scholarly journals Successful Implementation of Newborn Screening for Hemoglobin Disorders in the Philippines

2021 ◽  
Vol 7 (2) ◽  
pp. 30
Author(s):  
Carmencita D. Padilla ◽  
Bradford L. Therrell ◽  
Maria Melanie Liberty B. Alcausin ◽  
Reynaldo C. de Castro ◽  
Maria Beatriz P. Gepte ◽  
...  

The Philippine newborn bloodspot screening (NBS) program began in 1996 with 24 hospitals and was formalized by legislation in 2004. The NBS panel was recently expanded to include a number of additional hereditary congenital conditions. Expertise and experiences from other NBS programs already screening for hemoglobinopathies were essential to its successful integration into the ongoing dried bloodspot NBS program in the Philippines. Building on clinical experiences and population data from Filipinos born in California, USA, hemoglobinopathies (including thalassemias) were selected for inclusion in the expanded screening panel. Hemoglobinopathy NBS, using high performance liquid chromatography, was implemented in a stepwise manner into the seven regional NBS screening laboratories. A central university laboratory provides confirmatory testing using both capillary electrophoresis and molecular methodologies. NBS results indicating carriers are followed up with educational fact sheets, while results of presumptive disease are referred for confirmatory testing and follow-up with a hematologist. Long-term care is provided through newborn screening continuity clinics across the country. Hemoglobinopathy NBS is now included in the national insurance package and screening uptake continues to increase nationally, exceeding 90% of all newborns in 7400+ hospitals and birthing centers nationwide prior to the COVID-19 pandemic.

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 755-755
Author(s):  
Gloria Gutman ◽  
Avantika Vashisht ◽  
Taranjot Kaur ◽  
Ryan Churchill ◽  
Amir Moztarzadeh ◽  
...  

Abstract MindfulGarden (MG) is a digital device resembling a flat screen TV, with touchless sensors that react to voice and motion. In this study 13 long-term care home residents aged 74-100 exhibiting Behavioural and Psychological Symptoms of Dementia (BPSD) were randomized to treatment and control groups. On days 1-3 the treatment group received usual care plus exposure to MG during morning and evening care - events well documented to be problematic for residents and care staff; controls received usual care only. On day 4 both groups were exposed to MG with verbal cueing. A 26-item checklist was used to record frequency and types of disruptive BPSD exhibited; care duration was recorded in minutes. There was a trend toward reduction of BPSD and duration of care during morning care. Findings suggest that verbal cueing may be important for successful implementation of MG in calming residents with dementia during routine care.


2017 ◽  
Vol 48 (1) ◽  
pp. 128-147 ◽  
Author(s):  
Mårten Lagergren ◽  
Noriko Kurube ◽  
Yasuhiko Saito

Population aging is expected to increase long-term care (LTC) costs in both Japan and Sweden. This study projected LTC costs for 2010 through 2040 for different assumptions of population change, LTC need by age group and gender, and LTC provided per level of need and cost in Japan and Sweden. Population data were taken from the official national forecasts. Needs projections were based on epidemiological data from the Nihon University Japanese Longitudinal Study of Aging and the Swedish Survey of Living Conditions. Data on LTC provision by need and cost were taken from nine Japanese municipalities collected by assessments in the LTC insurance system and from surveys in eight Swedish municipalities. Total initial costs were calibrated to official national figures. Two projections based on two different scenarios were made for each country from 2010 to 2040. The first scenario assumed a constant level of need for LTC by age group and gender, and the other assumed a continuation of the present LTC need trends until 2025. For Japan, this resulted in a projected cost increase of 93% for the one and 80% for the other; for Sweden it was 52% and 24%, respectively. The results reflected differences in population aging and health development.


