scholarly journals IMPACT OF THE QUALITY OF SPACE OF LEARNING ENVIRONMENT ON THE QUALITY OF LIFE OF AUTISTIC CHILDREN : Insights from three selected schools form Kandy, Sri Lanka

2021 ◽  
Author(s):  
K.W..H.K. Premathilake ◽  
◽  
A.A. Hettiarachchi ◽  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum ◽  
Design Parameters ◽  
Autistic Children ◽  
Local Schools ◽  
Quality Of Life Inventory ◽  
Photographic Survey ◽  
Special Education School ◽  
The Impact

Children with Autism Spectrum disorder (ASD)are found to struggle with diverse challenges in achieving quality of life in their education environments. In view of this the current investigation looked in to the impact of the quality of space in their learning environments in enhancing the Quality of life of Autistic children. Two types of school environments that accommodate students with ASD were examined namely, a special education school (A) and two mainstream schools with special educational units (B & C) in Kandy, considering 10 participants from each school (n=30). Inclusive design parameters were examined by a photographic survey and observations by the investigator and recorded via a 5-point Likert scale based on their level of presence. Pediatric Quality of Life Inventory (PedQL) was adopted to measure quality of life of participants. School A demonstrated the highest averages of for quality of space (65%) as well as quality of life ( 61.7%) while C ( 34%/48.3%) and B ( 30%/44.7%) showed lower averages respectively. Accordingly, the study observed a clear relationship between the Quality of Space and the Quality of Life of children with ASD, highlighting the potential of enhancing the quality of life of the students with ASD by improving the quality of space of local schools.

scholarly journals Quality of Life among Parents of Children with Autism Spectrum Disorder in Riyadh

2016 ◽  
Vol 4 (2) ◽  
pp. 76 ◽  
Author(s):  
Khaled Yousef Asi
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autistic Child ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Autistic Children ◽  
The Impact ◽  
The Relationship

<p>The current study aimed to identify the level of quality of life among parents of children with autism spectrum disorder and the differences according to the relationship with the autistic child, gender, severity of disability. The sample consisted of (100) parents of children with autism spectrum disorder, enrolled in the program of autism, intentionally selected in Riyadh, Saudi Arabia. Quality of life scale prepared and utilized by the author after verification of validity and reliability. The results showed that the level of quality of life among the participants was medium, and the results showed statistically significant differences in the level of quality of life among the participants due to the impact of the relationship with autistic children, where differences were in favor of the parents, and the variable of gender of the autistic child, where differences were in favor of the males, and severity of the disability, where the differences were in favor of the mild group. The study recommended the need to draw the attention of officials in the care and service centers for children with autism spectrum to provide training programs and activities for parents of autistic children to raise the level of quality of life, especially mothers.</p>

scholarly journals The Impact of Schizotypy on Quality of Life Among Adults with Autism Spectrum Disorder

2021 ◽  
Author(s):  
Albin Klang ◽  
Britta Westerberg ◽  
Mats B. Humble ◽  
Susanne Bejerot
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autistic Traits ◽  
Poor Quality ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Anxiety And Depression ◽  
Schizotypal Personality ◽  
The Impact

Abstract Background: Autism spectrum disorder (ASD) and schizotypal personality disorder can be difficult to distinguish. Deficits in social relationships and social interaction, present in both conditions, are known to impair quality of life. The aim of the present study was to investigate if schizotypal symptoms affect quality of life among adults diagnosed with autism spectrum disorder and to study the association between schizotypy and autistic traits among them. Methods: Participants diagnosed with autism spectrum disorder (n=110) completed questionnaires exploring schizotypy (Schizotypal Personality Questionnaire – Brief Revised (SPQ-BR)), autistic traits (The Ritvo Autism, Asperger Diagnostic Scale-Revised Screen 14 items), anxiety and depression (The Hospital Anxiety and Depression scale) and quality of life (Brunnsviken Brief Quality of Life Scale and the European quality of life index version 5D). Results: Schizotypy was found to be associated with anxiety, depressive and autistic symptoms, and poor quality of life. Although schizotypy was a predictor for impaired quality of life, this relationship was mediated by symptoms of anxiety and depression, plausibly inherent to autism. Autistic traits were positively associated with all higher order constructs of the SPQ-BR, i.e. positive and negative schizotypy, disorganization and social anxiety, as well as with poor quality of life. Conclusions: There is considerable overlap between schizotypy and autism that needs to be considered in research. Prominent schizotypal traits in people with ASD may constitute an endophenotype coinciding with a particularly poor quality of life.

