scholarly journals Project Lotus: A really cool community-based initiative assisting women post-homelessness

2022 ◽  
Vol 9 (1) ◽  
pp. 12-13
Author(s):  
Karla Jacobsen ◽  
Laurence Roy ◽  
Sally Richmond ◽  
Isabelle Boutemeur ◽  
Eve De Macar ◽  
...  
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Service Providers ◽  
Virtual Community ◽  
Community Based Participatory Research ◽  
Research Literature ◽  
World Health ◽  
Community Based ◽  
Research Initiative ◽  
Individualized Approach

In Canada, recent conservative estimates report upwards of 235,000 individuals are homeless on a given night. Of those experiencing precarious housing situations, women make up approximately 30% and are among the most vulnerable. Their residential insecurity has been further exacerbated with the community and social restrictions of the COVID-19 pandemic. Existing resources that assist women experiencing homelessness or housing insecurity are often stretched to the limit dealing with emergency and crisis housing situations, with less focus on post-shelter supports. To address this issue, a community-based participatory research initiative ‘Project Lotus - Hope Together’ was established in Montreal. Grounded in the World Health Organization’s Commission on Social Determinants of Health Framework, the overarching goal of this research is to co-design a housing supports program for women leaving a shelter stay. We created a cross-sectorial Advisory Committee consisting of women with lived experiences of homelessness, service providers, community leaders, and researchers. To date, we have conducted preliminary research (literature review, interviews with women with lived experience of homelessness, stakeholder meetings) to identity what has assisted women through this transition, and what barriers exist. We have also held virtual community consultation meetings to discuss preliminary findings of recommendations of key components that should be in a post-shelter support program for women. This presentation outlines the current findings and highlights the importance of participatory research. Implementing whole person care in the area of women’s homelessness requires both a comprehensive and individualized approach to help women and children secure home, health, and a sustainable future.

scholarly journals Implementing community-based participatory research among African Americans with serious and persistent mental illness: A qualitative study

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Lindsay Sheehan ◽  
Sonya Ballentine ◽  
Lorenzo Washington ◽  
Mark Canser ◽  
John Connor ◽  
...  
Keyword(s):  
Mental Illness ◽  
African Americans ◽  
Lived Experience ◽  
Participatory Research ◽  
Service Providers ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Research Participants ◽  
Persistent Mental Illness

Community-based participatory research (CBPR) is an approach that involves community members in research, not as research participants, but as partners. However, few studies have examined CBPR projects conducted among African Americans with serious and persistent mental illness (SPMI). This article focuses specifically on the Inspiring Change (IC) model, which includes a leadership trio comprised of an academic researcher, health service provider and an African American with lived experience of SPMI. Our purpose is to investigate how the IC model shapes not only how research is conducted but how research is understood and experienced by the community. We achieve this purpose by (1) describing an innovative CBPR model and pilot projects that involved African Americans with SPMI in all stages of the research project; and (2) presenting findings from qualitative interviews conducted with CBPR team members about strengths, challenges and leadership particular to this model of CBPR, an area rarely explored in CBPR literature. With the guidance of an advisory board and the manualised IC curriculum, two CBPR teams initiated and conducted nine-month long research projects focusing on health disparities for African Americans with SPMI. Members of the two CBPR teams (n = 13), which included individuals with lived experience, service providers and researchers, completed qualitative interviews. Benefits of CBPR projects included opportunities to learn, a sense of purpose in helping others and increased trust of research participants. Challenges pertained to disorganisation of leadership, lack of transparency with compensation, time pressures and interpersonal conflicts. These challenges highlight the importance of preparing and supporting those from both academic and lived experience backgrounds in skills necessary to thrive in leadership roles for CBPR projects.  

scholarly journals Community-based participatory health research: principles and practice

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
H Unger
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Health Research ◽  
Community Based Participatory Research ◽  
Active Role ◽  
Research Process ◽  
Community Based ◽  
Research Fields ◽  
Participatory Health Research ◽  
Trust And Reciprocity

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.