1996 ◽  
Vol 17 (1) ◽  
pp. 46-59 ◽  
Author(s):  
GARY R. LEE ◽  
JEFFREY W. DWYER

Several recent studies have concluded that coresidence between aging parents and their adult children is caused by the children's dependency needs, whereas parental characteristics are irrelevant. We argue that these studies are based on samples that contain insufficient proportions of elderly parents who possess the characteristics that eventuate in coresidence. Such elders, however, represent a large and important segment of the elderly population. Data from the National Long-Term Care Survey, a sample of Medicare beneficiaries, indicate that the probability of coresiding with children is elevated by parents' advanced age, failing health, and absence of a spouse. At the same time, children's characteristics (marital status and employment status) are also important predictors of coresidence.


2021 ◽  
Author(s):  
Juliet Gillam ◽  
Nathan Davies ◽  
Jesutofunmi Aworinde ◽  
Emel Yorganci ◽  
Janet E Anderson ◽  
...  

BACKGROUND As dementia progresses, symptoms and concerns increase causing considerable distress for the person and caregivers. Integration of care between care homes and healthcare services is vital to meet increasing care needs and maintain quality of life. However, access to high-quality healthcare is inequitable. eHealth offers a potential solution, by supporting remote specialist input on care processes like clinical assessment and decision-making, and streamlining care on site. How best to implement eHealth in the care home setting is unclear. OBJECTIVE This review aimed to identify key factors that influence implementation of eHealth for people living with dementia in long-term care. METHODS A systematic search of EMBASE, PsychInfo, MEDLINE and CINHAL was conducted to identify studies published between 2000-2020. Studies were eligible if they focused on eHealth interventions to improve treatment and care assessment or decision-making for residents with dementia in care homes. Data were thematically analysed and deductively mapped onto the six constructs of the adapted Consolidated Framework for Implementation Research (CFIR). Results are presented as a narrative synthesis. RESULTS 29 studies were included, focusing on a variety of eHealth interventions including remote video-consultations and clinical decision support tools. Key factors which influenced eHealth implementation were identified across all six constructs of the CFIR. Most concerned the Inner Setting construct about requirements for implementation in the care home, such as providing a conducive learning climate, engaged leadership and sufficient training and resources. Four novel subconstructs were identified to inform implementation requirements to meet resident needs and engage end-users. CONCLUSIONS Implementing eHealth in care homes for people with dementia is multi-factorial and complex, involving interaction between the resident, staff and organisation. Application of the CFIR for care homes requires an emphasis on the needs of residents and the engagement of end users in the implementation process. A novel conceptual model of the key factors was developed, and translated into 18 practical recommendations on implementation of eHealth in long-term care to guide implementers or innovators in care homes. The policy imperative for integrated health and social care demands successful implementation of eHealth, to maximise uptake and drive improvements.


1993 ◽  
Vol 6 (3) ◽  
pp. 5-10 ◽  
Author(s):  
Erika M. Arndt ◽  
Kay F. Duchemin

This paper illustrates the importance of giving emotional support and education to patients, families, staff and managers at The Queen Elizabeth Hospital, Toronto during the spring 1992 downsizing effort. The Queen Elizabeth Hospital is a 601-bed, two-site facility which provides complex specialized rehabilitative and supportive care, teaching and research, as well as specialty programs in rehabilitation, geriatric service, geriatric psychiatry and long-term care. Downsizing at The Queen Elizabeth Hospital meant the consolidation and closure of 82 long-term beds, on one nursing unit at each site, to offset a projected budget deficit of $5.4 million. Internal restraint over the past year and during the budget process reduced this deficit to $2.8 million, thus necessitating further downsizing consideration. Background information includes a review of the recent downsizing literature. This paper describes the informal and formalized support activities that took place during the two-month process and the educational sessions that were provided on a regular basis. It gives specific attention to methodology and rationale. The authors also make recommendations for the successful implementation of a downsizing process which can be beneficial to any health care setting involved in bed closure.