The Impact of Knee Injury History on Health-Related Quality of Life in Adolescent Athletes

2019 ◽  
Vol 28 (2) ◽  
pp. 115-119 ◽  
Author(s):  
Kenneth C. Lam ◽  
Jessica G. Markbreiter
Keyword(s):  
Quality Of Life ◽  
Knee Injury ◽  
International Knee Documentation Committee ◽  
Adolescent Athletes ◽  
Quality Of Life Inventory ◽  
Full Participation ◽  
Related Quality ◽  
The Impact ◽  
Life Inventory

Context: Current evidence suggests that, despite returning to full participation, physically active adults with a previous knee injury experience lower health-related quality of life (HRQOL) than those with no knee injury history. It is unknown if this relationship is present in adolescent athletes. Objective: To determine the impact of knee injury history on HRQOL in adolescent athletes who were medically cleared for full participation. Design: Cross-sectional. Setting: Athletic training clinics. Participants: A convenience sample of 183 adolescent athletes, who were medically cleared for full participation, were grouped by self-report of a previous knee injury: positive knee injury history (HIS; n = 36, age = 15.7 [1.4] y, height = 168.0 [11.9] cm, and weight = 71.8 [11.9] kg) and no knee injury history (NO-HIS; n = 147, age = 15.5 [1.4] y, height = 166.0 [10.5] cm, and weight = 67.6 [14.6] kg). Interventions: Participants completed the Pediatric International Knee Documentation Committee form and Pediatric Quality of Life Inventory during their preparticipation examination. Main Outcome Measures: Generalized linear models were used to compare group differences for the total and subscale scores of the Pediatric International Knee Documentation Committee and Pediatric Quality of Life Inventory. Results: Main effects of injury group indicated that the HIS group reported significantly lower scores than the NO-HIS group for the Pediatric International Knee Documentation Committee total score (P < .001; HIS = 79.2 [21.7], NO-HIS = 95.8 [8.6]) and for the Pediatric Quality of Life Inventory total (P = .001; HIS = 85.7 [10.9], NO-HIS = 90.9 [7.3]), physical functioning (P = .002; HIS = 86.7 [13.6], NO-HIS = 92.1 [8.2]), school functioning (P = .01; HIS = 80.6 [12.4], NO-HIS = 86.8 [12.2]), and social functioning (P = .01; HIS = 89.3 [12.4], NO-HIS = 94.6 [8.9]) scores. No group differences were reported for the emotional functioning subscale (P = .13; HIS = 85.7 [17.7], NO-HIS = 89.7 [13.1]). No interactions or main effects of sex were reported (P > .05). Conclusions: Our findings suggest that, despite returning to full sport participation, adolescent athletes with a previous knee injury generally experience lower HRQOL than their peers with no knee injury history, specifically for knee-specific HRQOL, physical functioning, school functioning, and social functioning. Our results are similar to previous findings reported in college athletes and military cadets.

scholarly journals Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families

Autism ◽  
2021 ◽  
pp. 136236132110337
Author(s):  
Jane Goodwin ◽  
Priyanka Rob ◽  
Mark Freeston ◽  
Deborah Garland ◽  
Victoria Grahame ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Thematic Analysis ◽  
Intolerance Of Uncertainty ◽  
Well Being ◽  
Anxiety Reduction ◽  
Autistic Children ◽  
Structured Interviews ◽  
Daily Lives ◽  
The Impact

Approximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and their families. Semi-structured interviews were conducted with parents and caregivers of 53 autistic children (including 3 dyads) aged 6–16 years to elicit examples of uncertain situations that the children found challenging and to explore the impact of these situations on family life. Thematic analysis revealed five overarching themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. These findings provide a crucial understanding into the range of uncertain situations autistic children with anxiety experience. Anxiety-reduction approaches based on increasing tolerance to everyday uncertain situations could help improve well-being, quality of life and participation for autistic children and their families. Lay abstract Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children’s ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families.

scholarly journals Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

2015 ◽  
Vol 120 (4) ◽  
pp. 289-301 ◽  
Author(s):  
Michelle A. Viecili ◽  
Jonathan A. Weiss
Keyword(s):  
Quality Of Life ◽  
Developmental Disabilities ◽  
Psychosocial Functioning ◽  
Factor Model ◽  
Reliability And Validity ◽  
Autism Spectrum ◽  
Intellectual And Developmental Disabilities ◽  
Quality Of Life Inventory ◽  
Life Inventory

