scholarly journals Implementing community-based participatory research among African Americans with serious and persistent mental illness: A qualitative study

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Lindsay Sheehan ◽  
Sonya Ballentine ◽  
Lorenzo Washington ◽  
Mark Canser ◽  
John Connor ◽  
...  
Keyword(s):  
Mental Illness ◽  
African Americans ◽  
Lived Experience ◽  
Participatory Research ◽  
Service Providers ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Research Participants ◽  
Persistent Mental Illness

Community-based participatory research (CBPR) is an approach that involves community members in research, not as research participants, but as partners. However, few studies have examined CBPR projects conducted among African Americans with serious and persistent mental illness (SPMI). This article focuses specifically on the Inspiring Change (IC) model, which includes a leadership trio comprised of an academic researcher, health service provider and an African American with lived experience of SPMI. Our purpose is to investigate how the IC model shapes not only how research is conducted but how research is understood and experienced by the community. We achieve this purpose by (1) describing an innovative CBPR model and pilot projects that involved African Americans with SPMI in all stages of the research project; and (2) presenting findings from qualitative interviews conducted with CBPR team members about strengths, challenges and leadership particular to this model of CBPR, an area rarely explored in CBPR literature. With the guidance of an advisory board and the manualised IC curriculum, two CBPR teams initiated and conducted nine-month long research projects focusing on health disparities for African Americans with SPMI. Members of the two CBPR teams (n = 13), which included individuals with lived experience, service providers and researchers, completed qualitative interviews. Benefits of CBPR projects included opportunities to learn, a sense of purpose in helping others and increased trust of research participants. Challenges pertained to disorganisation of leadership, lack of transparency with compensation, time pressures and interpersonal conflicts. These challenges highlight the importance of preparing and supporting those from both academic and lived experience backgrounds in skills necessary to thrive in leadership roles for CBPR projects.  

scholarly journals Project Lotus: A really cool community-based initiative assisting women post-homelessness

2022 ◽  
Vol 9 (1) ◽  
pp. 12-13
Author(s):  
Karla Jacobsen ◽  
Laurence Roy ◽  
Sally Richmond ◽  
Isabelle Boutemeur ◽  
Eve De Macar ◽  
...  
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Service Providers ◽  
Virtual Community ◽  
Community Based Participatory Research ◽  
Research Literature ◽  
World Health ◽  
Community Based ◽  
Research Initiative ◽  
Individualized Approach

In Canada, recent conservative estimates report upwards of 235,000 individuals are homeless on a given night. Of those experiencing precarious housing situations, women make up approximately 30% and are among the most vulnerable. Their residential insecurity has been further exacerbated with the community and social restrictions of the COVID-19 pandemic. Existing resources that assist women experiencing homelessness or housing insecurity are often stretched to the limit dealing with emergency and crisis housing situations, with less focus on post-shelter supports. To address this issue, a community-based participatory research initiative ‘Project Lotus - Hope Together’ was established in Montreal. Grounded in the World Health Organization’s Commission on Social Determinants of Health Framework, the overarching goal of this research is to co-design a housing supports program for women leaving a shelter stay. We created a cross-sectorial Advisory Committee consisting of women with lived experiences of homelessness, service providers, community leaders, and researchers. To date, we have conducted preliminary research (literature review, interviews with women with lived experience of homelessness, stakeholder meetings) to identity what has assisted women through this transition, and what barriers exist. We have also held virtual community consultation meetings to discuss preliminary findings of recommendations of key components that should be in a post-shelter support program for women. This presentation outlines the current findings and highlights the importance of participatory research. Implementing whole person care in the area of women’s homelessness requires both a comprehensive and individualized approach to help women and children secure home, health, and a sustainable future.

scholarly journals Preventing cardiovascular disease: Participant perspectives of the FAITH! Program

2017 ◽  
Vol 24 (12) ◽  
pp. 1710-1723 ◽  
Author(s):  
LaPrincess C Brewer ◽  
Eleshia J Morrison ◽  
Joyce E Balls-Berry ◽  
Patrick Dean ◽  
Kandace Lackore ◽  
...  
Keyword(s):  
Cardiovascular Disease ◽  
African Americans ◽  
Participatory Research ◽  
Disease Risk ◽  
Cardiovascular Disease Risk ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Community Based Interventions ◽  
Community Based ◽  
Behavior Change Interventions

Striking cardiovascular health disparities exist among African-Americans in Minnesota compared to Whites; however, community-based interventions to address cardiovascular disease risk are lacking. This study explored participant perceptions of a culturally tailored, cardiovascular disease prevention program developed using a community-based participatory research process. Research participation perceptions, program benefits, and program satisfaction/acceptability were analyzed using a mixed-methods approach. Overall, acceptability was high. Findings highlight the favorable inclusion of African-Americans (research perception), knowledge gained about healthy lifestyle practices (benefits), and quality of the curriculum/speakers (satisfaction). Community-based participatory research may be useful in fostering the acceptability of behavior change interventions among marginalized African-American communities.

