scholarly journals Evaluating Quality of Life of Parents Having a Child with Disability

2020 ◽  
Vol 3 (1) ◽  
pp. 1-10
Author(s):  
Rita Kumari Ban ◽  
Iswari Luitel ◽  
Kalpana Regmi

Introduction: Disability is the condition of difficulty in carrying out daily activities normally and in taking part in social life due to problems in parts of the body and the physical system. Children with disabilities are one of the most marginalized and excluded groups in society. Facing daily discrimination in the form of negative attitudes, Estimates suggest that there are at least 93 million children with disabilities in the world, but numbers could be much higher. Method: A descriptive-analytical research design was used to identify the quality of life of parents/caretakers having a child with disability/ies in Illam district. Systematic random sampling was used and collected data from 244 participants. World Health Organization Quality of Life-Brief (WHOQOL-BREF) Questionnaire was adopted Association between the socio-demographic variables and four domains of WHOQOL was determined using one way ANOVA. In the end, multiple linear regression analysis was performed to find the predictors of domains of WHOQOL and to control the confounding effect. Results: The quality of parents having a child with a disability has a good quality of life in a social relationship mean 15.6±1.3.The physical domain is weakly correlated with the social domain. There is a moderate positive correlation between psychosocial and social domains. Cognitive disability means the score was highest on the social domain that is 14.91and lowest on the physical domain (13.87). Conclusion:  To improve the quality of life of parents, health care and welfare professionals should focus on particular people with higher age group, disadvantaged and marginalized groups illiterate, those who are unmarried, divorced or separated and those engaged in agriculture and carry out interventions aimed at improving their quality of life. Keywords: Parents /caretaker, Quality of life, Children with disability

2011 ◽  
Vol 19 (1) ◽  
pp. 67-72 ◽  
Author(s):  
Débora Fernanda Amaral Pedrosa ◽  
Andressa Karina Amaral Plá Pelegrin ◽  
Hilze Benigno de Oliveira Moura Siqueira ◽  
Talita de Cássia Raminelli da Silva ◽  
Orlando Carlos Gomes Colhado ◽  
...  

The evaluation of quality of life (QOL) faced with chronic ischemic pain involves the clients in their subjectivity and multidimensionality. This descriptive study aimed to evaluate the quality of life of clients who presented chronic ischemic pain. A total of 100 clients of hospital institutes participated in the study. The instrument used to assess pain was an 11 point numerical scale, and to assess the quality of life, the World Health Organization Quality of Life-abbreviated questionnaire. The arithmetic mean for chronic pain was 5.59±3.16 points. The means for quality of life were: in the physical domain, 44.75±16.98; in the overall domain, 50.0±22.40; in the environment, 55.06±13.51, in the psychological, 56.21±17.19 and in the social domain, 68.33±21.84. Thus, the physical domain was, among the areas analyzed, the one which presented a greater impact on the quality of life of the clients with chronic ischemic pain.


Author(s):  
Jeane Cristina Anschau Xavier de Oliveira ◽  
Áurea Christina de Paula Corrêa ◽  
Marta Regina Cezar-Vaz ◽  
Samira Reschetti Marcon ◽  
Isabele Torquato Mozer Rosa ◽  
...  

ABSTRACT Objective: To assess the context of work and analyze their repercussions on the quality of life of rural workers in soybean agribusiness. Method: Cross-sectional study, with an intentional sample of rural workers, conducted between the months of October and December 2019, with the application of the instruments World Health Organization Quality Life-bref and Scales of Assessment of Context and Human Cost of Work. The data were analyzed through bivariate and multivariate descriptive statistics. Results: The participants amounted to 299 rural workers. The scores of Work Conditions and Socioprofessional Relations were satisfactory and Organization of Work was critical. The scores of Physical and Cognitive costs were considered critical and of the Affective Cost was satisfactory. The Socioprofessional Relations have negatively impacted the overall quality of life and the Physical and Psychological, the Social Relations and the Environmental Domains, whereas Cognitive Cost positively impacted the Physical and the Environmental Domain and the Affective Cost positively impacted the Social Relations Domain. Conclusion: Although the Work Context and Human Cost indicated adverse conditions, only the Socioprofessional Relations exerted negative influences on the quality of life of rural workers.