2016 ◽  
Vol 7 (2) ◽  
pp. 113
Author(s):  
Rita Pawestri Setyaningsih

Taiwan’s ageing population has boosted the high rate of demand for caretakers. Many caretakers came from Southeast Asian countries such as the Philippines, Vietnam, Thailand, and Indonesia. Since 2005 Indonesian Workers have dominated the market share of the welfare sector. However in 2015 the Indonesian government launched a zero-maid policy, in order to terminate the sending of unskilled workers. The other goal is to provide better protection for migrant workers abroad. Taiwan becomes one of the targets of this policy. In fact, this policy will certainly create great impact on the supply of labor in the welfare sector in the future. Moreover, Taiwan has launched a national ten-year long-term care. So, how the Taiwanese government respond to this policy? Will the Indonesian workers’ shalt position be replaced by other Southeast Asian workers? This article aims firstly, to understand the position of migrant workers among other foreign workers working in the welfare sector in Taiwan. Secondly, to understand the Taiwan government’s efforts in response to the Indonesian government’s plan. This study uses literature study and interviews. This issue will be analyzed using economic and social approaches. The data used are from the range of 1992 to 2015.Keywords: ageing society, Taiwan, Indonesian workers, employment policyAbstrakPenuaan penduduk Taiwan mendorong tingginya laju permintaan akan tenaga perawat. Selama ini tenaga perawat didatangkan dari negara-negara Asia Tenggara, seperti Filipina, Vietnam, Thailand, dan Indonesia. Sejak 2005 Tenaga Kerja Indonesia (TKI) mendominasi pangsa pasar sektor kesejahteraan sosial. Namun di tahun 2015, Pemerintah Indonesia mencanangkan zero-maid policy, yaitu penghentian pengiriman TKI tidak terampil. Tujuannya tidak lain adalah untuk memberikan perlindungan yang lebih besar bagi TKI di luar negeri. Taiwan menjadi salah satu target dari kebijakan ini. Kebijakan ini tentu akan berdampak pada ketersediaan tenaga kerja pada sektor kesejahteraan sosial di Taiwan di masa depan. Apalagi Taiwan sudah mencanangkan national ten-year long-term care. Lantas, bagaimana respon pemerintah Taiwan terhadap kebijakan ini? akanlah TKI digantikan posisinya oleh TKA lainnya? Artikel ini bertujuan untuk pertama, memahami posisi TKI di antara tenaga kerja asing lainnya yang bekerja di sektor informal di Taiwan. Kedua, memahami upaya pemerintah Taiwan dalam menanggapi rencana pemerintah Indonesia tersebut. Studi ini menggunakan studi literatur dan wawancara. Persoalan ini akan dianalisis dengan menggunakan pendekatan ekonomi dan sosial. Data yang digunakan adalah data sekunder dari tahun 1992 hingga 2015.Kata kunci: ageing society, Taiwan, TKI, kebijakan ketenagakerjaan


Author(s):  
Zhanlian Feng ◽  
Elena Glinskaya

Globally, aging populations are driving the demand for long-term care (LTC) services for a growing number of older people with disabilities or chronic illnesses. A key challenge for policy-makers in all countries is to find a comprehensive solution to financing LTC services to make them widely accessible, affordable, and equitable for all in need. In this commentary, we make a case for LTC policy-makers and reformers across countries to take a long-term vision toward establishing a public, mandatory social insurance model of LTC financing. We first take a hard look at the LTC financing problems and the limitations of existing financing options. We then argue for a public social insurance approach to LTC financing and offer insights into several top-level insurance design features that are key to successful implementation of a public social insurance model, building on the experiences and lessons learned from Japan and other countries that have already "gotten there." We conclude with additional thoughts on the future of public LTC insurance in a global context, including the prospect of spreading this model to middle-income countries.


2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 851-851
Author(s):  
P. Brennan ◽  
S. Lemke ◽  
K. Schutte ◽  
S. SooHoo

Sign in / Sign up

Export Citation Format

Share Document