scholarly journals We All Have a Role to Play: Redressing Inequities for Children Living with CAH and Other Chronic Health Conditions of Childhood in Resource-Poor Settings

2020 ◽  
Vol 6 (4) ◽  
pp. 76
Author(s):  
Kate Armstrong ◽  
Alain Benedict Yap ◽  
Sioksoan Chan-Cua ◽  
Maria E. Craig ◽  
Catherine Cole ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Support Groups ◽  
Chronic Health Conditions ◽  
Essential Medicines ◽  
Asia Pacific ◽  
Health Conditions ◽  
Chronic Health ◽  
Knowledge To Action ◽  
Resource Poor

CLAN (Caring and Living as Neighbours) is an Australian-based non-governmental organisation (NGO) committed to equity for children living with chronic health conditions in resource-poor settings. Since 2004, CLAN has collaborated with a broad range of partners across the Asia Pacific region to improve quality of life for children living with congenital adrenal hyperplasia (CAH). This exploratory case study uses the Knowledge to Action (KTA) framework to analyse CLAN’s activities for children living with CAH in the Asia Pacific. The seven stages of the KTA action cycle inform a systematic examination of comprehensive, collaborative, sustained actions to address a complex health challenge. The KTA framework demonstrates the “how” of CLAN’s approach to knowledge creation and exchange, and the centrality of community development to multisectoral collaborative action across a range of conditions, cultures and countries to redressing child health inequities. This includes a commitment to: affordable access to essential medicines and equipment; education, research and advocacy; optimisation of medical management; encouragement of family support groups; efforts to reduce financial burdens; and ethical, transparent program management as critical components of success. Improvements in quality of life and health outcomes are achievable for children living with CAH and other chronic health conditions in resource-poor settings. CLAN’s strategic framework for action offers a model for those committed to #LeaveNoChildBehind.

scholarly journals Chronic health conditions related to quality of life for federal civil servants

2015 ◽  
Vol 36 (2) ◽  
pp. 35-41 ◽  
Author(s):  
Luciana Eduardo Fernandes Saraiva ◽  
Lays Pinheiro de Medeiros ◽  
Marjorie Dantas Medeiros Melo ◽  
Manuela Pinto Tiburcio ◽  
Isabelle Katherinne Fernandes Costa ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Conditions ◽  
Civil Servant ◽  
Civil Servants ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health ◽  
Daily Work ◽  
Work And Life

OBJECTIVE: The aim of this study is to correlate the QOL domains of the civil servants to the type and number of chronic health conditions. METHOD: A transversal, quantitative study, conducted at the Department of Civil Servant Assistance of the Federal University of Rio Grande do Norte with 215 civil servants, during the period from March to May 2011. RESULTS: Among the chronic health conditions studied, there was significant relationship between non-communicable chronic disease and QOL scores, correlating weakly (r <-376; p <0.008) in the other fields. It was found that the greater the number of chronic conditions, the lower the values on the QOL scale. CONCLUSION: The quality of life of civil servants is negatively influenced by chronic health conditions, compromising, in general, their daily work and life activities.

scholarly journals Impact of the most frequent chronic health conditions on the quality of life among people aged >15 years in Madrid

2009 ◽  
Vol 20 (1) ◽  
pp. 78-84 ◽  
Author(s):  
M. E. y. Pena ◽  
R. J. Garcia ◽  
J. M. D. Olalla ◽  
E. V. Llanos ◽  
A. G. de Miguel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health

Modifiable Risk Factors for Neurocognitive and Psychosocial Problems After Hodgkin Lymphoma

Blood ◽  
2021 ◽  
Author(s):  
AnnaLynn M Williams ◽  
Sedigheh Mirzaei Salehabadi ◽  
Mengqi Xing ◽  
Nicholas Steve Phillips ◽  
Matthew Ehrhardt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hodgkin Lymphoma ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Cross Sectional ◽  
Chronic Health ◽  
Modifiable Factors ◽  
Task Efficiency

