Diversity of interpretations of the concept ‘patient-centered care for breast cancer patients’; a scoping review of current literature

91 Background: Patient-provider communication is essential to delivering high quality cancer care, including post-treatment when survivors have many complex care needs. In this study, we used data collected for quality improvement from a small, feasibility sample to examine patient perceptions of provider communication and inform the development of a new Oncology Survivorship Clinic model. Methods: As part of a pilot project conducted at Kaiser Permanente Northern California (KPNC), we surveyed 51 breast cancer patients post-treatment. The survey included a communication measure from the 2011 Medical Expenditure Panel Survey (MEPS) Experiences with Cancer survey evaluating provider discussions of: surveillance for recurrence; late or long-term treatment effects; healthy lifestyle behaviors; and emotional or social needs. We also examined reports of the six core functions of patient-centered communication (i.e. managing uncertainty, responding to emotions, making decisions, fostering healing relationships, enabling self-management, and exchanging information) using a measure from the Health Information Trends Survey (HINTS) survey. Part of the purpose was to evaluate acceptability of a new Oncology Survivorship Clinic utilizing non-physician providers. Results: The sample included 51 breast cancer patients surveyed in 2016 within six months of treatment completion. Overall, sizable proportions received detailed communication about surveillance (65%), treatment side effects (46%), emotional needs (41%), and healthy lifestyles (71%) and the majority received patient-centered communication (range: 60-73% based on core function). Particular gaps were noted related to provider communication about treatment side effects (54%), emotional/social needs (59%), managing uncertainty (35%), and responding to emotions (40%). Conclusions: Our very preliminary findings suggest that the majority of women had positive communication experiences, including with non-physician providers. However, clear communications gaps existed underscoring future avenues for research and care delivery interventions to address the comprehensive needs of breast cancer patients.

Download Full-text

How the use of a patient-accessible health record contributes to patient-centered care: Scoping review. (Preprint)

Journal of Medical Internet Research ◽

10.2196/17655 ◽

2020 ◽

Author(s):

Janine Benjamins ◽

Annemien Haveman ◽

Marian Gunnink ◽

Annemieke Goudkuil ◽

Emely de Vet

Keyword(s):

Scoping Review ◽

Patient Centered Care ◽

Health Record ◽

Patient Centered ◽

Centered Care

Download Full-text

Shared Decision-Making in Breast Reconstruction for Breast Cancer Patients: A Scoping Review

Patient Preference and Adherence ◽

10.2147/ppa.s335080 ◽

2021 ◽

Vol Volume 15 ◽

pp. 2763-2781

Author(s):

Xuejing Li ◽

Meiqi Meng ◽

Junqiang Zhao ◽

Xiaoyan Zhang ◽

Dan Yang ◽

...

Keyword(s):

Breast Cancer ◽

Decision Making ◽

Breast Reconstruction ◽

Cancer Patients ◽

Shared Decision Making ◽

Scoping Review ◽

Shared Decision ◽

Breast Cancer Patients

Download Full-text

Barriers and facilitators of patient centered care for immigrant and refugee women: a scoping review

BMC Public Health ◽

10.1186/s12889-020-09159-6 ◽

2020 ◽

Vol 20 (1) ◽

Author(s):

Tali Filler ◽

Bismah Jameel ◽

Anna R. Gagliardi

Keyword(s):

Scoping Review ◽

Patient Centered Care ◽

Barriers And Facilitators ◽

Patient Centered ◽

Refugee Women ◽

Centered Care ◽

Immigrant And Refugee

Download Full-text

Screening Ultrasound for Women with Dense Breasts in the Age of Patient-centered Care

American Journal of Sonography ◽

10.25259/ajs-30-2018 ◽

2018 ◽

Vol 1 ◽

pp. 14

Author(s):

Stamatia Destounis ◽

Andrea Arieno ◽

Amanda Santacroce

Keyword(s):

Breast Cancer ◽

Risk Factor ◽

Breast Imaging ◽

Breast Tissue ◽

Patient Centered Care ◽

Dense Breast ◽

Patient Centered ◽

Dense Breast Tissue ◽

Dense Breasts ◽

Centered Care

As the field of medicine moves toward practicing patient-centered care, radiologists in breast imaging must continue to look for ways to increase the value of their practice in the eyes of patients. Providing adjunct screening of women with dense breasts provides such an opportunity. The presence of dense breast tissue is not only an independent risk factor for breast cancer but also a risk factor for the delayed diagnosis of breast cancer as dense tissue reduces the efficacy of screening mammograms due to the tissue masking effect. As legislation for notifying women of their breast density becomes commonplace, both women and referring physicians need to understand the risks of dense breast tissue as well as the benefits of additional screening affords. Breast radiologists can become integral to their patients’ care team by offering education to both referring providers and patients on the topic of dense breasts and supplemental screening solutions, such as screening breast ultrasound, which has been shown to have benefit in overcoming mammography’s shortcomings in this demographic of women.

Download Full-text

The Commission on Cancer’s survivorship care plan standard: Implementation is underway.

Journal of Clinical Oncology ◽

10.1200/jco.2017.35.5_suppl.72 ◽

2017 ◽

Vol 35 (5_suppl) ◽

pp. 72-72

Author(s):

Nina S. Miller

Keyword(s):

Cancer Patients ◽

Patient Centered Care ◽

Care Plan ◽

Survivorship Care Plan ◽

Institute Of Medicine ◽

Survivorship Care ◽

Psychosocial Needs ◽

Patient Centered ◽

Cancer Program ◽

Centered Care

72 Background: The American College of Surgeons Commission on Cancer established a patient-centered standard regarding the delivery of a survivorship care plan to cancer patients. In response to recommendations from the 2006 National Academy of Sciences, Institute of Medicine report, From Cancer Patient to Cancer Survivor: Lost in Transition, a working group developed a set of Continuum of Care standards to address the psychosocial needs of cancer patients. In 2009 Commission on Cancer members had met to discuss a strategic plan for addressing a major shift in accreditation standards from process to patient-centered care with a focus on patient outcomes. According to Cancer Program Standards: Ensuring Patient-Centered Care, the cancer program must implement a process to disseminate a comprehensive care summary and follow-up plan to patients with cancer who are completing cancer treatment. Programs are in full implementation mode and surveys monitoring this Survivorship Care Plan Standard have begun this year. The care plan provides guidance and recommendations for survivors and their healthcare providers to address the medical and psychosocial problems that may arise post-treatment. By delivering a plan, the patient is empowered with information about the treatment they have received, the recommendations for their care going forward, and recommended resources. Methods: Programs submit documentation to describe their process for delivery of care through an electronic activity report. Documentation of this standard includes method of delivery, identification of eligible patients, implementation process and tracking. This presentation will summarize program submissions for 2015-2016 and include an analysis of the details of the standard compliance as reported by accredited programs. Results: This analysis will include responses from all Commission on Cancer accredited programs reporting on this standard. The analysis will provide information about the trends in program implementation and compliance with the standard. Conclusions: This analysis will inform future decisions about the content of plans, the value of plan delivery to the provider and to the patient and summarize current practice.

Download Full-text