scholarly journals Family-Centered Care at Pediatric Cardiac Intensive Care Units in Germany and the Relationship With Parent and Infant Well-Being: A Study Protocol

2021 ◽  
Vol 9 ◽  
Author(s):  
Hannah Ferentzi ◽  
Ralph C. A. Rippe ◽  
Jos M. Latour ◽  
Stephan Schubert ◽  
Alona Girch ◽  
...  
Keyword(s):  
Intensive Care ◽  
Study Protocol ◽  
Pediatric Cardiology ◽  
Well Being ◽  
Infant Outcomes ◽  
Centered Care ◽  
Cardiac Intensive Care ◽  
Mental Well Being ◽  
The Relationship ◽  
Family Centered

Rationale and Aim: Infants with Congenital Heart Disease (CHD) are at risk for neurodevelopmental delays, emotional, social and behavioral difficulties. Hospitalization early in life and associated stressors may contribute to these challenges. Family-centered Care (FCC) is a health care approach that is respectful of and responsive to the needs and values of a family and has shown to be effective in improving health outcomes of premature infants, as well as the mental well-being of their parents. However, there is limited empirical data available on FCC practices in pediatric cardiology and associations with parent and infant outcomes.Methods and Analysis: In this cross-sectional study, we will explore FCC practices at two pediatric cardiac intensive care units in Germany, assess parent satisfaction with FCC, and investigate associations with parental mental well-being and parenting stress, as well as infant physical and mental well-being. We will collect data of 280 infants with CHD and their families. Data will be analyzed using multivariate statistics and multilevel modeling.Implications and Dissemination: The study protocol was approved by the medical ethics committees of both partner sites and registered with the German registry for clinical trials (NR DRKS00023964). This study serves as a first step to investigate FCC practices in a pediatric cardiology setting, providing insight into the relationship between FCC and parent and infant outcomes in a population of infants with CHD. Results will be disseminated in peer-reviewed journals.

scholarly journals The First Successful Implementation of Family-Centered Health Care in Pediatric Intensive Care Unit in Republic of Kazakhstan (Report)

2019 ◽  
Vol 15 (6) ◽  
pp. 21-25 ◽  
Author(s):  
Askhat I. Saparov ◽  
Vitaly G. Sazonov ◽  
Zaure S. Tobylbaeva ◽  
Gauhar B. Karina ◽  
Mikhail N. Kurochkin ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
European Association ◽  
Pediatric Intensive Care ◽  
Well Being ◽  
Successful Implementation ◽  
Active Patient ◽  
Centered Care ◽  
The Right ◽  
Family Centered

The Leiden Charter for Children in Hospital states that children in hospital shall have the right to have their parents or parent substitute with them at all times (European Association for Children in Hospital (EACH) 1988).In this report, the technology chain for the implementation of the patient's parent/guardian resident stay model (RSM) in pediatric anesthesiology, resuscitation and intensive care unit (PARICU) was presented.The aim of the report was to share the experience in improving patient safety and transparency of intensive care and introducing the active patient care through a «double control». The implementation of RSM has contributed to building a trustful interaction between parents/guardians and medical staff, developing skills for the proper care of children.The 24-hour family-centered care in PARICU was favorably evaluated by parents/guardians and, according to preliminary data, helped to stabilize the condition and improve the well-being of patients.

scholarly journals Nurses' Perception of Family-Centered Care in Neonatal Intensive Care Units

2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh
Keyword(s):  
Intensive Care ◽  
Data Analysis ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Family Centered Care ◽  
Face To Face ◽  
Centered Care ◽  
Conventional Content Analysis ◽  
Family Centered

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.

Family-Centered Care

PEDIATRICS ◽  
1994 ◽  
Vol 93 (6) ◽  
pp. 1023-1024
Author(s):  
Robert D. Cunningham
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
State Government ◽  
Neonatal Intensive Care ◽  
Developmental Outcomes ◽  
Third Parties ◽  
Adverse Impact ◽  
Centered Care ◽  
Family Centered

I read "The Principles for Family-Centered Neonatal Care" with great interest. As a physician who has worked in a state government-operated neonatal intensive care unit follow-up clinic, I agree wholeheartedly with the principle of open and honest communication between parents and professionals, especially regarding poor developmental outcomes. Unfortunately, physicians, despite their own feelings about this issue, may come under pressure from third parties to withhold certain information from families. In my own experiences, I have been drawn aside in private conversations and told that if I continue to tell parents that their child is mentally retarded or has cerebral palsy, it might have an adverse impact on my career.

Implementing Potentially Better Practices for Improving Family-Centered Care in Neonatal Intensive Care Units: Successes and Challenges

PEDIATRICS ◽  
2003 ◽  
Vol 111 (Supplement_E1) ◽  
pp. e450-e460
Author(s):  
Kimberly A. Cisneros Moore ◽  
Kara Coker ◽  
Allison B. DuBuisson ◽  
Betsy Swett ◽  
William H. Edwards
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Family Centered Care ◽  
Improvement Project ◽  
Centered Care ◽  
Successes And Challenges ◽  
Unit Culture ◽  
Family Centered

Objective. Multidisciplinary teams from 11 medical center neonatal intensive care units collaborated in a quality improvement project with a focus on family-centered care. Methods. Through a process of self-analysis, literature review, benchmarking site visits, and expert consultation, 10 potentially better practice (PBP) areas were defined. Improvement activities in 4 of the 10 areas are given as examples of successes and challenges that individual centers encountered. The 4 areas are vision and philosophy, unit culture, family participation in care, and families as advisors. Results. Centers were at different places for all of the PBPs at the beginning and throughout the collaboration. Seven centers developed or revised their vision or philosophy of care statements about family-centered care. Incorporating the vision and philosophy of care into performance appraisals, hiring of new personnel, and changing unit culture to a more family-centered practice were more challenging than developing the statements. Full parent participation in care requires unrestricted access to the neonatal intensive care unit. The shift from considering parents to be “visitors” to being partners in caring for their child was more difficult for centers with restricted visitation policies. All centers developed, expanded, or started plans for establishing family advisory councils. The experience of 2 centers is described. Conclusions. Family-centered care is more of a journey than a destination. Collaborating centers in this project found themselves at different places in that journey. Through perseverance in implementing the PBPs, all have moved further along the path.

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