2011 ◽  
Vol 9 (1) ◽  
pp. 8-13 ◽  
Author(s):  
Silvia Affini Borsoi Tamai ◽  
Sergio Márcio Pacheco Paschoal ◽  
Julio Litvoc ◽  
Adriana Nunes Machado ◽  
Pedro Kallas Curiati ◽  
...  

ABSTRACT Objective: To evaluate the effect on quality of life of elderly people enrolled in GAMIA – Multidisciplinary Care Group to Outpatient Elderly Subjects (Grupo de Assistência Multidisciplinar ao Idoso Ambulatorial) of the Geriatric Department, Hospital das Clinicas, Faculdade de Medicina, Universidade de Sao Paulo. Methods: Between 2000 and 2002, 83 elderly participants of GAMIA were assessed by the World Health Organization Quality of Life scale (WHOQOL-bref) at the beginning and the end of the program. Functionality was assessed by Katz and Lawton scales and sociodemographic data were obtained from medical charts. Results: Females predominated (79.5%) and overall mean age was 69.30 years. Data analysis showed a reduction in the physical domain of WHOQOL-bref (p = 0.014) and increased psychological health and environment domains (p = 0.029 and p = 0.007, respectively), detecting a trend of increase in social relationships and in general domains (p = 0.062 and p = 0.052, respectively). Conclusions: The clinical evaluation of the elderly detected previously unknown diseases and determination of the use of new drugs, which might have been the predominant factor for the deterioration of their perception in the physical domain. Improvement in psychological health and the environment can be related to psychological and social support that the elderly received from peers and professionals and the benefits of group activities, as well as the upward trend observed in social relationships and general domains. Participation in a program to promote healthy aging was effective in improving the quality of life of the elderly.


2006 ◽  
Vol 40 (4) ◽  
pp. 333-340 ◽  
Author(s):  
Erik D. Masthoff ◽  
Fons J. Trompenaars ◽  
Guus L. Van Heck ◽  
Paul P. Hodiamont ◽  
Jolanda De Vries

Objective: Quality of life (QOL) has become a topic of growing interest in medical and psychiatric practice in general, and in research in particular. Although the body of knowledge about the complex relationship between QOL and psychiatric disorders is growing, understanding this relationship still remains difficult. Therefore, the aim of the present study was to get more and new insights into this relationship. It was hypothesized that QOL would be negatively related to the presence as well as the severity of psychopathology. Method: A random sample of Dutch adult psychiatric outpatients (n=410) completed the World Health Organization Quality of Life assessment instrument, abbreviated version (WHOQOL-Bref). In addition, DSM-IV axis I and II diagnoses were obtained. Comparisons were made between scores of the psychiatric outpatients, diagnostic subgroups within this population, and the scores of a general population. Results: Compared with the general population, psychiatric outpatients scored significantly worse on all aspects of QOL. Within the group of outpatients, participants with DSM-IV diagnoses had worse scores than those without. Participants with comorbidity had the worst QOL. Conclusions: It is concluded that QOL scores are negatively related to both the presence and the severity of psychopathology, and that the presence of a personality disorder plays a role in subjectively experienced QOL.


Author(s):  
Santosh Kumar ◽  
RK Shrivastava ◽  
Arpit Jaiswal ◽  
Rakesh Yaduvanshi ◽  
CS Sharma ◽  
...  

ABSTRACT Introduction Psoriasis is an inflammatory skin disease, which may be persistent, disfiguring, and stigmatizing. The disease is frequent, with prevalence estimates ranging from 0.3 to 2.5%. It is characterized by thick, red, scaly lesion that may appear on any part of the body. Psoriasis is associated with significant psychological and psychiatric morbidity, experience of stigmatization, and decreased health-related quality of life (QOL). Aims and Objectives The aims of this study were to estimate psychiatric morbidity and QOL in patients with psoriasis and to study the specified demographic, psychological, social, and illness-related correlates of psychiatric morbidity and QOL. Materials and methods The study group consisted of 100 consecutive patients suffering from psoriasis and healthy controls. The assessment was done using General Health Questionnaire 12 items (GHQ-12), Psoriasis Area and Severity Index (PASI) scale, Hospital Anxiety and Depression Scale (HADS), and the World Health Organization Quality of Life BREF scale (WHOQOL-BREF). Patients were also subjected to clinical psychiatric examination. Only those subjects who scored ≥3 on GHQ-12 scale were administered HADS and WHOQOL-BREF. Results This study revealed statistically significant association between number of relapses and depression score and between severity of skin lesions (PASI score) and depressive score. Conclusion Psoriasis markedly worsens the global well-being of patients and their cohabitants, who experienced an impairment of their QOL and higher levels of anxiety and depression. How to cite this article Yaduvanshi R, Jaiswal A, Sharma CS, Kumar S, Ali R, Shrivastava RK, Rathoure PK. Psychiatric Morbidity and Quality of Life in Patients suffering from Psoriasis in a Tertiary Care Hospital. Int J Adv Integ Med Sci 2017;2(2):85-90.