Long-term survivors of childhood Hodgkin lymphoma (HL) experience high burden of chronic health morbidities. Correlates of neurocognitive and psychosocial morbidity have not been well established. 1,760 survivors of HL (mean[SD] age 37.5[6.0] years, time since diagnosis 23.6[4.7] years, 52.1% female) and 3,180 siblings (age 33.2[8.5] years, 54.5% female) completed cross-sectional surveys assessing neurocognitive function, emotional distress, quality of life, social attainment, smoking, and physical activity. Treatment exposures were abstracted from medical records. Chronic health conditions were graded according to NCI CTCAE v4.3 (1=mild, 2=moderate, 3=severe/disabling, 4=life-threatening). Multivariable analyses, adjusted for age, sex, and race, estimated relative risk (RR) of impairment in survivors vs. siblings and, among survivors, risk of impairment associated with demographic, clinical, treatment factors and grade 2+ chronic health conditions. Compared with siblings, survivors had significant higher risk (p's&lt;0.05) of neurocognitive impairment (e.g. memory 8.1% vs. 5.7%), anxiety (7.0%%vs. 5.4%),depression (9.1% vs. 7%), unemployment (9.6% vs. 4.4%), and impaired physical/mental quality of life (e.g. physical function 11.2% vs. 3.0%). Smoking was associated with higher risk of impairment in task efficiency (RR=1.56[1.02-2.39]), emotional regulation (RR=1.84[1.35-2.49]), anxiety (RR=2.43[1.51-3.93]), and depression (RR=2.73[1.85-4.04]). Meeting CDC exercise guidelines was associated with lower risk of impairment in task efficiency (RR=0.70[0.52-0.95]), organization (RR=0.60[0.45-0.80]), depression (RR=0.66[0.48-0.92]), and multiple quality of life domains. Cardiovascular and neurologic conditions were associated with impairment in nearly all domains. Survivors of HL are at elevated risk for neurocognitive and psychosocial impairment, and risk is associated with modifiable factors that provide targets for interventions to improve long-term functional outcomes.

scholarly journals Quality of Life and Self-Determination: Youth with Chronic Health Conditions Make the Connection

2015 ◽  
Vol 11 (2) ◽  
pp. 571-599 ◽  
Author(s):  
Janette McDougall ◽  
Patricia Baldwin ◽  
Jan Evans ◽  
Megan Nichols ◽  
Nicole Etherington ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Health Conditions ◽  
Self Determination ◽  
Health Conditions ◽  
Chronic Health

Impact of Perceived Health Competence on the Quality of Life of Emerging Adults With Chronic Health Conditions

2020 ◽  
pp. 216769682093864
Author(s):  
Amy C. Lang ◽  
Rachel N. Greenley ◽  
W. Hobart Davies
Keyword(s):  
Quality Of Life ◽  
Emerging Adults ◽  
Perceived Health ◽  
Chronic Health Conditions ◽  
Transitional Period ◽  
Health Conditions ◽  
Chronic Health ◽  
Health Competence ◽  
Perceived Health Competence

Emerging adults with chronic health conditions (CHCs) face additional challenges compared to their peers during this transitional period, which can exacerbate their symptoms and negatively impact their quality of life (QoL). This study assessed the impact of CHC status and the potential protective factor of perceived health competence (PHC) on QoL. Nine hundred twenty-nine emerging adults, aged 18–25 years ( M age = 22.19, SD = 1.95; 55% female), participated in the current study as part of a larger online survey. Results showed that those with a CHC reported significantly lower QoL than those without a CHC. Additionally, higher PHC was associated with higher QoL for both groups of emerging adults. Although the current study identified some factors that may differentially impact this positive association, the results consistently suggest that promotion of emerging adults’ PHC may play a key role in improving their QoL during this transitional period, regardless of CHC status.

scholarly journals Three-year trajectories of global perceived quality of life for youth with chronic health conditions

2016 ◽  
Vol 25 (12) ◽  
pp. 3157-3171 ◽  
Author(s):  
Janette McDougall ◽  
David J. DeWit ◽  
Megan Nichols ◽  
Linda Miller ◽  
F. Virginia Wright
Keyword(s):  
Quality Of Life ◽  
Perceived Quality ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Chronic Health ◽  
Perceived Quality Of Life
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