Assisted human reproduction offspring and the fundamental right to identity: the recognition of the right to know one’s origins under the European Convention of Human Rights

2009 ◽  
Vol 6 (1) ◽  
pp. 79-92
Author(s):  
Mariana De Lorenzi ◽  
Verónica B Piñero
2017 ◽  
Vol 7 (2) ◽  
pp. 284-310
Author(s):  
Edita Gruodytė ◽  
Silvija Gervienė

Abstract The right to know the truth is established as one of the rights constituting the right to effective remedy but in post-Communist countries this right is limited to victims of the Communist regime because of failure to access the files of former secret services on two different grounds: certain victim’s information is protected as personal data on the grounds of privacy rights and certain files are still kept as a classified information. Thus, the article analyses if such limitations in post-Communist countries are compatible with Article 8 of the European Convention on Human Rights. The answer is provided using mainly an analysis of the case law of the European Court of Human Rights. Lithuania as a case study was chosen for the analysis in a situation where certain files are kept as classified information.


2018 ◽  
Vol 66 (6) ◽  
pp. 747-761
Author(s):  
Gianluca Montanari Vergallo ◽  
Natale Mario Di Luca

A venti anni dalla sua approvazione, la Convenzione di Oviedo necessita di un aggiornamento. Infatti, non affronta la questione del diritto dei bambini nati da fecondazione eterologa di conoscere l’identità dei donatori di gameti. La Corte europea dei diritti dell’uomo ha recentemente stabilito che: a) il diritto di conoscere le proprie origini biologiche è tutelato dall’art. 8 della Convenzione dei diritti dell’uomo; b) tale diritto deve essere bilanciato con quello della madre biologica di rimanere anonima (c.d. parto anonimo). Al fine di trovare tale bilanciamento, una possibile soluzione consiste nel richiedere ai giudici di convocare la madre per chiederle se intende revocare l’anonimato. Se la madre ribadisce la propria originaria intenzione di rimanere sconosciuta, il Tribunale non può consentire al figlio di conoscere la sua identità. Gli autori analizzano anche altre due questioni non prese in considerazione dalla Corte europea: a) l’equilibrio tra il diritto di conoscere le proprie origini e quello dei donator di gamete all’anonimato; b) se tale diritto dei bambini nati da fecondazione eterologa vincoli i genitori legali a rivelargli le modalità del concepimento. Tali problemi e l’importanza degli interessi in gioco inducono gli autori a sostenere che la scelta di usare il citato art. 8 come criterio di giudizio non è affatto ottimale. Appare preferibile affrontare queste questioni attraverso un aggiornamento della Convenzione di Oviedo o comunque con modalità tali da arrivare ad una regolamentazione che sia uniforme all’interno dell’Unione europea. ---------- Twenty years since it was opened for signature, the Oviedo Convention needs updating. It does not deal with the issue of the donor-conceived children’s right to know the identity of the gamete donors. The European Court of Human Rights has recently stated that: a) the right to know one’s biological background is protected by article 8 of the Convention on Human Rights; b) such a right must be balanced with the biological mother’s right to anonymity (anonymous birth). In order to find such balancing, a possible solution might be to require judges to summon mothers to ask them whether they would like to reverse their decision to be anonymous. If the mother reaffirms her intention to remain unknown, the court may not allow the child to learn of her identity and contact her. The authors also analyze two other issues not taken into account by the European Court: a) the balancing between the right to know one’s origins and the gamete donors’ right to anonymity; b) whether the donor-conceived children’s right to know would make it mandatory for legal parents to disclose conception procedures. These problems and the importance of the interests at stake induce the authors to argue that the choice to keep using the above mentioned article 8 as yardstick is far from ideal. It appears to be far preferable to deal with these issues while updating the Oviedo Convention or in such a way as to incentivize the enactment of legislation that would be uniform throughout the European Union.


Author(s):  
María Florencia Belanti

La resolución que se comenta nos estimula a reflexionar sobre las técnicas de reproducción humana asistida con una mirada inescindible desde el prisma de derechos humanos. En este ámbito, se pretende llevar a cabo un análisis desde el derecho a la salud en general y a la salud reproductiva en particular, efectuando una reseña normativa de la materia, una exploración del precedente específico en el ámbito interamericano y una reflexión sobre la situación jurídica del embrión in vitro.   The resolution discussed encourages us to reflect on assisted human reproduction techniques with an inescisible look from the perspective of human rights. In this area, it is intended to carry out an analysis from the right to health in general and to reproductive health in particular, making a normative review of the matter, an exploration of the specific precedent in the inter-American sphere and a reflection on the legal situation of the embryo in vitro


Author(s):  
Groome Dermot

Principle 2 is concerned with the inalienable right to truth, a right that arises from the right to know and obliges governments to establish mechanisms to facilitate the revelation of the truth about serious violations of human rights. The right to truth has been explicitly incorporated into several international instruments and, in 2010, became expressly guaranteed in the International Convention for the Protection of All Persons from Enforced Disappearance (ICPPED). In practice, the right to truth is realized through laws enabling requests for state-held information; archives; truth commissions; national and international courts; and human rights commissions. After providing a contextual and historical overview of Principle 2, this chapter describes its normative (legal/ethical) foundation, focusing on how its interpretation is influenced by international law and how it relates to notions of transitional justice. It also analyzes the applications of the Principle in practice.


2019 ◽  
Vol 7 (2) ◽  
pp. 157-177
Author(s):  
Emma Cave ◽  
Nina Reinach

Article 8 of the European Convention on Human Rights supports the right to participate in decisions that affect our lives. Article 8 was a relevant factor in the Supreme Court decision of Montgomery v Lanarkshire Health Board [2015] which makes significant advances in patient-centred care. Focusing on adult patients with capacity, this article considers Article 8's influence across three routes to participatory protection: the right to choose, the duty to consult, and the right to know. We set out current limitations of the right to choose and consider the potential for Article 8 to influence the extension of a wider duty to consult and right to know. We find that there are impediments to legal development. Patient status leads to the elevation of aspects of participation that do not always comply with patient needs and expectations. We consider a reimagining of our expectations of patient rights to better acknowledge the relevance of partnership between patients and professional experts and to extend information provision beyond informed consent.


Author(s):  
E. M. Pavlenko

The article considers the formation of a culture of human rights as a guarantee of constitutional norm on the highest value of a person, his/ her rights and freedoms. Considerable attention is paid to the activities of the High Commissioner for Human Rights in the Russian Federation in this direction, including those directed to ensuring the right to know one's rights. A number of proposals for the Commissioner's further work in this area have been formulated.


Author(s):  
Cadelo Valentina ◽  
Peterson Trudy Huskamp

Principle 14 outlines measures for the preservation of archives, a fundamental corollary to the right to know the truth. In order to preserve governmental and nongovernmental archives, their destruction must be prevented and active steps need to be taken to prolong the life of the materials. Technical measures and penalties must prevent any removal, destruction, concealment or falsification of archives to ensure that there will be no impunity for perpetrators of violations of human rights and/or humanitarian law. Preserving archives is particularly important during periods of governmental transition and regime change. After providing a contextual and historical background on Principle 14, this chapter discusses its theoretical framework as well as state practice on public records and archives.


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