Abstract The Pediatric Quality of Life Inventory (PedsQL) measures health-related quality of life, a growing area of research, particularly among individuals with disabilities. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure that those needs are being met. The current study assessed the reliability and validity of the PedsQL in individuals with intellectual and developmental disabilities, including individuals with autism spectrum disorder. Participants included 359 caregivers of children, youth, and young adults with IDD. Caregivers completed the PedsQL 4.0 Generic Core Scales questions regarding the individual's physical health and the Strengths and Difficulties Questionnaire. The PedsQL achieved excellent reliability across scales, and distinguished healthy individuals from those with chronic health conditions, as well as individuals with ASD from those without. Factor analysis confirmed a 5-factor model, with moderate to high criterion validity. The PedsQL shows sound psychometric properties and may be a useful tool to measure psychosocial functioning in this population.

Decreased Quality of Life in Children With Anomalous Aortic Origin of a Coronary Artery

2021 ◽  
Vol 12 (2) ◽  
pp. 204-210
Author(s):  
Hitesh Agrawal ◽  
Carlos M. Mery ◽  
Sarah A. Sami ◽  
Athar M. Qureshi ◽  
Cory V. Noel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Coronary Artery ◽  
Family Impact ◽  
Living Situation ◽  
Quality Of Life Inventory ◽  
Patient Reported ◽  
The Impact ◽  
Parent Proxy ◽  
Life Inventory

Background: Anomalous aortic origin of a coronary artery (AAOCA) is associated with sudden death in the young. We sought to determine quality of life (QOL) in patients/families affected by AAOCA. Methods: Patients with AAOCA (8-18 years) were prospectively included from January 2016 to May 2017. Parent proxy and patient Pediatric Cardiac Quality of Life Inventory (PCQLI) were used to evaluate QOL and Pediatric Quality of Life Inventory (PedsQL) Family Impact Module to assess the impact of AAOCA on families, as primary outcomes. Secondary outcomes included peer relationship, anxiety, and depression assessed using patient-reported outcomes measurement information system. Patients deemed high-risk were offered surgery/exercise restriction. Generalized linear mixed regression models were used to determine significant predictors of outcomes. Results: Fifty-three patients, the majority (n = 31, 59%) unrepaired, and 49 caregivers were included. Using PCQLI, patient and parent proxy QOL scores were similar to published scores for children with long-QT syndrome. Patients’ QOL score was associated with exertional symptoms, perceived chronic disease, and altered parent’s concentration ability. Likewise, parent proxy QOL scores were associated with mother’s living situation, exertional symptoms, parent missing work for ≥1 day, and disturbed parental functioning at work. Family impact scores were associated with lower maternal education, among other measures. Risk categories or surgical status did not impact patient, parent proxy reported, or family impact QOL. Conclusion: Anomalous aortic origin of a coronary artery is associated with decreased QOL as perceived by patients and caregiver and is associated with numerous facets of family functioning. These findings are independent of risk categorization or surgical status.

scholarly journals QUALITY OF LIFE OF CHILDREN IN NEED OF PALLIATIVE CARE, IN CONDITIONS OF INSTITUTIONS FOR ORPHANS AND CHILDREN LEFT WITHOUT PARENTAL CARE

2019 ◽  
Vol 20 (1) ◽  
pp. 35-39
Author(s):  
I. V. Vinyarskaya ◽  
N. N. Savva ◽  
N. V. Ustinova ◽  
O. V. Krasko ◽  
V. V. Chernikov ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Parental Care ◽  
Russian Language ◽  
Severe Condition ◽  
Language Version ◽  
Quality Of Life Inventory ◽  
The Impact ◽  
Life Inventory

The improvement of the quality of life (QL) of the child is the main goal of palliative care (PC). However, studies on the assessment of QL of the given contingent is not enough, especially for the children being in conditions of institutions for orphans and children left without parental care. There were studied the QL of 409 children, out of whom 113 being in need of PC were held at four centers for the promotion to the family education in Moscow. Pediatric Quality of Life Inventory - PedsQLтм4.0. The questionnaire survey was executed with the use of the Russian-language version of the international questionnaire for the assessment of QL «Pediatric Quality of Life Inventory - PedsQLtm4.0». There were established very low values of as the overall QL of children in need of palliative care, which are being in conditions of institutions for orphans and children left without parental care, as for all its compartments. The severe condition of the child that requires the provision of PC was established to decline the influence of gender, age, nosological, social factors on QL. There was detected only the impact of rehabilitation potential on the QL indices.

Sign in / Sign up

Export Citation Format

Share Document