2008 ◽  
Vol 32 (2) ◽  
pp. 186-200 ◽  
Author(s):  
Sarah A. Deans ◽  
Angus K. McFadyen ◽  
Philip J. Rowe

This cross-sectional descriptive study was initiated to investigate the relationship between physical activity and perceived quality of life in a lower-limb amputee population. The objective was to show which aspects of physical activity were most strongly linked to quality-of-life factors in this special patient group. The outcome measurements were two questionnaires: a section of the Trinity Amputation and Prosthetic Experience Scales (TAPES) and the World Health Organization Quality-of-Life Scale (WHOQOL-Bref). The former measures activity restriction and has Athletic, Functional, and Social subscales. The latter includes Physical, Psychological, Social, and Environmental domains, and measures the individual's perception of their quality of life. The two questionnaires were sent by post to 75 male and female participants with either trans-tibial or trans-femoral amputation who were receiving prosthetic care from a Glasgow-based rehabilitation and mobility centre and who met the inclusion criteria. All participants were over 18 years of age (mean age 66 years). In total, 25 participants returned the questionnaires—a response rate of 33%. According to analysis, 8 of the 12 relationships found were statistically significant. There was a very strong correlation between scores on the social elements of each questionnaire. The correlations between scores on the functional and athletic elements of the TAPES questionnaire and scores on the social element of the WHOQOL-Bref questionnaire were less strong. Our findings support the need for greater acknowledgement by healthcare professionals involved in the care of those with amputation about the importance of the patient's social relationships with friends and family. Education about the importance of increasing and maintaining a level of physical activity conducive to health benefits should be implemented within a supportive sociable environment for the patient with lower-limb amputation.


2016 ◽  
Vol 15 (2) ◽  
pp. 214-222 ◽  
Author(s):  
Nnamdi O. Ndubuka ◽  
Hyun J. Lim ◽  
Valerie J. Ehlers ◽  
Dirk M. van der Wal

ABSTRACTObjective:Antiretroviral therapy (ART) affords longevity to patients infected with the human immune deficiency virus (HIV). Since little is known about the health-related quality of life (HRQoL) of persons who have been on ART for at least five years, the present study investigated the HRQoL of these patients in Botswana.Method:Medical records, structured interviews, and the World Health Organization Quality of Life–BREF (WHOQoL–HIV–BREF) instrument were employed to obtain information from 456 respondents.Results:Univariate and multivariate regression analyses showed that respondents' highest scores were in the “physical” domain (mean = 15.8, SD = 3.5), while the lowest scores were in the “environment” domain (mean = 12.9, SD = 2.5). Thus, the physical domain had the greatest impact on patients' overall HRQoL. Self-education about HIV-related issues was significantly correlated with all domains of HRQoL scores: physical (ρ = –2.32, CI95% = –3.02, –1.61); psychological (ρ = –2.26, CI95% = –2.87, –1.65); independence (ρ = –1.81, CI95% = –2.54, –1.06); social relationships (ρ = –1.40, CI95% = –2.13, –0.67); environment (ρ = –1.58, CI95% = –2.13, –1.04); and spirituality (ρ = –1.70, CI95% = –82.27, –1.13).Significance of results:HRQoL assessments can identify and address patients' needs, and it is important that guidelines be developed that will yield improved care to ART patients in Botswana.


