Dynamic contributors to low quality of life in MS along the disease course

2017 ◽  
Author(s):  
Sara Llufriu
Keyword(s):  
Quality Of Life ◽  
Disease Course

Assessment of quality of life of patients with Cushing's syndrome depending on the disease course

2017 ◽  
Author(s):  
Gulchekhra Narimova ◽  
Zamira Yusupovna ◽  
Ravshan Fayzullaev ◽  
Iskandar Arifjanov
Keyword(s):  
Quality Of Life ◽  
Cushing’S Syndrome ◽  
Cushing's Syndrome ◽  
Disease Course

scholarly journals Long-Time Course of Idiopathic Small Fiber Neuropathy

2018 ◽  
Vol 79 (3-4) ◽  
pp. 161-165 ◽  
Author(s):  
Pia Flossdorf ◽  
Walter F. Haupt ◽  
Anna Brunn ◽  
Martina Deckert ◽  
Gereon R. Fink ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Time Course ◽  
Benign Disease ◽  
Small Fiber Neuropathy ◽  
Disease Course ◽  
Peripheral Neuropathies ◽  
Small Fiber ◽  
Long Time ◽  
Large Fiber

Background: Small fiber neuropathy (SFN) is a challenging subtype of peripheral neuropathies. Once the diagnosis has been established, there is an uncertainty how SFN may progress, whether larger fibers will become involved over time, whether quality of life may be compromised, or whether repeated diagnostic workup in patients with unknown underlying cause may increase the yield of treatable causes of SFN. Methods: We evaluated 16 patients with documented long-time course of idiopathic SFN. Results: Clinical and electrophysiological course remained stable in 75% of the patients, while 25% SFN-patients developed large fiber neuropathies. Conclusions: Our data suggest that SFN represents a benign disease course in the majority of patients without severely limiting the quality of life.

147 Does Persistent Stress Impact Quality of Life and Disease Course in Patients With IBD? A 4 Year Prospective Study

2015 ◽  
Vol 148 (4) ◽  
pp. S-39
Author(s):  
Claudia Ramos Rivers ◽  
Eva Szigethy ◽  
Kimberly Baker ◽  
Jana G. Hashash ◽  
Michael A. Dunn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prospective Study ◽  
Disease Course

Health-Related Quality of Life in Patients with Ulcerative Colitis After a 10-year Disease Course: Results from the IBSEN Study

2012 ◽  
Vol 18 (8) ◽  
pp. 1540-1549 ◽  
Author(s):  
Marte L. Hoivik ◽  
Bjorn Moum ◽  
Inger C. Solberg ◽  
Milada Cvancarova ◽  
Ole Hoie ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ulcerative Colitis ◽  
Disease Course ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Self-Reported Quality of Life of Individual Cancer Patients: Concordance of Results With Disease Course and Medical Records

2001 ◽  
Vol 19 (7) ◽  
pp. 2064-2073 ◽  
Author(s):  
Galina Velikova ◽  
Penny Wright ◽  
Adam B. Smith ◽  
Daniel Stark ◽  
Timothy Perren ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Medical Records ◽  
Social Issues ◽  
Life Questionnaire ◽  
Disease Course ◽  
Group Level ◽  
European Organization ◽  
Clinical Records

PURPOSE: To investigate the applicability of a standard quality of life (QL) questionnaire to individual cancer patients and to explore the potential for impact of QL information on the process of care by comparing at group level the QL results with the medical records. PATIENTS AND METHODS: One hundred fourteen consecutive patients at the oncology clinics at St James’s Hospital, Leeds, United Kingdom, completed the European Organization for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire (QLQ)-C30 on a touch-screen computer over a 6-month period. The QL results were compared with the corresponding medical records at individual and group level. RESULTS: For individual patients, the serial measurement of QL allowed recognition of patterns over time corresponding to disease course. At group level, a higher proportion of patients reported problems on EORTC QLQ-C30 than were mentioned in the medical records (McNemar paired test, P < .01). Most often clinicians mentioned pain (22% to 39%), and at the initial visit role (66%), and social issues (77%). For the rest of the symptoms and functions, the problems were recorded in between 1% and 25% of the notes, but 20% to 76% of the patients reported QL impairment. Problems that were not recorded in the medical notes tended to be of low severity, with a significant trend observed for pain, fatigue, nausea/vomiting, dyspnea, loss of appetite, and physical function scale (χ2 test, 11.55 to 34.42, df = 1, P < .001). CONCLUSION: The QL data on individual patients was consistent with the clinical records, thus providing evidence for the validity of these measures in assessment of the individual. The QL profiles had more information on symptoms and particularly on functional issues, such as emotional distress and physical performance.

scholarly journals Comprehensive Care for Patients with Sarcoidosis

2020 ◽  
Vol 9 (2) ◽  
pp. 390 ◽  
Author(s):  
Catharina C. Moor ◽  
Vivienne Kahlmann ◽  
Daniel A. Culver ◽  
Marlies S. Wijsenbeek
Keyword(s):  
Quality Of Life ◽  
Multidisciplinary Approach ◽  
Symptom Burden ◽  
Comprehensive Care ◽  
Disease Course ◽  
Pharmacological Interventions ◽  
Organ Function ◽  
Structured Approach ◽  
Impaired Quality

Sarcoidosis is a multisystem granulomatous disease, associated with significant morbidity and impaired quality of life. Treatment is aimed at recovering organ function, reducing symptom burden and improving quality of life. Because of the heterogeneity and variable disease course, a comprehensive, multidisciplinary approach to care is needed. Comprehensive care includes not only pharmacological interventions, but also supportive measures aimed at relieving symptoms and improving quality of life. The purpose of this review is to summarize the most recent knowledge regarding different aspects of care and propose a structured approach to sarcoidosis management.

scholarly journals Meditation as an Adjunct to the Management of Multiple Sclerosis

2014 ◽  
Vol 2014 ◽  
pp. 1-10 ◽  
Author(s):  
Adam B. Levin ◽  
Emily J. Hadgkiss ◽  
Tracey J. Weiland ◽  
George A. Jelinek
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Current Literature ◽  
Selection Criteria ◽  
English Language ◽  
Disease Course ◽  
Positive Effects ◽  
Primary Literature ◽  
Randomised Controlled

Background. Multiple sclerosis (MS) disease course is known to be adversely affected by several factors including stress. A proposed mechanism for decreasing stress and therefore decreasing MS morbidity and improving quality of life is meditation. This review aims to critically analyse the current literature regarding meditation and MS.Methods. Four major databases were used to search for English language papers published before March 2014 with the terms MS, multiple sclerosis, meditation, and mindfulness.Results. 12 pieces of primary literature fitting the selection criteria were selected: two were randomised controlled studies, four were cohort studies, and six were surveys. The current literature varies in quality; however common positive effects of meditation include improved quality of life (QOL) and improved coping skills.Conclusion. All studies suggest possible benefit to the use of meditation as an adjunct to the management of multiple sclerosis. Additional rigorous clinical trials are required to validate the existing findings and determine if meditation has an impact on disease course over time.

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