scholarly journals Modeling of speech therapy assessment in regional pedagogical and psychological support centers

2020 ◽  
Vol 2 (2) ◽  
pp. 7-19
Author(s):  
Anna Aslanyan ◽  
Gohar Hovyan
Keyword(s):  
Speech Therapy ◽  
Practical Knowledge ◽  
Scientific Evidence ◽  
Clinical Information ◽  
Speech Disorders ◽  
Children And Youth ◽  
International Classification Of Functioning ◽  
Disability And Health ◽  
Therapy Assessment

Scientific indication chains with practical knowledge to prepare professionals to work effectively with children with speech disorders and their families. The importance of scientific evidence from around the world on speech disorders, assessment, analysis, diagnosis and intervention and its acquarance with practical knowledge to prepare speech therapists to work with children and their families is obvious and crucial. The significance of this issue becomes more valuable when changes and reforms are taking place within the educational system in the country - something that has happened in Armenia and still requires research and adjustments in the field.  The following study is guided by the contemporary framework that directs the successful assessment of speech disorders in children: World Helth Organization’s International Classification of Functioning Disability and Health - Children and Youth (ICF-CY) (2007). The article provides comprehensive, legislative, practical and clinical information for modeling speech therapy assessment within the scope of new reforms taken place in the country.

scholarly journals Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs

2019 ◽  
Vol 178 (12) ◽  
pp. 1883-1892 ◽  
Author(s):  
Jessica Warnink-Kavelaars ◽  
Anita Beelen ◽  
Tine M. H. J. Goedhart ◽  
Lisanne E. de Koning ◽  
Frans Nollet ◽  
...  
Keyword(s):  
Marfan Syndrome ◽  
Physical Functioning ◽  
Contextual Factors ◽  
Children And Youth ◽  
International Classification Of Functioning ◽  
Support Needs ◽  
Disability And Health ◽  
School Sports ◽  
Perceived Impact

Abstract Although essential for providing optimal adolescent patient support, knowledge of the impact of Marfan syndrome in adolescence is limited. To explore adolescents’ perceived impact of Marfan syndrome on (physical) functioning (activities, participation), disability (limitations, restrictions), contextual factors and support needs, we interviewed 19 adolescents with Marfan syndrome. Audio-recordings were transcribed, coded and analysed using thematic analysis. Identified themes were “difficulties in keeping up with peers” and “being and feeling different from peers”. Furthermore, an adolescent Marfan syndrome-specific International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) model derived from the data describing the adolescent perceived impact of Marfan syndrome on functioning, disability and its contextual factors. Adolescents perceived problems in keeping up with peers in school, sports, leisure and friendships/relationships, and they could not meet work requirements. Moreover, participants perceived to differ from peers due to their appearance and disability. Contextual factors: coping with Marfan syndrome, self-esteem/image, knowledge about Marfan syndrome, support from family/friends/teachers, ability to express needs and peer-group acceptation acted individually as barrier or facilitator for identified themes. Conclusion: Adolescents with Marfan syndrome perceived limitations and restrictions in (physical) functioning. They perceived problems in keeping up with peers and perceived to differ from peers due to their appearance and disability. This warrants awareness and tailored physical, psychosocial, educational and environmental support programmes to improve (physical) functioning and empowerment of adolescents with Marfan syndrome.What is known:• Marfan syndrome is a hereditary connective tissue disorder.• Marfan syndrome affects multiple systems.What is new:• Adolescents with Marfan syndrome perceive (1) problems in keeping up with peers in school, sports, leisure, friendships/relationships and work (2) to differ from peers due to their appearance and disability.• An adolescent Marfan syndrome-specific International Classification of Functioning, Disability and Health for Children and Youth model derived from the data describing the adolescent perceived impact of Marfan syndrome on functioning, disability and contextual factors.

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