2020 ◽  
Vol 27 ◽  
pp. 21-27
Author(s):  
Paula Wesołowska

Physical activity is an integral part of a healthy lifestyle, regardless of an individual human’s stage of life. The aim of the study was to investigate the relationship between long-distance running and body image,as well as quality of life amongmiddle-aged Polish men practicing long distance-running. Furthermore, the study was aimed at comparing their group in terms of the above variables with the group of men not undertaking physical activity. The study was conducted in 2018 among 220 men. The research tool consisted of: an original personal survey, the Body Scale Image and the Shortened Version of the WHOQOL-BREF (The World Health Organization Quality of Life) Survey. It has been shown that practicing physical activity aff ects the perception of one’s body among men in the middle of adulthood, while its impact on the sense of quality of life has not been confi rmed. It has been proven that men who practice long-distance running diff er signifi cantly in the perception of their own body from men not performing any physical activity.


Author(s):  
Shaista Shaban ◽  
Mohd Abrar Ahmad Guroo ◽  
Racheal Bashir

Background: Quality of life (QOL) is a measure to see an individual’s adaptation and feeling of wellbeing and adjustment with the surroundings. Schizophrenia and rheumatoid arthritis (RA) both are chronic and disabling disorders supposed to have significant effect on quality of life. Also chronicity and disability of these disorders can be directly proportional to the caregiver burden.Methods: Comparative study assessing quality of life and caregiver burden between persons with schizophrenia and RA.Results: 50% of the schizophrenia group as well as the RA group were unemployed, suggesting the magnitude of the disability levels caused by the illness. Only 33% of patients with schizophrenia were married, unlike patients with RA where 83% were married. Of all the four domains of the World Health Organization quality of life instrument (WHO-QOL BREF) both the groups scored highest in the physical domain and least in the psychological domain and the difference between the two groups was not statistically significant in all the four domains. Burden among the caregivers of schizophrenic patients was comparatively high on BAS than caregivers of rheumatoid arthritis. The mean duration of illness in patients with schizophrenia was significantly higher than patients with RA.Conclusions: RA is a chronic disorder and physical in nature with full insight in the patients. While as schizophrenia is characterized as a chronic mental illness with poor prognosis and no insight. QOL is expected to be less in schizophrenic patients. There is no significant difference in QOL except in physical domain in which patients with schizophrenia scored significantly better than patients with RA. The social domain of QOL was the only one in which schizophrenic patients did poorly, though not statistically significant. Also care giver burden was more among caregivers of schizophrenic patients and that can be attributed to lack of insight.


F1000Research ◽  
2021 ◽  
Vol 10 ◽  
pp. 298
Author(s):  
André Tadeu Sugawara ◽  
Milton Seigui Oshiro ◽  
Eduardo Inglez Yamanaka ◽  
Ronaldo Meneghetti ◽  
Dayrin Vanessa Tarazona Carvajal ◽  
...  

Hemicorporectomy is a procedure where the lumbar spine and spinal cord, pelvic bones and contents, lower extremities and external genitalia are surgically removed. The rehabilitation process, in addition to being prolonged and costly, is challenging. This article reports the rehabilitation process for hemicorporectomy and shows the innovative solutions for mobility for this disability for two cases of paraplegic patients: case 1 due to traumatic spinal cord injury due to firearm injury and case 2 due to lumbosacral myelomeningocele. They presented chronic pressure ulcer which evolved to neoplastic transformation. (squamous cell carcinoma - Marjolin's ulcer). The cases were submitted to L4 hemicorporectomy and were rehabilitated to ensure the right to mobility independence for activities of daily living; social inclusion; prevention of comorbidities and pluralization of disabilities. The rehabilitation involved the elaboration of a new prosthesis for the hemibody and improvement of functional capacity, within a gain of 6 - 11 points in the Functional Independence Measure (FIM). The principal changes happened in social interaction, locomotion and transfers to a bed/chair and toilet. Despite the body transformation, patients show gains in quality of life mainly for the social domain of World Health Organization Quality of Life instrument-brief version (WHOQOL-bref). In general, there is an increase in the scores of this instrument from 1.78% -19.25%. The evolution of social inclusion through the International Classification of Functioning, Disability and Health (ICF) reveals that patients are able to resume social, working, academic-professional life and recreation and leisure activities, reducing the number of severe and complete qualifiers from 90.91 to 60% when using the products appropriate assistive devices. Hemicorporectomy can be a therapeutic option for those in need, as it provides functionality without the need for caregivers and resumes educational, professional, economic and social aspects with gains in quality of life.


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