Partner development praxis: The use of transformative communication spaces in a community-academic participatory action research effort in a Mexican ethnic enclave in Chicago

2017 ◽  
Vol 16 (4) ◽  
pp. 414-436 ◽  
Author(s):  
Jennifer Hebert-Beirne ◽  
Jennifer K Felner ◽  
Joan Kennelly ◽  
Kamal Eldeirawi ◽  
Anna Mayer ◽  
...  
Keyword(s):  
Leadership Development ◽  
Participatory Research ◽  
Research Effort ◽  
Health Assessment ◽  
Community Based Participatory Research ◽  
Research Literature ◽  
Participatory Action ◽  
Community Members ◽  
Community Based ◽  
Transformative Communication

Trusting, productive relationships between traditionally discordant stakeholders—community members and researchers—are critical for successful Community-Based Participatory Research. Practical guidance on processes allowing for partner trust-building and collaborative leadership development in Community-Based Participatory Research literature lacks specificity. In this paper, we introduce our praxis of Transformative Communication Spaces to facilitate purposeful, iterative discourse that occurs in, and fuels each research phase. We elaborate on the use of Transformative Communication Spaces through Pláticas de Salud, Oral History Listening Events, and Data Analysis Think Tanks within the framework of our Little Village Participatory Community Health Assessment. We believe the integrity and potential of Community-Based Participatory Research is contingent on the use of Transformative Communication Spaces strategies to foster trusting partnerships necessary for shared learning and co-leadership.

scholarly journals Community - Based Participatory Research with Hispanic/Latino Leaders and Members

2015 ◽  
Author(s):  
Mary Amendola
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Health Seeking ◽  
Community Members ◽  
Interpretive Phenomenology ◽  
Community Based ◽  
Individual Interviews ◽  
Culturally Sensitive Interventions ◽  
Hispanic Latinos

Hispanic/Latinos (H/L) are being studied for healthcare disparities research utilizing community - based participatory research (CBPR). CBPR’s active participation of community members and researchers suggests improvement in community health. Yet there are no known studies that inductively investigated the lived experience of H/L community leaders and members with CBPR using interpretive phenomenology. Data were obtained from observations, field notes, biographical interviews, individual interviews and focus groups. The findings supported that community members wanted to collaborate with researchers utilizing the C BPR approach so that culturally sensitive interventions can be created to encourage health - seeking behaviors in their community.

Latina Sexual Health Care the US: Community-based Participatory Research and Her Lived Experience

2020 ◽  
Vol 32 (1-2) ◽  
pp. 76-96
Author(s):  
Angela L. Lamson ◽  
Rebekah J. Clark ◽  
Roberta W. Bellamy ◽  
Jennifer L. Hodgson ◽  
Sharon M. Knight ◽  
...  
Keyword(s):  
Health Care ◽  
Sexual Health ◽  
Lived Experience ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Sexual Health Care ◽  
The Us

Evaluation of a Community-Based Participatory Research Consortium From the Perspective of Academics and Community Service Providers Focused on Child Health and Well-Being

2011 ◽  
Vol 38 (3) ◽  
pp. 271-281 ◽  
Author(s):  
Jayne R. Pivik ◽  
Hillel Goelman
Keyword(s):  
Community Service ◽  
Participatory Research ◽  
Information Dissemination ◽  
Service Providers ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Community Based ◽  
Community Partners ◽  
Shared Commitment ◽  
Health And Well Being

A process evaluation of a consortium of academic researchers and community-based service providers focused on the health and well-being of children and families provides empirical and practice-based evidence of those factors important for community-based participatory research (CBPR). This study draws on quantitative ratings of 33 factors associated with CBPR as well as open-ended questions addressing the benefits, facilitators, barriers, and recommendations for collaboration. Eight distinct but related studies are represented by 10 academic and 9 community researchers. Even though contextual considerations were identified between the academic and community partners, in large part because of their focus, organizational mandate and particular expertise, key factors for facilitating collaboration were found across groups. Both community and academic partners reported the following as very important for positive collaborations: trust and mutual respect; adequate time; shared commitment, decision making, and goals; a memorandum of understanding or partnership agreement; clear communication; involvement of community partners in the interpretation of the data and information dissemination; and regular meetings. The results are compared to current models of collaboration across different contexts and highlight factors important for CBPR with community service providers.

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