic School Children in Urban Malaysia.

2021 ◽  
Author(s):  
Abdulaziz Mansoor Al Raimi ◽  
Chan Mei Chong ◽  
Li Yoong Tang ◽  
Yan Piaw Chua ◽  
Latifa Yahya Al Ajeel
Keyword(s):  
Quality Of Life ◽  
Health Education ◽  
Mobile Apps ◽  
Control Group ◽  
Health Related Quality ◽  
Post Intervention ◽  
Related Quality ◽  
Health Related ◽  
And Control

Abstract Objectives: The objective of study to assess the effect of health education via mobile applications in promoting health-related quality of life among schoolchildren with asthma in urban Malaysia. Methods: A Quasi-experimental with two-group pre- and post-intervention design was used in this study involving a total of 214 students. The students were randomly assigned into two groups (intervention group and control group) in a pre and post intervention approach. The control group received face to face education and the experimental group had health education via mobile apps.Results: The findings showed that the total score of health related quality of life has improvement in the mean total score of health-related quality of life from pre-intervention (5.31±1.27) to post-intervention (5.66±1.28) for the control group, compared with the experimental group with a mean total score of HRQoL at pre-intervention (5.01±1.36) and post-intervention (5.85±1.29). A comparison between the experimental and control groups using an independent t-test showed statistically significant differences in the mean HRQoL scores of asthma between the experimental and control groups. The effect of health education via mobile applications showed statistically significant improvement pre and post intervention in HRQoL score [F (1,288) = 57.46, p = <0.01].Conclusion: The use of mobile technology in health education improved HRQoL as compared of traditional method of face-to-face lecture or handbooks among school children with asthma. Thus, educational module using mobile apps improves HRQoL. Trial registration: This study was registered under the Medical Research Committee, University Malaya Medical Centre, Malaysia under Trial MRECID. NO: 2016112-4501, Also, this study is registered with the Australian New Zealand Clinical Trials Registry (ANZCTR) under Trial ID: ACTRN12614300582550

scholarly journals Assessment of health related quality of life of asthma patients in a tertiary care teaching hospital

2019 ◽  
Vol 6 (2) ◽  
pp. 654
Author(s):  
Shrishailgouda S. Patil ◽  
Archana Oggu ◽  
Shravan Jayachandran ◽  
Neha Patil ◽  
H. Doddayya
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Hrqol Questionnaire ◽  
Asthma Patients ◽  
Related Quality ◽  
Health Related ◽  
Mental Hrqol ◽  
The Mean ◽  
Physical Hrqol

Background: The present study is planned to assess the health related quality of life (HRQoL) in asthma patients by using HRQoL questionnaire (SF-36 v2).Methods: A prospective observational study was conducted for a period of 6 months (September 2017 to February 2018) in Navodaya Medical College Hospital and Research Centre, Raichur on a total of 108 patients of either sex suffering from persistent asthma. The HRQoL of asthma patients was measured by face-to-face interview using HRQoL questionnaire (SF-36v2).Results: Female patients were found to be more affected with asthma compared to male patients and the prevalence of asthma is found to be more in the middle aged and elderly patients compared to adults. The important triggering factors for the asthma were found to be exposure to dust, smoking, alcohol and cooking fuel. The mean physical component summary (PCS) scores is 47.46 (±15.56) and the mean mental component summary (MCS) scores is 66.73 (±13.59). The findings of our study reveals that the physical HRQoL is more affected compared to mental HRQoL as revealed by PCS and MCS scores.Conclusions: The findings of our study conclusively suggest that the physical HRQoL is more affected than mental HRQoL in asthma patients and also the need to improve the quality of life in these patients by appropriate patient education regarding the triggering factors of asthma, preventive measures and the medication adherence.

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