Innovating for Transformation in First Nations Health Using Community-Based Participatory Research

2018 ◽  
Vol 28 (7) ◽  
pp. 1036-1049 ◽  
Author(s):  
Grace Kyoon-Achan ◽  
Josée Lavoie ◽  
Kathi Avery Kinew ◽  
Wanda Phillips-Beck ◽  
Naser Ibrahim ◽  
...  
Keyword(s):  
First Nations ◽  
Participatory Research ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Study Data ◽  
Lessons Learned ◽  
Research Approach ◽  
Sustainable Change ◽  
Community Based ◽  
Participatory Research Approach

Community-based participatory research (CBPR) provides the opportunity to engage communities for sustainable change. We share a journey to transformation in our work with eight Manitoba First Nations seeking to improve the health of their communities and discuss lessons learned. The study used community-based participatory research approach for the conceptualization of the study, data collection, analysis, and knowledge translation. It was accomplished through a variety of methods, including qualitative interviews, administrative health data analyses, surveys, and case studies. Research relationships built on strong ethics and protocols to enhance mutual commitment to support community-driven transformation. Collaborative and respectful relationships are platforms for defining and strengthening community health care priorities. We further discuss how partnerships were forged to own and sustain innovations. This article contributes a blueprint for respectful CBPR. The outcome is a community-owned, widely recognized process that is sustainable while fulfilling researcher and funding obligations.

scholarly journals Community-based participatory health research: principles and practice

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
H Unger
Keyword(s):  
Lived Experience ◽  
Participatory Research ◽  
Health Research ◽  
Community Based Participatory Research ◽  
Active Role ◽  
Research Process ◽  
Community Based ◽  
Research Fields ◽  
Participatory Health Research ◽  
Trust And Reciprocity

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.

Participating With Pictures

2016 ◽  
Vol 47 (1) ◽  
pp. 86-108 ◽  
Author(s):  
Patricia Sullivan
Keyword(s):  
Public Health ◽  
Participatory Research ◽  
Technical Communication ◽  
Policy Research ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Design Work ◽  
Research Participants ◽  
Research Techniques ◽  
User Design

Image-based research conducted on and by research participants holds promise to extend participatory studies in technical communication by delivering research techniques that have been used for Policy Research in Public Health and other areas of participatory research (e.g., community-based participatory research). Even though they can expand policy (or even user design work), the use of participants’ images is not without challenges. The article discusses those challenges and suggests practices that stabilize the research logistically, relationally, and thematically; it also presents the approach as attractive for use in arenas that reward scrutiny even though they have traditionally been difficult to study.

scholarly journals Reach Out Churches: A Community-Based Participatory Research Pilot Trial to Assess the Feasibility of a Mobile Health Technology Intervention to Reduce Blood Pressure Among African Americans

2017 ◽  
Vol 19 (4) ◽  
pp. 495-505 ◽  
Author(s):  
Lesli E. Skolarus ◽  
Joan Cowdery ◽  
Mackenzie Dome ◽  
Sarah Bailey ◽  
Jonggyu Baek ◽  
...  
Keyword(s):  
Blood Pressure ◽  
African Americans ◽  
Participatory Research ◽  
Mobile Health ◽  
Pilot Trial ◽  
Community Based Participatory Research ◽  
Reduce Blood Pressure ◽  
Community Based ◽  
Innovative Strategies ◽  
Technology Intervention

Innovative strategies are needed to reduce the hypertension epidemic among African Americans. Reach Out was a faith-collaborative, mobile health, randomized, pilot intervention trial of four mobile health components to reduce high blood pressure (BP) compared to usual care. It was designed and tested within a community-based participatory research framework among African Americans recruited and randomized from churches in Flint, Michigan. The purpose of this pilot study was to assess the feasibility of the Reach Out processes. Feasibility was assessed by willingness to consent (acceptance of randomization), proportion of weeks participants texted their BP readings (intervention use), number lost to follow-up (retention), and responses to postintervention surveys and focus groups (acceptance of intervention). Of the 425 church members who underwent BP screening, 94 enrolled in the study and 73 (78%) completed the 6-month outcome assessment. Median age was 58 years, and 79% were women. Participants responded with their BPs on an average of 13.7 (SD = 10.7) weeks out of 26 weeks that the BP prompts were sent. All participants reported satisfaction with the intervention. Reach Out, a faith-collaborative, mobile health intervention was feasible. Further study of the efficacy of the intervention and additional mobile health strategies should be considered.

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