Book Review: Aging, Rights, and Quality of Life: Prospects for Older People with Developmental Disabilities, the Social World of Children: Learning to Talk, the Educator's Guide to Feeding Children with Disabilities

1999 ◽  
Vol 24 (4) ◽  
pp. 306-311
Author(s):  
Pam Walker ◽  
Ann P. Kaiser ◽  
Eva Horn Peabody
Author(s):  
Anne Juul ◽  
Raelene Wilding ◽  
Loretta Baldassar

Older people living in residential aged care facilities tend to be physically as well as socially inactive, which leads to poorer health and reduced wellbeing. A lack of recognition of the importance of social support, limited resources, lack of training and task-oriented work routines leave little time for staff to meet the social needs of residents. Through qualitative ethnographic fieldwork, this study investigates the potential for new technologies to enhance quality of life and facilitate meaningful engagement in physical and social activities among culturally and linguistically diverse residents and staff in care facilities. A continuum from nonparticipation to full participation among residents was observed when Touch Screen Technology activities were implemented. Data indicate that resident’s engagement is impacted by five interdependent factors, including environmental, organisational, caregiver, patient, and management- &government-related. Findings show that new technologies can be used to increase meaningful physical and social engagement, including transcending language and cultural barriers. However, the successful application of new technologies to enhance quality of life is dependent on their integration into the daily routine and social relationships of staff and residents, with the full support of management. Guidelines governing the use of new technologies to support meaningful engagement of older people in residential care are lacking: this project highlights the importance of attention to the social relational dimensions of technology interventions to support best practice in their use.


Author(s):  
Nisreen Al Awaji ◽  
Monira Aldhahi ◽  
Shahnaz Akil ◽  
Salwa Awad ◽  
Eman Mortada

Substantial changes in life dynamics resulting from the outbreak of the coronavirus disease 2019 (COVID-19) could have an impact on the quality of life (QoL) of mothers of children with and without disabilities. This study compared the quality of life (QoL) of mothers of children with disabilities (MCD) to the QoL of mothers of children without disabilities (CON) in Saudi Arabia during COVID-19 lockdown. It explored mothers’ concerns and the type of support they need during the quarantine. A comparative cross-sectional study was conducted during the lockdown. An online questionnaire was distributed to mothers raising children with and without disabilities in Saudi Arabia. A total of 340 mothers participated in the study by completing the survey: 93 MCD and 247 CON. The QoL of MCD and CON was assessed using the WHOQOL-BREF questionnaire. Furthermore, detailed information was provided by the mothers regarding their needs and concerns during the lockdown. The results of the study revealed that the overall QoL was significantly higher in the CON group, compared to the MCD group, during the COVID-19 lockdown. The social well-being and environmental well-being reported by MCD were significantly lower on the total scale of the WHOQOL-BREF than those reported by the CON group. The comparison between the two groups revealed significant differences in the support required by mothers during the COVID-19 pandemic: a higher percentage of MCD needed emotional and psychological support, especially from family members. The major concerns reported by MCD were the deterioration of their children’s medical conditions and the lack of medical supplies during the lockdown.


2018 ◽  
Vol 9 (4) ◽  
pp. 146-167
Author(s):  
Belaynesh Tefera ◽  
Alice Schippers ◽  
Marloes Van Engen ◽  
Jack Van der Klink

This article presents the findings of a qualitative study on the social inclusion of children with disabilities in Addis Ababa, Ethiopia and how this affects their achievement of valued life goals. The study is based on focus group discussions with children with disabilities and primary caregivers of such children. The thematic analysis is based on family quality of life and the capability approach, which are used to explain the effects of social inclusion (and exclusion) on children with disabilities and their families in three areas of quality of life: being, belonging, and becoming. The study also looked at how the social inclusion of children with disabilities can be actualised. The results of the study confirm the existence of considerable challenges to the social inclusion of children with disabilities in Addis Ababa, which is reflected in their capabilities. The results suggest that children with disabilities need assistance and support to achieve a good quality of life. They also indicate the need for the involvement of the wider community to support children with disabilities and their families to enhance the capability of such children, and so improve their family quality of life.


2020 ◽  
Vol 3 (1) ◽  
pp. 1-10
Author(s):  
Rita Kumari Ban ◽  
Iswari Luitel ◽  
Kalpana Regmi

Introduction: Disability is the condition of difficulty in carrying out daily activities normally and in taking part in social life due to problems in parts of the body and the physical system. Children with disabilities are one of the most marginalized and excluded groups in society. Facing daily discrimination in the form of negative attitudes, Estimates suggest that there are at least 93 million children with disabilities in the world, but numbers could be much higher. Method: A descriptive-analytical research design was used to identify the quality of life of parents/caretakers having a child with disability/ies in Illam district. Systematic random sampling was used and collected data from 244 participants. World Health Organization Quality of Life-Brief (WHOQOL-BREF) Questionnaire was adopted Association between the socio-demographic variables and four domains of WHOQOL was determined using one way ANOVA. In the end, multiple linear regression analysis was performed to find the predictors of domains of WHOQOL and to control the confounding effect. Results: The quality of parents having a child with a disability has a good quality of life in a social relationship mean 15.6±1.3.The physical domain is weakly correlated with the social domain. There is a moderate positive correlation between psychosocial and social domains. Cognitive disability means the score was highest on the social domain that is 14.91and lowest on the physical domain (13.87). Conclusion:  To improve the quality of life of parents, health care and welfare professionals should focus on particular people with higher age group, disadvantaged and marginalized groups illiterate, those who are unmarried, divorced or separated and those engaged in agriculture and carry out interventions aimed at improving their quality of life. Keywords: Parents /caretaker, Quality of life, Children with disability


Author(s):  
Kathy Murphy ◽  
Eamon O'Shea ◽  
Adeline Cooney ◽  
Dympna Casey
Keyword(s):  

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